If I didn't have neuropathy I would.......
 

ride my bike:Wheel:

climb to Everest basecamp....once it was politically safe...well, OK, scratch that one....:Noooo:

have triplets....:ROTFLMAO::ROTFLMAO::ROTFLMAO:

Ok, any one else.....keep it fairly light.....I need humor today.:hug:

i would probably.....
 

.......eat more ridiculously sweet carbs http://dl.glitter-graphics.net/pub/1...jq6rg1fxy4.gif
.....not do this with my doctor's latest recommendationshttp://dl6.glitter-graphics.net/pub/...ocsqfnt6g3.gif

....not have to wear ridiculous-looking underwearhttp://dl5.glitter-graphics.net/pub/...dbtwpbvs0v.gif

.......probably have a social life http://dl10.glitter-graphics.net/pub...dqevbkghat.gif

.....perhaps get jiggy with it with my hubby more oftenhttp://dl9.glitter-graphics.net/pub/...dl9m5hrukn.gif
....write a Monty Python Musical http://dl6.glitter-graphics.net/pub/...qzl7xvxqcj.gif

.........and no doubt have alot more :sad-dollar:

run from one end of the country to the other

I would have a life and maybe even ride an elephant - I can dream can't I. :Zzzz::Zzzz:

Hugs Everyone :circlelove::circlelove::circlelove::circlelove:

Yup Echos, I was thinking the running part sounded good. I walk at as fast a pace as I can, but running causes excruiciating pain for days.

I might spin in circles just to get the thrill we did when we were kids!

I too would get a bike.

Climb a tree, just to see the world from up high!

Throw out some vitamins!

Oh yeah, stop watching my feet just to make sure they know where they are going!!!!

Swim in the ocean!!!:D Run on the beach!

Rrae, I don't know where you get your emoticons, or your ideas....but, they BOTH made me smile. I hadn't thought of those things!

The jiggy with hubby thing....yep....I agree....yes, yes, yes....

OK every one....elephant rides! endurance runs! musicals! What else lurks in those PN bravehearts??

Yeah, I would do another triathlon and win my age class, hopefully I would not be the only one in it!:OuttaHere:

use the elementary education degree I worked so hard for 6 years to get...

go rollerblading

take a road trip with the music blaring across the country

get out of this bed =)

Not be retired and disabled at age 48. Have a real job and make an income. Be one of those people that won't even take an aspirin. Wear beautiful clothes again and have a nice hairdo. Not worry or irritate my husband so much.

Mere

Have a at least four beautiful Shelties!

Mere, no triplets???:Crowded:

You are too sweet....YOU are inspirational....don't worry about not having a job....Go shopping and buy a beautiful outfit...that will make hubby happy!

Yes, neuropathy robs us of a lot of dreams.....but it does not rob us of our intrinsic worth.

Have you at all had any luck with using a walker?

Could you do some kind of online teaching? Could you work with kids that have a handicap...maybe volunteer an hour per week to get you out of the house?:hug:

How about if we ride a bicycle built for 10
to the nearest elephant shelter and have a elephant ride and then,
while wearing fancy underwear, sipping margaritas
in our camel back
hydration pack
we wander off the beaten track?

We can run across the nation,
hitting each restroom in every gas station.

One step at a time,
staying in spas for a dime,
getting a massages to boot,
then learning to play the flute.....
or eating luscious fruit.

No boring or burning,
No wishing or yearning,
We will peddle gray ribbons
And pet friendly gibbons,
And smile for the press,
Looking good as can be,
While doing philanthropy,
for Neuropathy!

We can star in a movie,
bout how we got groovy,
bout how heroic we be,
Sandra Bullock plays me,
Oh, thank you for fantasy....

If only I did not have neuropathy.......

Rrae....can you add your emoticons...we are on a roll......

I have used both a walker and a wheelchair. The pain isn't the problem. There is blood pooling in my legs when they are not elevated (thus, I am bedridden). My legs turn dark purple (almost black) and there is intense pressure and pain from the blood pooling. Until that can be figured out and fixed, I am stuck in bed except to go to the doctor. I can't even get to church anymore... to volunteer is not an option with the pooling and the pain. And all of it has affected my concentration and memory so much that between that and being flat on my back in bed, I doubt I would be able to do anything online. It's very hard to type flat on your back.

Ah, I see. So your blood vessels are not getting innervation or not responding to signals. So, besides the pooling, I imagine you get very woozy and feel like passing out.

Now I understand why you are stuck in bed. Did this happen AFTER your gastric bypass?

Lesley -

Love your elephant pic.

Actually, I did ride an elephant once in a parade. Thought I was going to be horribly bowlegged for the rest of my life.

