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-   -   Shooting pains causing legs to go crazy (https://www.neurotalk.org/multiple-sclerosis/118359-shooting-pains-causing-legs-crazy.html)

Friend2U 04-05-2010 04:13 AM

Shooting pains causing legs to go crazy
 
I'm have 'little' shooting pains around my pelvic area. When it happens my legs does this kicking thing and I can't control it. It lasts for just a couple of seconds then goes back to normal.

Has anyone experienced this and if so, does it get even worse...what is possible in store for me?
Thank you.

SallyC 04-05-2010 12:03 PM

Sometimes it's a pain and sometimes, just a tickle and up jump my legs to do their little dance. I just consider it another perk of a nerve disease and don't worry about it. Mine doesn't get worse, it just happens once in awhile.

:hug:

Kitty 04-05-2010 01:20 PM

You know, my Dad used to complain of this very thing. He'd even tell me that he'd be lying in bed and his legs would just jump and flail around all by themselves.
'
He was mostly using his scooter at this time and rarely walked except to transfer. We just assumed it was from lack of use of the muscles.

This, among lots of other sx he had with no explanation have convinced me that he had MS but was just undiagnosed. There's just too many similarities for it to be a coincidence.

I hope you get some relief. :hug:

Koala77 04-06-2010 01:45 AM

It sounds like it could be Restless Leg Syndrome which is apparently not MS related, but has a surprising high incidence in people with MS.

Has your doctor mentioned RLS?

Lady 04-06-2010 02:20 AM

F2U,
I get that when I have a relapse. My MS Neuro I had in the way early days said it was "Myoclonic Jerks". I rarely get them anymore, but you feel that quick shot of pain and then the leg shoots upward, I noticed this only in the recliner or in bed. Maybe once or twice and that's it per day with relapse.

Is that what you mean? This may help to read.

http://en.wikipedia.org/wiki/Myoclonus

Koala77 04-06-2010 02:24 AM

Quote:

Originally Posted by Lady (Post 640952)
F2U,I get that when I have a relapse. My MS Neuro I had in the way early days said it was "Myoclonic Jerks".....

Thank you Lady, I'd forgotten all about those and I get them as well. :o

With a diagnosis of MS, that sounds like a more logical suggestion.

Friend2U 04-07-2010 12:08 AM

Quote:

Originally Posted by Kitty (Post 640542)
You know, my Dad used to complain of this very thing. He'd even tell me that he'd be lying in bed and his legs would just jump and flail around all by themselves.
'
He was mostly using his scooter at this time and rarely walked except to transfer. We just assumed it was from lack of use of the muscles.

This, among lots of other sx he had with no explanation have convinced me that he had MS but was just undiagnosed. There's just too many similarities for it to be a coincidence.

I hope you get some relief. :hug:

Doesn't hidesight make everything so much clearer? Even with us.
Thanks Kelly! :hug:

Friend2U 04-07-2010 12:10 AM

Quote:

Originally Posted by Koala77 (Post 640947)
It sounds like it could be Restless Leg Syndrome which is apparently not MS related, but has a surprising high incidence in people with MS.

Has your doctor mentioned RLS?

Anne, I do have RLS. I didn't use to get this jerkiness in my legs though...so maybe it's just part of the natural progression.

I'm not sure why they can say it's not MS related... :confused:

Friend2U 04-07-2010 12:11 AM

Quote:

Originally Posted by SallyC (Post 640520)
Sometimes it's a pain and sometimes, just a tickle and up jump my legs to do their little dance. I just consider it another perk of a nerve disease and don't worry about it. Mine doesn't get worse, it just happens once in awhile.

:hug:

Yes...sometimes mine is more of a tickle and sometimes a little stabbing pain. Not always in the same place. Thanks Sally. :hug:

Friend2U 04-07-2010 12:17 AM

Quote:

Originally Posted by Lady (Post 640952)
F2U,
I get that when I have a relapse. My MS Neuro I had in the way early days said it was "Myoclonic Jerks". I rarely get them anymore, but you feel that quick shot of pain and then the leg shoots upward, I noticed this only in the recliner or in bed. Maybe once or twice and that's it per day with relapse.

Is that what you mean? This may help to read.

http://en.wikipedia.org/wiki/Myoclonus

Thank you for the article Lady. Yes, it helped...and sounds like what I'm experiencing. I get them several times a day and sometimes when I am in bed, or sitting or standing. It doesn't really seem to matter. But I 'think' I've been in a relapse for quite some time. Starting to wondering if I'm really in a relapse or if the progression is just here to stay.
Thank you..:hug:

Koala77 04-07-2010 03:23 AM

Quote:

Originally Posted by Friend2U (Post 641368)
....I'm not sure why they can say it's not MS related... :confused:

Me neither.... especially considering the high number of us who suffer from it! :(

Debbie D 04-07-2010 07:26 AM

I agree...I think RLS is just another fun treat those of us with MS get to experience:rolleyes:

EddieF 04-08-2010 07:55 PM

Im a paraplegic so don't feel the pain but spasms..sure glad I cant feel them.
Every time I transfer from chair to anything, my foot shakes back/forth like its posessed. Legs kick, abdomen trembles, I feel like shaken baby syndrome. Lasts a few seconds. Even laying in bed all of a sudden 1 leg will kick like I got shocked. I take 120mg baclofen throughout the day. Will add one Soma if it gets worse. Marinol (synthetic thc & very expensive) helps alot however if people say baclofen causes confusion, I don't have to tell you thc will cause even more. Good luck.

Also - magnesium 200-400mg is mentioned often on medical show I listen to.
You'll know if you're taking too much. Lets just say constipation won't be an issue :)


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