Deep Bone Pain
 

I have been getting bad bone pain in my upper legs and it's killing me! Deep down bone pain that zaps my strength in minutes.

Question,
Can small fiber PN cause this or is this another form of PN?

I have deep bone pain, mostly in the shins, feet, back and hands.

I do have arthritis, but it doesn't seem like that could cause that kind of pain in my shins!

I am also prone to hip bursitis and have torn both rotator cuffs. I do have Connective Tissue Disease.

I have never gotten a good explanation or answer as to what is causing the bone pain.

I have hip bursitis in both hips and have been battling that for over a year. I wonder though if that's not cause by years of low activity and then an onset of high activity?

I get deep bone aches & pain in my feet and toes.
I describe it as feeling as if my feet were stepped on by an elephant or rolled over by a car tire.
Deep aches in the center of my bones, definitely not muscle related.
I've had this sx for years. It comes and goes, but gets worse at the end of the day or when I've been on my feet too much.

I have been getting that in my thighs mostly although in the calves sometimes. When it hits I can't breathe it is so bad. My DX is Polyneuropathy - Idiopathic. It took the doctors 16 months to come up with that. I had a skin biopsy to test for SFN but it came back negative so that would imply that I have large fiber PN except that the EMGs were normal. I've been up to Neurology at Johns Hopkins but no one knows what's wrong.

i get the deep bone pain in my feet also when i stand or walk. it gets worse the longer im on them. they feel like they are broken and im standing on broken bones. not the take your breath away type pain but the crushing type pain like an elephant standing on you feet is a good analogy but only from the underneath instead of ontop.

I was thinking more like taking an elephant ride....but, being trampled by one is exactly, to a tee, how I would describe the sensation in my bones.....

I also get the deep bone pain in my shins. I've had sciatica for 24 years, but this is in the front of the leg, right in the shins. Boy does it hurt!!! Like you've all said, it's like someone/thing trampled on it and just stayed there. :eek: You just can't breathe when it hits!

A combination of neuropathy and deep bone pain can be due to porphyria. If it's on of the milder forms of porphyria there may not even be any blistering rash.

I also get the deep bone pain, usually in my feet and lower legs, sometimes thighs and hips. It feels like I am being slowly crushed by a washer mangle. I have CMT type 2, hereditary neuropathy, small and large fiber with muscle deterioration. I assume it is from the muscle weakness. Walking up stairs is very painful, as is anything that requires lifting my legs,but it can happen lying on the sofa, especially at night.

Hi - I also have this deep, bone, crushing pain. It feels as though the bones in my arms have been crushed and then the shards are continuing to be rubbed together - it is excruciating. I have an inflamation of the nerve base right off the spine (ganglioneuritis is one term for it). Or another desription is that there is a cable running throughthe middle of the bones in my arms and they are being pulled inside out. The problem is - there is NOTHING to be done for it. For me at least. Have you found anything that helps you? Are you seeing a neuro for this? Is it a newer symptom?

Still with this pain
 

Hi I am back on the Forum again for the first time in 7 years. My life has changed much since the last time I posted. Too much to put into one post. But we can talk about that another time. My question is does anyone else suffer from this type of Deep crushing bone pain? What is thought to cause it? And what is done for it? Please any feedback at all would be helpful as I still have not been able to solve this problem. I am on a large amount of painkillers and absolutely detest it! Thank you and I've been thinking of you all for years. I hope those of you that I have communicated with in the past are doing well I would love to hear from any of you.

even though my feet are dead numb and i can walk around with a tack in my foot and not feel it, i still have broken bone type deep pain when i stand or walk. is that what you are talking about?

Yes
 

Yes. Yours sounds like pain I deal with. Mine is in both of my arms and sometimes shoulders. It hard to describe to people who have never felt this way. It feels as though my arms are being crushed between two enormous boulders with gouges of splintered bone ransacking this insides of my arms. Its a constant crushing pain with intermittent stabbing. This occurs when at rest and active. But activity exacerbates the pain 100 percent. Is this in any way simular to your pain? My arms also become terribly tired and weak as though I had been working out to point of pain and kept going with no recovery time. I do not have the strength to tear toilet paper or press the remote buttons.

Also somewhat feels like the pain you experience when smash your thumb with a hammer or your finger in a car door. You know the pain right? It's the secondary pain that's a lot worse an instant after the first pain you feel when these events first happen. I hope this gets out there to somebody who can commiserate and assist. Warmth helps lightly. I have an herbal oil from China I use and it's also helps somewhat. But the thing that really gets me through the 8 months of pain levels 7 to 11 out ten is the pain medication diluadid. But I need to reduce this med as it is having a severe negative impact on my body.