MRI Report
 

Got a good report from my neuro – no new lesions:D !!! So that is two years without any new lesions. I also did well on my physical exam. I only thing I could not do was walk on my heels. He actually used the word mild when going over my MRI with me. I am going to slowly taper down the baclofen I have been taking from 6 a day to 3 a day as it does not seem to really help with my spasticity. Then he may try a different one. He is also going to try to get approval for ampyra. He said that my insurance will typically not approve a new drug until it has been on the market for 6 month. He also seemed skeptical that it will help me, but he said he was willing to have me try it for a few months if he can get approval.

Yay...I like good news! :hug:

Awesome, Barb! :hug: Congratulations on 2 yrs with no new lesions. That is such exciting news and I hope that continues for you.

Hopefully, the insurance will approve the ampyra and you can begin taking that.

That is great news, Barb!!! Yahoo!!!

awesome! I know you were so worried, because you cant handle any of the common DMDs and I am so pleased that you remain stable. Rock on! :hug:

http://home.earthlink.net/~sal.pal/s...ures/jump3.gif WTG, Barb.:hug:

My neuro did mention the new oral meds that have not been approved by the FDA yet. He also said that I would of course want to try one of them. But a few minutes later he mentioned that I have been stable with out being on a DMD. I think he is a bit unsure of what to advise. I'll cross that road whenever they are approved.;)

Dejibo -- Are you back on copaxone?

Yay Barb!!! So happy for no new lesions. :)

Woo hoo Barb!! :hug:

Really glad to read the good news, Barb...
I've been reading about people's experience on Ampyra on the NMSS site on Facebook...almost everyone has seen improvement in their foot drop as well as tingling/numbness lessening, cognition improvement and vision improvement. My neuro said he saw all of these in patients in clinical trials through him.
So maybe you'll see improvement, too. by the way, the drug company is helping patients defray the costs...my neuro had me fill out a form that is sent to the drug company (at least I think that's where it went). It then goes to a coordinator who works with the insurance company to figure out how much they'll chip in...at least that's what I've been told.
Don't give up on trying this drug...:)

I really do not have foot drop -- more like leg drag. My problem is stiffness and pain. Maybe that is why he does not think it will help. My neuro mentioned that there was a program to help with costs too. I assumed that I would not be eligible. I am not going to give up although I may have to wait until it has been on the market for six months.

Barb, I am so happy for you. No new lesions, and a good clinical exam. That's wonderful. :hug:

I had the same report as you in March and it made me happy too. :) I can't walk on my heels very well either, I must practice, practice makes almost perfect. :D

I fall backward if trying to walk on my heels. But I can stand with my feet together and close my eyes and not twitch, get a head tremor, or fall over anymore.

When I am tired, my left leg drags or swings out. Not foot drop either, just it gets wacky when I am fatigued. I know it's nap time then.

My calves get spasticity after walking, because I don't do that too much other than in the house. One store and I am done in. But I have to get out sometime.

I hope your ins comes through for you for Ampyra. My ins says, no new drug for 1 year out of clinical trials. I hope the co-pay is not high for you. I haven't heard much about the drug or it's cost.

Love to hear your good news!!

Great news Barb!!!!! When Jim was dx'd with foot drop his leg dragged too. So bad he went through a new pair of shoes every month. The military couldn't keep up while he was awaiting discharge. :)

Your news: CONGRATS!!! This is awesome barb :hug:

As for your choice to go DMD free.. my neuro advised me to be on a DMD, however I said no way, I know my body, I know my diet's controlling this crappy disease. For me, it was the right choice. For him as the neurologist, it was playing the roulette with my disease, but I think he knows deep down what you said... mild. My GP used the mild word with me. Let's hope we both remain mild-ies ;)! :hug: