I got the pump on Tuesday
 

Hi all,
This will be short as I'm still tender. I got the pain pump implanted and WOW...it is the most amazing thing I[ve ever had. They put the pump in my back instead of my stomach area, so my pain is all surgical in the back. I'm off all my long term pain meds. I'm taking percocet, but that is for surgery pain. I go back on Feb 2 to get staples out and maybe an increase in the dulidad. My normal pain level is at maybe a 2. back pain is about a 8 if I move too much or press on it. but of course, we know the pump doesn't work on regular pain. ANyway, just wanted you all to know that I am back and feeling like a million bucks. I wish I knew about this 4 years ago. I could have saved myslef a lot of pain and wasted time. I'm going to call my pcp in about 5 wks and tell him that I'm doing great and should be able to start work earlied then I anticipated. (I orginally told him 10 to 12 wks). Now I know it is so much bnetter. I can't tell you how great I feel. I could cry I'm so happy and feel soooo good.

Hugs
to all
Mary

Wonderful news, Mary!
I hope it continues to give you a lifetime of relief!

pete

I know the feeling of FINALLY GETTING RELIEF :) I balled like a baby after I had my first nerve block, as i couldnt move my fingers or arm for 4 months, and then after months of RSD life... I had 3 day ketamine infusions... I balled like a baby. Being 20 years old and so disabled when I finally get part of my life back, there is nothing like getting relief finally!!! I am sooooooooooo happy for you:) There arent any words to describe the gratitude!!! May you progress better and better day to day!!! :)

I'm so very happy for you Mary! This is long overdue and I wish you much peace and love.

Warmest wishes for a speedy recovery.

MsL

SO Good to hear ! :)
 

Thank you so much for the update Mary!! I KNEW this would be the right thing for you!
I know how sore your back must be, so take it real easy girl!
Don't go jumpin on no horses YET!! :rolleyes:
I am so happy for you! This made my day ! :hug:

Rae

Mary~

Fantastic news!! I am so happy for you and that you will continue to feel great...take time to allow your body to heal as to not push it and set yourself back from the surgery... Again..I am so tickled for you..you have brought sunshine to my day!! Thanks...:winky:

YEAHHHHHHHHHHHH Mary!!

XOXOX Sandy

What can I say except.............YAY!!!!!!!!!!!:yahoo:

Blessings for continual and future relief :)


:hug: Vanna

ok i'm still feeling wonderful i'm typing one handed as i am trying to behave myself. iys hard when you feel as great as i do. now my back hurts from the surgery. but not too much. the scss that i had were 1000 times more painfull then this one. i wish someom\ne had told me about this long ago. i did have to find a dr in another state, but that is because IMHO. it involves a long term commitment from the dr. not just putting something inside youm then handing you over to the company rep. my dr and i will have a very long relationship. i just want all of my friends here to think about this. and if you are like me you may have to see several drs before u find one willing to give u the compassion and caring that u deserve, don't take no for an answer

hugs
mary

Hi Mary,

I have been waiting for this post, I have been thinking about you a lot lately, and I am sooooo happy that you are doing so well. I will keep you in my prayers...behave yourself with the typing!!!!:eek:

:hug:
Sandy

Great!
 

Hi Mary- So glad to hear this! What pain meds can they put in the pump- is it just dilaudid?
Debbie

Thank you all for everything. I'm still doing great. A little sore at the surgical site in my back. I'm pretty swollen and tender, but for the first time, I'm sitting up (kinda) in bed. My rsd pain is still almost all gone. When I think back to the 2 stims I had implanted, the recovery was so painfull and horrible for several weeks after the surgery. I'm ready to almost get up and get going. I'll have to buy largers waist pants for now. It could take almost 6 months for the swelling to go down. till then, scrubs and sleep pants are the order for me. lol. I feel as warm and content as I did after I had my girls. I just didn't know I could feel this wonderful again. I wish I could explain it better but I don't have the words. I'll keep you updated on how I am doing, and if anyone wants more information feel free to ask here or pm me or email. I signed up with the hospital to be a person people can talk to who are interested in the pump. I'll tell you the good, bad and ugly. Nothing is perfect. I know I will never wear a bikini again. :eek:...lol...lol..just the thought of it scares me. hubby is running for the hills :yikes::yikes:
hugs
Mary

I can't even tell you how deeply happy I am for you! Please keep us update!

