The Simple Chores & MS Fatigue,
 

I woke up with a burr on my butt and got moving fast. :D 1st I visited the potty, then I damp Swiffered the floors in the bath room and hall, got everything prepared for my shower/bath, transferred to showerchair, oil of olay bodywashed myownself, washed and rinsed my hair, dryed off, put on clean robe, transferred, gingerly to the scooter, without falling, fixed my hair, put on a dash of makeup and scooted to the kitchen, where I fixed some lunch for the pup and me, scooted to the living room, transfered to the sofa and flopped. :thud:

Why can't I just jump up and do these little everyday things things without needing a two week vacation, afterward?:mad:

You'd thought I just ran the 50 mile marathon, with no shoes. :eek: That's why I only do this ritual once per week, instead of every day. The rest of the week I just wash the stinky parts and dust off. :rolleyes: :p

Did I mention that I hate this Disease?

Rant Over.... Next....

Awww, that stinks, Sal.

Er, uh, or not -- you did say you keep the stinky parts washed off. ;)

I'm sorry, my friend, that you have to pay such a high price just to do what others take for granted. :hug::hug::hug:

I have company, so I am really struggling to keep up to the normal duties that go with that. I want a nap!

That's the part of this disease that stinks the most, don't you agree? We all want to function as normally as possible, but it's such a project just to do the basic things...we definitely become experts at prioritizing our time...
at least you're all flowery-smelling, Sal!!:D:hug:

and I sit here almost 4 in the afternoon, still in my pj's because I just don't have the energy to go get the day started.... LOL I feel ya!

8:00 a.m. - work 25 minutes, rest 5 minutes

Noon - work 15 minutes, rest 15 minutes

3:00 p.m. - work 5 minutes, rest 25 minutes

5:00 p.m. - circling the drain

company left. Im so pooped! I love these folks, but pleeeeze! I just need to lay down now. :o

undx, work on feet for 8 hours, then at home die, just out of it.. mentally and physically for family... which it sucks! Do not enjoy enough of life ... always resting up for fricking work again... ok my rant over too... hugsss hun, sarah

:hug::hug: all around. Totally understand. Some days it's a struggle just to get ready. Brushing my hair and picking out clothes can tire me out. :eek: The fatigue is by far the one symptom I could do without, but I manage as best I can.

I manage to get up, get ready, and go to school. But once I get home, I spend about two hours in bed contemplating the ceiling. This morning I decided I wanted to clean out my clothes closet. I have made it through 1/2 of one closet, and have already taken two breaks.

Barb, breaks are good... keep it up... or take it in halves.. half today and half another day hugsss.. I knwo what you mean when you get home... just spent... hugssss

hugss to all...yes just sometimes usually easy things come hard... then the other day I managed to downhill ski with my dad... yeahhhh spent and slept a lot the two days following it though.. but WOW the skiing was tremendous... and I could do it... yeahhh

hugsssss all, sarah

You can still ski???? Good for you. :hug:

Sally, especially since I was stuck on couch for a full week fighting vertigo few weeks ago... and balance issues at times... I was worried about trying to ski... but been a few years.. and I love skiing... I asked my dad who has not gone even longer... and he is pretty weak after the cancer fight... even that morning he was calling me saying too weak of a day...but that he would take me... he brought his stuff though... and once there got his stuff out..and when I asked if he was sure about it... and mentioned the call .. he forgot he even called.

Now though I got the itch to go again, but warming up out there... just happy I was able to do it. But I did suffer for days after.. but worth it.. it was like HEAVEN to me! I miss being more active... I used to walk daily for miles too, but that part does not come as easy...

although I skiied, I still know what you mean, as some days even showering is a chore that I feel worn out from... and work always wears me down so not much fun the rest of my day after work! always resting enough to go back uggggg

hugsss,sarah

I do know what you mean. I don't look forward to weekends anymore, because it takes so darn long to clean the house, after I do, I can't do anything for three days or more. My husband says, you wanted a big house, I say I know.....

I'm Tired! I'm Tired! I'm Tired! Have I mentioned how tired I am yet? :(

Stop making all those darn cupcakes!! :D

Yeah, Dej, that hot oven is not good for your MS fatigue. :p

I never even got to mix up the batch of cupckake stuff. I ended up with a headache and went to bed!

I woke up tired! WTH?! I just want to get on with my day, and I am hobbled before I even got out of bed!

*sigh* :o

Dej, long day at work 6am=3pm... and then home and bunch of stuff I did... can I say I AM TIRED TOO!! and overdone... humidity in the air... and my mind/body is not working.. today I would NEVER Be able to downhill ski... I would be falling down often:(

hugsss all, sarah

I had my testosterone level checked 3 yrs ago and it was on the low end.
Started injecting 1/2 a mL (100mg) every 7-10 days. Got my level around 800-1000.
Drink protein shake every afternoon between lunch & dinner. Exercise what I can.
It saved me. A woman's level should be about 1/8th -1/10th of mine.
If you test low but within range, its not good enough.
Testosterone Cypionate 200mg per mL is what I use with script from Walgreens.
1 10mL bottle will last a female 1 year or more. Its a steal at $100.
Cancer risk? Well, MS isnt exactly life prolonging in itself.
For a male I notice it also works like but better then Viagra.
Women supposedly benefit from it as well.

Get total testosterone checked and post results.
Im on Tysabri for 4 infusions and still declining. Adding a chemo drug next.