Cymbalta?
 

Well today my Lindsays pm put her on Cymbalta. The Nucinta did not work. Has anyone had any results with Cymbalta?? Is it helpful? Lindsay is turning 17 next week. I feel like she has had such a crappy hand in this life. I am hoping that Cymbalta will help her. Do you have any side effects that I should watch for?
Any information will help. I did google it, but hardly any information on RSD.

Thanks in advance for any information.
:hug:Sandy

CYMBALTA IS A LIFESAVER!!!! I really dont know how I lived without it. My friend who is 17 is on it for rsd... and it just keeps us in such a better mood fighting the pain everyday... occasionally I will sweat at night... but the pros are BY far superior than the cons... 60 mg is for pain... 120 is depression.

Cymbalta I definately recommend it. i have been on it for almost a year, and I know when i started taking it it definately helped me be able to have more energy to manage my relationships and friendships better.... what it does is it increases seratonin I believe in the brain which is for depression, but is your bodys way of fighting pain and thats why my doctor likes it for rsd. :)

Best of luck to her!

I found out about cymbalta about 1 year ago. It has helped my burning pain so much. I just heard somewhere on the news last week that the FDA is approving advertising of cymbalta for nerve pain. Hope it helps your daughter too. Keep us posted. Fondly-Carol

I take 60 mg. / day of Cymbalta, along with methadone, and a little diazepam, it's a great combination, or cocktail..
It does work for neuropathy type pain, and is a good mood stabilizer.

I've been on it for jeez, four years, when ever it was first introduced, my Neuro put me on it immediately.

Good luck to you, and your daughter!

Pete
asb

everyone is different with meds.

For me, cymbalta was not good. I had a terrible time urinating when taking it. I worked up to 60mg a day, took it for 2 months and didn't feel any pain relief - but I did become depressed. I felt so much better a couple weeks after stopping it.

We each have to try meds and see how they work. Some will, some won't.

Good luck with it!

I agree with Hannah cymbalta is a lifesaver !!!! It's changed my mood completely. But hasn't changed the pain but then again I never expected it to. I love love cymbalta !!!

Cymbalta?
 

First, please send our encouragement to Lindsay. I had excellent results with Cymbalta as one of my initial "cocktail" of drugs for which I was prescribed the first three years of my treatment for RSD. Other drugs included in the "cocktail" included Neurontin, Norco, Ketamine, Topamax, and a low dose of Oxy. Unfortunately, I developed a side effect from Cymbalta of total body sweating. I could soak through my clothing within an hour. I went to my specialist after three days of this, and he identified the culprit as Cymbalta. He directed me to stop taking it immediately and the sweating stopped. I am optimistic for Lindsay that Cymbalta will deliver strong, long-term results to her as hopefully one of a group of drugs that her specialist has prescribed. I was disappointed when I had to discontinue its use and the benefit it provided. Happy 17th Birthday to Lindsay next week!

Cymbalta
 

Hi Sandy,

I did try Cymbalta and it was not for me. The sweats where just crazy and it did not help me. But everyone is different and you have got a lot of positive feedback. My only concern is her age,17 is young for a strong drug like that.

I hope Lindsay is feeling the best she can and wish you guys the best. I can somewhat relate to your feellings. I have a 16 year old daughter who we just found out has some pretty serious neuro problems. It hit myself and my husband like a ton of bricks. But we went to the best neuro-peds surgeon in NYC and right now everything is at a standstill. She has a Type 1 Chiari Malformation and a tiny, tiny, lesion/tumor on the temple of her brain. She is functioning normal & may never have to have anything done with either problem. She is being monitored with MRI's every 3 months and so far the lesion has not changed, they are more concerned with the lesion then the Chiari. I think I cried for a week straight. We found this all out in the ER and then had to wait about 3 weeks to see the neuro surgeon. It was the worst 3weeks of my life.

