Week one of Ketamine has worked so far!!
 

Dear friends,

My first week of ketamine infusions has been fairly successful - about 75% of my pain has abated!! I truly feel blessed!! On my first day I noticed that I could tolerate being exposed to loud noises again, (although after a while I became agitated and wanted to get away from them). I can wear a bra strap over my shoulder for the first time since my injury in Nov 2006! I can lean back against my shoulder in the car and wear a seatbelt! The only area where I am still having some issues is the back of my head in the occipital area and deep within the shoulder itself. But I am really much better off than ever before. NO OTHER treatment has ever been as effective for me.

The side effects on the first few days were intense nausea, so more meds were added to my bag. Getson uses a different dose of ketamine for each patient. and his policy to not disclose to his patients how much ketamine they are getting so that they don't have any preconceived expectations.

The true test will be to see how well it holds, and whether it lasts.

Since it is the weekend, I have the next 2 days off. I've been too tired to walk much, and too confused to be able to read and comprehend the newspapers everyday or a good book. So I am looking forward to a few days of normalcy.

Thanks so much SandyS for your good wishes on Monday morning, and to everyone that replied, that was so, so nice. You guys are really Awesome!!

Much love and peace, Sandy

Sandy,

I am so happy that you are feeling some relief. When Lindsay had the treatments she had a lot of muscle aches. So get some rest and take some epsom salt baths. It will help with the soreness. Move your limbs in the warm water. I am thinking about you. Get some well deserved sleep this week end. You are in my prayers.

Peace
Sandy

Great to hear this! :hug:

Sandy RI can I ask you what your injury was? The way you described some of your pain in the shoulder and the occipital area sounds exactly how I describe mine and I was just recently diagnosed with RSD or CRPS2 due to an injured suprascapular and axillary nerve in my shoulder. Just curious how yours developed.

Great News!!
 

Sandy,

I am so pleased to hear this. This is a blessing for you. I pray this continues to work for you, you fought for this and deserve the greatest outcome!! I will continue to keep you in my prayers.

Wishing you a pain free life...:)

Jeanie

Sandy:

It is so nice to hear from you..5 days down..5 to go.. stay strong and I pray that you will have continued relief..even to a higher degree... Hang in there my friend..You are a true inspiration!!! You are strong...please give your self some nice down time and when you feel up to it..please update us again..So nice to hear from you.. I miss you..Kathy:hug:

Sandy!
How terrific!!
The best news of all is that your pain has already decreased and you have had only half your treatments!! Enjoy the respite from the pain, and be proud of yourself for making this happen for you! It's so good to hear from you and we thank you for keeping us posted when it it time for you to rest!
Listen to some music, rest and relax and keep in touch when you can!!
sending hugs, and good wishes!
Hope4thebest xoxoxoxoxox :hug:

Hi. I am so happy you are seeing benefits and I hope it is for long term. Thank you for posting and giving feedback. You are in my thoughts and I hope it continues to go well

Sandy, that is fantastic !

I hope the great results continue and that the results are long lasting.

Great news...
 

Sandy,

Great to here to are doing well and having success.

Get some rest this weekend and keep us posted.

Gabbycakes...

Sandy,
I am so glad to hear everything is going well! Your in my thoughts and prayers that your relief continues. Take care and keep us posted.
momof4

Congratulations! What an inspiring post. I am so glad for you. Hang in there for week 2 and for continued relief. Thanks, Lisa

WOW! Sounds good.........sorry have been off the puter for a few weeks. Too much happening I guess & been having my grandsons up on the weekends. They help me keep on. keeping on & they keep me out a that huge hole of depression especially since Jan 09.

I was accepted into the study Stanford for the Real Time MRI with IV infusion of Lidocaine. I don't know when it will be as of yet but I have been accepted/

Debby

Dear Sandy -

Sorry to be late in picking this up. I join the group in their happiness for your good results, and wish you a calm and peaceful next few weeks, so your body and mind can take full advantage of the experience.

Mike :hug:

Looking for Sandy RI
 

Hi Sandy- I realize its been a couple of years since your posts---but I am currently going through what you have gone through and am looking at the Ketamine therapy- I am hoping inpatient. I also have UHC, so I wanted to see what the outcome was of your appeals and if there are any procedure codes or advice you can give me to get this approved. It hasnt been denied, I am just trying to get the info.
Any help you can give me will be greatly appreciated as you can imagine!
***
Thank you so much!
Jen