urodynamics testing in the morning
 

Prior to the study I am supposed to measure how much I drink and pee throughout the day....

I think my measuring cup I had to buy specifically for this study is wrong! There is no way I am retaining that much water!

Although I had no idea how much water I actually consume throughout the day! I have had cotton mouth since before this bladder thing started.

So here is the problem: Today I consumed 76 oz of fluid. according to the cup... I only released 15 oz.... This leaves 61 oz floating around in there.. which is a little over 7.6 cups! Obviously this number is wrong. I don't think wonderwoman could hold 7 cups in!

Looks like we are going in blind!

Good luck with the test...and I hope you're not correct about how much liquid you're retaining. Yikes!:eek:

How much can a bladder hold? In Ounces please, mg too scientific & medical for me to get. My water comes in OZs. I have difficulty starting, maybe I'm retaining. You're suppose to drink 8 x 8ozs a day but not keep in bladder all together I think. Time to Google bladder, I'll be back.

Told you I'd be nback - Normal bladder capacity 16-18 ounses (@500-530 ML)

leggz,

good luck with your testing.
i've had it done. it's not painful. just a lot of measuring and different positions happening.

let us know what they say.

Leggz: Good luck with your tests.

Jappy :)

That was soooooooo not fun!
And what did we learn today?? NOT A THING!!

We learned that my bladder only wants to work at full capacity, i cannot go unless there is at least 16 oz of fluid in there... and that when I do go, the majority of it is from all of my other muscles forcing it and not from the bladder iteslf emptying. And when the other muscles force it out, I am still left with a couple of ounces in there.

Yet, they cannot find anything physically wrong with the bladder itself. I follow up on the 5th. And I will most likely be taught how to self cath at that time.

She says it is looking like a nerve issue... gee, doc... ya think?

Now back to the disability people who think I ma not disabled enough to be disabled... maybe I should bring them a bag of urine to my next appointment!:mad:

Leggs, those extra Oz's you drink go out-- also with the bowel, breathing, sweat, fluids in the eyes and nose. Not all fluids you drink end out the kidney and then the bladder.

Our bodies hold some fluid for good purposes too. Fluids "In and out" do not match up. Retention is noted with Urodynamics. Do you give yourself enough time to release more fluids?

I have urgency, frequency and hesitancy, but if I offer myself to sit every two hours the retained fluid drips out, but slowly. It's spasms of the bladder doing this to me. Worse when in relapse.

I just try to work with my plumbing or I would have to self-cath and would not like to start that if I don't have to. Good luck, I found the test a bit embarrassing, but that's me.:hug:

Lady, I found the test embarrassing too. Actually it was pretty traumatic. they never told me what to expect ahead of time so I was not prepared for all the catheters and trying to pee practically standing up in some weird contraption with 2 people standing right next to me!! They also tried to do the test a second time because I couldn't go which made things so much worse.

Anyhow I was told that I had really high tone to the pelvic floor but bladder was normal--like the muscles were squeezing tight and wouldn't let go. To tomorrow I go to see a nurse to do sone kind of biofeedback thing to learn which muscles to relax. I guess it's like physical therapy for your bladder and urethra. I feel like I'm a little kid who has to learn how to pee all over again!! The doc. also said I basically have pelvic floor dysfunction--everything tightens up. It could be from MS or from psychological issues (anxiety, leftover PTSD related stuff).

They have you come for 1 hour 4 weeks in a row and said that 70% of people improve.

I couldn't go either at first. mine at least left the room. And of course your everything is tightened up when there are doctors poking and prodding and trying to tell you to go potty!

I have now had two uro's tell me that I have "impressive pelvic muscles" so I assume that is a good thing.

You know, I cannot remember tht last doctors appointment i had where I was able to leave ALL of my clothes on! except the chiro...

Congrats on your impressive Pelvic muscles. Doing your Kegels, huh? Does your neuro have you undress? I don't know if this is good or bad - on my 5th neuro, since 1st, no one touches me or neuro tests (touch nose, pin-pricks etc.) Is this because I'm PPMS or what. I'm ok with this as I am keeper of my own gate and symptoms, we (both me and Neuro) know nothing to be done, they throw me Novantrone, 4-AP, nothing helps but does anyone else have any different experience. (well, Uro. put me in a gown because............)

[QUOTE=legzzalot;604548]
We learned that my bladder only wants to work at full capacity, i cannot go unless there is at least 16 oz of fluid in there

This sounds normal/good. Is it?




She says it is looking like a nerve] issue... gee, doc... ya think?
I'm no doctor, could it be ....MS?

I actually had a pretty good (?) experience with urodynamics. A nurse specially trained in doing the test was so kind, and gentle. She explained what she was going to do, and told me when she was going to touch me, etc.
It wasn't the most comfortable procedure, but it was helpful to have someone so professional and kind.
The surgeon was the same way when he sent a camera up in the bladder to check things out. He explained what I was seeing, and showed me when the bladder walls were spasming...yep, that is an MS bladder...sigh...

Update!
 

And the results are in......

Well, I don't have a high pressure bladder, which is the good news. The bad news is, I don't have a functioning bladder either. The bladder does nto contract at all when I go, so when i go, i am relying solely on my abs/pelvic muscles.

Nothing he can do about it, doesn't think it is a crushed nerve now he thinks it is from one of the many holes in my spine, which of course we cannot fix with surgery. And he wants me to self cath at least once a week to drain it completely to try to prevent it from effecting my kidneys!

I get to go back friday to learn how to do the cath.

It's officially being diagnosed as yet another MS problem.

So sorry, sweetie:hug:
Shame on you, lazy bladder!!
Actually, it can't help it...the electric lines are down...no communication.

Hope the self-cath goes well...:hug:

i'm sorry legzz.
at least cathing is available. anything to protect the kidneys.

hang in there.

I don't wanna go!!!!:hissyfit:

Today I am scheduled for blood collection, another set of ultrasounds and I get to learn to self cath.... Something tells me this is going to be the worst doctor's appointment ever!!!!

Quit your crying and woman up! lol j/k I'd feel the same way too. I hate going for those studies and dread the day that I have to self cath. Hoping I never do.

I hope all goes well today for you. Think positive - you are taking care of it and will learn techniques that will only benefit you in the end. Let us know how it goes.:hug::hug: