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-   -   Major MS breakthrough? (https://www.neurotalk.org/multiple-sclerosis/108717-major-ms-breakthrough.html)

Hockey 11-22-2009 08:46 AM

Major MS breakthrough?
 
I thought you MS folks might be interested in an article that appeared in a Toronto newspaper this morning:
Check out this Globe and Mail article "Researcher's labour of love leads to breakthrough in treating MS" at http://www.theglobeandmail.com/news/...?service=email.

For those of you who can access Canadian TV, this story is going to be featured on this afternoon's edition of W5. Check out ctv.ca for details.

Cheers

Kitty 11-22-2009 10:50 AM

Very interesting. Thanks for sharing it.

Why are researchers so adamantly against anything that doesn't fit their criteria for the disease? It certainly won't hurt to explore the possibility......and could benefit patients in more ways than just MS relief.

I wonder if the drugs heart patients take to keep blood flowing freely could help MS patients?

SallyC 11-22-2009 12:35 PM

Quote:

Originally Posted by Kitty (Post 592369)
I wonder if the drugs heart patients take to keep blood flowing freely could help MS patients?

I know that I always feel better (MS wise) when I take a couple of Aspirin (a blood thinner)!!!

dmplaura 11-22-2009 01:30 PM

Quote:

Originally Posted by Kitty (Post 592369)
Why are researchers so adamantly against anything that doesn't fit their criteria for the disease?

The almighty dollar. :(

Kitty 11-22-2009 03:04 PM

Quote:

Originally Posted by dmplaura (Post 592477)
The almighty dollar. :(

I totally agree. That's why LDN hasn't been explored any more than it has. There's no $$ in it for anyone.

NaeNae 11-22-2009 06:18 PM

I emailed the link to my neuro this morning and bless his heart he emailed me back a few minutes ago, thought it was interesting and would be a while in the testing phases to get approval in the states but then asked if I wanted to get some vascular studies done...

dmplaura 11-22-2009 06:23 PM

Quote:

Originally Posted by NaeNae (Post 592565)
I emailed the link to my neuro this morning and bless his heart he emailed me back a few minutes ago, thought it was interesting and would be a while in the testing phases to get approval in the states but then asked if I wanted to get some vascular studies done...

Woo! Go for it NaeNae and keep us posted, as soon of us won't be so fortunate with our doctors going ahead and getting us this testing. :hug:

SallyC 11-22-2009 07:54 PM

Quote:

Originally Posted by NaeNae (Post 592565)
I emailed the link to my neuro this morning and bless his heart he emailed me back a few minutes ago, thought it was interesting and would be a while in the testing phases to get approval in the states but then asked if I wanted to get some vascular studies done...


If your vascular studies show blockages in the jugular veins and/or the azygos veins, then you shouldn't have to wait for these studies to be approved, to have them unblocked!!!!!!!

Hockey 11-23-2009 06:45 AM

There is more on this research and a Q&A session at www.ctv.ca/w5

For those who may be interested, it mentions some people starting research and looking for patients for clinical studies:

"Dr. Zivadinov in Buffalo is now starting a new study, recruiting 1,600 adults and 100 children, half of them MS patients. He plans to use ultrasound and MRI scans to confirm if those with MS also have CCSVI and if their family members have the abnormalities too.

Prof. Mark Haake, a neuro-imaging scientist at McMaster University and Wayne State University in Detroit is also intrigued by Zamboni's findings...Haake too is initiating a study, asking neurological centres across North America and Europe to take some extra MRI scans of the neck and upper chest of MS patients."


I so hope there is something in this for all you wonderful people.

Cheers

Harry Z 11-23-2009 09:32 AM

Quote:

Originally Posted by SallyC (Post 592589)
If your vascular studies show blockages in the jugular veins and/or the azygos veins, then you shouldn't have to wait for these studies to be approved, to have them unblocked!!!!!!!

What's kind of amazing here is that 100% of Zamboni's 118 MS patients all had narrowing of the jugular vein and all of them showed symptom improvement after the surgery. His work could very well stand the MS world of medicine on its head!

Harry

AfterMyNap 11-24-2009 09:55 AM

I'm glad you posted this, Hockey, Shelley sent me the link the other night and I confess, I am wildly excited by the possibility of it being something so simple!

I'm seriously wondering if I can get to Roto-Rooter at my own expense, the possibility alone is worth it to me.

Jules A 11-24-2009 11:37 AM

Does anyone have any contact info? I'd like to get involved in this.

Natalie8 11-24-2009 12:27 PM

Quote:

Originally Posted by Jules A (Post 593233)
Does anyone have any contact info? I'd like to get involved in this.

Stanford University School Of Medicine
Department of Cardiothorasic Surgery
Falk Cardiovascular Research Center
300 Pastuer Drive
Stanford, California 94305-5407

ADuran@stanfordmed.org

Alexandra Duran Washburn
Patient Coordinator for Dr Michael Dake
o (650)725-3806
f (650) 725-3846
Office Assistant IV/ Scheduler
Stanford Hospital / Cath Angio Lab
o (650) 723-7676
f (650) 723-7446

Hockey 11-27-2009 07:19 AM

I was really pleased to hear that the Canadian MS Society is not going to drag its feet on this. Effective 1 December, extra research money is going to be made available to study Liberation Therapy.

Each year, instead of Christmas exchanging gifts, hubby and I make a donation to charity. This year our cheque is going to the MS society - along with the prayer that this really is the breakthrough that is going to change so many lives for good.

Cheers

kicker 11-27-2009 09:03 AM

I don't think it's that simple. This theory does not account for genetics, lots North, less South (geographic factors) and other things. May be a by-product but doubt answer is this simple. All surgery is dangerous, already there are deaths with shunt displacement/ movement. I'm going to see what happens. While I always have a little hope on these things, I've seen too many become nothing. I predict this will overwhelmingly effective for some, destructive or non-effective for others.


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