Jaw pain...????
 

Okay..after days of suffering..I give up..who else has jaw pain?? Seen my orthodontist..he suspects it is my RSD and it has found another last niche to live in my body...my jaw..I am on soft foods only... That puppy hurts!!

Talk to me..family...

luv, kathy

Hi Kathy,

I have horrible jaw pain too so I totally get where you are coming from with the soft food. If you don't already do this you might consider trying to keep the tip of your tongue on the the roof of your mouth just behind your upper teeth. It helps to keep the teeth apart and stop you from clenching which I'm famous for.

I was diagnosed with TMJ, Temporomandibular joint disorder many years ago, but the pain increased substantially since I got RSD.

Apparently there are a few drugs that are prescribed for RSD that are known to cause jaw pain but I don't recall which ones they are right now. You might check with your doctor to review your meds for that.

A few weeks ago I went and had botox injections given to me in both jaws. Since it was my fist time having something like this done the doctor just gave me only a small amount. I am going to go back next week and I'll ask her to increase the dosage for my next treatment. After I had it done I was shaking my head asking myself why I didn't have it done sooner.

Warm wishes,

MsL

Kathy, Possibly you could try a bite splint, especially at night. They make these so they are OTC now. I have used one for many years with a lot of relief, it has become kind of a baby blanket for me. I hope you find a solution soon, a body can only take so much soft food!! Best wishes, Lisa

Thanks for your posts..I have actually damaged my back tooth I think squeezing my teeth at night..Yea, soft foods ..really can't stretch too far but just the thought of hard chow..just turns my thoughts to no way..not yet..I am cold turkey RSD, not able to take any meds so its not meds, but thank you....I have addressed this before ... my x-ray shows a halo in the nerve root in my jaw..but lately..it plans hurts awful...last month Dr.S said I have inflammation on that side of my face.. MLS..it hurts huh?? Dang RSD.. Lisa, I think I will look into the bite splint....

Thanks so much..nice to get your feelings on this...

Hugz, Kathy:grouphug:

Raises hand..me me me.

And I am in the middle of dental work as well. Was having dental implants done and had to stop for a year because of all the pain from my shoulder and resulting RSD dx.

But have to fnish the work. Last week I went for a cleaning and it flared me. And then I was too flared to have the oral surgery so my dentist actually did arthocentisis where he flushed the jaw joints to help with the inflammation.

I agree that a night splint might help and soft foods! My oral surgoen also gave me some exercises to do and is recommending TMD physical threapy.

I empathesize with your jaw pain.

Hi Kathy, So sorry you are having this issue. I attended some Biofeedback classes and I remember one hint that helped me relax my jaw was to put my lips together. When they are together. the back teeth are separated, thus less biting or pressure on teeth.
When I go to dentist, he always orders antibiotics to prevent infection.
Let us know how you are progressing. Your friend, loretta

I woke up so many times with my teeth and jaw clenched where my jaw would be sore. My dentist thought I was grinding my teeth but he saw no indication of teeth wearing. He made a top splint for me and it helps immensely. He just told me not to wear it all the time. At the time my dentist, nor I, knew I had RSD in my face.

Good luck to you.

Mycah..

Do you have RSD in your face also?? Have you ever or anyone here ever had an xray of your teeth or jaw that experiences the pain?? I am interested what/if it revealed a "halo" in the nerve bed... My jaw tightening, I do when I am awake too as it is the intense pain causing me to do that.. I am sure..even my tongue hurts and the pain travels to half of my lower jaw..deep sharp pain.

Loretta..thank you my friend..I also take antibiotics as I have a heart issue that requires it..I have been looking into this jaw pain for awhile and seems my endo. says no infection..due to the nasty pain that has migrated to half of my lower jaw..seems he is sure it is RSD. UGHx2!

Hugz, kathy:grouphug:

Yes Kathy I do have RSD in my face. I haven't had an xray done of jaw or teeth to look for anything but cavities.

About six months ago I was being treated for hemicrania continua because one side of my head/ear/face/lower jaw hurt and was very sensitive. Had a droopy eye too. Indocin didn't work so then they thought I had trigeminal neuralgia and put me on Trileptal. Then the pain/sensitivity spread to just the other side of my face. Trileptal helped but could NOT stand the horrible side effects so I took myself off of it. Have had one occurrence since.

I also have the jaw tightening when awake but that usually happens when I'm stressed.

I've only been diagnosed with RSD since April 1 but feel I've had it for a couple of years.

All the best,
Nancy

Dear Nancy...


You have described it to a T!!! I am so very sorry for your RSD.. I understand..a month does seem like years to us who have it..it is not easy to live with.. it tips our world upside down... All of my best to you for patience and comfort...let me know how you are doing..

