NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Temperature (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/116181-temperature.html)

ynotretsevlys 03-07-2010 11:59 AM

Temperature
 
Hello,
Does anyone else have the inability to regulate their body's temperature ?
It seems I'm either freezing cold or sweating like I'm in a suana. Is this a product of RSD or could it be something else. I've been battling RSD for about 3-4 years now and can't seem to get lasting relief (from pain meds, etc). Now this has started about a month or so ago. I just seem to kind of get used to everything that goes along with this and then another thing gets added to the list of symptoms ?:confused:
Sincerely,
Tony

keep smilin 03-07-2010 02:53 PM

Quote:

Originally Posted by ynotretsevlys (Post 629849)
Hello,
Does anyone else have the inability to regulate their body's temperature ?
It seems I'm either freezing cold or sweating like I'm in a suana. Is this a product of RSD or could it be something else. I've been battling RSD for about 3-4 years now and can't seem to get lasting relief (from pain meds, etc). Now this has started about a month or so ago. I just seem to kind of get used to everything that goes along with this and then another thing gets added to the list of symptoms ?:confused:
Sincerely,
Tony


Welcome Tony.. We have a great family of caring supportive people here....Yes... I am in the same boat and we have had many posts here that describe exactly this..our temperature regulator is off..way off..In a matter of seconds I turn to water..my whole body..I first feel a hot rush and bam... I am drenched. More times I am sweaty than cold but the cold does happen from time to time.. We ahve talked about this here before..many have the same symptoms...

KS

loretta 03-07-2010 03:23 PM

Quote:

Originally Posted by ynotretsevlys (Post 629849)
Hello,
Does anyone else have the inability to regulate their body's temperature ?
It seems I'm either freezing cold or sweating like I'm in a suana. Is this a product of RSD or could it be something else. I've been battling RSD for about 3-4 years now and can't seem to get lasting relief (from pain meds, etc). Now this has started about a month or so ago. I just seem to kind of get used to everything that goes along with this and then another thing gets added to the list of symptoms ?:confused:
Sincerely,
Tony

Welcome Tony,,although very sorry for the reason you are here. Stay with us and you will find a lot of comfort and helpful information. RSD has 3 main symptoms: lack of regulation of body temperature, immune system deterioration, and lack of regulation of involuntary organs, like blood pressure, heart, lungs. Blood usually goes up, but can suddenly drop. The sympathetic nervous system causes a raise in blood pressure and the para sympathetic nervous system causes drop. A website that provides a lot of good information is rsdrx.com go to puzzles list 146 questions and answers. Also rsdsa.org Also rsdhope
Hope this helps. I've had this 15 years and full body plus internally. One of your new friends, loretta with big soft hugs:grouphug::grouphug:

Debby 03-07-2010 09:51 PM

YUP YUP YUP..............that is part of it too.....this same basic discussion has been going on & off since I first came to the site back in 2003.........I like the rest here.........one minute I am comfortable & then all of a sudden out of the blue I am warm & start sweating profusely. Having popsicles around helps cool you down internally. I use to get so hot I would throw up constantly for no reason. Luckily that has passed. But popsicles helped that also. If I could eat one quick enough then I wouldn't throw up.

Now I drink an ice cold root beer or eat a popsicle to cool from the inside out. That helps relieve the sweating quicker than anything else I can do. Even going outside to cool off during the winter doesn't help as much as cooling from the inside out. BTW I live in north central California up on the west slope of the foothills to the Sierra Mtns. We get a little snow now & then here but it isn't that cold all the time.

Taking a shower is almost not worth it. I take a luke warm to a cool shower, not warm or hot & even in doing that I will come out of it sweating all over again. But atleast then I can say it is clean sweat *LOL*

Debby

bobber 03-07-2010 11:20 PM

RSD affects the vasamotors and sudmotors....circulations and sweating,,,,,,so,, No your not out of the norm,,welcome to the world of RSD ,the disease thats an oxymoron and consumes ones life,,,,,pray,,,pray.....then pray to the Lord some more

babs74 03-08-2010 02:35 AM

sorry
 
Yeah sad but true.. Mine is im always cold.. Never hardly sweat.. But i live in Iowa where its cold right now.. So until summer im a popcicle..lol.. welcome to the family so to speak.. Sorry for your reason to be here.. Its a crazy disease.. im fairly new as well. but were always willing to help..:grouphug:

daniella 03-08-2010 09:01 AM

For me basically my feet feel frozen a lot but I have begun getting the burning. It is hard for me to regulate myself cause if my upper body is hot my feet can be frozen at times and I can't tolerate a fan blowing even on my upper body cause I can still feel it on the feet. I am not sure if some of my burning is now that I am living in FL. I feel that with all extreme weathers my body feels it to the extreme. So if it is cold I go numb like if the normal person were putting their feet in snow. If it is super hot I start to get the burning feeling where others would just be uncomfortable. The pain doc I see said that the meds and other treatments are supposed to help with that. Right now I have not seen that. Feel better

ynotretsevlys 03-08-2010 10:38 AM

Thanks for the responses, it helps a little to know that I'm not alone with this. I too try to cool from the inside out with ice water. That is the most effective. I guess I just keep doing what I'm doing.
Tony:(

edever34 03-08-2010 12:09 PM

I call these my RSD sweats. Awful-Hang in there-Carol

dreambeliever128 03-08-2010 01:27 PM

Hi,
 
Since going off of the Methadone, I don't sweat as bad. I do believe that some meds contribute to it.

