RSD poem
 

How can it be that just one day
Could change my life forever
Steadily growing, burning fire
Within me, leaving never

A life so full of friends
A family who'd unite
I hope they'd always be there
To help me win this fight

What started out so positive
Slowly fell apart
School and friends just disappeared
My family broke my heart

My pain is real and constant
Although others aren't so sure
Why should I have to prove to them
This monster has no cure

I sometimes wish I had the power
To let others take my place
To become me for just one day
And see the frustration on their face

Frustration that they cannot share
In normal daily life
Why wind and rain and sunshine
Cut through them like a knife

I wish my life was just like theirs
Without the need for help
Independance regained, my life restored
Without the need for help

Chronic pain is "secret"
A condition hid away
From those who chose not to look
One I choose not to display

My pain is real, forever here
A reminder of the cost
Of fate and events conspiring
Of my independance lost

Just because I don't look ill
Because i've come this far
Remember that it hurts to not
Ask me how things are

A simple word can mean so much
More than you'll ever know
To know you care, you're always there
Though i've still so far to go.

added*
Poem
by ali12

Dear snowboarder,

What a beautiful poem.

Good job.

Thanks for sharing with us. Have you shared this with your English teacher or any other adults in your personal life yet?

You take care of yourself, try to stay warm.

XOXOX Sandy

What a beautiful poem, Jeremy...You are an incredible writer.

:hug:Sandy

I can totally relate to the writer
 

So much, in fact, I could have written it myself. Am thankful someone out there took the time and effort to do it :wink:

Hi Snowboarder,
Thank you for the heartfelt poem that comes from the wisdom you already possess in your youth...
Poetry is a universal language that can reach so many..

Keep writing and maybe even set it to music...
Stay warm during these days of winter chill...

Hope4thebest

Good work
straight from the heart, and emotionaly true,RSD seems to run a course of destruction ,IT is so hard to stay focused and to keep ones composure, It is a disease not for the weak,or it is to make the weak strong. People do not understand the constant pain with wasting away of the flesh and emotions and zeal,,Some people and Dr;s think that we have psychological problems such as bipolar to M.S They do not know or realizethat it is the constant pain and stress on an everyday level without a day off. I sometimes compare it to haveing a pit bull hanging from my hip,or my hand caught in a slamed car door,with no one to come by and help.

Just to clarify.........M.S. is not a psychological illness.

Kitty I don't he meant that M.S..is psychological. He was just making a reference. :):)

This is a beautiful poem- thank you for sharing it with us. I think I have shared my writings with maybe 2 people! Somehow that seems to be one of the most personal things.

I would just like to reiterate that a problem is a problem no matter what it is. And it doesn't make our problems any better when we compare them to something that someone else has. Bipolar disorder can cause intense suffering- it's just different from RSD. MS can cause intense suffering- it's just different from what we have. There is no better or worse. I remember one of my friends breaking an ankle and him saying "Oh man, I won't talk about this because what you have is so much worse." My response to something like this has always been, no- if something bothers you or causes you pain, then it is important.

I'd just like to put that out there. While this is a place for us to share our feelings about RSD, it doesn't make anything better to do that at the expense of others.

Lynn

Thank you so much for the beautiful poem-It made me cry-I sent it to everyone in my address book.

Thank you so much for posting this poem. It was outragiously beautiful. It hit home with me as well. I do feel like you. Keep sharing if you can and keep up the good work!

Sincerely,
Tracy

Hi everyone,

Just wanted to let you all know that this was a poem I wrote back in 2008 when things were paticularly tough. No problem with anyone posting this but would appreciate it if they could state that it isn't theirs.

Thanks.

Alison

Hi Ali, I hope all is going well for you. I didn't see where it was posted that it belonged to this person...It just says RSD poem. I don't think that it was claimed to be his. It is a beautiful poem. You did a wonderful job. You are an incredible writer honey...:) I miss seeing your posts.

:hug:Sandy

Dear Jeremy,

You, my friend have a gift. Through your pain you have found a positive creative part of you that you may have never known existed. Keep writing, continue to explore the good things that you can do. On a really bad pain day, I wild out in the kitchen. I did not know I was such an exquisite cook. Actually, my family makes jokes about my pain days because they know when they are served a five course meal that I had a bad day. I use to just lay on the couch and report to each one of them that they were on their own for dinner because I had a bad day! Then I realized my gift, and the joy it brought to the hearts of the ones I love and I challenge myself to use that gift every chance I can.

I have to take my medication, I cannot stand on my feet long so I take a lot of breaks, and my pain is really bad afterwards, however I discovered that whether I cooked or didn’t the pain was about the same and I was able to share something that I can do with my loved ones. Please keep writing, share your gift as you have, you have comforted many hearts today and nothing is forever, we are all just a part of the puzzle that hasn’t been solved yet!

God Bless, and looking forward to reading more.

Jeanie

Sorry Ali. I should have put that it was yours. I came across it one day and thought I would share it with people here. By no means was I claiming it. It is a really good poem and thats why I posted it. So If I made you mad in anyway I am sorry. I just liked it thats all.

Nonetheless, thank you both, Ali for your creative poem and Jeremy for posting it. I am new to the forum, and it really hit the heart.

Thanks

Jeanie

It does help to clarify if you are the original writer of a work or not.

It's always best to give credit to the original author.

Dear Ali -

Please forgive me for not personally writing when I came across across "why won't you understand" when I was catching up on Kate's site. Still cannot believe that you were 13 or so when you wrote that. On one hand it is so beautiful, and one the other hand I never understood how much you endured, so young.

And Jo uses some understatement in her response. I would address it in greater detail were this a situation where we all really knew one and another. (Which, by the way, makes it doubly hard to loose a friend here who you've actually spent some time with in real life.)

Mike

I do just want to add here that NeuroTalk has requirements regarding copyright, where if one copy/pastes *anything* that is not one's own writing it *has* to be with citation ie original author(s) and preferably also a link to where it was copied from. In most cases copy/pasting something in its entirety without the original author's permission is not allowed

In this case Ali has been very gracious about her work being copied here without her permission and without any acknowledgment that she is the author, but
we do also get legal letters from other authors & publications when their research, articles etc are copy/pasted without permission or citation, and recently also got a letter from a poet whose work was copy pasted onto one of our other forums, even tho credit had been given, permission to copy it was not requested.

so this is a good reminder for everyone to please abide by both legal copyright and the common courtesy of always giving correct credit for any work that is not one's own