RSD Doctors in NY
 

Can anyone help me find an RSD doctor in NY?


I have had RSD since I was 15. I am now 18. Ive had many treatments, most more than once.
Its nice to have others on this forum to speak to. Everyone I talk to has never even heard of this disease.

On the 17th I will be starting my first day of college classes, and Im nervous that Im going to be missing classes due to treatments.


Also out of curiousity, has anyone ever gone to Germany for the 'ketamine coma' treatment?

Any responses/answers would be greatly appreciated

Thank you,
Emily

Hi Emily,

Where abouts in NY are you?? I have a great Doc that is in Syracuse NY and would gladly give you his name!! Let me know!!

:o) Amber

dr in ny
 

hi emily! where in ny do you live?
i have a doc iv'e been seeing for 13 years now.he's good,but a bit conservative.
let me know.
debbie

Doctor in New York
 

I am going to see a new doctor next week, I am in Western New York. This doctor is supposed to be the cats meow when it comes to alternative treatments. I am unsure at this point, and his qualifications for RSD treatment. He is a neurologist, though. I will let you know how it all turns out.

dOCTOR IN sYRACUSE???
 

I saw your post on a doctor in syracuse. I am in need of a GOOD neurologist
that specializes in RSD.
I had a diagnosis earlier by a physical doctor and have been suffering for over 8 years-can not take it anymore!
Need a good doc to maybe get better treatment than I am getting at the pain clinic.
Can you forward me the name?
Thanks so much

I am sorry, I can't help you find a doctor in New York as I live in the UK.
I just wanted to introduce myself:
My name is Alison, I am 12 years old (nearly 13) and I suffer from RSD in my left leg and right arm. I first developed RSD in my leg on the 16th March 2007 after an ankle sprain, I was diagnosed with RSD/CRPS type 1 4 months later. I was later prescribed "Amitriptyline" to try and help me sleep, but I suffered from a nasty side effect of "blurred vision", this resulted in a knock to my right arm ... I was diagnosed with RSD 2 weeks later. The RSD in my arm as been in remission but the RSD keeps flaring up.
I am currently off school (I can't go due to pain and mobility issues), but I am starting home and online tuition in the near future.

I have not had the ketamine coma treatment, but I know of some people who have had it.
I hope these website helps you:
http://www.webmd.com/video/ketamine-chronic-pain
http://www.mapinc.org/tlcnews/v05/n1371/a03.htm?158
http://www.reachforrecovery.net/ketamine.html

If you need anything just ask. I will be happy to help you, If I can
Take care

Doc in Syracuse
 

Hi Amber! I am looking for a doc in Syracuse to treat my RSD, and saw your earlier post. Can you PLEASE let me know the name of your doc? I would be sooooo grateful, thank you!!!!

I hope you're all recovered now and doing great.

Susan

Doctor in NY
 

I havent posted in a long long time, but i caught this one. I am in Western New York and i can let you know my doctor he is wonderful and is very knowledgeable about rsd. Just let me know.

Jo

Also need a good neurologist in upstate NY for RSD. Have not had luck finding one at Strong Memorial/ University of Rochester Medical Center.

Hey everyone.. sorry took me so long to get back.. havent really be on much.. its just been freekin nuts here..

My docs name is Dr. James Kowalczyk. and he is on erie blvd in syracuse and number is 13153715888. He did both my PNS and SCS and has done everything and willing to try anything and listens too!!

:o)

Hi my pain managment doctor i see now is dr waghamare i used to do to dr gossey of whom i was not happy with as a pm but as a neurologist i liked him. With dr Wags as i call him he spends alot of time with you, hes conservative likes to try alternative methods he has spoken here in buffalo at an rsd support group so hes pretty up to date on new treatments etc. He also has cold laser therapy another alternative and teaches on the scs. I just love him i switched to him six months ago, after my other pm didnt do a thing for me. I am currently not on pain meds. I use a tens unit of which no one else offered me. I havent heard anyone that wasnt satisfied with him. Heres the link to his office with other info as well. What i like the most is i see him and not an assistant. He spent about 45 minutes with me on my first appointment.

