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Sweating episodes
I have had CRPS for 3 years in April and lately I have been experiencing an issue with sweating. For the last month I have been experiencing sweating epsiodes where I will be fine one minute and than the next I start sweating profusely. Over the years I have experienced many night sweats (almost everynight) but this has never happened in the day time. At first I thought it was my medicine so I adjusted it but that didnt help. I use to never sweat and now it seems that these episodes are happening all the time and at the worse possible time. Does anyone else have any issues like this? I dont want to blame it on the CRPS but I'm starting to wonder if this is just something else I will have to get use too. I almost feel embarrassed to bring it up but I thought I would check with you guys before jumping to conclusions and calling my doctor. I hope everyone is having a happy holiday and please remember to not over do it on the holidays. I know i did and I paid for it dearly all last week.
Take Care, Sarah |
Hi Sarah,
Here is a personal question, how old are you??? Sandy Quote:
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Sarah, I can't help you but may I ask you? I have had RSD over a year and its in my arm and now my feet. I have recently been waking up sweating profusely(full body) but only at night. I also thought it must be meds because my Dr. recently changed them but it still happening. So you would only sweat at night too? Did you sweat all over or just the area of your RSD? I have looked it up but never have found an answer. Sorry I am no help but thanks for your info. momof4
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Oh yes, I'm in the same boat. Ppl look at me and want to know if I'm ok..and if I need a dr. Not only do I sweat the anything, but I turn beet red and will have rivers of sweat rolling down my face. I hate going out. In the winter I wear a tshirt and a hoodie when I go shopping. That way I take the hoodie off and just have the jeans and tshirt. I have also started taking one of the small ice packs that you use in lunch pails. I also carry a small pocket fan. Yes, peiple look at me funny, but I do what I have to do. My dr. has told me that it was just part of rsd. I had forgotten to ask him if the pain pump that I'm having placed Jan 19 will help it. I know the pump will not, but maybe there are meds that he can put in my cocktail that will help. I really think, as so many of us have this symptom, that it is something we have to learn to live with.
Hugs Mary |
Count me in.....
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Yes, you can count me in on the devestating sweating...I have never been a person to "sweat" nor mind the heat.... but I do go thru blocks of time ie.. months of profuse untimeable sweating...Just as I woke up from having my SCS implant put in I began sweating and at that time it lasted for a few months on and off. I asked my doctor many times if possibly it be my age... I'll tell you..I am 47 yrs. old... she said it is the RSD without a doubt.. as I had a hysterectomy years ago. Iam not having this issue of sweating at this time but I have had it come and go several times having it last for manoths at a time...Hang in there.. I know it is troublesome.. but just another bonus of having RSD. KS:grouphug: |
I think, if you have rsd, you have by definition, sweating issues. "Changes" are what seem to set it off. Change in your mood, the temperature, the wind, the humidity, the barometric pressure, your blood pressure, someone looks at you funny, someone says somethiing that annoys you, someone says something that delights you.
Anything that "changes" something that your body or, SNS, responds to, seems to set it off. It's like the odd hair / nail changes, just more instantaneous. As I'm getting more severe, I find great difficulty drying off after a shower. I hafto take a real cool shower at least at the end, to try to close up my pores, sometimes it works, sometimes no luck. I'm sure there's another prescription that can be tried, I'm just so sick of pills.... One trick I do use, is I spray myself with anti perspirant, on places where it gets bad, for me. Good luck, Pete |
Me too
Hi Sarah,
You're not alone!! I had a horrible time with sweating for a few months, especially round my head and face, but it's gone again. It seems to come and go. We're not known for our hot weather in Scotland, so I can't blame it on that. I also get the nail changes which Pete mentioned, rapid growth for a few weeks, then nothing. I don't mind that so much, I've always had short nails so it's nice to have them long for a change. Unfortunately, it's only on my RSD hand so I look a bit odd. Hope you're ok, I'm sorry that doesn't help much. Take care. :) |
Oh man! I've felt like I've been going through "the changes" for the last ten years. I cannot regulate my body temperature. I get all hot and sweaty out of nowhere. When I'm like this I can't stand being touched. Normally I love curling up with my boyfriend, and at first he used to take it personally that I didn't want to be touched. Now he knows that it has nothing to do with him, and we have a little code. If he goes to grab my hand or hug me and I am too hot, I just say "I'm icky" and he leaves me alone. And then when I cool down I make sure that I am affectionate toward him, because I really don't want his feelings hurt.
