has anyone stopped having this PN burning in their feet
 

I would like to hear someone tell me they're better from this burning..I'm losing hope....

You can control burning, if you know the cause.

There are simple rubs that help temporarily, like Biofreeze.

Sometimes chronic burning can come from foods that you are intolerant of. Examples are gluten , and in my case potatoes, and some tomato products (these are nightshades, and people can become intolerant of them).

If your feet become very cold for a while, they WILL burn when they warm up. This type of burning typically winds down, after a little while and does not last all day, all night.

But there are very many causes of PN pain. Some are deficiency of nutrients, like B12 and Vit D. You need tests to find out what your B12 level really is. I have a thread at the top of the page in the stickies, about B12.

New members here really need to read the posts that others make. That is the best way to learn.

I use 'Icy Hot' (or the generic 'Cool Heat' from 'Rite Aid'), 2x day
along with my Lyrica, 3x day.

lucyloo,

even though i have a bunch of foot issues, they are not the cause of the burning feet and the random spikes of pain. has your neurologist recommended a biopsy for small fiber neuropathy?

Yep, my feet and legs do not burn anymore, as Mrs D said knowing the cause is essential, mine was caused by prediabetes [ goodness knows how long I was prediabetic for] plus low in B12, both issues were corrected.
Beer, icecream, stress use to make mine worse, I don't drink beer these days but have no trouble with a few glasses of red wine.
Endep and trammadol eased a fair bit of the burning when it was bad.

best of luck to you.

Once the burning starts, there is no quick easy fix.

Everyone is different in this respect except, for the no easy fix part.

Actually, mine did stop burning, permanently. I used to have the sort of neuropathy that burned a heck of a lot (it was agony) in my hands and one foot. My hands pretty much returned to normal (very minor pain once in a blue moon), and my feet went numb. I have no idea why. My neuropathy is part of my lupus, maybe that has something to do with it.

I now have sensori-motor axonal neuropathy with numbness and motor damage. It is not yet affecting my hands, though my tests show that the values in my hands are heading towards the neuropathy happening there (it will be numbness, which I much prefer). I do not expect this type of neuropathy to go away, as I have had it for too long. The burning pain I only had for 6 months, I have had this for about 10 years or more. I have other problems with my hands - a lot of spasticity, which is not related to neuropathy as it is central in origin (from my brain).

But, I think I am pretty unusual, as I have not heard of anyone else who has had such severe pain that then disappeared. Maybe it was caused by a lupus flare, who knows.

best of luck with your neuropathy, and I hope you find a way to manage your burning

cheers

Raglet

There is certainly no quick fix, mine took 5 years to go away completely.

Can one have normal fasting glucose and plasma glucose readings but still have prediabetes ?

I had my PN diagnosed as "probably" alcohol related, but after no alcohol for 5 months and progression during that time from slight burning in foot pads to burning soles and heels and then to burning hands as well. I'm not now so convinced alcohol is the culprit and looking for other explanations (re-referral to Neurologist pending).

No problems with B12 by the way - I'm about 1800+.

Westie I am in the same position as you, its just getting worse & as its not seen, people don't really understand how miserable and depressed it can make you.

Pre-diabetes is where insulin starts to be made in excess. This can lead to low blood sugars in between meals. Low sugar also damages cells. Doctors don't really address low sugar in diabetes. But there are some new studies to show that just one attack of very low sugar--ONE--increases risk of Alzheimer's!

http://www.medicalnewstoday.com/articles/146021.php

It's not hard to imagine not enough sugar getting to your fingertips or feet with chronic low sugar readings. In fact the ACCORD study stopped the aggressive arm of trying to keep type II patients below an HbA1C of 6. People were dying during the study, so they dropped it. European studies showed at one time that people with low HbA1C lived longer. But now that is being thought to be a STRESSER on the nervous system. Now the target is 7.0 for elderly patients.

When the mitochondria do not get glucose to run the energy requirements of cells, they can run on fatty acids. Acetyl Carnitine and lipoic acid are thought to enhance this. Studies are showing more and more benefits for acetyl carnitine. It is something to think about.

Yes you can have normal fasting levels with prediabetes and I know some full blown diabetic 2 peole that also retain good fasting levels but once tested with a glucose challenge [ glucose tolerance test ] it will show the real picture.
I can't understand doctors relying on a overnight fasting glucose test to testfor diabetes, as the body has at least 12 hours to get rid of any excess glucose, its the spikes 1 to 2 hours after meals that do the damage over time and the possible lows as Mrs D explained.

good luck
Brian :)

The overnight fasting levels go up because when the sugars get really low while you sleep, then the liver starts making MORE glucose, for the "dawn phenomenon". The higher fasting levels of glucose reflect this new manufactured glucose and not what you ate the night before.

Type II diabetics typically have elevated INSULIN levels, and this is what is creating the lows when food is not available. You can be tested for fasting insulin, and if yours is elevated, you can be sure you are pre-diabetic. Not many doctors do this, but will test you if you ask.

I have an auto-immune peripheral neuropathy called anti-MAG. I find that the terrible burning in my hands and feet is much less as long as my body stays cool. When I walk a fair amount or when my body gets warm, the burning and discomfort get a lot worse! I am living in a part of the country that doesn't have hot weather, so that is much easier.

I have found that soaking my feet and hands in cool water is very helpful. I also don't wear shoes at home as shoes often make my feet too warm.

I hope you can find some relief!

Hi.

I started using Methyl B-12 immediately after I was diagnosed with Peripheral Neuropathy about 2 years ago. I'm diabetic. I had the zipping and zapping and burning. I can honestly say I am practically symptom free. I say practically because if the weather changes dramatically then I get a burn.

But other than that, as long as I do the best I can do in controlling my blood sugar, and I take my Methyl B at least 3 times a week, I'm good to go.

I used to take it every day, but I store it well, so I feel no need to take it every day. I take 5000 sublingually and I only recently started doing it 3 times a week. My husband who has had neuropathy for almost 20 years started a few months ago, so we share a bottle.

Because I only need to take it 3 times a week, it saves some money. It's not that pricey but every penny helps.

Unfortunately my husband hasn't had the same response that I got. I am extremely lucky, but I'm also fanatic about what I put in my mouth.

So all I can say is best of luck and I do hope you stop burning.

Melody