He has a couple locations
I cannot post links my post count isnt high.





Hopes this helps those who are looking in The buffalo western new york area.

Hi i don't know if people are still looking for a good RSD doc in NYC but if so i might know someone. Annie

Dr Waghamare in upstate NY
 

[QUOTE=Jodee;362859]Hi my pain managment doctor i see now is dr waghamare i used to do to dr gossey of whom i was not happy with as a pm but as a neurologist i liked him. With dr Wags as i call him he spends alot of time with you, hes conservative likes to try alternative methods he has spoken here in buffalo at an rsd support group so hes pretty up to date on new treatments etc. QUOTE]

Thanks so much for recommending Dr Wags! I took my friend S (almost full body RSD; failed SCS & everything else) last week to see him. He is SO different from other docs! He was obviously willing to be an advocate for the patient, believed everything she said, didn't make her go through her whole history of symptoms and treatments (22 years worth, it would've taken the whole appointment). I told him we'd looked in Rochester NY and he just snorted and said, well! you won't find anyone in Rochester! willing to try new treatments.

So, now we can recommend him too! Thanks again.

Hi Jodee,

Welcome to our groupl I'm sorry you have RSD. I had it for 4 years before I went to a new Dr. that diagnosed me on the spot. He also got me started in PT and a Tens Unit. for my left hand. My hand is not sensitive to touch anymore, but only got partial use of fingers, about half and that was 8 years ago.

I have a question, what is cold laser? and how does it work for RSD? Did you have it, and how was it.?

What I'm looking into right now and going to ask my Dr. about tomorrow is HBOT. Hyberbaric Oxygen Treatment. What I understand is, the reason we have the bluish, purple, red hands and feet is lack of oxygen to those areas. arms, legs, etc. This treatment that they use for deep sea divers, helps deliver oxygen thru the blood thru this pressure chamber. I'm just starting to do research on this. There are at least two people on this forum that have portable units at their home and gives them their life back. pain wise. Diana A and I forget the other lady. I did a google search on HBOT, shows a picture of it and lists RSD as a use of treatment. There is a Doc in Florida that does these treatments for RSD. I think Diana went to Canada for treatment and then bought her own.

Any, keep in touch, and I'm sure the others are grateful to know a name in your part of New York. Take care. Loretta

Hi Jodee! I know this post is old but thought I would try and reply. I also live in Buffalo,NY and I also see Dr. Waghmere. I have RSD and have been looking for people to connect with especially in the Buffalo area.

Hope your doing well

Jen

NY MD with Ketamine?
 

Do any of you with a good doc in west NY know if anyone does initial Ketamine infusions there? I'm in west PA and would be willing to travel. Please, Please Please let me know!!:smileypray:

I don't know off hand of a good doc in western ny who does ketamine infusions. I am only beginning to seek alternative treatments for my rsd as well as seeking out a 2nd opinion with a different pm. Is it yourself that has rsd or a loved one and if so where? Good Luck!

Hi - we've been looking and had no luck with drs to do initial ketamine. Don't even bother with Strong/University of Rochester Medical Center. Dr Wags agreed to do the boosters but said none of the Buffalo hospitals would agree to initial ketamine (at least the high-dose type that Schwartzmann does/did).

Would love to find somebody in Western NY! Maybe we can start a petition to the NY Academy of Medicine. Looks like we'll have to travel & stay in New Jersey to get treatment... :(

Hi - would he be willing to do ketamine treatments?

Havnent been hear for a bit
 

Hi everyone i havent had a chance to post back here. Im glad for the people who saw dr wags, hes wonderful. As far as ketamine im not sure. For anyone that doesnt know there is a support group here in buffalo for people with crps/rsd

Jolene

Doctors in NYC
 

Hi Annielee,

I would be interested in the doctors in NYC that you are aware of. I would appreciate it.