I wish you guys the best. Good Luck...
Gabbycakes

Hi Gabbycakes,

First and foremost I want to say that I am so sorry that you have to go through this. It is so difficult watching your child suffer and there is nothing that you can do for them. I will pray for you and your daughter. My girl is suffering with a really bad stomach ache, we are going to try some kind of stomach remedy. I heard that ginger helps. Also, the pharmacist said to coat her stomach with mylanta through out the day. If its not one thing its another. Thank you and I hope that all things work out for your daughter.
:hug::hug:Sandy

Hi. I am on Cymbalta as well as other meds similar like Neurontin. I started at 30 and worked my way up to 120. My biggest issue in the start was extreme nausea but my pain doc was like give it 2 weeks and that will pass and it did. I took it at dinner to lessen that issue. Now I take it 2 times daily 60 and 60. I am not sure what is helping and what is not. I think for me when Neurontin was added to Cymbalta it helped. I am sorry for your all your daughter is going through. I know this takes a toll on the whole family. When I developed PN and RSD and I am older but it was at 28 the toll it took on my mom was very terrible. I really encourage you to get your own real time support through family and friends too and also do things to perk your spirits in ways that you can. It makes me so happy even when I am in a bad place pain wise if my mom can do something nice for herself. I'm glad you are reaching out here too.

Cymbalta 60mg at bed has worked well for me also. I also take 300mg Lyrica. I think it the combo helps both the pain and my mood. I still have days where it all builds up and I have a meltdown but my husband said he'd much rather give me a day than see me miserable all the time. Hope it helps your daughter. I hate this but would much rather it be me than one of my kids.

It is so difficult to see your child suffer...You would give your life to give them pain relief. I cant tell you how this is. I am happy to hear that your husband is so supportive. God will bless him. She was unable to take the lyrica, it dropped her blood pressure too low. But, hopefully this will be an answer for a little while. My prayers are with you.
:hug:Sandy

First thing I want to say is your daughter is in my prayers and I hope the best for her.As far as the Cymbalta I have been on it for 5 or 6 yrs. and I think it is doing something for me but what I am not sure due to myself being on a whole ton of meds.The only side effect I get from it is if I don't take it which I take 120 mgs. a day cuz I don't have any I get very sick and light headed. I feel like my body is going through withdrawal symptoms. I myself am not addicted to it but I feel since it has been in my system for so many years that my body has adjusted to having it in my system so therefore without it it makes me feel horrible until I get some more inside of me. Best wishes to you and your daughter.

Sincerely,
Tracy

Hi,

I have heard from many people that if they miss a dose, they feel the same way as you. Thank you for your prayers, She has been having a few trembles with her hands. She was really loopy for a few days. But, she seems to be doing better. Thank you for your prayers.
:hug:Sandy

Dear Sandy and Gabbycakes
Sandy,I am so sorry you are having to see your daughter struggle in pain..I know you would do anything to take her pain away..I am a Mom, and I can only imagine what it must be like to feel helpless in trying to bring relief to your daughter..
I am hoping that there can be a turning point when she will start to get relief.

Gabbycakes, it must have been a difficult time while you were waiting for results from your daughter's test and diagnosis.
I send you and your daughters my love and hope for treatment that will help them long term and bring them comfort. I hope it helps to know that we are here to listen :grouphug:
Sending hugs to all of you,
Hope4thebest

I loved it, it helped reduce the burning pain. The first few monthes it killed my appetite and I lost quite a bit of weight. Make sure she takes it with food. Whole milk, yogurt, or a few tablespoons of ice cream worked best for me. My stomach got so chewed up I had to go off it, and many have had that problem.

Did she start the Nucynta without being on a time released opiate?

Good luck!

Thanks Sandy,

It's is one of the worst things I have had to do is watch my daughter,who is really such a good kid,smart, focused, knowes what she wants, suffer at times. Currently her surgeon is only doing MRI"s with and without contrast to monitor the lesion/tumor. So, presently there is nothing to do. What makes it a little scary it is a extremely small lesion/tumor so outside of the MRI"S or removing it there is really no other testing he can do, as he said. So she goes back in June for the third series of MRI"s and then we might talk about just removing it so it doesn't give her any trouble in the future. But my husband is really against doing any kind of brain surgery unless it's absolutly necessary. We just take it day my day and luckly she is doing everything she did before she has no retrictions and feeling well. The headaches she was getting and started this situation are not from the lesion/tumor or the Chiari Malformation it was that she needed glassed the conditions only was a catch my chance.

I hope your daughter is feeling better with her stomach. One other remedy I have used over the years is plain coke syrup, make it cold because it's a little nasty. You can find it in Pharmacy's, if you don't see it on the shelves ask the Pharmacist. Good Luck.....


Gabbycakes

Sandy, I definitely think it helps with my random stabbing pains. I don't like side effects of weight gain and dry mouth at 60mg so Dr. cut me back to 30. Tried to come off it after a few months and I found it really helps with pain so I was put back on 30mg. It is one of the only antidepressants that also help with nerve pain. Hope it helps. momof4