Sheltiemom

Indeed. The pain wouldn't keep me in bed. It may prevent me from teaching in a classroom and standing for 8 hours a day... but I'd at least be up and moving around...even if only in a wheelchair. Unfortunately, nobody can figure out how to help me with the pooling and therefore I remain stuck in bed.

Yes.. I had the surgery on August 13th (2009) and the neuropathy pain started in December.

Oh SarahMae, how frustrating, to have had this surgery to try to get better and end up with this!:hug:

I would love to make this better for you in real life, but I can't....so, how about you join me on my bicycle for 10, and you don't need to pedal.....

I am sure somehow, some one will figure this out....in the meantime, I am sure your blogging about things will help a lot of people gain perspective about their own lives.

It is indeed very frustrating! However, I'm learning that almost everyone on this site is just as frustrated as I am--just about different things. So at least I am in good company! :grouphug:

I'd love it if you (or me or anyone!) could make this better too... but for now I guess I will just have to be patient and wait... and hope that someday, someone out there can figure it out. :)

Until then, I'd LOVE to ride on your bicycle... and that's great about the pedaling, because the front half of my feet are so sore and numb that I wouldn't be much help anyway! haha :) Gotta learn to laugh or this would all be so incredibly depressing. :Heart:

WOW, you rode an elephant! I would need a xanax to do that. LOL

Buy a pair of Red High Heels!
 

Oh Cyclops I loved Loved Loved your poem!

I would wear a pair of red high heels and march in front of the bicycle built for ten with a bataan!

I would run with my Grandchildren and swim every day.
I would hike the Sierra mountains again.
I would take my grandchildren camping and fishing.
I would throw out all this medication and wake up with a clear head every day.
I would wake up every morning and run 6 miles like I used to!

Oh, if only I didn't have PN! My life would be sooooo incredibly different!

Instead, I am where I am. Old before my time, fatter than I should be, sitting on the sidelines like a zombie because my meds make me that way.
But we are here, with our sarcastic attitudes and our memories of life before PN. Like old people in a nursing home watching out the window, remembering what life used to be. Living inside our own minds, knowing we will never be those healthy, energetic, carefree people again.

I don't know if I like this exercise. It made me happy for a minute, then made me mad. Mad that I'm stuck inside this retirement home looking outside the windows and watching life pass me by!
O.K. bring on the elephants!

Oui! ~
 

Cy's BRILLIANT poetic ineptitude adds such a wonderful dimension to all of our dreams, goals and aspirations......NONE of which are in the realms of impossible IMO! :rolleyes:

As i dig deeper into my left pocket, I find more 'smilies' from the confines of my secret dark underworld of improvisational cyber-stupidity......
http://dl.glitter-graphics.net/pub/1...v52g4bi71q.gif.... in honor of Lesley

http://dl8.glitter-graphics.net/pub/...npt1lbzpqz.gif Running along the beach in honor of Echoes.....:)...the hairdo is in honor of Mere :p

http://dl2.glitter-graphics.net/pub/...ox8io744gw.gif....this would, of course, be Darlinda swimming the ocean....(?)...although I don't know why she insisted on Mere's hairdo :p.......and I can't explain the sidekick....he's just thrown in for good measure I spose....

http://dl9.glitter-graphics.net/pub/...ixxjrysucc.gif....Sarah Mae, you RIDE girl!!.....(it's rather obvious at this point that Mere's hairdo has caught on)

....and of course me and my aspiration to ride again!http://dl.glitter-graphics.net/pub/2...m1lzhsn9er.gif

http://dl.glitter-graphics.net/pub/1...p65rverc44.jpg ...for Sheltiemom

I LOVE the idea of a movie!! With Cy's intellectual capability in the fine Arts of Screenplay Mastery, and I'm sure we ALL have some inborn sense of acting skills which could render us in some major production company!

Who will be our casting director?! MrsD is on vacation, so we've got to float this boat on our own Mate~s !

Cy already gets dibbs on Sandra Bullock
I will have none other than Johnny Depp play my character......(?)...course he'd need a sex change....or not? He's always open to venturing into the unknown as far as taking on lunatic rolls in his films.....:)

.....Let the LEGENDS Live On!!...... http://dl2.glitter-graphics.net/pub/...rwikxxpje6.gif
...and may our dreams never be jaded!
AMEN!

Love love love it! :) You are SO fun! My hair has changed quite a bit, but hey, if I can get rid of some pain, I'll take any hairdo you would like! haha :) :hug:

Mere I also would still be working, I keep saying on good days maybe I could go back even part time then I get a bad day and I throw that out the window. :thud::thud:

Cyclops I would love to ride your 10 seater bike, but could it be laid back style, like they have in the gyms.:icon_idea: also I think Kathy Bates would be great for my part in the movie.

Rrae I love your graphics, thank you for the pic of me on an Elephant, I can keep dreaming. :circlelove::circlelove:

Sweet dreams to everyone :Zzzz::Zzzz::Zzzz::Zzzz::Zzzz::Zzzz:

Well, Ok, maybe not a bike for 10,
maybe just a REAL tandem?
Maybe not an elephant ride,
but shopping for a fake zebra hide?
Perhaps it won't be a cross country run,
But a walk in the park could be fun.
So maybe all this fantasy,
Could spur us on in reality.
Sure, it isn't fun thinking of what we WOULD have done,
but maybe there are still some things that could be fun.

Of course, we all have things we wish we could still do....
and I don't think it is just neuropathy that stops us sometimes....
I hear perfectly healthy people say, "I wish I could do this or that" and I think, well what is stopping you?

So don't be glum chum....

Bring on the jugglers with neuropathy....the elephants on neurontin....the bike with 10 seats....and 9 sets of pedals....the hair doos, the underwear, the red heels, and batons...and majorettes that twirl flaming batons, and balloons, and buffoons, and our special guest Dr. Seuss....

and I really don't care who plays me...just not Lady Gaga?! Oh what the heck...invite her too. It's a NEUROPARTY.

Haha I love that, cyclelops. :)

It's so true, though... so many people live their lives and don't go after their dreams... and then talk about how they wish they could go back and do things differently. I certainly would go back and not have had surgery and then I wouldn't have neuropathy and be stuck in bed... but since I can't change the past, it's best to just focus on the present and the future.

And while I can't do the things I really want to, I do spend my days keeping myself busy between the computer, tv, books, puzzles, etc. It may not be how I envisioned spending my life... but for now, it's the best I can do and I'm okay with that. :)

I have to go brush my teeth....and get ready for bed, which could require most of my energy right now....I cr@pped myself out doing 'not much' today. Some days 'not much' takes a lot of energy.

LOVE you all....and it may be a bike for 21, or 30, with however many pedals we need.....we are in this together.:grouphug:

BTW, once I met a one legged cyclist who was riding cross country and he crossed the Rockies....and this was on a regular, unmodified bike, minus the one pedal.

I once met a totally blind woman also riding cross country on a bike....simply riding right next to a person who was her guide.

Next to these inspirational people, I feel like a yutz. I hope they can fix my hands, and I am going to give it a try, at least on a tandem....which I think we will buy this winter.

Granted, there are some, that simply can't ride a bike, or run(I don't dare) but, maybe, we can do something....write poems..(perhaps a bit better than my endeavors), blog, fight smog, whatever....NONE of us is useless.:Wave-Hello:

imagine
 

Imagine if somehow the electric currents going through our bodies could be used to power: :BeamUp:

A small town

A tall building

Our houses (no more electric bills that would be good)

With everyone together we could do that.

Your neuroparty cyc could be neuropowered.:partytime2:

This bike for how ever many - we would not have to pedal we could power it.

Medical science - just dreaming again!!!! :Zzzz::Zzzz::Zzzz:

Hugs everyone :grouphug::grouphug::grouphug::grouphug:

I would wear fabulous shoes (lots of nice shoes out there this season)!

Dance! (it wouldn't be attractive cause it never was but I'd do it anyhow)

Go back to Tae Kwon Do and learn to kick some booty!

In Awe :)
 

Heavens to Murgatroid!
This thread has no doubt brought out the wondrous artistic capability in all of us!
Thank you Cy for always somehow making things seem bearable ~

And Dance! Like Im4dexter says! (even if it has to be in an aqua therapy pool).

We don't have to let our lives revolve around neuropathy.......
We CAN dream! AND we can MAKE things happen!

Hmmm, maybe my 'Morontin' IS kicking in? :Scratch-Head:
By the way, it IS a medication in the same family as 'Loopyabamine', which is the generic form of Ihavenoideawhatimtalkingaboutizine.....

I love watching my 'spellcheck' have a hayday as i type these words! ha!
Ok, i'll go back to my cellar now.......

Dance---Dance---Do, doo, doo-op---Dance.....

Oh, my grandson loves when I dance....he belly laugh's...

Every one else runs away.....

But, Foo-Foo-Foo-op on them.....

It's me and my dancing shoes, and my favorite little man....OK, so he is only 6 months....but he APPRECIATES me and my dancin'. He likes my singing too, which is even worse.

Also, I would plant acres of sunflowers just to look at them!
I would plant a vineyard.....and share the 'fruits' of my labor.

I WOULD OWN A HORSE and ride her, with my gray locks flying in the wind....nevermind that the rest of me would be loosely flying around too.....I could wear baggy clothes, right?

I would let hubby have his own body back, and not ask him to do everything I can't do. He is very nice about letting me in, but, really, the poor man should own his body and not have to open every jar, do every task and plant popcorn for me, cuz I want to try to grow it. He hates planting rutabaga too....but he does it for me.

Why is it that we value what we could do, when we can't do it?

I like this thread, because it unites us in our humanity....it is one time, we can all feel for each other, regardless of what our loss is.....LET'S GO RIDE BIKES AND ELEPHANTS--AND HORSES---IN RED SHOES--WHILST TWIRLING BATONS! if only in our dreams.

One good quote is "Do something that scares you every day".....truly that is a good way to live....when I did that I felt more challenged. Even going to Walmart is scary these days, so, it is easy to find things that scare me.

Ah, yes...

what I would do
 

Loved reading this reply this a.m. I would jump out of an airplane that is good condition. Skydiving was a hoot, and I would do it again and again if I could.

Hike and Ride
 

Hike and camp out under the stars.

Ride horses for a week in the wilderness.

Dance the Texas 2 step with my wife.

Jump on a trampoline.

Perform in a musical ("South Pacific").

Dive from the 3 meter board.

CB

[PS: I am going to learn to paint this next year. Body Painting. I'm staying busy.]

Indeed!~
 

Yes, this is a WONDERFUL thread! Hat's off to Cyclelops! :Tip-Hat:
Very therapeutic indeed!
Colourful, humorous, bittersweet ~

Who else DARES to be 'silly' !?!....... keep 'em comin!
This is a great thread to read while having thy morning coffee....

Everything makes sense in a thread like this!

http://dl7.glitter-graphics.net/pub/...zy1e2pq72a.gif

Awww, I love the giraffe! Let's add him to our 'parade'!

OK, I'd loll on a beach in the Caribbean? ....
 

Just? Enjoying the breezes and the slow waves on the shores...
I'd ride a perfect horse [butt permitting?] to the hilltops I want to go to and SEE, then to the brooks to enjoy and cross them. For hours on end!
I'd become the shopping wizard I know I am!
I'd go w/my husband to all those places we THOUGHT we'd go, once we retired [not the hospital, thank you!] Seashores and mountain spots one has gone but the other has not, and would appreciate.
Go to see the GRAND CANYON! I almost made it at age 10? But life interuppted. I want to go to Yellowstone and see the geysers, and Banff.
I'd like to see Australia? And kangaroos and wallabees in their own habitats. And that mesa with the prehistoric carvings, then the cave in France with the same sort of carvings? We ARE the same somehow?
See the tides come in at Mont St Michel? Then maybe Notre Dame? And then? If I could? I'd go just about anywhere! Why? Because I can! I feel now like a whiney child: I WANNA! I WANNA! You betcha I wanna! But IF I can is a whole other kettle of fish or something.... :hug::hug::hug:'s - j

I'd have 6 kids someday and not have to worry about not being able to take care of them!

On a less serious note, I'd go to the park and swing my day away with a good book.

Or spend a few hours in a pool without worrying about the chlorine burning my feet.

And I'd write and publish hundreds of childrens books... (I've already started writing some.. but hundreds? Probably won't happen.. we'll see!)

My Dreams
 

If I didn't have Neuropathy I would like to be in a Broadway production, and sing and dance, or that is try.

Also, Cyclelops was talking about doing things that take courage.

I would like to be a Lady Ghost Hunter like Jason and Grant and go visit The haunted Stanley House. Would anyone else care to go?

I too believe that dreams and hope and seeking answers is what keeps us going.

Love this thread.

Nice to share dreams with you.

BonDon

Triplets! Oh my Lord...Lovely though.

Thank you for your compliment. It makes me feel good... especially now! I went to get my eyes checked and did get a new pair of glasses today... That will make me (and Hubby, if I am happy) feel better about things. I am going to go get my hair dyed and cut (maybe short again). A new me...
Intrinsic worth is everything! I just have to remember that every now and then...Thanks for reminding me...

Mere

Ohhhh... this is great!! Your a poet and didn't know it!!! Maybe you did. This is great! I love your synopsis of this thread. Cyclelops the Poet !:Good-Post:

Mere

Oh, I will go ghost hunting with you. I have been to the Stanley and plan to go again in the next year. Also another good ghost haunt is the Crescent Hotel in Eureka Springs, AR....very good...I can attest to that.

Yep, do something that scares you every day!:eek:

Cy