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alandale815 10-19-2009 06:38 PM
Burning Mouth Syndrome
 
I am a 62 years old female, as of 11/28/09. I got dentures, in Mexico, about 4 years ago. After that I started to have a burning in my lips. It has gotten much worse. I use a mixture of Maalox, Lidocaine and Diphendryl, prescribed by a dentist, in my mouth to deaden the burning, but it really doesn't help, but that is all I have. I do not take hormones, because my Mother had Breast Cancer. I have tried supplements, my doctor treated me for mouth funges, herpes, infection and I even tried anti-depressents. I have also had a blood workup and it shows nothing. Sometimes I show a redness in my lips, but usually nothing. All to no avail. If I didn't have a Catholic faith and the love of my Husband, I would have gone crazy by now. I am going to see the doctor on Wednesday and I am going to discuss it with him, again. Is there anyone out there who can help me. I have been all over the internet several times. Does anyone else have this and can they make any suggestions to help me, please? I need a sad face here.

ewizabeth 10-19-2009 06:57 PM
Welcome to NT! :)

I'm sorry for the symptoms you're having and I hope someone will see your post and recognize it as something they've been through. We have a forum for dentistry discussion and support at the following link:

http://neurotalk.psychcentral.com/forum89.html


I hope you'll get some answers and meet some new friends in the process. Feel better soon. :hug:

billie 10-19-2009 09:12 PM
No Alanda, I don't have that particular symptom, but I am quite familiar with the difficulties of adjusting to dentures. Maybe there is something wrong with the fit. Can you return to the dentist who made them or go to another one for an opionion? Are you cleaning your dentures with something that you might be allergic to? Do you dentures themselves hurt you in any way or fit improperly? It kind of sounds like an allergic reaction to something, but I would discuss it with a dentist, preferably the one who made the teeth. Sorry I could not be more helpful. Did you post on the dental board? billie

Bryanna 10-19-2009 10:33 PM
Hi alandale,

I'm sorry you are having such discomfort. Burning mouth syndrome can be extremely uncomfortable. Hope you don't mind a few questions.......

What product are you using to clean the dentures with?
Do you leave your dentures out at night?
What else are you rinsing your mouth with besides what the doctor prescribed?
Are you menopausal or post menopausal?

All oral products that contain alcohol and/or sodium lauryl sufate are irritating to the oral tissue and should not be used. Many people are very sensitive or allergic to these things and will develop a burning sensation in their mouths. A good alternative is herbal based, non alcohol, non preservative, oral products because they are less likely to cause an allergic reaction. Another ingredient that is found in many oral products that people are sensitive to is called Triclosan. This is a presevative that acts as an antibacterial agent and it's found in many soaps, deodorants, toothpastes, etc. In our office, we see many people with reactions to this ingredient when they use colgate total toothpaste. Once they stop using it, the burning sensation goes away.

With regard to hormones........ it is not unusual for a middle aged women to experience burning mouth symptoms. An imbalance in hormones can certainly cause all sorts of things to occur anywhere in the body. Have you done any reading on on Bio Identical hormone replacement? We use to be told that a family history of breast cancer meant that we had to avoid taking hormones. But the new information which includes Bio Identical hormones tells us that is not the case anymore. If you are interested in reading about it, I can find some links for you.......?

Something else that may help topically with the pain in your mouth is a product called Xylitol. You can do a google search on it. It is very healing to the oral tissues and even reduces the likelihood of a fungus infection which are common in people who wear dentures.

Hope to be helpful to you...... look forward to you reply..........

Bryanna



Quote:
Originally Posted by alandale815 (Post 580074)
I am a 62 years old female, as of 11/28/09. I got dentures, in Mexico, about 4 years ago. After that I started to have a burning in my lips. It has gotten much worse. I use a mixture of Maalox, Lidocaine and Diphendryl, prescribed by a dentist, in my mouth to deaden the burning, but it really doesn't help, but that is all I have. I do not take hormones, because my Mother had Breast Cancer. I have tried supplements, my doctor treated me for mouth funges, herpes, infection and I even tried anti-depressents. I have also had a blood workup and it shows nothing. Sometimes I show a redness in my lips, but usually nothing. All to no avail. If I didn't have a Catholic faith and the love of my Husband, I would have gone crazy by now. I am going to see the doctor on Wednesday and I am going to discuss it with him, again. Is there anyone out there who can help me. I have been all over the internet several times. Does anyone else have this and can they make any suggestions to help me, please? I need a sad face here.

mrsD 10-23-2009 02:22 PM
I'll second that Triclosan advice! There are studies to show this ingredient can be very irritating!

I am going to link this thread to a current one we have on PN:
http://neurotalk.psychcentral.com/sh...742#post581742

I would also like to direct this question to Bryanna:
What do you think of the new Hall's lozenge with isomalt in it?
Do you think this is helpful, like xylitol is?

(Broken Wings) 10-23-2009 03:32 PM
Thanks for all the dental info
 
You're probably right about the allergic reaction to something. Couldn't she do allergy testing to find out, blood or skin?



