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-   -   How many of you have had Epstein-Barr virus (EBV)? (https://www.neurotalk.org/multiple-sclerosis/117497-epstein-barr-virus-ebv.html)

DizzyLizzy 03-23-2010 09:53 PM

How many of you have had Epstein-Barr virus (EBV)?
 
I'm wondering how many of you have ever had Epstein-Barr virus? I had Mono when I was in the 9th grade, and if I remember correctly, I had a horribly swollen throat and had to take naps in the nurses office for 3-4 weeks, because I would practically fall asleep in my classes. With the studies that are out, showing that there may be a correlation between EBV and MS I am a bit concerned because my daughter had it pretty bad last fall. I sure hope there will be a way to know what her odds are, and if there was anything we can do to protect her.

PolarExpress 03-23-2010 10:08 PM

I'm sure you'll get many better responses than mine, but if it makes you feel any better (and I know it's hard when your kids are involved), nearly everyone has the antibody for EBV, which means nearly everyone has had it in some form or another, to one degree or another, at some point in there lives. From what I understand, it may serve as a trigger, but is not the cause.:hug:

Koala77 03-23-2010 10:10 PM

Is there a reason why you didn't include a "NO" option Amy?

I know for sure that I haven't, but you've not given me an option to vote that way. Would you like that added?

Erin524 03-23-2010 11:07 PM

I had a pretty serious case of mononucleosis in late '95 and early '96. Took me over a year to recover, started noticing a lot of weird things in '97 that I now know are MS symptoms. Altho, I do remember having something that I now recognize as The Hug back in the early 90s....so I might have already had MS when I had mono...I do think the mono set something off MSwise and must have made the MS Trolls angry, since I've been having stuff going on since about 1997.

Things just never got bad enough to go to a doctor until I had numbness in early 2006 and optic neuritis that summer.

DizzyLizzy 03-23-2010 11:37 PM

Quote:

Originally Posted by Koala77 (Post 636105)
Is there a reason why you didn't include a "NO" option Amy?

I know for sure that I haven't, but you've not given me an option to vote that way. Would you like that added?



I totally missed it! I will try to add it.....thanks for the heads up Koala!

DizzyLizzy 03-23-2010 11:46 PM

Quote:

Originally Posted by PolarExpress (Post 636104)
I'm sure you'll get many better responses than mine, but if it makes you feel any better (and I know it's hard when your kids are involved), nearly everyone has the antibody for EBV, which means nearly everyone has had it in some form or another, to one degree or another, at some point in there lives. From what I understand, it may serve as a trigger, but is not the cause.:hug:

Thanks Polar...I do worry about my DD, but I would just like some peace of mind knowing if there were a way to 'prevent' her from the possibility. Autoimmune diseases do run in my family...Mom has had Scleroderma for @ 20 years, my maternal Grandmother had SEVERE Rhumatoid Arthritis, my Mom's uncle has Parkinsons, sister -mild Rhumatoid has started....etc, etc, etc. I just need to keep thinking positive, since that is really what I try to focus on, but sometimes the research information makes me start to worry again, but I don't know I could ever 'not worry' about the kids....so I'll pull my big girl panties on!

DizzyLizzy 03-23-2010 11:52 PM

Quote:

Originally Posted by amyblake (Post 636137)
I totally missed it! I will try to add it.....thanks for the heads up Koala!




I don't know how to edit the Poll to add a 'no' option?! Any suggestions? It was such an obvious option to miss! :Doh:

DizzyLizzy 03-23-2010 11:53 PM

Quote:

Originally Posted by Koala77 (Post 636105)
Is there a reason why you didn't include a "NO" option Amy?

I know for sure that I haven't, but you've not given me an option to vote that way. Would you like that added?

If you could add it, I would really appreciate that! :hug:

daisy.girl 03-24-2010 08:00 AM

Although there is some presumed link...I don't know how it can be used because almost the entire adult population has the EBV.

Epstein-Barr Syndrome is very common, although most people don’t even know they’ve contracted it. It is estimated that as many as 95 percent of adults older than 35 have been infected with the Epstein-Barr virus, making this one of the most common illnesses in developed and undeveloped countries around the world.
http://www.life123.com/health/medica...ormation.shtml

daisy.girl 03-24-2010 08:06 AM

Quote:

Originally Posted by amyblake (Post 636101)
I'm wondering how many of you have ever had Epstein-Barr virus? I had Mono when I was in the 9th grade, and if I remember correctly, I had a horribly swollen throat and had to take naps in the nurses office for 3-4 weeks, because I would practically fall asleep in my classes. With the studies that are out, showing that there may be a correlation between EBV and MS I am a bit concerned because my daughter had it pretty bad last fall. I sure hope there will be a way to know what her odds are, and if there was anything we can do to protect her.

