Hot weather wiping anyone else out?
 

I have problems during summer with A/C giving me goosebumps when it hits me -which triggers the allodynia -making the burning worse. I try to put on a sweater the second I hit the store or A/C'd place, but can't have it on before that or I'd die from perspiring with the hot days. Sun shining hot on my skin is bad too.
It's a constant fine line between too hot, too cold, not wanting something against my skin or freezing without something on it.

Anyway - my question is I am also finding myself so fatigued this summer with the prolonged heat. Its hard to function. Do many people feel the same way?
I don't remember last year being so difficult.
:icon_redface:

Story of my life!!! :D

You just said it exxxactly!!!! you aren't alone... fan hurts because of goosebumps, but i sweat like a monkey without fan.... too hot then too cold then too hot then too cold... over and over again. Its one circle that goes around and around. hang in there.... :)

Hannah

Same here. In fact, the very first symptom I had, before I had ever even heard of CRPS and still thought this was from my injury, was that cold air was causing me goose bumps, and for the first time in my life, goose bumps were incredibly painful.

Now I spend my nights throwing off covers because they hurt, then pulling them back on because I'm cold, then turning on the ceiling fan, turning it off, etc. No wonder I am so tired! :o

The heat is really doing a number on me also. I have a lot of titanium in my arm and in hot weather the arm swelles makes everything very tight and really begins to hurt. It is also making me so tired..

Hi,
 

It's been staying in the 100's here in Colorado. I spent week before last in bed wiped out from the heat. I have CFS also and the heat just makes it so much worse.

Same here with covers, fans, airconditioners, etc. On and off, on and off.


Ada

I have been staying inside a lot here in Fla. , I have a route through the house that avoids the a/c vents(get some strange looks when I go through two rooms to get to the other side of one).....The other thing that is bothersome is the afternoon thunderstorms we have as this seems to increase my pain . Doc said the change in the barometric pressure causes this ???

You hit that one right on the head! I'm down here in Fl. and this year we were either with air condition or heat, not many days without either. I think the entire country has had a strange year(oh, that global warming) weather wise. I'm not an air conditioning person but down here you can not live without it, I just try to have the vents blowing away from.I guess we are all in the same boat, no matter where we live.
Wendy

The only good thing I can say about the hot weather is that it is keeping our pool water warm and I can do my PT in comfort...other than that I can't stand the humidity!

gabbycakes,
question..........you said you have alot of titanium in your arm & it swells & hurts more in the heat. I have alot of titanium in my back from L2 down thru S1. And it seems my muscles on the sides of my back hurt alot more during the summer.

My question: What about the titanium during hot spells causes it to make your arm swell? Especially when the heat is on............like it is every day here since right after the 4th of July. It has been brutal here.

DebbyV

Totally
 

Pacugirl, yes, yes and yes, this humidity has me totally lethargic. I have been taking extra vitamins and eating foods, mainly raw fruits and veggies that I know increase your energy. I am barely taking any pain meds and just dealing with the pain, to hopefully regain some energy. This is worse than the winter for me. I am sure this will pass, just hang in there you are not alone.

Jeanie

Hi Debby,

the titanuim is in my arm and elbow a very tight area so when the arm swells and tissue around the titanium gets very tight, stiff and pain. Why this happens I really don't no the scientific reason but I'm sure it's a combo of the pressure in the area and the titanium doesn't move around looking for room as I'm sure you no due to your back..

I hope I answered you question or at least helped.

Gabbycakes

I have been having a hard time with the heat this summer; more than usual anyway. =) I have never done well in the heat, but worse this year. My sister says that I may be starting menopause symptoms.....compound problems!! Lol! My issue is that my feet get cold and start cramping really bad and have to cover them back up but get hot and sick to my stomach with them covered. Too much info, I know;....Ha! Just want you to know that you are not alone in this. Hugs, Suz=0)

The heat and humidity in FL has been hard for me too. I try to do what I have to early before it gets so hot. A side not for people and air conditioning. For me I have my vents turned a certain way in some areas so it does not blow on me but at a different angle. Same with in the car. It does help.

I have always struggled with the humidy more than any other climate and this year it has killed me, my arms have not felt like this is 1 and 1/2yrs and I'am actulally getting the burning again which that has been 1 and 1/2yrs also so I'am very crankly. But your point on the menopause could be for me also. My level was checked last year and it was still far away from even starting. But I go for my annual soon and I'm sure they'll do it again. Thanks for the input.

Gabbycakes

Not unusual
 

Hi Pacugirl,,your description of the awful feeling you have with the cool air is not unusual. As for me, I love the cold. Being that I live in a cold wether climate for 6 months every year, I have to say I prefer the cold to the hot weather as such we are experiencing now. But, I hate cold water and love hot water. I have been known to get the chills in my hottub at 102 degrees. The sympathetic nervous system keeps me guessing what I'm going to have at any given day. As for the limb that suffers from RSD/CRPS, it hates being exposed to anything like a blowing fan or a cool breeze during the night time. It feels like I will climb out of my skin. Now here is the weird part, we are not suppose to expose our skin to cold packs, ice cubes, or anything that cause the nerves to light up like a switchboard at a radio contest. Now having said that, I actually get a smalll amount of relief when my pain level is high and setting off a trigger point that causes migranes and nausea, when I stuff my foot into snow for about 1 minute. It instantly kills the pain and I get no chills from it. Go figure. It comes to the point when you'll try anything to kill the pain when meds and devices don't work. I think most people experience that same reaction as you do just in different levels.
For me, the meds also cause the chills then the hot flashes off and on sometimes for 2 or more days. My electric bill will prove that!
Keep your head up high and deal with the annoying symptoms as best you can. I hope you have a pain free day/night. Good luck..mellowguy