Just dropping in...
 

Hello everyone! Its been a while since I have been here because I had some personal issues that have taken me away. To those of you that have been friends the past few years, I want to thank you and let you know I am ok. I hope to catch up and see how you all are doing. I don't know who drops in any more but I look forward to hearing from those who do.
Also, there are so many new people....and to you..."hello" and I hope to get to know you better. Blessings to all....di

Hello Di !
 

My name is Rae.....this forum has become a wonderful family to me! I hope to get to know more about you!
Your ol' 'buddies' will be thrilled to see you back again!

They've all been so wonderful and made me feel so welcome and helped me thru some of my darkest hours.....
Now it's my prayer to be able to return what's been given me...

Rae
:Heart:

Hi Diana.My name is Carol Dever and I am glad to see you post.I have heard lots of positives about you and we need all of the blessings that we can get.
Looking forwars to getting to know you-Fondly-Carol

Hi Rae, Thank you so much for the warm welcome back. It is so nice to get a greeting from a new friend! I look forward to getting to know you better.
Di

Hi Carol, Thank you for the greeting, the message and the kind words. I did leave you a reply. I look forward to a great friendship. I hope to chat with you soon.
I am struggling with my arms right now but I think the warmer weather will help ease up the pain.

Di

Hello Diana:

WELCOME HOME!!!!!!!!!!! I am Kathy.. from NY..and I stand by my favorite screen name..keep smilin..It is a must!! I am an RSD'er since 07 when it began in my right leg now whole body/internal also...... but my life is still wonderful and a blessing in spite of my pain..... Welcome back dear..So nice to hear from you..I look forward to chatting with you..we have a wonderful family here..We are all sadened by our pain but we are happy to have eachother..

Hugz, Kathy:grouphug::grouphug::grouphug:

Hi Kathy. Thank you for the warm welcome! I was diagnosed in 1989 from a right shoulder injury. I had surgery on my shoulder, blocks and a sympathectomy, still resulting in a spread.
I too have full body, a frozen right shoulder and a RSD Tongue...don't tell anyone...LOL
I too love life and love living life, not to say that I don't have any days of dispair...'cause I sure do. I agree. "We are in good company." Thanks for the warm welcome and I look forward to chatting with you too! Hugs di

Hi DianaA,

We missed you so it's good to see you back! How is it going with your HBO treatments?


MsL

Welcome back. I hope you are feeling a bit "resolved"....

How are your arms?

XOXOX Sandy

Thank you
 

Thank you so much! I have not been in my chamber since April 2009...I am in desperate need of treatment. I had issues with my son (23 years old) and a very ill father. The stress of both of these challenges has created some major changes in my body. My left leg and foot are turning in and it is currently very difficult for me to walk. I also have a lot of fliud on my left ankle which resulted from a recent injury. Both arms are extremely painful. I am hoping that the HBOT will get me back to where I use to be.
How are you doing? Please drop a note and let me know. Thanks for the welcome back! Good to be back home.
Hugs
di

Wecome back. You have been missed. I hope everything is going ok now. I've been busy. I've gotten a pain pump implanted and it has given me my life back. I am back to doing most of what I was able to do before RSD struck me down. I'm only 9 wks out of the surgery, but I'm back to cleaning the stalls, grooming the horses, working on spring cleaning, shopping, and I'm looking forward to going back to work part time. I still can get tired if I over do it, but today for the first time in a very long long time, I spent time in DSW shoe store trying on shoes, sandels, even tried on several kinds of heels. Never thought I would ever wear any time of shoe but a slipper due to the rsd. I'm hoping to start riding my horses within the next month or so. I don't want to rush it and set myself back. I'm really really happy with the pump. If only I knew about it when I first met everyone here, I would have been enjoying the last 4 years or so of my life. I hope you are feeling better. Let me know how you are.

Missed you
Mary

Hi Sandy
 

Hi Sandy! How are you doing? Thank you...yes things are starting to settle down.
My arms are very painful. I have the bone crushing pain and the burn. I am covered with a deep red mottled upper body and arms. I hope I can get some oxygen soon and get some relief.
I hope you are doing ok, please let me know. Whats new and happening for you? I hope you are feeling well.
Great to see your still here!
Blessings..di

I'm thrilled for you!
 