I am so happy for you that you are getting some relief !

Do you mind me asking......How did the process go looking for a doc in another state to implant the pump ? How will you be able to get it refilled ?

finz,

Very good questions. I started calling PM drs. in my area and asking if they did the pump. They all said no, but eventually I found one that could recommend a dr. that did it. Wait. I also called all hospitals in the area asking the same thing. I also checked the metronics web sit, got a list of drs that implant for them. Then it was a matter of calling and asking. Most said NO, and they didn't know anyone who did. Then I called out a larger area and someone knew someone who did it. Then I had to get my current pcp and pm dr to fax info to him. HE reviewed it then we made an appt. then it was a short time to the trial, then the pump. I know there is a dr. closer to me that does refills, but with the larger 40mg pumps, it only needs to refilled every128 days, I don't mind a drive there and back every 4 months or so. That's only 3 visits a year. Also, some home agencies are doing home infusion, so that is the way I will try to go when I get to where I need to be with the meds. This is one reason that a lot of drs. don't want to do the pump, just the stimulator. With the pump they have to work with your for the rest of your life. Also, if you are interested, pm me and I'll give you a link to a group that is for the pump perple. THey carry a good dr.bad dr list. So they might have drs. in your state.

I love it!!!!!!!

Hugs
Mary

Thanks for the info LM. Very interesting about the refills and stimulator. Please keep us posted! My wife has RSD and is very reluctant to have any kind of evasive procedure performed but this may sway her down the road and we are in the DC area so the distance to Maryland is very convenient. :D:D

Jimking

I hope your wife would consider it. Pm me for the name of the hospital in silverspring that does it. It's sooooo much better then taking oral drugs. Everything in the pump is delivered at about 1/300 of an oral dose. and as it stays in the spinal fluid, coating the inflamed nerve endings, it doesn't go thru the rest of the body messing with your different organs. I'm taking percs for pain, but that is post surgery pain, which isn't bad at all. I've been getting up and moving around since the day after surgery. For the first couple of days my back was tender, but now I can walk around, standing straight up, and there is very very little pain. Most of it now is because of the staples in the back. The incision is only about 4 maybe 5 inches long and it was made in my back where I had been opened up before for the 2 scs. I wish I had never had the stims put in. they did more damage than good. but you know, hindsight is 20/20. lol
this gives me the relief of the oral meds but no side effects. It is the best of both worlds. I'll be able to drive again, and I'm planning on going back to work part time in about 6 wks. When I got the scs I was still in bed crying a week after surgery. Here I am feeling as if, for the first time in many years, I'm clear headed, alert, bright, I've got a my humor back, most of my body is working like it's suppose to. I'm planning on riding my horses by summer. Even tho I feel so great, I have to hold myself back not to bend, twist, reach, carry anything heavier then 5 lbs, etc.
You can pm me or have your wife do that, if she would like to talk.

Hugs
Mary

Dear Mary,

I am so glad things continue to go well for you!! My doctor says that at 49 I am too young to consider an implanted pain pump....but you make me want to consider it anyway!

XOXOX Sandy

let me post that question on my pump group. It's a group who's members all have the pump or are getting it. I know that there are quite a few ppl there that are in their 40's. Others have been told the same thing before they got their pump. Let me see what they say are the main objections. There are actually kids with the pump. If you want you can pm me and I'll give you the groups info, you can join, and talk to others. One thing about the group, they give you the good, bad and ugly. (did I mention that the resivoir is just under the skin which means you can see it. it does stick out a little bit) lol.
I'm willing to give you all the info you need. For what it's worth, in my area, NO ONE wanted to put in the pump. they said it a waste. Well, they just didn't want the commitment that a dr has to give his patient for as long as you have the pump. when I had the scs, the dr. put it in, and handed me over to the rep from the company. I saw dr again in the operating room almost 3 wks later. Why? I picked up a MRSA and the rep didn't recognize it. pm me for more info.