Where has everyone gone??
 

Where is everyone who use to post on the old BrainTalk i.e.; Wayne & Harry???

Jeff

I don't know,Jeff. I guess they either don't know about BT2 or they're just waiting for the old BT to come back on line.

We can't post every day, if I have something to tell or ask I post.
What you make?
Geia hara
Fotios :cool:

wazzzz up pals, glad someone is posting about it, asking where everyone is. i think i ran em off with all my posts. wont let anyone speak up,, u think ????

i think thats what thelma is trying to tell me.

jump right on in here and speak up.
tell all, ask all, show all.

I think there is a critical mass of active members required for a forum to succeed and grow. It would seem we are below whatever that number is. It will be hard to overcome this I think. Perhaps if everyone makes an effort to post for a few weeks it will attract more responses from the few inactive browsers that we do have now. As well, it's beginning to look like BT itself is down for the count.

Hey
 

I'm back. Wouldn't let me use WCG anymore. So now its just Wayne. How is everyone?

Yo Bobby

Well now I think [ no ego here] that the content of all of the posts you have put in are great but overwhelming. It takes a lot to scroll and read so many.

I would like to see more coming here as we stand a chance of having some freedom here that has been long lacking at the old site.

But we need to get organized and contact the members of the existence of this site. The more the merrier.

Then get the postings in order so no one subject is covered by all

Anyone who has a list of names and email addresses can send it to me and I will send them all a welcomming [sp] note via email.

What say you boss can I be your underling

I made it :D

Good to see you Wayne, Im doing fine........how about you ?

Jeannie x

Hi Everyone!!!
I, though a CALS, am back too!!! I joined as soon as I discovered Braintalk was back.....
Hope all are doing well!!!
Alison
(my 45 year old brother has ALS)

Hey Jeannie,

Still doing pretty good. Approaching the big "5 year mark" that I've heard is a milestone. Still working and enjoying life.

I miss a lot of the old posters. I really wonder what happened to Lisa. I've been checking into the ALS-TDF forum while BT was down but only post occassionally. I ranted so much before on here that I feel like I've already said all I can about ALS. Think I needed the break.

Wayne

boomers here
 

Hey, Boomers in the house !!!

A new one , we moved in the last week so I haven't been online much.......just to check if there is any money left in the bank.............

The new house is great !!! my wife can get home in 120 secs from work if she needs to and now comes home everyday to make lunch etc...
I finally have a accessible shower with a seat......it saves a lot of my energy and means I do not have to be semi -lifted in anymore. Also I can have a shower for more than 5 secs...........

There are arches from room to room so no doors to tackle.....except the privvys.........and sidewalks outside so I can ride around the neighborhood !!

I love it !!!!

bye for now

Hello everyone
I like to see old names!
Geia hara
Fotios

Hi all,just want to say hello,:) John

How are things going Wayne

Hello John and everyone else,good to see you here. :)

Did you guys build this new house or find one more accessible? We added a bedroom and bathroom that made a huge difference.

anchor the sailor
 

i have been hanging out at ALS-TDF forums. happy to know that BT2 is operational.

I hope there will be no advertising on this site. We were all hypocrits for supporting BT1 that allowed advertising of known quacks and fraudulent ALS therapies.

anchor

Speak for yourself anchor. LoL... I was banned for asking danr if he was CALS /PALS or just someone selling something.

See the full story at forum feedback

Bravo I hope the pals understand that.
Fotios :cool:

No one was a hypocrit it was just grabbing at hope and believing the bull that some researchers told them.

What really bothered me was that a very high respected allias gentleman researcher [hate to call him doctor] knew all about at least one of the shysters and yet didn't have the courage to come right out and tell us.

The members that were there learnt a lesson they won't soon forget and unfortunately some lost that hope in the process.

Many have drifted away because of it.

So don't blame the members for finding the truth and stating it you put the blame where it should be on the backs of those who see the monies to be made and the medical profession for the members who only see their own private status quo and are afraid to rock anyones boat less it happen to them.

And of course on the website that allowed it to go on endlessly till it had been proven by us.

They took off anyone selling a bloody watch and left those who were taking life savings for a lost cause.

So don't blame each other as we were the victims and not the perpetrators.

reply to Dave WV
 

No, we didn,t build it !! We have been trying to get into this neighborhood for ages but most of the property was high priced.

My wife noticed this old house that , a builder had just revamped...basically renewed a 1949 house .A bit like the "extreme house makeover" show , without the tears and a needy family wiyh 30 kids(lol)

So when it was finished my wife wen to be nosey, thinking it would be outof our price range...........but it wasn't and was laid out perfect for one of us ALS team members.

I appreciate you asking and glad you we able to relay your house to make it user friendly. There must be lots of PALS and other disabled people out there, who really struggle on a daily basis to do the simple tasks, simply because they are in a property that is not handicapped accessible and they do not have the means to alter their circumstance. Can you get grants ? what about other countries? what does their gov do to assist those that need assistance?? Anybody?

Hey Wayne,

Good to hear from you. Have you heard from Harry? Has anyone heard from Harry?

J

Hi Jeff, Harry is a member of the ALSTDF forum, he last posted on 08/23/06 seen here http://www.als.net/forum/topic.asp?T...41&whichpage=2 you might be able to email him there?

His user profile can be located here http://www.als.net/forum/pop_profile...display&id=503

Jeannie x

Jeff,

I did get an e-mail from Harry about a month ago. I would send greetings on the TDF forum. Its a good forum and has grown since BT was down. And Dr. McCarty on it is excellent with very good answers to a lot of patient's questions.

Hi all, glad to see people are wondering back in again. I think the thing that the online ALS community misses most about BT is its high throughput of new members and old hands. Lots of them seem to have dispersed around the globe, especially back to sites in their country of origin. So the UK lot have retreated back to BUILD, the canadians are over at ALS Forums, and the sciencey people are at ALSTDF. We're getting a lot of new members at PatientsLikeMe too, but I don't think we get as many "random" people moseying in.

That said there is certainly a lot less questionable quackery about in the ALS land since BT shut down, I haven't heard a jot about stem cell transplant in months!!!

Paul