Quote:
Originally Posted by Bryanna (Post 580183)
Hi alandale,

I'm sorry you are having such discomfort. Burning mouth syndrome can be extremely uncomfortable. Hope you don't mind a few questions.......

What product are you using to clean the dentures with?
Do you leave your dentures out at night?
What else are you rinsing your mouth with besides what the doctor prescribed?
Are you menopausal or post menopausal?

All oral products that contain alcohol and/or sodium lauryl sufate are irritating to the oral tissue and should not be used. Many people are very sensitive or allergic to these things and will develop a burning sensation in their mouths. A good alternative is herbal based, non alcohol, non preservative, oral products because they are less likely to cause an allergic reaction. Another ingredient that is found in many oral products that people are sensitive to is called Triclosan. This is a presevative that acts as an antibacterial agent and it's found in many soaps, deodorants, toothpastes, etc. In our office, we see many people with reactions to this ingredient when they use colgate total toothpaste. Once they stop using it, the burning sensation goes away.

With regard to hormones........ it is not unusual for a middle aged women to experience burning mouth symptoms. An imbalance in hormones can certainly cause all sorts of things to occur anywhere in the body. Have you done any reading on on Bio Identical hormone replacement? We use to be told that a family history of breast cancer meant that we had to avoid taking hormones. But the new information which includes Bio Identical hormones tells us that is not the case anymore. If you are interested in reading about it, I can find some links for you.......?

Something else that may help topically with the pain in your mouth is a product called Xylitol. You can do a google search on it. It is very healing to the oral tissues and even reduces the likelihood of a fungus infection which are common in people who wear dentures.

Hope to be helpful to you...... look forward to you reply..........

Bryanna

Darlene 10-24-2009 12:52 AM
Welcome to NeuroTalk. Great to see you have come to be with our loving group. There are a number of friends will to assist as we can. Just let us know how we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene:hug:

alandale815 10-26-2009 01:32 PM
Quote:
Originally Posted by Bryanna (Post 580183)
Hi alandale,

I'm sorry you are having such discomfort. Burning mouth syndrome can be extremely uncomfortable. Hope you don't mind a few questions.......

What product are you using to clean the dentures with?
Do you leave your dentures out at night?
What else are you rinsing your mouth with besides what the doctor prescribed?
Are you menopausal or post menopausal?

All oral products that contain alcohol and/or sodium lauryl sufate are irritating to the oral tissue and should not be used. Many people are very sensitive or allergic to these things and will develop a burning sensation in their mouths. A good alternative is herbal based, non alcohol, non preservative, oral products because they are less likely to cause an allergic reaction. Another ingredient that is found in many oral products that people are sensitive to is called Triclosan. This is a presevative that acts as an antibacterial agent and it's found in many soaps, deodorants, toothpastes, etc. In our office, we see many people with reactions to this ingredient when they use colgate total toothpaste. Once they stop using it, the burning sensation goes away.

With regard to hormones........ it is not unusual for a middle aged women to experience burning mouth symptoms. An imbalance in hormones can certainly cause all sorts of things to occur anywhere in the body. Have you done any reading on on Bio Identical hormone replacement? We use to be told that a family history of breast cancer meant that we had to avoid taking hormones. But the new information which includes Bio Identical hormones tells us that is not the case anymore. If you are interested in reading about it, I can find some links for you.......?

Something else that may help topically with the pain in your mouth is a product called Xylitol. You can do a google search on it. It is very healing to the oral tissues and even reduces the likelihood of a fungus infection which are common in people who wear dentures.

Hope to be helpful to you...... look forward to you reply..........

Bryanna
Dear Bryanna:

Thanks for you reply.

I have been tested for fungus of the mouth and I don't have that.

I also experience discomfort in my left cheek when I have the burning lips. I find that a Darvocet takes the cheek problem away.

I was prescribed Gabapantin, but it affected my vision so I had to stop taking it, but that did help my burning. I am waiting to hear from my doctor with another medication.

I also heard from "Angelonely", on this website, who takes Lyrica, but that has given her some bad side effects. (I am trying to figure out how to give her the information that you have given me)

I will mention the Bio Indentical Hormones to my medical provider when I hear from them.

Thanks again,

Dale

(Broken Wings) 10-26-2009 03:01 PM
hi, dale

yes that was great info. i copied the address and took it to Angel's ?? private message.

here is a link to angel http://neurotalk.psychcentral.com/me...#vmessage29519

later
(Broken Wings)

Quote:
Originally Posted by alandale815 (Post 582794)
Dear Bryanna:

Thanks for you reply.

I have been tested for fungus of the mouth and I don't have that.

I also experience discomfort in my left cheek when I have the burning lips. I find that a Darvocet takes the cheek problem away.

I was prescribed Gabapantin, but it affected my vision so I had to stop taking it, but that did help my burning. I am waiting to hear from my doctor with another medication.

I also heard from "Angelonely", on this website, who takes Lyrica, but that has given her some bad side effects. (I am trying to figure out how to give her the information that you have given me)

I will mention the Bio Indentical Hormones to my medical provider when I hear from them.

Thanks again,

Dale

alandale815 10-26-2009 05:15 PM
Quote:
Originally Posted by alandale815 (Post 582794)
Dear Bryanna:

Thanks for you reply.

