Trying Lyrica and a Magnesium Infusion
 

This is our next plan of attack for me :)

I started the Lyrica last night, at 75mg then going up over the next few days till I get to about 225mg daily. I haven't had any bad side effects yet, just a migraine that's been going on all day, but I can put up with that :p

I'm also waiting for a magnesium infusion, hopefully that'll be soon (Dr put me down as Priority One, to get it done asap as my RSD is so out of control at the moment- with it spreading to my foot and up to hip, and also symptoms coming back in my arm that I haven't had for over 2 years). It works the same way as a ketamine infusion, but is only a day procedure, so I'm only in hospital for one day. Its another one of those things that helps some people, but not others (as with all RSD meds :rolleyes: ) but I'll give it a shot.

I'm very lucky to have a great RSD doctor who never questions what I say about my symptoms etc, and can get me access to the latest and most successful medications and treatments, I know a good RSD Dr is hard to find :o so I'm hanging on to this one! As much as I hate the cold weather here in Melbourne and would LOVE to move north, we're staying here so we can be near my RSD dr, as that's so important.

Anyway, I'll let you know how I get on....

x Kate

Good Luck Kate
 

Keeping my fingers crossed for you Kate. I would love to go to Florida for the winters but I can't handle moving around alot anymore. I'm stuck in the mud. Sounds like you struck gold with your doc. Thats rare. Keep em. Good RSD docs are few and far between. Glad your here. Chin Up!!

Mark:)

lol, I gotta say, I love your pic Mark! :D

x Kate

pamidradate infusions?
 

Hi Cake,
Just wondering if this is the same thing as the pamidradate infusion? I had this in July and it was a great relief. Let me know if it is.
rsdradarpain

hi kate.................the doctor just gave frank lyrica and so far he said he just feels his pain in a more precise way.?// meaning he can feel it as it runs all the way down his arm... from his shoulder to his fingers.................hopefully this will help him tho. he started with 75 mg and then in five days will go to 150 mg
good luck with the magnesium infusion

Good luck Kate.
I hope this will be a great success for you. Thanks for letting us now.
All the best, Hope

lyrica and blurred vison be careful
 

Hi Cake,
Just wanted to let you know I was on Lyrica and loved it, It really helped a lot with the burning. After being on it for quite some time and complaining about lurred vision, my Dr finally told me to get off slowly, sure enough, that is what caused it. So be carefull and if any signs of blurred visions let your Dr know. I really didn't want to get off it but had no choice.

I switched Drs now and have had the pamidradate infusion, it worked great, I advise anyone that can get it or has it available to go for it, this treatment has done more for my burning and sensitivily than any other meds I have been on. I am still medicated but feel much better than in the last 4 yrs. Still have many of the rsd problems with blisters, sweating and pain afrom cramping and shooting pains but the relief of the reduction in burning has been fantastic. I have to have these every 3 months according to the Dr that is the normal life span of these infusions.
Good luck,
rsdpainradar

I just came across your post. It was encouraging to see that you were helped by the pamidronate. I've tried many treatments that haven't helped, but I never heard of this. Could you tell me more about it? Has it continued to help you? Thanks!

Please see my post #7 today in the Rsd/crps can't cope thread http://neurotalk.psychcentral.com/thread122821.html discussing the use of Zometa, a drug closely related to pamidromate in the biphosphonate family, along with some other newer therapies.

Thank you for referring me to your post! Could you tell me what type of doctor you go to for the Zometa infusion? I've been to many doctors over the years and no one has mentioned this treatment. Also, has it helped with skin sensitivity? I have severe allodynia in many areas and haven't found anything that helps. Thanks!

Good luck Cake. Lyrica has really helped me and I've read a few articles on Mg infusions that sound promising. Hope you get relief. momof4

Hi Kate,
I had some good results with lyrica till a realy bad side effect made me stop taking it, catastrophic thoughts, suicidal thoughts.. just out of the blue, nasty stuff not like me at all.. and not all about me either it just wasn't nice. Aparently some people have killed themselves on these drugs.. so just be aware ok.

Healing ((hugs))
~Sandra