You can protect her with Vitamin D....Please read the following article.
http://www.webmd.com/multiple-sclero...may-prevent-ms

also, if you google 'Vit D to prevent MS'....you will get a lot of info.

legzzalot 03-24-2010 08:25 AM

Nope, never had it. Go figure.

But I do get strep throat twice a year and at least one sinus infection per season change.

SallyC 03-24-2010 12:30 PM

I don't know if I ever had EBV, but Strep and Mono were probably my triggers and my DD had Strep and shingles at a young age, probably as precursers to her MS.

All of these illnesses lead you right back to the Herpes Virus(6, I believe)

Dejibo 03-24-2010 12:37 PM

I was tested for it several times, and always rang up negative. I chose the option that best fit "maybe but never diagnosed"

notasperfectasyou 03-24-2010 09:55 PM

Quote:

Originally Posted by RelyonHim (Post 636255)
Although there is some presumed link...I don't know how it can be used because almost the entire adult population has the EBV.

Epstein-Barr Syndrome is very common, although most people don’t even know they’ve contracted it. It is estimated that as many as 95 percent of adults older than 35 have been infected with the Epstein-Barr virus, making this one of the most common illnesses in developed and undeveloped countries around the world.
http://www.life123.com/health/medica...ormation.shtml

This is interesting, particularly in the context of a question asking folks if they have had this. I don't know anything about EBV, but I suppose I could have had it since I'm over 35 and have had plenty of sick days along the way. I'll not go into a whole speal on pathology, but there needs to be more to the pathology to narrow down 95% of people down to the 1 in 1000ish that have MS. Here's an interesting article:

Levin, Lynn et al. 2005 Temporal relationship between elevation of epstein-barr virus antibody titers and initial onset of neurological symptoms in multiple sclerosis

Debbie D 03-24-2010 10:02 PM

I have no idea...never tested for it. But I thought that 100% of MS patients tested positive for it?

Bannet 03-24-2010 10:06 PM

When I was in my late 20's I was dx'd with Chronic Fatigue Syndrome. Then In my early 30's dx'd with EBS. so I have had sx for a long time but wasn't dx'd with MS until my mid 40's. Go figure:)

Natalie8 03-25-2010 10:22 PM

I tested positive for EBV and got a severe case of mono that lasted for almost a year when I was 38 years old. 7 months after that I started having MS symptoms. I had never had any strange MS type symptoms before the mono. I am pretty much convinced that the EBV tripped the switch!

FinLady 03-26-2010 07:26 AM

Never had EBV and one of the few that have normal Vitamin D levels. Outdoorsy sort of person and drank a ton of milk as a kid - bones are very strong and it took 6 years for my braces to accomplish the job of straightening my teeth because of it. I have a couple of permenant retainers to keep it that way too. :D It took downing a motorcycle to get a hairline fracture on a bone, and was the first time I ever had something break. Considering how many trees and stuff I fell out of as a kid, major surprise. ;)

I have other possible risk factors that may have led to an MS trigger, but who knows with this thing? I chalk it up to being the lotto winner of the genetics in my family. :rolleyes:

dmplaura 03-26-2010 07:41 AM

At 19 (guess that makes me a teenager still!) I got hit very hard by mono, which lasted about 2 weeks and was the worst illness/pain I've lived through. Literally, every part of me was in pain and I slept for 2 weeks solid.

euphonia 03-26-2010 11:50 AM

I have one of the most definite cases of MS that my doctors had ever seen, but never had EBV. Years ago I was tested for it more than once when I might have been exposed to it in college, but I never tested positive.

P.S. But there's no vote for that.

agate 03-27-2010 01:00 PM

Hi Susan!

I didn't realize that you're on this board until I saw this post of yours. Nice to "see" you again!:D

Kitty 03-27-2010 03:47 PM

Good Article On EBV and MS
 
http://www.medicalnewstoday.com/articles/181355.php

SallyC 03-27-2010 07:52 PM

Yep, like I said, it all leads back to Mr Herpes..:D

Kitty 03-27-2010 07:56 PM

Quote:

Originally Posted by SallyC (Post 637515)
Yep, like I said, it all leads back to Mr Herpes..:D

Sounds like a really, really bad date! :p

SallyC 03-27-2010 09:50 PM

LOL, it isn't the congenital Herpes, though..:eek::D


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