help me please :(in HORRIBLE pain 2 weeks after wisdom teeth out
 

I had my left side wisdom teeth out two and a half weeks ago and am in EXCRUCIATING pain....
My dr added neurontin, tramadol, baclofen, celebrex, 6mcg of diladid every 3 hours, fetanyl patch-- and i still cant handle the pain. I had a ketamine infusion last thursday because thats what i get for my rsd pain and we thought maybe it would help with this and it didnnt even touch the pain... I have been twitching really bad and shaking from the pain. My dr is really concerned and has helped alot but I am wondering if anyone else has had this kind of horror with their teeth. My whole bottom and upper jaw all the way to the front is raw and i cant touch itl.... i brush it and just ball my eyes out because I know if I dont brush them I could get cavities and just make my teeth more unhealthy than they are now and I have always had really healthy teeth. Does anybody have any advice at all???? I have had blood taken for to make sure that I had no infection. And everything came back normal, I have had no fever, but just HORRRRIBLE HORRRIBLE pain. it goes from my throat area to my jaw up to my ear, my cheak and it hurts to put my hair in a ponytail because its pulling on some hairs... on that side of my head. I have never shook this bad or twitched this bad. It doenst feel like RSD pain though, its not burning in my mouth... but my rsd symptoms on my right side are worse until I had the infusion. The only thing I still have besides my normal rsd muscle achy pain is the bad twitching. am i making any sense? can someone help me? My mouth is so bad, I have no idea what to do. Its been 2 and a half weeks and I would have thought the pain would have gone by now

Dear Hannah,

Is there some kind of block that is available for the face and head? Perhaps that would help? I'm so sorry, I don't know what else to suggest...especially since the ketamine didn't work, and infection has been ruled out.

If the meds aren't working, I would caution against taking too many in an effort to gain relief. Once you get to a certain point, their effectiveness starts to wane and you're not doing yourself any good by just popping the pills.

Another thought - have you tried methadone? Just 5 mg of methadone a few times a day worked wonders for my nerve pain last year when started to get really out of control. I had an an awful time with occipital pain in the back of my head.

I will keep you in my prayers. Much love, Sandy

Dear Hannah,
I read your post and I felt so helpless in trying to offer some help to you!
I went to the RSDSA website and looked up RSD dentistry.
There is an article written by a specialist ...he is a dentist and an anasthesiologist. His name is Louis Siegelman, DDS and he has a practice in New York City. He seems expertised in the special circumstances of dental care with people who have RSD.
It could be helpful if your pain management doc or your dentist give his office a call for some guidance on how to help you! This is far too much pain for you to endure..
Keeping you in my thoughts and sending soft hugs,
Hope4thebest :hug:

Thoughts for you
 

Oh Hannah I am so sorry for this !!! Did they do extra anesthetics right before they finished? Were you out for the surgery? Did the Ketamine do any good? I am praying for you.
Wendy

so sorry for the pain you have
 

Hannah, I'm so very sorry you are still in so much pain from this! I don't have any information. just sending hopes and prayers that this will quickly diminish and disappear. God Bless!

Hi Hannah, I am sorry for all of the pain and suffering that you are experiencing right now. It does sound as though it is definately related to the invasive procedure that you had done. I don't know if this is in relation or not, but I did have major surgery on my left foot five weeks ago, I was under anesthesia for six hours. I did experience some major pain in the mouth and throat area for about two weeks as well as my shoulder and neck and then it slowly got better. Possibly, it could be linked to the anesthesia or just the invasion of the surgery. Wisdom teeth can be nasty without rsd. I will keep you in my prayers and I do hope this calms down for you. Do watch the pain meds, my pain skyrocketed from the dilauded and I was only on it for two days and I had no blood pressure. Definately continue to seek medical advice so they can monitor you. Warm compresses helped too. God Bless, I do hope this passes for you.

Jeanie

Hey Hannah!
 

I am SO VERY sorry to hear of this!!

Have you tried asking Bryanna on the Dental Forum? She is a LOAD of knowledge....maybe she could give some insight.....
Make sure you mention that you have RSD....

Here's the Dental Forum if you want to try there.....

http://neurotalk.psychcentral.com/fo...rune=&f=89that

Praying for you my Friend!!
Rae
:hug::hug:

Can you tell me how the pain got worse with diladid. And what did you do for pain control. What medicine or medicines worked for the pain

Hannah -

I agree with the comments of Sandy and H4tB. That and I would suggest that you be seen by a pain mngt. doc. who specializes in facio maxillary pain ASAP. (I sent you a PM with one lead in that regard.)