Hi Mary. WOW! I couldn't be happier for you. I am so excited to hear that you are beginning to enjoy all those wonderful life experiences again. I can't say enough about being able to share in your joy! I remembered you had horses....and I am so glad that you can reconnect with your life in all these ways. Pace yourself...I know the temptation to hit the door running, when your feeling well, cause life is just so great! So much to enjoy...
Thanks for the welcome back and the update!
Best
di

Welcome DI
Its good to see you pop in,,I hope and pray that the Lord blesses you with relief,,I think he has blessed you to be always on the move to keep your mind off of it alittle and to try to enjoy life, You told me a good piece of advice one day,,,keep moving even when we dont want to and are in pain,,,,we have to,,,,,,much love to you and the family,,,,bobber

Hi Diana, it's so good to hear from you. Thank you for your message. So thoughtful of you. I think of you often. Are you still making your 'dives'?
Our daughter and son in law just moved-2bed/2bath condo. It's just less than 5 minutes from our house. The owner lives in Switzerland and painted ,new carpet, new hardwood floors. It's really cozy and quiet. They are on the top floor which is 2nd floor. Heated pool and club house with exercise equipment. I think they were with us for 15 months. We just had company for 8 days. 2 couples we are really close to. My daughter and son in law are close to them too-we had a nice evening with everyone here plus Roxy . Roxy is a little min pin-she was so happy to be back here to see her grandma and grandpa (us)
How is your health? Do you have good days along with the bad? That's the case with me-up and down. My Dr. did a trial study of 200 people and put me on it. Ambien quit working and wasn't sleeping good at all. My new med is really for fibro., which I have, and now sleeping 10 hrs a night. Was able to cut back on vicodin by two pills a day because of the restorative sleep.
Take care of yourself. I'm trying, but difficult pushing myself for exercise. I'll chat with you a little later. Your friend, loretta with big and soft hugs :grouphug::grouphug:

Thank you
 

Thanks Bobber..
Its been a while since we talked. I hope things are turning around for you. Did any of the sources I gave you work out? PM when you get a chance and let me know, or give a ring. I hope you are doing ok, under the circumstances.
love to you too..di

Hi Loretta,
I have thought of you too...often. I'm glad the kids are still close by. How are you doing? I wonder how business is for you guys? Slooooow for us. I know you were beginning a new endeavor. I was very interested in that. I hope it has worked to your advantage in some ways.
I have not been in the chamber since April 2009. The issue I spoke with you about was a brutal challenge and now we are working through the process. Then my father became very ill...he still is. All this has kept me busy and with little time for myself. I am the sandwich generation. Still have the kids and ailing, aging parents. But, I am a survivor. I just need to allow myself to have some time for me, soon.
Will write more later..
Love di

I am so sorry about your arms, and the bone crushing pain. Ughh. As a fellow RSDer, I know the pain of which you speak...Mine is mostly in my head, but started in my right shoulder from repeat right rotator cuff repair surgeries.

As for HBOT - How did you get to where that was your treatment of choice? Did you try a round of lidocaine or ketamine first? And does your insurance company cover it? Are your ears OK? One of the members of our support group here in RI tried HBOT and had a lot of trouble with her ears, and still has difficulty hearing on one side from HBOT. Just curious... I haven't tried it yet. I've been sick for 3 and half years, and will be going for outpatient low dose ketamine in NJ in a few weeks. It's taken me months and months to get it, the process was very long and time consuming and - as far as insurance goes - still not done.

Glad to see you back. Thanks for your reply.

XOXOX Sandy

Hi Diana,

It was so wonderful to see your post as you have been missed very much. The forum just isn't the same without your wise, compassionate contributions.

Hugs, Jeanne

Yes stress can be a real challenge those of us with on RSD, I've been through very similar very difficult family situations so I know what of you speak. I'm sorry to hear you haven't been able to continue with the HBOT as I know it has really helped you in the past. I do hope you'll be able to get back on track again very soon. In the meantime are you able to find some quiet time for yourself to meditate or do some deep breathing exercises? Those 2 things have helped me get through life's challenges until I can get back to my lidocaine infusions.

It's so good to see you posting again.

Warm wishes.

MsL

Hi Jeanne
 

Hi. I have missed you! I am so glad to hear from you. I have to leave tomorrow for Colorado. My father is struggling and back in the hospital.
I will send you a pm to get and update on you and your daughter.
Much Love,
Di

Thanks for your understanding. Sorry, that you have had some of the same experiences. Yes, I do manage to meditate everyday and I know it helps. Thanks for mentioning the meditation cause I need to breathe and focus now. I will be leaving tomorrow for Colorado, my dad is struggling for his life.
I will take your advice and take my tapes with soothing music. I better go cause I'm not sure I'm making any sense. I love my father so much and he is really really in bad shape.
I do hope you are fairing ok and that things have settled down for you now.
So good to hear from you.
hugs di