too much sleep????
 

lately i have been falling asleep and not waking up for full days and most nights..up for maybe 1 hr off and on.. when i wake i am totally oout of it..no idea how long i was out or what day it is...my face is somwhat numb but not like when i was having the mini-strokes..i am suppose to get scheduled for a sleep clinic..i don't think i have apnea but something is just not right..i have to schedule it around a time when i can have terry stay at his camp for a few days..maybe end of feb...what else could be going wrong??my meds are closely monitored by drs and me...most sllep spells i sleep right thru med times anad sscream very loudly but have no idea i am doing it..also answer the phone anad have conversations that i don't remember having.... any suggestions??? anybody get answers from sleep clinics..or will i forever be Just A Mystery??? moonstar :confused:

Hon, what meds are you on?

I have same question as LisaM.

Even though your doc's know what meds you're on, it's good to look them up yourself on line. I was having major problems with my heart, all due to a muscle relaxant, for a year. The doc put me on heart medicine, etc. But when I discovered a side affect that even my doc & the pharmacist didn't know about, and stopped this pill, my "heart trouble" went totally away!

Hope you have someone who can help you look them up! Let us know if you don't.

Another hug,

Denise

thanxs
 

for your replies to help..unfort..the nurse that comes to assist me with my autistic brother never showed up today so no time to list my meds ..little time to reply as he needs constant watching & attention or he will be up all night..i am just exhausted...the 200 mgs of provilgil taken today at 1pm is wearing off..:eek: :eek: :hug:

in answer to my meds::::
 

i take vicoden es 5-8 (as needed)= pain
zanex .5 mg 2-3 x's (as needed) =anxiety,depression
oxycontin 20mgs 3-4=pain
skelaxin 800 mgs=muscle spasms
lyrica 100 mg 2-3=pain ,nerve damage
lidoderm patches 3-4= nerve damage
meclizine hcl 25 mgs=vertigo
crestor=colesterol
prozac 60 mgs=depression
vit b- injections 1ml weekly=energy
benadryl (as needed) =itchy
ambien cr (as needed) but have not needed it since started sleeping way too much use to have insomnia for days.
detrol la= using bathroom over 15x's a day
nasonex=allergies i never had before
***my only blessing** provigil 200 mgs//(tried 100 no good)( tried 150 no good)
tried:::: amantadine for energy//stopped it
was on cymbalta 120 mgs depression //stopped it
lexapro 20 mgs depression//stopped
celexa=depression//stopped
elavil==stopped
celebrex//stoped
tricor=colesterol//stopped
plus many others and combo of others throughout this 13 yrs of complete maddness,pain,stress and loss of the person i use to be...:rolleyes:

they say no wonder i am tired... terry finally fell asleep :cool: just change 1 thing in his routine and he has a hard time adjusting..even though i try to change many subtle things in the day for him..when she is not here is is so happy to just be with me and have our special time together that he can't shut off his excitement..can't blame him..i am just so tired... :D

Have you been evaluated for chronic fatigue?
fybromyalgia?
mono?
Epstein barre?sp

been evaluated for everything... yes on the fibro-entire back from neck on down
have had 5 mini-strokes went for every test for that too...good news all is fine..heart,arteries,lungs.etc..
am waiting to get an appt for sleep clinic..what that will do????? i have given everything possible a try and then some have been done over 3-4x's ahhhhhh
like i said they call me a mystery...bbut somehow i keep on going??? :eek: got to go fallinng asleep at the keyboard goodnight--peace to us all

Jo beat me to the punch. IT sounds like Cronic Fatigue Syndrome.

I have it and I slept for months like that. I just never thought I would get to where I would stay awake. I don't know how Bill stood me all of these years the way I have been without bitching all of the time.

I was told that all you can do is sleep it off. It will finally calm down or go into what I would call a remission.

When I read your med list, I just about fell out of my seat. I can't take any but I guess with what we deal with a person has to be on a lot. It could contribute to what you are going through but I would definately ask your Dr. about CFS which also goes with Fibro but not always, it's a disease in itself.

