you ever feel like there is something seriously wrong and the doctors keep missing it
 

My back hurts worse now than it did when i was 9 months pregnant and had been in labor for 2 days with DD. Its getting worse by the minute. I get that it is broken and has been since feb but this is a different kind of pain... the unbearable, hard to stand feel like my legs are going to buckle and my stomach wants to give me back my dinner kind of pain.

ice is not helping, neither is perocet, neurontin, soma, voltaren, or any of the other 80,000 pills I take a day!

It just feels like they are missing something and it's a really big something. And it annoys me that the ortho is on vacation

What are they planning to do to fix this? Surgery, or what? Do they just let it heal or what? They need to do something don't they? I guess I don't understand how they can let you walk around with a broken back? :confused:

I hope they'll get you fixed up soon. :hug:

No idea. Last meeting with Ortho was telling me I was not a "viable candidate" for surgery because I have MS and we would have to bring my white blood cell count back up and blah blah blah... Thinks the vertebroplasty will not hold because the compression will just wear it out, can't pin it bc its too risky to spinal cord, no fusion surgery because I am too risky thanks to the 25+ MS lesions on my spinal cord.

Last month my neuro was against the vertebroplasty idea (non surgical, long needle goes into the fracture and fills it with medical cement to build the bone back up. Then she saw the last MRI and says we need to fix this now! Still haven't heard from ortho since they found the new fractures because he apparently decided to join my PCP in the land of people who have the luxury of vacationing.

And I really feel like they are missing something. Neuro wants another MRI of lumbar and another bone density test... But I don't see how a bone density issue would only effect my spine. That doesn't make sense.

I feel like the degenerative disc and joint issues they keep blowing off as minor may be a small piece to a big picture and all of my doctors keep overlooking something, I just don't know what it is. What it feels like besides my joints turning to stone is there is so much sheer force and pressure throughout my back that it is making the other bones break. I have always had back problems but this is insane.

Have you had a bone density scan Leggz?

If you're fracturing that easily it sounds like you might have osteoporosis, and if you do have osteoporotic bones, then surgery probably wouldn't help. They can't hammer pins and plates into a bone that will crumble when they try.

I'm sorry you're in pain,and I hope you get relief soon.

yeah we did the scan back in.... wanna say april? Which was low but still in the normal range, so they added calcium and vit D. The weird thing is, they did the density scan on my hip... and not on my back, not that i would think that makes a lot of difference.

I keep asking for traction and they keep telling me no. But I swear if we just pulled the bones apart it would feel so much better!

Nah.. shouldn't make any difference. If one large bone looks osteoporotic, then the rest would be too.

I wouldn't advocate traction..... especially with a fracture, but thet's just my opinion.

Have you tried some yoga stretches? sometimes those gentle stretches can get blood flow back inbetween those bones. I bet gentle traction would feel great!

I hope you feel better quick. :hug:

You've had so many problems with your bones. Seems like the doctors you're seeing would be a little more vigilant in their attempt to figure this out. The spinal cord is nothing to fool around with.

I'd start keeping copious notes on all the doctors I've seen and what they say. Maybe even keep a running file of copies of your medical records from each doctor.

I really hope you can get this straightened out soon. You've been in pain way too long.

I hope they get on the ball and do something to help you get pain relief,Legzz.:hug::hug: I know how frustrated you must be. These doctors aren't the ones in pain or they wouldn't be dilly dallying around trying to figure out what to do. In answer to your question in the title of your post, Yes. I feel that way with myself too even though I've been diagnosed with MS almost 11 years. Feel better!

Hi legzz
 

I am sorry you are in pain. I have no fractures, but face fusion C3-7. I know about pain. Find a doctor who will listen. When you are in that much pain it is hard to focus. Pain can and will make you throw up. If you are not getting the help you need, go to someone else. It took alot of doctors for me to find one that would listen to me. I have DJD and DDD. I do get good pain control until very recently, that tipping point happened, down into degeneration. I wish for you all the best, and I hope answers are found for you soon. Ginnie It was me who figured out something more was wrong, and asked for the CT. None of the other doctors suspected this kind of degeneration. You know your own body better than anyone. If you know there is something wrong, you are probably right.

Well I have invented an ice chair... pillow case that has been converted to hold 4 gallon size ice packs. And I think i finally got the timing right on the meds, so it is at least manageable. I am attempting to follow the bedrest orders... chair rest really because laying down hurts.

Was supposed to go somewhere today but the idea of being in the car just doesn't do it for me so I will spend another Saturday sitting on ice and knitting.

Hey Virginia, what are they doing for the DDD and DJD? That keeps showing up on the c-spine and lumbar scans, and each time it is noted as getting worse, but they claim it is mild... try telling that to my back! There is nothing mild about it.

I hurts me to read of your suffering! Mine is mild compared to this!
I did have a lot of pain from 17 years old to Menopause, because I had
undiagnosed Porphyria, and didn't know what "triggers" to avoid, and I
had very severe ab pain which was usually written off as emotional.
So I know what pain is, but right now it's mild compared to yours.

Praying for relief for you, if that is allowed or welcome. Don't know the
rules for this new forum.

Hello
 

[Hi, and no that spinal stuff is horrible. I have DDD and DJD. Had fusion at C-6-7. Now I present with the others C3-7 degenerated to heck six years later. I got a good new NS. My disease just is one of the not so good kind, but not all degenerative disease, progress this bad. I was also told, no guarantees, because it is in all my joints, not just my Cervical. I have no idea what else can be done for these diseases. Mine started with an auto immune problem. Alot of people on this site have auto immune problems, with the degenerative diseases. In my case I know they are related. Please share if you care to what they said about your condition you are in right now?

Hi mariel
 

This forum to use is wonderful. I am new to the site and am talking to alot of good people. It seems to me everybody is real respectful of the others who are suffering too. I have not found any restrictions on dicussion, but I did go to chat room with a senior member when I was freaking out about my up coming surgery. She calmed me down a bit so I could think. I felt like a rabbit caught in the headlights. Hope you continue to come to this site. Ginnie

If they didn't miss dx we would all be healthy!

Edit (the following day) - I hope that didn't sound harsh. I'm as anxious, hurting, MS progressing after being a c7 parapleic for 20+ years to boot and pray to god (not that i'm a believer) that everything including cancer will be solved during our time.

Ed