It's hard sometimes navigating a relationship with this stuff. I am just very very thankful that my boy is so kind and patient. I think it makes me be kinder to myself sometimes. Pete- I totally get the shower thing! Sometimes I have to go lay down after showering because I get so overheated and sweaty after a hot shower. Just imagine if you had really long hair and then had to go blow dry it! I usually shower at night to avoid that quandary. The blow dryer can turn me into a little inferno! Lynns |
Hiya Lynns,
I DID have long hair, ( I sent 3 pony tails to locks of love ), no more of that! Still, even with it short, I can get completely dry, and I'll get sweaty from ear to ear around the bottom of my hair. So, as soon as I get dry, I spray with anti perspirant there. (Ever see those AXE kids commercials for applying the stuff on a skateboard?) I feel like that sometimes, quick get it on while I'm dry!~ But besides that, you raised a new issue for a new thread. Dealing with Relationships, with rsd! We all have little tricks, and, need some new ones! Be well, and try to stay dry! (I just came in from 20 degree weather, and I'm sweating.) Figure? Pete |
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Again, welcome to this wonderful group of friends. Hope you find comfort and knowledge here like I did. It's been 15 years for me and full body. Take care and please stay with us. Your friend, loretta with soft hugs:grouphug: |
Hi Guys
As with so many aspects of RSD, it's reassuring to know I'm not the only one dealing with this symptom, but I wish no one else had to deal with it at all. And weirdly enough, I just opened Neurotalk to chat about this exact problem! My sweating issue is out of control. For me, it mainly affects my face, head, neck and upper body. It can happen at any time. We're in the middle of a hot Australian summer at the moment but in a way that's irrelevant as I get just as sweater when it's cold and the house is cold, than I do when it's hot. My body temperature regulator has also gone out of control in the past few months (I'm always sweating when everyone else is cold, and vice versa), and my fingernails on my RSD hand have also changed- breaking constantly (often with the top layer of the nail breaking, not always all the way through), vertical ridges down my nails, etc etc. It seems that after I hit my 9 year RSD anniversary in November this year, my body/rsd has decided to step it up and notch and take me into a whole new phase of my RSD progression. I've always been kinda relieved when I've read other RSDers talk about their sweating symptoms that I didn't have that to worry about. Now that's all changed :mad: The sweating issue has made me so cranky at my body. I can't put on make-up or do my hair without having to do it a zillion times. As soon as I apply my foundation, I sweat it off. Although I have one daughter with ringlets and two with dead straight hair, my hair is in the middle- with some parts going wavy, some straight and all of it frizzy and boofy, lol. But if I try to dry my hair with the hairdryer, I have to have a hand towel next to me to wipe the sweat from my face, hairline and neck as I go, so I may as well not bother or get in the shower again! :rolleyes: If I'm going out, I use a straightener for my hair but as soon as my hair is straight, I start sweating again and then my hair frizzes up all curly and looks crazy! I'm SO over the sweating! :o I'll ask this here but I might also start a spin-off thread so more people can answer, but can anyone recommend a good foundation (liquid or powder) that can handle a bit of sweat and not come off as soon as you put it on? I know this all sounds really vain and it's a small problem I have in the big scheme of things, but I'm in my early thirties and my medications give me really bad skin as it is, so I just want to look nice and feel good about how I look, even if my body is far from normal in other ways... that's not too much to ask, is it?! :o I've just bought a small hand-held fan (as I'm always having to wave a magazine/piece of paper in front of my face to cool me off) and that's helping, but has anyone got any other tips for dealing with the chronic sweating? And if anyone could recommend a good foundation that stays on well I would really appreciate it, I don't mind how much it costs- I'm spending a fortune on foundation now because I have to keep re-applying it all day! :rolleyes: x Kate :hug: |
A good question????
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Everyone, thank you for sharing about your experiences. My name is Sarah and I live in Chicago and I'm 27.
As for my original post: I suspected the sweating was caused by the RSD but I was not sure. Now that I know this is a problem relating to the RSD I will take everyone advice and try to mangae this issue. I have had the night sweating issue for at least the past year but this day time sweating is the pitts. Not to mention it always happens at the worse time (large family dinners, working e.g). I also have a problem with sweating when I get ready in the morning. I recently changed makeup foundations and now I use the Super Stay Makeup foundation by Mabelline. It stays on even when I have my sweating episodes. I have to say that this really sucks that the sweating is caused by the RSD as that means it is just one more thing i have to manage and one more thing that makes me feel self conscious. I'm sorry if I'm being negative but these last few weeks I have been really difficult. I guess I'm just tired of fighting this weird disease and the Holidays just seem to remind me that yet another year has gone by and during the past year all my symptoms of this disease just seem to be getting worse. Sorry, now I'm rambling and really I dont want to add any negativity to everyone elses day. In fact that is why I have not been particpating in the group lately because I just know I'm in a bad place. I hope everyone has a good Holiday. Sarah |
I don't wear much make-up - but I will spray on a tan occasionally. The best I have found for my skin, which is pretty fair, is the "Quick Tan" tanning mist by body drench. I buy it from my hairdresser. It is moderately expensive, more than some but less than the real pricey stuff. For my pale skin tone I think it looks better than any of the others that I have tried. And it doesn't sweat off (but will rub off on lighter colored clothing).
I like "tanning" better than make-up because I have become really, really pale since becoming sick, and I can spray this on my face and neck and chest to make myself look a little bit more alive. With the tan I don't really feel that I need to add any other cosmetics (not that I ever did anyway....). Good luck to you all. I wish there was a med that worked on the sweating factor...often I am freezing cold instead of sweating. Right now I am sitting with the heating pad on my wrists because my fingers are so frozen I feel like I am typing with pieces of wood. And my feet - they are just numb. XOXOX Sandy |
Sweating vs freezing...