Ada

Well, NO WONDER you're tired, snookie! :winky:

Lookie here - all of these meds on your list that you take on a daily basis have sleepiness/tiredness or lethargy as a side effect:
vicoden es 5-8 (as needed) Sleepiness (sometimes goes away after use)
zanex .5 mg 2-3 x's Sleepiness is the intended outcome of this med
oxycontin 20mgs 3-4 Sleepiness OR insomnia are side effects
skelaxin 800 mgs Fatigue is a side effect
lyrica 100 mg 2-3 Drowsiness, but can go away
meclizine hcl 25 mgs Drowsiness
[Benadryl Everyone knows this makes you REALLY tired!
prozac 60 mgs Lethargy
benadryl (as needed) Sleepiness
detrol la Patient info states not to take if you are doing something that requires you to "be awake and alert"

Also...I don't understand why you are taking vicodin AND Oxycontin, both. As far as my pain doc would be concerned, I'd be taking only one or the other.

provigil 200 mgs//(tried 100 no good)( tried 150 no good) That's okay. You are allowed to take 200 mg's. I also take this. BUT one thing I learned is that this medication has a tendency for the patient to build up a tolerance to the dose VERY easily. So it's quite possible, if you take this daily, that you've already built up a tolerance to the 200 mg dose. I'm not sure what the max dose is that you can take, but I'd check with your doctor. OR, spread the dose out. What I do is take 100 mg's in the morning, then later in the day I take another 100 mgs, so I can spread out the energy. That way I don't "crash" either.

So with so MANY of your meds having a side effect of sleepiness and lethargy....my GOODNESS it's no wonder you're tired sweetie!

Hon - it's not YOU ...it's your meds! :wink:

Oh Lisa,

Did you read the previous posts in Moonstar's threads? Do. I hope you'll see that Moonstar really doesn't need to be scared too much right now;

Just my opinion, but it is usually best to leave the lectures to the doctors (they do it so well..;))

Moonstar, don't worry - go and see the sleep clinic as planned, I expect they'll ask about all that stuff...and your liver will still be there tomorrow - we've all got ours still, despite the many meds,

all the best :)

No...I didn't....I do admit haven't been here in a while so I don't know what's happening.....but I will edit not to scare on your advice.

Thank you hon! I don't want to do that, most certainly!

Hello Moonstar man do I know how you feel when I'm on the computer some days not long I find my self falling asleep not being able to keep my eyes open and just falling asleep I have crashed down on my keyboards and hit my head on my computer screen so many times lol :) and sometimes I feel I sleep with my eyes open as time just seems to pass by. My kids see me in the evening and say Daddy passed out again, it is a real struggle to keep going some days when the kids are home from school I have to stay on top of things and fight not to pass out other times after PT I haft to fight to not pass out on the therapist at home she has caught me several times so I dont fall down and when my wife is home after work it is a relief for me to just be able to pass out.
I pray every thing will work out for you Moonstar hugs to you!
flippnout

flippin out - are you passing out from pain or just instantly falling asleep?

sorry to stray -but this may tie in with moonstars post.

Have you been checked for - had to look it up-
http://www.google.com/search?hl=en&q...=Google+Search

Narcolepsy

Definition

Narcolepsy is a disorder marked by excessive daytime sleepiness, uncontrollable sleep attacks, and cataplexy (a sudden loss of muscle tone, usually lasting up to half an hour).

Description

Narcolepsy is the second-leading cause of excessive daytime sleepiness (after obstructive sleep apnea). Persistent sleepiness and sleep attacks are the hallmarks of this condition. The sleepiness has been compared to the feeling of trying to stay awake after not sleeping for two or three days.

People with narcolepsy fall asleep suddenly—any-where, at any time, even in the middle of a conversation. These sleep attacks can last from a few seconds to more than an hour. Depending on where the sleep attacks occur, they may be mildly inconvenient or even dangerous to the person, particularly if they occur while driving. Some people continue to function outwardly during the sleep episodes, such as continuing a conversation or putting things away. But when they wake up, they have no memory of the event.

