My head is spinning...................
 

Ok so I talked to the nurse today and she said the radiology report say no c-spine lesions but one brain lesion. So I had to send the 2007 MRI films to them so they can compare just to see if I have a lesion in a different area now.

Here is what my 2007 said.
"Abnormal right optic nerve demonstrating enhancement without mass lesion along its intraorbital segment. Imaging findings compatible with On. Additional note is made of a a small nonspecific area of increased signal associated enhancement in the right posterior frontal sub cortical white matter. this may represent a concomitant area of active inflammatory disease such as that may be seen with acute demyelination. Clinical and MRI follow up is suggested."

I was diagnosed by a different MS doctor based on the MRI above and clinical signs in my neuro exam.

On Friday my new MS doctor told me he thinks I am in the 5% of people with MS who have very few lesions. He said my neuro exams are positive for definite MS.

No c-spine lesions is a huge relief!! My MRI on Friday had a lesion in my brain but of course it is not in the "typical" place for an MS lesion.

This is crazy. The doctor said he would dx me even if the MRI showed nothing because of my neuro exam but I am still stressed! However my MRI in 2007 and MRI on Friday were not clean.
LA

Don't be confused, LA, your MRI did show mild demylination, so you most likely have MS. Be thankful for a mild case, so far. I pray it stays that way forever..

Many Good Wishes. :hug:

Hi Sally,
Thank you. The doctor told me he thinks I have PPMS because of the way I have progressed over the past two years without a relapse and remit. He said he feels I am one of those with very few lesions.

Then I found out today it is my brain rather than my spine. I wish they would make up their minds and stick to something. :rolleyes:

My lesions are also atypical. Mine are mostly subcortical, too. I do have more than one, though. I don't have an official count, the neuro just says "a bunch of them". My neuro says it is atypical MS, or CNS Demyelinating Disease, but won't go with an official dx or prescribe a DMD. He lets me have IVSM when I am not doing well and gets me the sx drugs I need.

One neuro suggested to me that this is PPMS because my lesions are smaller and in atypical places. He said that was more common in PPMS. It sounds like you have a very good neuro.

Hi Holly thank you. I think I have a good neuro too. He does think it is PPMS. He is asking for all of my previous films to compare.

He did not dx me so he is trying to get up to speed on my situation. I know this MRI report does show progress and I have not even heard from the doctor yet.

My last MRI showed nothing in the periventricular area but this one does although the areas are not exactly MS shaped.

I have been on DMD's for about 18 months now. I have such pressure behind my eyes. When I started the
DMD that pressure went away. I was off DMD's for 2 months to change to another and that horrible eye pressure came back. So the DMD's are doing something for me.

Thank you for posting. Some of us are odd balls! ;)

I was diagnosed with a clear MRI, 2 clear and separate relapses, and my spinal tap was positive. You're not the only "different" one! :p

Sls - I'm just glad you're neuro is competant enough to be able to dx you based on that - which really should be enough. After all, they used to have to do it without an MRI.

:rolleyes:

Now, I'd guess a doc like that will also be competant and confident enough to treat you well.

:)

Most of the neuros I've seen don't even know what a tyipcal lesion is. Mine are oblong and in the periventricular region - around a dozen of them. 3 prior neuros said these were not typical - and none of them could even agree where they were or how many.

And they wonder why I'm confused?

And after my neuro exam, the current doc said 95% sure it was ms. But without all the other tests confirming, no dx.

Seems to me the more technology is available, the less they rely on having to actually know anything themselves.

I am sorry you are having such a difficult time. I would be so frustrated and upset.

The ON and abnormal brain MRI is what weighed heavily in my diagnosis. On twice actually.

I am very lucky to have found this doctor. Actually my PCP recommended him.

I am in Indiana if there are any limboers in this state trying to find a decent neuro.

Is that a Pom in your picture? We have one. Three in all so far. My parents have them too.

Yes - that's Millie. She was my Christmas present, sort of. We adopted her a few days after xmas last year, just shy of 9 yrs at the time. Gosh I love that dog! We adopted her *sister* Holly just before xmas, and Mills needed a home.

Holly is also 9, but thin, blond, looks like a puppy. Really friendly. While Mills was 17 lbs, had just had surgery (6 in incision on shoulder, half her fur shaved off) and half her teeth had to be removed due to dental disease.

Also on her record, said she could not walk on leash, NO kids or other pets, will not groom or ride in car, etc, etc.

Looked awful, bad rep.

So the rescue could not find anyone who would take her, and hated separating from holly after all their lives together. Asked me if I could, ???possibly??? deal with 4 dogs???
:D

I asked dh and how could he say no to that mug?

I told my mom "I got a fur coat for Christmas!" then showed her my dog. LOL. Actually, Millie is a very good girl for me - even nice to the little 3yr old kids that come over. Never had a problem with her.

Fur grew back, too.


I have another also, Ozzy, a black one. They are about addictive, aren't they? Can't have just one!

The fourth dog is a papillion - and I can walk them all at one time.

Awww! They ARE addictive! I want another one! My Mickey is a fat litte ball of fluff. These does are so sweet. We have had poms around with 7 children and now 2 grand daughters. Ours have been very kid friendly but we have gotten them all as puppy's.
We just got done paying for a wedding. Maybe when we get out of the hole and money saved up my husband will agree to another one. :D

Ozzy is the only one we got as a pup - from a rescue in Indiana. I cannot believe he was dumped at a shelter! He was smaller than a soda can when we adopted him at 9 wks old in '05.

We drove 2.5 hrs to see him.

Then the papillon, he was 2, got him in '06 - Rudy.

That's the nice thing about tiny dogs, there's always room for one more.

:)

I will probably be looking for a big dog for protection though - don't tell Ozzy, he thinks that's his job.

;)

The girls needed a home when their owner developed alzhiemer's and couldn't care for them anymore. Good thing about older dogs, they are potty trained and know all the house rules. For a low adoption fee, you get a *move in ready* best friend. Puppies are cute, but nothing wrong with not having to potty train.

Mickey was 6 months old and out of that whiny baby stage so that was really nice. I have asked about buying one of the breeders older dogs that are done with breeding.

The lady we got Mickey from raises show dogs. And retires her dogs when they are around4-5 years old. That is not that old. I will NOT take another male dog though. Learned my lession there.
I would like to have a protection dog too but our yard is way too small for a larger dog.

I am in Indiana.

LA

Oy... Yep, Ozzy was a real something to train, and he thinks he rules. We did get him fixed, but he was so tiny we had to wait until he was 9 months for the surgery. But when Millie came, she totally took over and told him what.

Ozzy is really layed back now. Millie treats him like her baby boy now, and she never had her own pups, but she took a shine to him. He is a grumpy old man, even at his age, but he puts up with her lovin' lol.

It is funny though, how diff the boys are from the girls. I will say this though, if you get a papillon and you want a huggy lovey dog, get a male. The females tend to be less huggy than the males. Rudy is the momma's boy of the whole group.

She is adorable too! Does your pom have any trachea problems? Ours has to take daily bronchial dialator twice a day. Sometimes benadryl if he is really having a difficult time.