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Sandy... Iam with you lately.. Although I have had the bouts of sweating which are pretty ugly and totally unpredictable.. but lately I have been the opposite...freezing..as with RSD..nothing is simple..one extreme to another... I got myself another pair of slippers last night and even wore em to bed! They lok a bit like gorilla feet..fury and soft..but what ever it takes..RSD has a zero sense of humor...:mad: |
In addition to all of the great advice above, you may want to talk to your doc about a TB test and see if that makes sense. Night sweats are a predominant symptom.
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The biggest help I have found is a hairdryer at walmart that blows continuous cool air. I have had rsd for 21 yrs and the sweating definitely goes in cycles and it doesn't matter if its summer or winter. Hope it down cycles for you soon.
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This not politically correct at all, but I have fallen in love with tanning beds. I swear that when I look healthier I feel a bit healthier. When the dark circles under my eyes don't stand out as much, it makes me happy. And I really do believe that the lights help my depression a bit in the winter. (Photo therapy really is an accepted treatment for seasonal affective disorder. The UV lights mimic the sun's light when there is less natural light.)
I don't go crazy with it, but it does make a difference. (I had a nightmare one night after tanning where I looked like one of the people from that show Jersey Shore- I looked like I had been attacked with brown spray paint. It has made me very cautious about how often I tan!) Lynns |
Whenever either of my wives punched me out, I found that
"Borghese" (sp) was the best foundation, which of course, was all I used, besides masquara... and sunglasses! It covered my black eyes, and stood up to some sweating....! What more could "eye" ask for? Good stuff! Macy's! (Unless it's an emergency, like I had, wait for a sale!) pete :^) |
Sarah
Ive Rsd about 1yr now, as the disease progresses one symptom during the duration was sweating,,I dont sweat too bad over my affected limbs , but id do under the arms,exspecilly if im worried, and when i do sweat [underarm] it comes with a bad odor,,really bad,, im in pretty good shape,before my accident that caused this mess, I was an active sponsored ball player. Now ive got it in both hips,,its heart wrenching not being able to play anymore,but that is Gods will for now and i must accept this. Any way about the sweating, when i played ball or was working construction,I sweated alot, but there wasnt any smell,just sweat,,Now with RSD stinch underarm comes with the sweat,and as others have commented,Its ussually when im really worried[then i sweat like a pig and fast,it immediate] and its also a precursor to a bad flare,,,,I do know that rsd does effect the vasamotors[sweating]and submotor[circulation]. Oh by the way , I do have RSD 2[causalgia-nerve entrapment] which makes everything with me excell with the disease. And I have ruled out that it was the pain meds,,i like others,switched them around and nothing help, but my most incriminating evidence that it is the rsd,,is Ive on 4 occasions have gone completly[like now] off all meds,,not even a asprin,,and I sweat just the same,,,,,,,,,much luck and hope ,peace to you all,,,,,,,,,,,,,bobber |
Thxs!!
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Happy New Year! and that you I just learned something..This goe back to my question a few threads ago...So when we are having a "progression" a flare during these times we experience these uncontrollable sweating episodes??? Did I understand you correctly??? Thxs...KS:rolleyes: |
Bobber,
I just wanted to thank you for sharing and also let you know that I really relate to the having my active life style disrupted. I used to be very active with sports, hiking, water sports, rock climbing, skiing, bike riding, and horseback riding all before the RSD and now on a good day my physical stamina is only 25% of what it used to be. I still work on my muscles but I have to do low impact and a specialized exercise program and the limited exercises are not nearly the fun of what I use to do exercise. If you don’t mind me asking, how old are you? I'm 27 so for me personally, accepting my physical limitations has been one of the hardest challenges with the RSD. In fact, as far as the limitation acceptance I still find myself going through a constant roller coaster of emotions, like one week I will go into denial again and overdo it and then because of over doing it I get really sore and then I get angry. Like I said this has been one of the hardest parts for me. As for the sweating issue that I have experienced, I get it all around my hair line but at night it’s like a full body sweat. I also go on and off my pain meds because of the tolerance issue and during this past month I adjusted the meds to see if it would make a difference and none. Something that you brought up that I found really interesting was the part of the sweats signifying a flare. I will definitely keep a running track to see if that happens with me but really not sure at this point because the episodes just seem so random. |
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Drinking lots of cool water is good. I also use a cool wash cloth on my wrists, back of neck and forhead. I wear my air in a pony tail and feel that helps more than having my hair down on my neck. Do you have extreme heat too in the summer.? I don't know what part of Australia you live in. My daughter and I are huge tennis fans and always watch the Australian Open in January. I used to read a lot on the Austrialian RSD website. I hope one of the suggestions is helpful for your make up issue. Take care, I always enjoy reading your posts and blog. Your friend, loretta with soft hugs:grouphug: |
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