Sleep researchers have identified several different types of sleep in humans. One type of sleep is called rapid eye movement (REM) sleep, because the person's eyes move rapidly back and forth underneath the closed eyelids. REM sleep is associated with dreaming. Normally, when people fall asleep, they experience 90 minutes of non-REM sleep, which is then followed by a phase of REM sleep. People with narcolepsy, however, enter REM sleep immediately. In addition, REM sleep occurs inappropriately throughout the day in patients with narcolepsy.
from- http://www.answers.com/topic/narcolepsy

what a bunch of...
 

beautiful peoples....
thank you for all your time and effort on my part!!!!
lisa:: don't worry you didn't scare me... more than my life scares me these days....
the meds that i am on might be partly responsible for the sleepiness..but when i first started feeling this way i stopped taking almost all the meds to see if this was the problem and waited (of course) awhile to see if there were any changes...answer,,,just some more pain...
i am on the vicodin es for breakthru pain and oxycontin2-3x's a day...the oxy has not been doing it's job so i have had to increase amt of breakthru meds.. before the sleep nonsense started.. i was fine with all my meds..functioned,worked 6hrs a night,took care of my brothers,shopped,cleaned...of course still hurt but was able to handle it or deal with it...now...after falling from the vertigo..i am afraid to shower,drive,can't seem to walk a straight line...have no control over any part of this..can't wake up when i sleep,,not allowed to go to work..depression (if possible)seems to be getting worse..dreams are nightmares that i can't wake up from...can't help my friends who need me so much...and feeliing so guilty when i can't figure out answers for them (as i have in the past) or at least stear them in the right directions..feel like i am failing all and myself...rationally i know i am not responsible but i have not been rational for quite awhile...trying not to lose my sense of humor..it is one of the things that keeps me going...but it isn't funny anymore!!!
i am trying so hard in therapy to figure out who the hell i am now(esp. without david) and am coming up BLANK!!!
my drs call me a mystery and i feel like a blank..."what a life"
i know i am better off than many other people..and my heart hurts for them more than for me...but i am so damaged that i can't help them..this could go on and on...for pgs...so going to kiss terry good-night and try to find a small part of peace somewhere in my brain....
i am very blessed to have found this site and all of you..thank you for giving me support,friendship and a sense of hope for the future..:circlelove:
how do i get the thanks icon to the bottom of my posts???

Hey moonstar

just wanted to let you know that I am thinking of you and wish there was something I can suggest to help

the only thing i can suggest is to try not to take too many things on at once - when you are struggling with RSD you don;t need to take over other peoples stuff as well - there is only so much one person can cope with - you have to put yourself first sometimes - even if it is just until you stabilise and get control (O?) of the sleepiness

Take Care

love Rxxxxxx

JO55,
I have never had this problem befor my injury. I feel the pain is a major part of this, and my meds.

I tend to pass out during the evenings befor I take my next meal of meds so my first dose is wearing off and the pain is high at times so I just sit and do not move because it hurts so bad, funny when I move when I'm in pain it is like I'm Frankinstien I'm stiff. During the day it may be because of meds, but I just cannot keep awake and must fight to stay awake. There are times I'm reading or on computer that it seems like time flew by it is one time than all of a sudden it is a couple hours later, and I just zone in from a haze my eyes are open. Like I said it could be from meds and pain along with lake of sleep we all have.

I know I have never had this problem nefor sorry moonstar this is your thread I do not want to take over :( I'm happy you are in a better mood hang in there....

flippnout

flippinout....
 

always willing to share... thanks for your help..even saying hi to me these days does help..wish the people here..no matter what is or isn't said makes me feel like i am not so alone..i know YOU understand... linda :grouphug:

too much sleep
 

Just stumbled upon your post and wanted to let you know that you might want to consider Lyme disease. Blood tests are not reliable indicators and usually diagnosis is based on excluding other possibilities and your symptoms. Similar experience has brought me to reply to you. I suggest you check www.lymenet.org. You can look at the Diagnosis and Treatment Guidelines from there and do the symptom checklist. At least it is a starting point. Usually, when all else is exhausted, Lyme disease emerges as the culprit. Taking antibiotics as a clinical trial is a good way to see if on the right track. It is not uncommon for symptoms to flare up before getting better once on the antbx. Hope this helps.