Calmare Treatment Cured Our Son!
 

Hi! I'm so excited and thankful to be able to tell you about how God answered our prayers for pain relief for our 16-year-old son from RSD! He was diagnosed 8 months ago the beginning of November 2009. He's done physical therapy, 3 nerve blocks, the last one made it worse and spread, all kinds of opiods, and the SCS machine with Dr. Rhodes, which also made it worse for him -resulting electrical shocks in the nerves in his leg. We did see people who said they were helped there though. I was looking into ketamine infusion, and I heard about this new Calmare treatment which is non-invasive like Dr. Rhodes' machine, but this worked!!! We went to Providence, RI to Dr. D'Amato, who was trained by the Italian inventor of this treatment. After 10 days of treatment, our son came home with no pain! Dr. D'Amato and his staff are the kindest, sweetest people ever, and we thank and praise God for this huge answer to prayer! If you have any questions, about this, Google Competitive Technologies Calmare treatment. They have links to all the clinical studies in the US that were just released this past May and all the other info. Three major universities and several pain clinics, including Dr. D'Amato's participated in the clinical studies with fantastic results. If you have any other questions, please reply to this post. I don't know if I'm allowed to give out my e-mail address, but I'm happy to if it's okay. God bless!

I am Very Interested
 

Thanks so much for posting this information! I just spoke to Dr Rhodes the other day and am planning to go but now I am having second thoughts- Do you know if this treatment has worked with adults? Also with those with full body RSD? Do you have a contact number- I would love to talk more -

Thanks Thanks Thanks

Debbie

Kim,
I don't want to rain, but I did just google the company there, and found in the first 4-5 hits, sales of the companies IPO and stock. Investors were not happy, to go as far as calling this type of thing the same as buying a lottery ticket. (As an investment goes).

So, I wonder what gives?

I hope you keep us updated on your Son's long term success? (And, I certainly do hope that's what it is!).

Also, Debbie, you shouldn't keep your email addy up here in the forum, as I was told, search engines will pick it right up, and you'll get spammed. They were right, it's true!

Pete
asb

Thank you so much for your post. My daughter just turned 17 and she has CRPS for 5 months. She did a re-hab program at RIC in Chicago for 10 weeks (2 times a week for 1/2 days) while in the program CRPS spread from knee to lower leg, ankle and foot. She had 2 nerve blocks, 1st lasted 11 days and 2nd lasted 9 days, both times pain came back full force. RIC will only do 3 N.B in a six month period, so not sure if we should do the last one. She is doing PT 3 times a week and is able to walk for short distances during the day. She just does not seem to be getting any better actually pain is getting worse. Not sure what to do from here. Thinking of 3 week Re-hab program at the Children's Hospital in Boston, Ma or doing hyperbaric oxygen therapy. Would really like to hear more about what you did with your son. Please private message me with email address, I would really like to hear more about it. It truly gives me hope!

Boston
 

My friends son did great at Bostons children Hospital. If you want her contact info PM me

Debbie

Wow, this is great news. I will be looking into this for sure. klmullican...where was your son's RSD located? Was it in one spot only. I read the sites for the machine but it seems like everyone who was cured had one or maybe two spots where they had RSD. I have full-body RSD. Thanks for giving us some hope!!
Thanks,
kathy d

Hi,

I also have a daughter that is 17 and has gone through everything as well including two rounds or Ketamine infusions. I just have one question, does insurance cover this? Or did you have to pay out of pocket? And if so do you mine posting the amount, that would be greatly appreciated.

Thanks,
Sandy

insurance
 

I have been emailing Dr Damato- He told me it is not covered by insurance- the cost is $300 for the initial eval and $200 for a tx- maybe he would work with you? He seems very nice

Debbie

Many, many blessings to all seeking help!:grouphug:
My help be found! Ask for a miracle and expect them! :winky:
~DejaVu

Hi Debbie,

That isn't so bad! So you are basically looking at about $2,500 for the two week treatment? That was four hours of ketamine! ::D :Are you going to have them done? I hope you will get some relief from it. Thanks for the info. I appreciate your time.
:hug:Sandy


:D

Cure?
For RSD?

I Pray!

How does this machine work?
What's going on?
Why don't Dr. S know about this?
Why don't My own Dr K know about this? (I'm gonna print it and take it to him)....

What's going on?
Has my head been overturned?
AGH!
THERE IS NO CURE!

(Please, all, understand, this is only my sick mind at work)?!!!!!we

prete (how do I spell that againP:?)

bas!

Hey Buddy,

We all know there is no cure for this, if you go to the website it talks about, I believe three to six months of pain relief. That sounds good to me. :D Maybe if it is continued every six months it may go into remission. We can only hope for pain relief. Just like the Ketamine, it gives relief.

Peace my friend,
:hug:Sandy

OH, Ho Ho,
Yes, for sure.......

I didn't mean to induce my doubts, because after having this, since 83, I'm ready for anything!
Heck, that's about half my life!
Would I know what ta do???????

Maybe,
it's the other injuries that have been incurred since......

I TRULY, wish all the best, and,
I'm SO SORRY
If I sounded like less!!!!!!!!!

Please, Keep on, Keepin' on!!!!!!

Pete
ASB

With wishes, prayers, and anything else I can do!!

I don't want to rain on anyones parade either but it is not uncommon for RSD to spontaneously resolve itself in children. It also sounds like the OP's son managed to get early treatment which is good too for a better long term prognosis. I'm thrilled to hear he has found relief and pray that it stays.

Thanks for sharing the information with us.

MsL

I agree with Mslady, it sounds great but that is very true about children resolving more quickly than most adults. That's the big push with Dr.Sherry's progroam in PA. From what I here Dr. Sherry is completely against any kind of ketamine, medication of any kind and I here is program is really quite successful with the right candidate.I mean someone early in of the RSD DX. And I also here him and DR. S I would not call buddies.

I truly wish all the best results with this new found treatment. I am going to do some research on it.

Not to change the subject but part of my problem with really feeling back to normal is the fact that some of my doctors still feel I have a neuroma in my arm where most of my pain is coming from. So I was advised to contact a doctor in MD, near Hopkins. Now keep in mind that my surgeon and PM doctor did a procedure to try and find this neuroma. When I tell you my PM doctor and I quote him " I had to beg Dr.......to do this", because the my surgeon who worked so hard to save the functioning of my arm was totally against cutting me again without seeing the neuroma on some kind of film, x-ray,MRI etc...But he did it and did not find the neuroma and yes it did make the pain worse. Sorry to ramble .....So, I contact this doctor in MD and he states to me that RSD in his world mean "Really Stupid Diagnosis",totally shocked me. Has anyone ever heard of a doctor by the name of A. Lee Dellon, MD. He's a plastic surgeon who work primarily with patients who have compressed nerves, and neuromas.

Again I wish all the best and pain free days.......




Gabbycakes

DAmato
 

Let me make one thing clear. Dr Damato is NOT saying he will cure or even be able to help since i have full body-but he thinks it is worth a try. He has seen great results with localized RSD-

Debbie

H Debbie,

That is exactly what I read on his website, This is for pain relief, with non invasive treatment. It really sounds like something I would try for my daughter.

:hug:Sandy

Hi Pete,

I didn't see any doubts my friend! I think that everyone has had so many treatments that have been "the next great hope for a cure!" I know that my daughter is young and has gone through the Pain programs, and all of the kids that I know that go through the programs, only come out with pain management skills! They most always end up on some form of pain meds. It is inevitable...The pain doesn't go away. They are taught how to manage RSD in life. They are phenomenal programs and my daughter went through them two times and I would bring her back again tomorrow if I could. But, she always has pain. I don't believe that finding RSD early in children and getting treatment early is going to cure them, because I have lived that with my daughter. Yes she has been in some forms of remission, but never has she been cured by any treatments that she has been through. Now our next try will be this! It's just another treatment and perhaps a few days, weeks, months or maybe a year (God willing) of pain relief.

I know that I have been through a lot with my daughter, and I know that I have had such great support from everyone here. I am sad today because my daughter is still hurting. So I am ranting and I apologize. So Pete my friend, we all have doubts! Hopefully, this will be it!

Love ya,
Sandy

Sandy,
I wish Only the Best for your daughter!!
Yes, after 27 odd years with this, and other injuries, and like you said, being through SO Many other hoped for and cried for, 'cures', I've settled into a management type status.
My heart goes out to any young person who acquires this nasty animal.

I'm so stunned, (nothing less), about hearing of a possible cure, that the mere thought of not having full body rsd, makes my head spin! (remember, I have a tbi also).
What would I do? It'd be an Entire new Lease on Life!
Almost incomprehensible.

My wish, is of course for a cure, or at least something not so invasive on my organs as the meds I take. But for Young people, my tears flow!
I pray that this helps YOUR daughter, Sandy!
And, anyone else who tries this. I'm waiting with prayers!

love,
Pete

asb

Hi klmullican,
I just had a quick question for you about your son. Does he have fullbody RSD or is it localized in one area? I am beginning to think this new program works better if it is only in one spot as opposed to the entire body like me?? Thanks for your ideas and hope,
kathy d

I wish all who try's this treatment has luck. I did go on Dr. D'Amato web site and I will say I was interested. He states that he will be opening 12 locations all over the states in the next 24 months.

That's my worry.
INVESTORS Wanted!

I have High Hopes!,
But, That investment thing that comes up on Google, Loooong before any real info about the treatment, is Frightening to me!

I've been taken by Investor 'Schemes', and RSD.

Doubt me, for being a doubter?

I want to read this thread in 6-12 months!

I only wish my doubts wrong!!!!

Prayin' so!


Pete

PLEASE be careful
 

I'm from RI

I've been seen by the most highly qualified docs in the state of RI, (none of whom have referred me to his guy). I have traveled to Boston, MA in order to get treatment that I was not "afraid" of (because RI really isn't all that good). None of those highly qualified docs, who really want to see their RSD patients get better, ever referred me to this guy. And I currently travel to NJ to get my ketamine infusions (which help, but aren't a cure).

I'd advise an ABUNDANCE of caution....we all want desperately to get better. And that makes us very easy prey. ANY money you spend on treatment with D'Amato that is wasted is just that - wasted. Whether it is $200, $500, or $3000. And there will most likely be no way to get your money back. Please check and doublecheck this guy's qualifications. And claims of people that he has cured. There is a TON of fraud out there...(I am a CPA and a certified fraud examiner). Based on all that I have learned in the years that I have been sick, I find his story hard to believe. I wish it was true. If only.....

The best of luck to all of you. XOXOX Sandy

I want this!