This is clearly an "emergent situation" on account of which you need to be squeezed into someone's schedule within the next few days. The time to get on spread is when it's happening.

And whether or not there is going to be any delay in getting an appointment with a sub-specialist, by all means have your current doctor follow up with contacting Dr. Siegelman in New York.

Mike

Hello Hannah....I am so sorry for your mouth pain..It can be very aggravating... I have heard of people even without RSD having a "dry socket" which exhibits much pain after a procedure..Possible?? I have RSD in my rt. lower jaw..I understand as the pain can be aweful for days..It turns me to eating soft chow for that period of time and I have recked a back tooth just biting so hard in my sleep..I hope soon you will find answers to this...Not sure it has to be burning to be RSD in your mouth..just plain deep aching bone pain..Move forward quickly to a dental specialist and we will certainly keep you in our thoughts and prayers...

I hope for a less painful day for you...Hugz, Kathy:grouphug:

Hannah, look up 'Trigeminal Neuralgia Symptoms' on the internet. How are you doing?

HI I am sorry about your pain. Did your pain doc state what he felt you should do? Did you go back to the oral surgeon for a check of your mouth to just make sure that on that front it looks ok and there is not another reason besides an infection that could be causing this? I wish I had more answers. I hope you get relief and you are in my thoughts

Hi Hannah,

So sorry to hear of your situation. I talked to my pain doc who in short said (based solely off of your post) this is a classic Trigeminal or Maxillary N. issue, a really bad one. A couple of N. blocks could be tried but usually Fascio-maxillary pain of this sort ends up with an Implantable nerve stimulator. Patients do well with it.

If you want to PM me, I can put you in contact with him. He is north of you around 45 minutes or so.

As coincidence !
 

Here is a thread started just yesterday by a great friend here talking about this very thing.....

http://neurotalk.psychcentral.com/post662141-1.html

Just an FYI, not implying this is what you'll have to have done......
It's just good to know we've got so many bases covered here at NT....

Caring & Praying
Rae
:hug:

Hannah,

I feel so bad for you. Twice when I had a tooth pulled I got what dentist call a "dry socket" it is extremely painfull. From what I understand the a dry socket is when the blood does not clot properly after a tooth is pull. Call him and ask him I bet thats what happened. Good Luck....

I so appreciate everyones thoughts and prayers,,, Its taken me awhole to reply because im shaking so bad and I havent been able to type.

My mom called that dentist in new york, and he said it sounds like just excruciating pain post wisdom teeth and my rsd just flared it up and is causing all this pain in my mouth. And my pain dr said that the shaking and twitching is the rsd flared up because it has a muscular component to rsd being that I had my wisdom teeth out my rsd has flared to all the shaking and twitching. I had the ketamine infusion which saved my body from the burning but i still have the twitching and shaking. The dentist in new york said it is goin gto take months and months to go away but for sure under a year.

Wendy: Yes they did give me extra anesthetic afterwards. He actually gave me ketamine during the surgery and then alot of extra afterwards. Apparently the anestesiologist is the best in LA/Beverly hills area. His name was Dr. andrew chen I think... His last name is chen for sure but i dony know about his first name

Jeanie: I am watching the pain meds. We did ask the dr if that would cause a problem, but he said if we take you off all of them your RSD will flare up full force and we want to keep it as low of a flare as we could right now.

It is not dry socket for sure. The dentist took an x-ray and as much as he could see in my mouth he said that its not dru socket. He told me a bunch of stuff but I cant remember anythin because im in so much pain I can barely remember anything let alone talk.

AGAIN, THANK YOU EVERYONE FOR all of your time you put into replying. I cant type anymore as i am shaking and i had to have my sister type over half of this. I pray everyone has low pain and he comforts everything with all of their relationships with family and friends.

Annah

Hannah..Now were talking the same language..I too have RSD in my jaw..rt. side bottom. it extends from the mid portion to the back..better than half of my lower part of my jaw..I understand and relate to the obnoxious pain..and yes, it does last for weeks once it begins...I usually end up eating soft chow until it subsides... it is not full time pain as my rt. leg but it does hurt terrible..mine was a result of having a root canal.....
I am so incrdeibly sorry hannah... Let me know what I can do..
Love, Kathy:grouphug: