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Hm..maybe I'll just become a viewer and not participate?
This forum goes on and on about how great it is with supporting and reaching out to help each other
Well like other boards I've 'tried' joining, all of them including this group is a clique! Yes I know many of you have been on the board for years and years. That's who many of you only respond to - each other. Also, since the majority of you are American it seems you discriminate. Yes Yes I know there are a few people from Australia (only one I can think of) maybe one from S Africa. But most of you behave like a 6th grade school yard. The popular kids and the unpopular. I live in a different time zone 7 hours ahead. I am quite aware that chatting live with someone is near to impossible. But a nudge, an acknowledgment, more than a 'thanks' would be nice. The only time I get a real response is if I PM someone directly - to those folks thanks you've been great. But what is the point of posting and hoping to get a response 'ANY RESPONSE' but only get 3 responses to 10 posts you put up? Isn't it bad enough we struggle with our own health and we come here hoping for indiscriminate help, we have to wait and hope someone greets you, responds to your post or simply reaches out. I know this sounds like I'm whining - I'd rather say something now then disappear and not share my feelings on this 'support' board. Maybe its summer, maybe the board needs to revamp their style and inclusion clause, maybe some are too sensitive to be here. Well, it's been fun at times, but mostly lonely for me. I'm gonna take a break and regroup. Thanks |
We are not, in the least, a clique and have always tried hard not to seem so. You are right, things are very slow now and it hurts me too, but it may get better, in time.
Yes, you are a bit touchy....most of us with MS are. :hug: You have misjudged those of us who are here, but thanks, for giving us such a fair chance.:rolleyes: |
I'm sorry you feel this way.
My only advise on this is that sometimes people aren't sure what to say or don't have any advise so they just click "thanks". They do that so you know they are reading your posts and trying to show you they're there. I don't post often but I say "thanks" a lot. I hope you stay and keep posting but please don't feel you are being ignored. Have a great day!:hug: Kristie |
um, wow. I am sorry you feel unheard. I dont believe anyone here would intentionally ignore you, or pass by your post and not comment based on who you are, or where you live.
I know I personally am quite busy with a sick cat. An aunt who died, a family behaving badly, and I am trying to readjust to life off of copaxone, while trying to keep up to my marriage, and ....im busy. There are some post that I read, and find I dont have anything to add, or contribute, so I tend to shut my mouth. There are some posts that I see the title and I skip past thinking I will get back to it after the dishes, or laundry, or ... Im sorry that you feel this way. :hug: please accept my hugs. |
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Our MS community is quite large....and has many members who have been here for years. We were all new at one point in time. Those of us with MS know what it's like to have only enough energy to read the posts and/or click on the "thanks" button just to let the author know their post was read. Sometimes we just don't have the energy to type a reply. Or it's a bad cog fog day and we can't formulate a sentence much less an entire post. I've taken a look at all the threads you've started and there are many responses. It's unrealistic to expect a huge number of responses to every post you make. Heck, I've started threads that have gotten no responses. That's just the way it is some days. Everyone has stuff going on in their personal lives and doesn't always have time to personally respond to every single post that's made. That's what the "thanks" button is for. It acknowledges that your post has been read. To accuse the other members here of being discrimanatory is simply not true. I'm not sure how that conclusion can even be made???? :confused: Yes, there are many different nationalities represented here but we take great strides to keep everything fair and unbiased. I'm really sorry you feel the way you do. I hope you'll take another look around here and give it another chance to work for you. |
Oh MMW. don't go.:) I am probably guilty of not responding and you have my sincere apology.
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Wow...I was taken aback by your thread, quite honestly. This, in my opinion, is the LEAST cliquey group on the internet. We all are ill...and as was said in previous posts, occasionally only lurk, clicking a "thanks" to let you know we've read your thread/post.
There are people here from down under and across the pond...many of the posters who were here when I came on here are gone, and others are newer. Do what you feel you need to do...but we are not a clique. |
MMW,
I can't believe you can't read my mind!!!:D I always enjoy your threads, think about my response IF I had the energy. If I'd posted my joke (IF), think you would have laughed. I used to think I was a "thread-killer." Once I responded, no one else did. The years go by, I've got some who will talk to me in PMs once in awhile, but not a lot. None of the cool kids (who are they anyway?) sit at my table but that's OK. The reality is we're all just sitting at a computer, with "virtual" friends. My friend in the UK says his kids told him "All your friends are virtual." I belonged to a board I thought was really clique-y, someone "flamed" (and cursed me!!) at one of my responses and I deleted that board from my bookmarks!!!! (they hurt my feelings) Sometimes I make me be part of the real life around me here at home. I leave the peaceful virtual world. Everyone is out now, so I'm on-line. Sometimes DH. kids, animals, etc. get messy. Don't go. View and participate when you want. Like your voice. Some I avoid. Never read their threads. Yours I read. |
There's cliques and popular people??!! :eek: Why wasn't I invited!!?? :eek:
:thud::thud: mrkmyword, I remember posting on my very first message board, I felt out of place and awkward...just like many new people feel. As you post more and interact with other members the more comfortable you can feel. Certain times of the year forums can slow down as everyone is off doing different things. The MS forum has it's peaks and valleys - sometimes slow moving other times a little busier. Kicker? There's cool kids??!! :thud::Ponder::Sob: |
Snoopy. I thought you were cool so I tried to be friends with you. Let's start our own clique. Vampires or cool or something. You get the jackets, I'll work on a secret handshake.
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ME!? Cool?? Little ole droopy eared me???? I thought we were friends :hug: :You-Rock: |
Newsbot is one of my friends. Can't decide if that's neat or just pathetic.
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so, where are all the cool kids? I remember in school i was NOT one of them, nor did I want to be. I usually march to my own drummer, and am happy with my own beat. :cool: |
mmw - I'm so sorry you are feeling this way. :hug:
There are many times I start a thread looking for advice or a response. Those that have something to contribute will respond. I may not get a lot of responses but just knowing others are at least reading it helps. There are also times when I respond to a thread and no one else responds after I do then I feel like a thread killer. Often I read posts but have nothing to add to the conversation so I will click on thanks. Many times there are conversations going on within threads between members and sometimes I chime in, other times I just read their posts for entertainment. :p When someone is looking for responses to something serious, like something medically going on with them, I won't respond if I have no advice or information to share. This way it's easier for them to read the responses that can help them. Stick around and give us a try. :hug: |
I am sure you have seen my "no advice, just hugs" response. That is because I really have nothing to add, or feel that If I do add, it would only serve to inflame or upset the poster.
Sometimes I am soooo lonely! I come here hoping for attention, affection, and folks that get what I am going thru, and then I find...they are busy! my post goes hours, sometimes days with either no response, or just clicks on thanks. Many times I respond to a thread,and...it dies! I think "are you kidding?!" I pop up and everyone else goes home? then I think and say ...ok, it must just be how I am reacting to it. its VERY hard to convey emotion and intent thru a post on a message board. I hope you stay. I hope you see that as we get to know you, and you get to know us a bit, you will see that we all have the exact same feelings you expressed. its hard to be the new guy anywhere, never mind being the sick new guy. |
mrkmyword,
If you are reading, you will notice many of the responses offer apologies. I, personally, do not feel we owe apologies - no one here has done anything wrong. All of us have MS, we also have families, social obligations, work, volunteer and many other things in our lives...good and bad. NeuroTalk is a very welcoming community and always has been. If you would like to be part of this community then please, participate. If you don't then I wish you all the best where ever your MS and life takes you. |
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I think in our thinking moments, we all feel like thread killers. On another board there was a suicidal just DXed Newbie. We talked hours on the phone but I gave up exhausted. I was so sorry for her, but I have MS too and just so much energy. You board buddies give me stuff to think about, some company and in our virtual world everyone is tall and thin. Thanks
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I like Dej- she snorts.
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LOOK!!! It was me. I killed the thread.
