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-   -   Off topic - Facebook friends! (https://www.neurotalk.org/myasthenia-gravis/103394-topic-facebook-friends.html)

erinhermes 09-19-2009 03:07 PM

Off topic - Facebook friends!
 
Hello all! I KNOW quite a few of us are on Facebook and was wondering if any of you would like to be Facebook friends?:D

If you are interested @ all, PM me your info so I can look you up. My info is Erin Hermes - San Antonio Texas and I am holding my niece Lilli in the picture. I look NOTHING like I do now, so don''t be surprised!:D

Also, someone should look into Discovery Health about our disease - maybe Annie? No one knows about it b/c there is no info out there! I would do it, but I'd sound like an idiot! Maybe, just maybe it could spread awareness! Empathy! Resources!

Hope this finds all of you strong and happy!

love,
Erin:D





erinhermes 09-19-2009 03:46 PM

Forgot something
 
I've been told that it is easier to find people on Facebook via email so here is my info::D

erinhermes@hotmail.com









DesertFlower 09-19-2009 03:55 PM

Erin, I will look for you on facebook.

bluesky 09-19-2009 07:46 PM

Facebook
 
Hi Erin!

I've requested you as a friend. :)

I would love to have more mg friends. It's so easy to feel isolated. I'm a little paranoid about putting my last name on this message board because I'm desperate for a job (of course I've got to get better first) and I'm scared to have my name associated with a disease like this. But if any one else is brave enough to put their facebook info out there, I'd love to be friends. Or pm me and I'll send you my info.

Ally

JCPA 09-19-2009 08:21 PM

Erin
I sent you a private message with my name. I will send you a friend invite!

rach73 09-20-2009 02:04 AM

hi Erin
 
Ive just found you and requested you as a friend!

Love
Rach

Joanmarie63 09-20-2009 10:44 AM

Hey all, feel free to add me.. Email, stormchaser1963@aol.com or look me up on facebook... Joan Trivette

DesertFlower 09-20-2009 04:58 PM

Joan, I sent a friend request to you on facebook.

scarpettafan 09-21-2009 03:59 PM

Erin and Joan;

I've requested to be friends with both of you on Facebook.

You all can find me at slwhitehead@juno.com.

Shannon

Nicknerd 09-21-2009 06:11 PM

Hey guys,

You can add me too...Don't mind some of the pictures I have posted up...My sister posted some crazy pictures of me acting goofy when I was a kid...lol...I'm not insane, I swear...Well, maybe a bit ;)lol

rezmommy 09-21-2009 06:24 PM

Hi everyone,
Add me as a friend if you like, melanieburning@AOL.com. I love FB.

ConnieS 09-25-2009 01:35 AM

add me!
 
Mine's sunhuiyi@gmail.com. Lol. Cap and pink top in the photo. I tried adding some of you but couldn't so please add me.

Erin, Shannon, Joan, I've successfully requested to be ur friends. Lol..

Thanks Erin, for starting this!

Brennan068 09-26-2009 05:23 PM

I'm brian.robichaud@hotmail.com ... feel free to FB friend me :)

TxSimon 09-26-2009 06:17 PM

Mine is simondesoto@yahoo.com for anyone who wants to facebook me also.

SharS 09-27-2009 04:11 PM

I'm sharman.sherfey@gmail.com. Please feel free to add me. I'll look all these, too.


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