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new member
:)I was diagnosed with ms about 2 months ago and have finally come to grips with it. I am on 150mg of Lyrica and 20 mg of Baclofen a day. I am still having my nerve/muscle damage not to mention i feel drunk all day. I am so sleepy and exhausted. does anyone take these medicines and have the same side effects.
I am glad to find this forum because i have not had much support. My family has been awesome but they are in CA. i am in CO and my in-laws have been really non-supportive about all of this and that is being nice. it will nice to be able to talk to everyone going through the same thing.:grouphug: |
Welcome Cali! I was dx three years ago, and I was in a fog for the first several months. Both of the med's that you are on can make you even more tired, but fatigue is one of the problems that a lot of us struggle with on a daily basis. There are lots of nice folks here. So if you have more questions, just ask away. There is also a search feature where you can find threads where people have discussed their experiences with baclofen and lyrica.
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Hi Calligirl! Welcome to NeuroTalk. You've found a great place for support and information regarding your MS. I've been dx for almost 5 years and I still don't understand this disease! :rolleyes:
I've taken Baclofen for spasticity and it does tend to make me a little loopy. My balance is already compromised and it just seems to make it worse. I've not ever taken Lyrica. Like Barb said, there are threads about the med in several different forums. I'm sorry your in-laws aren't being as supportive as they could be. Might be that they're just scared and don't know what to do. I had that reaction from several people after I was first dx. Once I became more comfortable with my condition it seems like everyone else slowly did, too. It takes some time. I hope to see you around the forum. There are lots of wonderful, caring and supportive people here who totally "get" where you're coming from. |
Welcome Cali! glad you found us.
I found that in-laws, and regular family sometimes dont know how to be supportive. Many see the "but you look so good" side of the disease, and think "can it really be that bad?" and then they get it stuck in their heads that you are dreaming up most of the drama. Unless they take the time to become educated, or have the desire to want to be more compassionate, you are better off just doing the head nod, and saying "thank you! im pretty good today." and walking away. Dont let them stress you. Come here and vent. You will find this to be a great crowd to be in. Knowledgeable, and trust worthy. Pull up a chair and hang out a while. :hug: |
Hi Cali and welcome to NT! Sorry about your diagnosis but glad you found us. The people here are great and very supportive. My hubby has spms, 22 years.
We're thinking about moving to Colorado in the next year or so if all goes well. We don't have much support either. My side of the family tends to support us more than Jim's side. Ack, that's life and we move on. |
Nice to meet you and to welcome you here at NeuroTalk. :)
I've had MS for a loooooong time and I still find it helpful and rewarding to come here, daily. Family, who love us, are supportive, but they still don't fully understand, as we, here, do. I'm happy you joined us. :hug: |
Welcome (I think?)..:D
I'm glad you found this place ~ some of the best people on the planet here! |
Hi Cali! Welcome to NT. Sorry about the dx, but glad you found us. :hug::hug:
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Welcome Caligirl! Glad you finaly found us. I felt the same relief when I found this place many years ago! I was started on Tegretol for my pain and after every dose increase I was foggy for 8 days. It does get better it's just that you have quite a journey while you are getting there. My family is wonderful, maybe a little to protective. My inlaws, well I don't think they even know what it is. No one sees each other on that side of the family any way!
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Hi Cali and welcome to NeuroTalk. :hug:
I too am sorry for the reason that brought you too us, but I'm very pleased you found us. |
Hi Caligirl,
Welcome :) I used to say, "If you don't got it, you don't get it". Not proper English, but people get my drift. I am glad you decided to join us. We learn from each other. I have had MS a loooong time too, like Sally said. But we never forget how it was when it was all so new to us. Did it take you a long time to get a diagnosis? Those medications are both the type to make you sleepy. Can you cut back down on the Baclofen to 10 mg a day? That may help. Ask your doctor to be sure. I hope we hear more from you. We love new people. Nice to meet you. :) |
Hi Caligirl and WELCOME to the group!! I'm truly sorry you have to be here, but under the circumstances, it's a great place to hang out. There are so many kind, caring, supportive people here.......and best of all "We get it"! Hope to see you around!!! :)
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hello and welcome Caligirl!
You have found a great place for hanging out and getting lots of info. The people and admin are amazing! See you around...:) |
Thank you everyone for the kind words. I have been going through this journey for about 5 years. Lots of tests and different diagnoses, doctors either thought i was depressed or i just had nerve damage from my migraines. Finally i went to the Rocky mountain ms center in CO. and they did an MRI on my spinal cord and found 1 scar and i had 12 lesions years ago but now there are 3 becuase the 12 have kind of gone into each other. I think the biggest thing for me is that i look a little tired but everyone sees me as fine on the outside. so they just don't understand.
My children 14 & 11 have been awesome. My Husband has finally come around after 2 months. I think he just had a hard time dealing with the reality of it. It is nice to be able to come on here and be able to talk to people about what i am going through and they understand. :grouphug: |
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But seriously, PolarExp is right: there are some really great people here! (Don't tell her I said so, but SHE is one of them!) Actually, I can vouch for everyone who's posted so far. Hope you can get some support and answers. Glad your family is supporting you. Welcome!!! :hug: |
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