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It's not dead, it's just sleeping
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I wasn't asking for apologizes! That wasn't the point. I was expressing my feelings of what it felt like and some patterns I had noticed. I truly hope this thread won't turn into a heated debate. I'll admit to the following I am MS sensitive, fatigued and I will try to remember that everyone has their own package of problems and life Dejibo Quote:
Thanks :hug: and Karousel Quote:
Kicker - I was really touched to know you read my post..well after my venting :D post I got a nice compliment from you:hug: I could tell some of you were upset or hurt by my words. Let me explain that I was making a point about inclusion. And guys? there are a few people who feel the same as me - I just have a bigger mouth.http://www.en.kolobok.us/smiles/standart/derisive.gif Some folks may not have MS - but by visiting this site everyone should feel inclusive - Let's be honest my rambling, venting, MS heat wave meltdown got 17!!!!! responses http://www.en.kolobok.us/smiles/light_skin/diablo.gifme thinks disturbing the s**t http://www.en.kolobok.us/smiles/arti...nie_witchy.gifonce in awhile wakes everyone up. Like Snoopy and Kicker did I'd like to end on a lighter note - thanks for responding with understanding and...GROUP HUG! :grouphug: http://www.millan.net/minimations/smileys/grouphugg.gif http://i512.photobucket.com/albums/t...ongrouphug.gif http://i717.photobucket.com/albums/w...00grouphug.gif |
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I don't see this topic becoming a heated debate. I understand others may feel like you do...I felt the same way once. Did you know - you can post anywhere on Neurotalk. As I said we are a very welcoming community ;) |
Hey MRK,
I'm really pretty clicky personally but nobody wants to associate with me so I'm often left to my own little corner. :lookaround: But seriously, the folks here are great, and we all mean well, but like you, we're all usually exhausted just from turning on the computer and hoisting our legs up on the table. I don't respond a lot just because I'm tired a lot. I have read a few of your posts and I thought you were interesting. Since nobody else wants to join my click, will you sign up please? I'll even waive the annual activation fee. :D (Maybe that's why nobody else has been interested?) :Ponder: |
I'm not talking to Wiz. She's trying to beat me in Trivia:eek:!
Everyone snort now and let me kill this thread. |
I am not!! I hardly ever win! If I win once a month it's a miracle! I'm slower than all of you guys!! <going back to my dark little corner to pout...> :ranting:
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This is the LEAST clique group I've come accross. Try the UK one if you want to be ignored !!!!!!!
As for me, well i'm jonnie no mates in the corner, queen of thread killing and replier of few these last few months. Nobody told ME there was a cool table with the cool kids. OP is bordering on being mean. There's no NEED to stir the pot or shake up the group. We're here of our own free will and feel no obligation to reply to anyone in particular. If i think I can contribute or help a poster, i will. otherwise I'll just read and leave like the floozie i am. My choice. |
What's OP?
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What did you think, we were a bunch of losers with no compassion? Pffft...
Don't :deadhorsebeat: you :deadhorsebeat: ever :deadhorsebeat: try :deadhorsebeat: this :deadhorsebeat: again :deadhorsebeat: you :deadhorsebeat: hear?
And just for good measure and fun: http://www.jesseshunting.com/forums/...paddle_ani.gif |
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Ha, ha. I'm killing. OP is OK.
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i'm truly sorry that you felt slighted and hurt.
try and hang in there. i think the more you post and talk with people the better you will know us and the better we'll know you. i takes some time. i remember when i was knew. it took a while for me to feel comfortable. some people helped "me up" and in turn i try to do the same. i have limited sitting capacity. so i have to pick and choose my replies. also, try looking at the viewings #. sometimes you don't get many respones but you can tell people have viewed your post. please stick around. i know it will get better. :hug: |
Uh, I'm not a member of any clique, I AM A CLIQUE.
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It has been 12 minutes and no one has thanked me.
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MMW......I feel it is my civic duty to warn you now. AMN has responded to this thread and now.......well, you'll see. :cool: :p ;)
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Not sure I'm awake enough after my nap to go head to head with AMN, but I'll try (MMW - a power play will ensue 8-D)
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AMN,
You can also join my click and I'll give you half off the annual activation fee. Only new members get the full discount. :hit-safe: |
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