I have been tested for fungus of the mouth and I don't have that.

I also experience discomfort in my left cheek when I have the burning lips. I find that a Darvocet takes the cheek problem away.

I was prescribed Gabapantin, but it affected my vision so I had to stop taking it, but that did help my burning. I am waiting to hear from my doctor with another medication.

I also heard from "Angelonely", on this website, who takes Lyrica, but that has given her some bad side effects. (I am trying to figure out how to give her the information that you have given me)

I will mention the Bio Indentical Hormones to my medical provider when I hear from them.

Thanks again,

Dale
Dear Bryanna:

I didn't answer all your questions, so here they are:

We use Walmart Denture Cleaner at night for only 20-30 minutes then the dentures stay in water overnight.

I don't use anything else to rinse my mouth, except I use Biotene tooth paste on m gums twice per day with a soft tooth brush.

I am also post menopausal.

Thanks again,

Dale

mrsD 11-12-2009 06:37 AM
Burning mouth and hypothyroidism:
 
I just found this link today, while searching for something else.

http://www.ncbi.nlm.nih.gov/pubmed/1...m&ordinalpos=1

Quote:
Oral Surg Oral Med Oral Pathol Oral Radiol Endod. 2008 Jan;105(1):e22-7.
Burning mouth syndrome and burning mouth in hypothyroidism: proposal for a diagnostic and therapeutic protocol.

Femiano F, Lanza A, Buonaiuto C, Gombos F, Nunziata M, Cuccurullo L, Cirillo N.

Stomatology Department, University of Medicine and Surgery, Naples, Italy. femiano@libero.it

BACKGROUND: Burning mouth syndrome (BMS) is a common disorder frequently affecting women past the 5th decade of age. It is characterized by oral burning, mainly involving the tongue, lip, and anterior palate, but without oral lesions or alteration showing in blood tests and/or instrumental findings. OBJECTIVE: We proposed to exclude alterations due to thyroid function and echographic abnormality in formulating BMS diagnosis. The aim of this study was to propose a blood and instrumental protocol including thyroid function and echography to obtain a correct BMS diagnosis. In the absence of such an assessment, a number of patients with oral burning and hypothyroidism may erroneously be considered BMS patients. STUDY DESIGN: For this study, a group of 123 patients initially diagnosed with BMS was selected, following use of the current preliminary diagnostic protocol for BMS (study group). A further 123 patients with dental problems and without oral burning were selected as a control group. All patients were submitted to further protocol based on a study of their thyroid function and echography. RESULTS: Thirteen control patients showed some thyroid alteration compared with 85 patients of the study group. In relation to these further examinations, a therapeutic protocol based on use of thyroxine, lipoic acid, or clonazepam was applied for patients belonging to the study group. Fifty-eight patients (47%) showed hypothyroidism and were treated with thyroxine, and 37 (64%) of these showed a positive response (VAS 1 and 0). Twenty-seven patients (22%) evinced euthyroidism with an inhomogeneous parenchyma thyroid echographic pattern. These were treated with lipoic acid, and 23 (85%) of them responded positively (VAS 1 and 0). Thirty-eight patients (31%) showed euthyroidism and no echographic alteration. Only these were considered to be true BMS patients and were treated with lipoic acid. Only 10 (26%) of these patients responded positively (VAS 1 and 0). CONCLUSIONS: This study reveals that subjects with thyroid alterations are often considered to be BMS patients and that hypothyroidism could be responsible for oral burning and/or dysgeusia in some supertaster subjects. For these reasons, we propose that the study of thyroid function be inserted in the diagnostic process for BMS patients.

PMID: 18155597 [PubMed - indexed for MEDLINE]
This study suggests that lipoic acid may help some patients, as well as correcting any hidden low thyroid functioning.

kristina1998 01-27-2011 05:26 PM
Help
 
Anyone have a trick for burning outer lips???help!!! Plus anyone try lyrica and what dose seemed to help, if it did. Thanks, new to this and scared!!!!! Need some lip relief.....gum does not work for that!

kristina1998 02-02-2011 11:05 PM
Hi Tina from Ut...BMS

Pamela Hoffman 06-23-2011 10:28 PM
burning tongue
 
Thanks for the info. My cat does the same thing at my computer.

EMPATH64 03-12-2012 12:40 PM
Bms
 
Im so sorry to hear this, I have this same got dentures 6 months ago,I cry all the time cant hardly eat. Im so depreesed but I try keeping a sense of humor ,it so darn difficult. Im in ca, and would love to talk to you** Thanks hugs

dmplaura 09-02-2012 09:22 PM
Happened upon a link to this thread while reading another thread, go figure!

As you can see from my signature, I've had BMS since 2007. I blame my Multiple Sclerosis for my case of BMS, as do the neurologists/GPs I've seen.

Low dose klonopin (.25mg 3 times daily) and chewing peppermint gum seems to keep mine 'in check'.

Nice to know there's others out there who can relate. I've met a few M.S. folks on NeuroTalk on the M.S. forum who also have had BMS for some time now.

Love and :grouphug: Laura


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