Thank you

Gabbycakes

RSD Reccomendation in NYC
 

I have a young nephew 13 yrs of age who has contracted RSD after surgery procedure on his feet. I am researching a specialist in NYC. If you can reccomend someone I would appreciate it. thank you

Sonny

Hospital for Special Surgery - there are a few doctors. 212-606-1015
St. Luke's/Roosevelt - Dr. Ronny Hertz 212-523-6367

Also see the RSDSA.org website. There may be a link for more info.

holy moly..I to am in Buffalo NY. I saw dr. wags a few years ago who di sympathetic nerve blocks for my CRPS. He was wonderful, The blocks had no effect on me. He was very dissapointed and saddened that it didn't work on me. He referred me to Dr Gosy who has his own pain management center on Youngs rd. He originaly came from Dent Neurological Institute on sheridan dr, He has always been good to me I have no complaints. He treats me with a variety of Pain meds and depression. Dr wags is also an anisthesiologist and was there for me when I had to have emergency appadectomy. (me appendix exploded perforating me colon). At one time he suggested to me that I go to Cleveland clinic for treatment but, now he offers some of the same procedures. He has a great sense of humor also. He made me laugh during the nerve blocks. I use a tens unit along with therapy in my hot tub and pain meds prescribed by dr. Gosy. I did some reasearch with the state medical board on Dr. Gosy's background and it is quite impressine to say the least. Dr Wags told me there was not anyhting more he could do for me. Ihave an appointment this month with Gosy to ask about the pain pump, I'm interested in seeing what he has to say. I know of a support group for patients like us that meets once a month at a church. I don't go because I get depressed when i hear a lot of others who are in so much pain.
I ho[pe you have great luck and a good outcome with your treatment. thanks for your post. I found it and was happy to see that someone from the forum is near me. mellowguy

rsd doctor
 

Looking for a good rsd doctor in Long Island;)

Hi Emily,
Nice to meet you. I am so sorry you are going through this monster at such a young age. I feel bad. I was thinking maybe if you cannot physically go to college that maybe you could take courses online. I did it for a few years to University of Phoenix. It was great for me as my son was a teen and I did not want to leave him at night. I had one class to go for my Bachelors Degree and this mess happened. I did finish it with a long leave of absence but going online was great a bit expensive for me but worth it since after 20 years of trying to get my degree I got it!!!!!!!!!! Also, where in NY are you looking for a doc because I am planning on moving to Binghamton, NY within the next six months and need a good RSD neurologist doc too. Best of luck with college. Hang in there you will get it done.
take care,
kathy d

In Syosset, NY (Nassau County) Northshore Hospital 516-496-6506 is included on the RSDSA's latest ketamine doctor's list.

No doc is listed. Good luck, XOXO Sandy

Recently diagnosised with RSD in need of dr
 

Hi, I know this is an older post. I have been recently diagnosed with RSD. I live on Long Island and I am looking for a doctor who is knowledgeable on RSD. Thanks for your help.

NY Dr
 

I was diagnosed in October. I had shoulder surgery in April and the swelling and pain never went away. I don't know how you feel about going into the city but I am going to Columbia. I commute from the NY/NJ border into the city. My surgeon referred me after thinking there was some nerve related issue inspite of a negative EMG and when I went, I had my diagnosis pretty immediately along with my treatment. So far I have had 2 stellate ganglion blocks with a few hours of relief with the first one. I see Dr. Visco and Dr. Smith. I am happy with both so far. Great bedside manner!!!

rsd
 

Hello, im seeking a good RSD Dr. I been to about 20 and none understand the pain and suffer with RSD!

Annie,
I live in the NYC area. I was wondering who the Dr you are referring to is. Thanks!
Be well,
Jen

If anyone is looking for RSD treatment in the Rochester, NY area, the Pain Treatment Center at Univ of Rochester Medical Center now does outpatient Ketamine treatments. The nurses there are the most compassionate and caring that we have ever met. If you are interested in Ketamine specifically, you will need to see Dr. Raj Bala Thakur.