Hugz, Kathy:grouphug:

comes and goes
 

Kathy sorry to hear you are having problems in your jaw now too. My jaw problems come and go, upper left side of teeth are always involved too. very painful. for me its like a nerve is sensitive in the teeth and the jaw is bone pain. fortunatly for me, this comes and goes. hope it will for you to , my very best to you,dc
Oh - I put my ketamine gel on mine it really helps as it does with migraines on my forehead!

Hello dc... So nice to hear from you.. Thank you for your thoughts..Yea..it's ugly pain as we are use to huh? I am sorry you also have it..usually mine will come and go also but so far I am on several days in a row and no let up...and it does not want to let up...I am steering away from hard chow right now..trying to just be a good sport.. You know me..gotta smile..behind that smile I am gritting my teeth lately but again it is part of our issue huh..If I had a magic wand..I would proudly wave it over you and all of our RSD friends..and pray I could relieve all of our nasty pain..It was wonderful to hear from you my friend..Thxs..it trully helps having your support...

hugz, Kathy:grouphug:

This just started for me. For about a week, I had a lot of pain in the joint between my jaw and my skull on one side only. This was actually in the joint, right in front of my ear, so I would not really call it jaw pain. I was blaming my Rheumatoid Arthritis and was going to discuss it with the rheumatologist at my next visit. That made sense to me because it clearly seemed like a joint pain more than anything else.

I am surprised to hear from all of you that you have jaw pain and that you feel it is somewhat related to RSD. Interesting...

I am curious to hear more of the specific location of your pain. When someone says "back pain" that's a huge area. "Jaw pain" is a little more specific, but is it in the joint (as I felt) along the lower teeth, along the bottom (the "whisker area" on men) or general overall malaise?

Wishing well to all...

Mike

Hi Mike..

I would be more than happy to describe and give you the dirty details about this jaw pain..... Mine too is my lower right side..it seems to begin deep below my last tooth and the pain radiates forward to the center of my jaw in the front... It seems real deep..and even that side of my toungue hurts and today I am noticing the inside of my cheek feel roughed up..I have had the pain this time for going on 5 days..Now I have had a root canal on the back tooth so I should not have pain as thenerve is gone...and the x-ray shows a "halo" in the nerve bed..When my endodontist taps on my teeth slowly moving forward it hurts all the way up to the front of my mouth.... My reg. dentist is at a loss so my endo. is back on it and he feels it is RSD... The nerve bed feel conants sharp pain..makes me bite down hard.....Hope I helped you..

Kathy

KS -

I too have horrible jaw pain. I have TMJ and since I was diagnosed it has gotten much worse. So much so that my PM is afraid to put me under during spinal blocks because he doesnt think the can intibate me if needed. I am always very tense before surgery, and tend to clench my jaws while stressed. My Chiropractor cracks my neck a certain way and it seems to help for a day or two. Also, I do stretches, like singers do, by stretching my mouth open repeatedly. Good luck, it can be maddening.

Kim

Kim..

When you said the pain has gotten worse since you were diagnosised..do you mean diagnosised with RSD or the TMJ?? Yes..it really hurts, does not help when the rest our bodies are trainwrecking also..but it is one way for weight control huh?? I am not eating hard chow for the last few days..The thought of chewing down on something hard just turns away my hunger...

Thanks Kim..Great to hear from you.....

Kathy:grouphug:

you are the best kathy
 

Kathy, I dont know if this will help but during these flare ups i use a plastic spoon, the flare ativates the sensitity in my teeth and plastic is better for me. thank you for you kind thoghts as always. they help so much. sincerely dc

Hello dc..

Of course, you are always welcome!! The pain and agony we all suffer is so not fun..If I had one wish it would be..to box up all of our pain and send it sailing on some long boat out to sea..Then gather us all RSD'ers,... our family here and have a "so long" osta la vista party...until this is possible..we must and will hang closely..together.. right here and smooth out the bumps for eachother..as you and everyone here mean the world to me...

love, K:grouphug:

Kathy, I was poking around today and found a clinical study being done with CRPS patients with jaw pain. The site is www.clinicalstudies.info.nih.gov
This is a reputable site and I at once thought of you. Maybe you can check it out and possibly be accepted. I hope that this helps a teeny bit and I hope you are doing better. Lisa

KS.
Worse since the diagnosis of RSD. But, again, I carry my stress there. I've been told that we can manifest our RSD in our jaws. Don't know why but it makes sense to me. My TMJ doesn't interfere with my eating...my narcotic intake does!!! Once I eat something, and, well you know.....

Kim

Yes..Kim..I do understand..and now my jaw has settled down..it is intermittent pain, same place... but when I eat it can make it start up again...then all at once it will hurt for days on end...it's real!

Lisa..Thank you for thinking of me and reading up on the study..I am going to look it over real well.. what a nice family we have..I believe we'd have to travel far and wide to have such a great group of friends here...!! i'd be lost with out you!!!

Hugz, Kathy:grouphug: