NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)
-   -   Thinking of seeing a new doctor... (https://www.neurotalk.org/peripheral-neuropathy/127790-thinking-seeing-doctor.html)

gabbycakes 07-11-2010 05:46 AM

Thinking of seeing a new doctor...
 
Hi All,

I hope everyone, if you live in the east, is dealing with this heat and humidity it is really bruttle this year.

Anyway, I was recommended to go and see a doctor my the name of A. Lee Dellon, MD out of Maryland. He as access to Hopkins but has his own surgery center. As anyone heard of him or had any experience with him. I hate to make a 6 hour trip if he's not worht it. He makes some big promises without even seeing the patient....

Thanks,

gabbycakes

darlindeb25 07-11-2010 06:13 AM

Good luck. Usually in the first visit, you can tell if this doc is for you. Yet sometimes, you decided, well, maybe I should give him/her another chance. Sometimes, the best doctors have no personality at all. I am very grateful for my doctors..Dr. John, and Dr. G both have wonderful personalities, and the ability to listen to what you are saying, along with believing you. It's hard when you can tell a doctor is rolling his eyes on the inside!

The heat has been nasty here. I am on Long Island, on the south shore. It finally rained yesterday, but not enough in our area to make much of a difference..some of my flowers look as dry today as yesterday.:(I have been here for 6 yrs now and do not remember weather like this year. It's still better than Michigan humidity though, it's much worse there.

gabbycakes 07-11-2010 06:25 AM

Quote:

Originally Posted by darlindeb25 (Post 674290)
Good luck. Usually in the first visit, you can tell if this doc is for you. Yet sometimes, you decided, well, maybe I should give him/her another chance. Sometimes, the best doctors have no personality at all. I am very grateful for my doctors..Dr. John, and Dr. G both have wonderful personalities, and the ability to listen to what you are saying, along with believing you. It's hard when you can tell a doctor is rolling his eyes on the inside!

The heat has been nasty here. I am on Long Island, on the south shore. It finally rained yesterday, but not enough in our area to make much of a difference..some of my flowers look as dry today as yesterday.:(I have been here for 6 yrs now and do not remember weather like this year. It's still better than Michigan humidity though, it's much worse there.


Thanks for the response this doctor just seems so quick to get you in his office. He is supposed to be quite famous been on CNN, Oprah, all the big network shows. I went and searched them out on the internet.....

It poured for hours here....We needed it...We have wells up here and when it doesn't rain people really start to panic. Thank god I have a very deep well and have never had a problem since I have been here 11 years..

Thanks again....

glenntaj 07-11-2010 08:28 AM

Dr. Dellon and his colleagues--
 
--are extremely well-known in the realm of compressive release surgery for neuropathy, and have pioneered a number of techniques there.

But, there have been both positive and negative reports, in that it does seem he and his disciples think that compressive release surgery is that answer to almost all neuropathies. I am suspicious of the wide-ranging claims (they generally hint at a money-making "factory" approach) and I tend to think that if one has a more systemic cause of one's neuropathy, specific site surgery is unlikely to produce great improvements, and it does seem from people who've been through the procedures the results are mixed.

echoes long ago 07-11-2010 05:56 PM

gabbycakes have you ever had your well water tested?

gabbycakes 07-11-2010 09:49 PM

I kind of feel the same...
 
Quote:

Originally Posted by glenntaj (Post 674306)
--are extremely well-known in the realm of compressive release surgery for neuropathy, and have pioneered a number of techniques there.

But, there have been both positive and negative reports, in that it does seem he and his disciples think that compressive release surgery is that answer to almost all neuropathies. I am suspicious of the wide-ranging claims (they generally hint at a money-making "factory" approach) and I tend to think that if one has a more systemic cause of one's neuropathy, specific site surgery is unlikely to produce great improvements, and it does seem from people who've been through the procedures the results are mixed.

Thank you so much for your response. I actually spoke to my surgeon about this doctor and he was very aware of his procedures said he stated his approach is a lttle to risky for him and really didn't say don't go but really gave me a serious look. Basically what you stated. My surgeon is world renowned in is fleld of upper extremety ortho. surgery and is condsidered on of the best. And I have got to know him after all the surgeries and procedures to get the functioning back in my arm and he is the only one who really helped me and it was so systematic so I truly respect and trust him. He just knew exactly what to do.He also does nerve compression release surgery and did one nerve release surgery with me but did not have sucess and will not attempt again without beng able to see a compression or neuroma, which is what I have been told I have by another doctor, on a MRI, CT etc.

Thank you again..

gabbycakes 07-11-2010 09:51 PM

Quote:

Originally Posted by echoes long ago (Post 674467)
gabbycakes have you ever had your well water tested?

I have had my well water tested. In NJ you can't buy a home without having a water certification or as it is more known "water cert". But why did you ask?

pabb 07-12-2010 10:21 AM

Quote:

Originally Posted by gabbycakes (Post 674527)
I have had my well water tested. In NJ you can't buy a home without having a water certification or as it is more known "water cert". But why did you ask?

looking for chemical irritants

echoes long ago 07-12-2010 03:46 PM

northern NJ is noted for radon in the ground.
just wondering, such things as high arsenic levels have been found in well water which would cause PN symptoms as well as other toxic substances.

gabbycakes 07-12-2010 10:04 PM

Quote:

Originally Posted by echoes long ago (Post 674800)
northern NJ is noted for radon in the ground.
just wondering, such things as high arsenic levels have been found in well water which would cause PN symptoms as well as other toxic substances.

\


Thanks for the response. Acutally I had to have are water tested 2 years ago again when I had a hot tub installed and it was fine. Radon yes is in North NJ but radon is a natural element and is more known in rural areas all over the wordl. All homes have to be tested also for radon and if found a special radon fan is installed which we have.....I truly appreicate and will check out all the information all where kind enough to post. Thanks...

dany 07-12-2010 11:32 PM

Experience w Dr. Dellon
 
Hi, I went to Dr. Dellon for help when I had tarsal tunnel syndrome which did show on the NCS after having it for 6 months, it takes that long to show up for some reason the docs told me. It's a compression problem with a nerve in the ankle and I had it in both ankles.

I ended up having surgery done on one ankle 1st, my left one. And it was done by a Dellon-trained surgeon from Hagerstown, MD, at my hospital in Frederick where he practiced. This was more convenient for me because he took my insurance (Dellon didn't) plus the hospital was closer to home and I wouldn't have to fight that Baltimore traffic for all the follow-up office visits. I lived near there at the time in 2001. No problems since.

Dr. Dellon has gone around the country and trained surgeons elsewhere so this might be an option for you too. I can say that my surgery was very successful, so much so that it actually cleared up the whole problem. Both nerves in both legs stopped burning and the doctor said it happens sometimes so I didn't have to have the other ankle's surgery done. I don't know what type of neuropathy you have a problem with. I looked at your profile but you don't have anything there. I have read on another website posts from a couple of other Dellon patients with mixed reviews. But he's still in business since you are asking about him....

When first at his office, I underwent testing that he had developed, which was very subjective. It was administered by a person and depended on my answers as to how much I could feel when poked and prodded on my feet, legs, etc. in slightly different ways. This one time I was supposed to tell the difference between feeling 1 pin or 2 and I could not feel 2 pins no matter how hard down she poked the special pin with the 2 heads. It was hurting me real bad but I didn't say anything about it, I didn't feel 2 pins. Later the results said I had no feeling in that area!! All that was said very fast with a lot more information about all other areas, etc. It wasn't until I was driving home that I realized why she thought I had no feeling there--I hadn't complained about pain or said anything, she thought I couldn't feel ! So be aware, I heard that this test was subjective. It actually didn't affect anything for me. I didn't see him for anything else.

Also, Dr. Dellon's person who sets up his appointments had arranged for me to be tested and to see him all on the same day, she had suggested it. I had said nothing about it except to accept and thank her. But when he 1st saw me, he was like "So who is this who thinks she's entitled to testing on the same day she sees me, etc., etc.", very very arrogant. I couldn't believe it. Be prepared, but it doesn't mean he's not a good Dr.

echoes long ago 07-12-2010 11:58 PM

did he have horns?

dany 07-13-2010 12:27 AM

Quote:

Originally Posted by echoes long ago (Post 674913)
did he have horns?

No, ha ha.....the saddest thing was he reminded me of the director of the lab where I worked for 12 years! I was used to it, it just rolled off my back. I just talked to Dr. Dellon like it didn't bother me. But I had never met a Dr. out in the public like that, I still can't believe it! ha Maybe he's better now, let's give him some room for improvement and hope someone gets back to us with a Dellon personality update! You have to go see him now.....

echoes long ago 07-13-2010 01:53 AM

oh im sure he wouldnt want me as a patient after meeting him and interacting

dahlek 07-13-2010 09:45 PM

Oh my, Echoes... I just...
 
'cannot imagine' what you mite DO! :D-j
Or likely me?

nide44 07-14-2010 08:01 AM

Dellon's 'Institute' receives a % of all surgeries, I do believe.
He trains surgeons (surgical podiatrists) in his technique - and refers patients,
for a cut of the action.
He'd still be in business if he never saw another patient again.
Reviews have been mixed.
Best results seem to be from diabetic PN and 'entrapment neuropathy' type surgeries.

gabbycakes 07-14-2010 08:32 PM

Quote:

Originally Posted by nide44 (Post 675384)
Dellon's 'Institute' receives a % of all surgeries, I do believe.
He trains surgeons (surgical podiatrists) in his technique - and refers patients,
for a cut of the action.
He'd still be in business if he never saw another patient again.
Reviews have been mixed.
Best results seem to be from diabetic PN and 'entrapment neuropathy' type surgeries.

Thanks for the replies. As I previously stated I have heard he is a character and told he is strange for lack of a better word and find him awful anguish to see me he asked me to talk a picture of my elbow and sent it to him.....He somewhat turns be off. I wish I could have him find the neuroma from one of his test and then take it to my surgeon who I totally trust....


All times are GMT -5. The time now is 08:30 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.