We have had a long cold winter this year and this is the first time I didn't use a fan this winter in about 7 years. I have been cold all winter. In the house or out, I am always cold.

I can't stand the extreme heat in the summer. I am in more pain in the heat then I am the cold. My feet however do stay a different kind of cold.

Ada

Momlovetobake 03-08-2010 07:26 PM

Yes I have the same problem. There are times i have to peel off all my clothes and then the next minute im freezing with throbbing piercing pain. I constantly wear gloves and i have to cover my feet and my arms. My pain level is bad cold or hot. So either way im screwed.

ynotretsevlys 03-09-2010 12:27 PM

Dream - That's interesting, I recently( past few months) have been switched to methadone. I am going to ask the doc about this on Thursday at my next appt. Altough I did have this problem before switching pain meds it does seem to have gotten worse. Thanks.

dreambeliever128 03-09-2010 02:34 PM

Hi Yno
 
If you read up on Methadone side effects it mentions sweating. I would say other meds do the same thing also.

I still keep it around for my worst days. You have to make a decision about the sweating or the pain. I wouldn't switch the Methadone for any other pain meds.I was on it for 6 years and I got the best relief with the least side effects.

Type in Methadone side effects and you will see that sweating is a side effect of it.


Ada

keep smilin 03-09-2010 04:51 PM

Quote:

Originally Posted by dreambeliever128 (Post 630622)
If you read up on Methadone side effects it mentions sweating. I would say other meds do the same thing also.

I still keep it around for my worst days. You have to make a decision about the sweating or the pain. I wouldn't switch the Methadone for any other pain meds.I was on it for 6 years and I got the best relief with the least side effects.

Ada

Ada...my dear friend..

Here I go again...As you will already know..the reason for my sweating..turning to water isn't due to medicine..and my friend, Ada... you can finish this one for me...I ain't on ANY..so db....and all of our friends here...it's our RSD I believe causing it..at least in my case it has to be......so sorry!

Hugz, Kathy

dreambeliever128 03-09-2010 05:55 PM

Hi Kathy,
 
You are right that the RSD causes it but the meds sometime contribute to the problem.

I was able to quit using my fan at night after I went off mine. The Methadone I do believe did contribute to my sweating. Yo.u can type in Methadone side effects and you will find that sweating is a side effect of it

Ada

dreambeliever128 03-09-2010 06:10 PM

Methadone Guide: Possible Side Effects
Methadone may cause side effects. Tell your doctor if any of these symptoms are severe or do not go away: drowsiness weakness headache nausea vomiting constipation loss of appetite weight gain stomach pain dry mouth sweating flushing difficulty urinating swelling of the hands, arms, feet, and legs mood changes vision problems difficulty falling asleep or staying asleep decreased sexual desire or ability missed menstrual periods

Some side effects can be serious. If you experience any of the following symptoms or those mentioned in the IMPORTANT WARNING section, call your doctor immediately: seizures itching hives rash

Methadone may cause other side effects. Call your doctor if you have any unusual problems while you are taking this medication.

READ COMPLETE ARTICLE »
Yahoo! Answers

anna i
Q: What are the side effects of methadone?
I know methadone is used by a lot of people who are getting themselves treated for their opioid dependence. It...

A: There are indeed some side effects that methadone is associated with. These are: nausea, pruritus, constipation, sedation, confusion, and respiratory depression. Flushing and excess sweating may also occur in patients who use methadone orally. If the prescription is followed properly by the patient, he wouldn't get addicted to it. Methadone is safe only when it is not abused by the patient.
Lynn D

keep smilin 03-09-2010 07:13 PM

Quote:

Originally Posted by dreambeliever128 (Post 630710)
You are right that the RSD causes it but the meds sometime contribute to the problem.

I was able to quit using my fan at night after I went off mine. The Methadone I do believe did contribute to my sweating. Yo.u can type in Methadone side effects and you will find that sweating is a side effect of it

Ada

Ada..

You are right in that does contribute to the sweating..Funny. I feel like we are on a big RSD experiment and I am the negative control....as without my medicine intake we can base our findings..whether it be sweating or any drug interactions... tell me that is funny right there..a built in control girl with much stubborness...

Still smilin..Kathy:grouphug:


All times are GMT -5. The time now is 01:28 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.