I am having the "Liberation Procedure"
 

Hi my friends,
FYI:

I just wanted to let you all know that my left jugular in blocked and I am going to Albany on Dec. 8th to get the Catheter Venogram to get unblocked. Otherwise known as the CCSVI procedure for MS.

All my veins will be tested while I am on the table, like the Azygous vein in the chest. During the procedure, my Dr. will balloon them open or stent if needed.

We had a few days of vacation and I got the Flu and a UTI. I am on Anti-b's for the bacterial ear infection and UTI. My MS is trying to relapse. It doesn't like the fever or infection. Always something! :grouphug:

Awwww......there always has to be some bad news with the good in our lives with MS.:( Hopefully the flu won't be too bad and the UTI will clear up soon. What a way to spend a vacation.:(

But.....Congratulations on being brave enough to give the Liberation a try!!! I sure hope and pray you'll see a BIG change for the better!! Please let us know how you make out with before and after reports. It sounds hopeful, but I wonder if it would be successful with spms? Good luck!! :)

Lady, that's awesome you're being seen for CCSVI and getting the procedure done. I hope it has positive effects for you!

I hope you feel better with everything else - MS, UTI, fever... you poor thing! :( :hug: Thinking of you.

Good luck Lady

You sure deserve a break. I hope that all goes wel, and that it has a positive effect on your MS.

Lyn

congratulations and good luck. please come back with all the details for us. :hug:

Congratulations on being able to give this a try! I hope and pray it gives you the relief you're seeking. Please give us a follow-up report. We'll all be sitting on the edge of our seats waiting! I'm excited for you and can't wait for the results. You're in my prayers. :hug:

Thank you for your well wishes. I'm not going anywhere. I'll always be around here, so you will get the up-to-date reports. The good, the bad, and the not so ugly. ;)

I appreciate your kind words. The anti-b's are kicking in. My bladder is no longer on fire and having painful spasms, with little to no results. :eek: That was a mean one. The fever is down some. I am trying not to stress out and have a relapse.
Love ya guys and gals :grouphug:

snagged this off of facebook. thought you would enjoy it its a talk with a neuro about MS and CCSVI.


http://www.komonews.com/home/video/1...b=video&ref=nf

I'm rootin for you, Lady!!!:)

I have another friend doing it on Nov. 12th...I'll let you know.:cool:

I am so excited for you. What a great xmas treat is will be if/when you have positive results. I am planning to follow your lead once my toes get better.

You are brave, Lady! I hope you have good results. We'll be waiting for your report! :hug:

Brave my butt thats AWESOME Lady!!!!!!

What was size of left & right sides???

Awesome Awesome Awesome!!!

Thank you for the video Dej. Did the IR's voice keep popping in and out on it? I got most of his discussion, very interesting how these drs. have a light bulb minute. :)

I have been studying this for almost two years. To me, it is tangible evidence. We have only had guess work on drugs, trials, mice, chemo's, genetics, birth date, virus, environment, etc.

There is more risk taking these potent drugs, or crossing my street, then this procedure. You only end up with a Band-Aid and no stitches, and you are awake. No anesthesia. A small amount of IV sedation.

Twink, I'm not brave. I did my homework that's all.:)

Eddie, the left jugular was totally blocked, it also had many fibrous webs inside, so I met the criteria of at least two out of five for CCSVI. I may have more.

If blocked, you have backflow back to the brain and collateral veins trying to do the work. They marked many spots during the test. They even saw my Thyroid nodules. I said, I know about them.

My IR didn't have to go any further to explain more. I asked a million questions. I will get a pre and post CD after the procedure. The IR will explain everything at that time.

They don't use the MRV/MRI anymore. It is too expensive, ins won't pay for it, and it doesn't show enough evidence. It does show the Azygous, but so does the procedure.

If the jugulars are blocked then the rest will be tested during the Liberation procedure, called "Jugular Venogram."

Sally, I hope your friend will post on here too. I am an open person. I think my life history is on NT. ;) I have volunteered for drug testing in the past, and the risk is greater doing that, IMO.

If it rids me of a few crapola symptoms it would be terrific. I don't expect too much, so that way I can't be disappointed. I just know a blockage anywhere is not healthy, and has risk if it is not taken care of.

If it were a blockage in my leg, it would be corrected immediately. That is very serious too. So same goes..

Everyone else, thank you. I will be feeling you all holding my hand. :grouphug:

I just have to go lay down now, this flu is knocking me out.
later..

((((((Lady))))) Feel better soon, please.

Hope this procedure is all that you want/hope it to be.
Wishing you my very best.
How exciting!!!!

As for the flu-yuk, and hope you are feeling much better.
Linda

lady,

wow, things are ganging up on you.
i hope the flu and infection go away soon and you feel better.

good luck on the procedure coming up.
i hope it goes well and the blockage is cleared.

sending you healing prayers and wishes.

I hope it all goes well for you.

Whilst I'm sure we've all looked up on youtube for the examples of patients' progress, it will be facinating to 'know' someone who's getting this done. That way we can get the REAL truth, warts and all about how it goes.

Wishing you every success.

Good luck Lady! I hope it gives you improvement or at least stabilization. :hug:

Praying you feel better soon and that all goes well.

Hey Lady. Feeling any better today?

Good news something that all of us are not used to hearing.I am watching you and someone in my family going to Albany for this!I will be updating everyone on her progress.Hope that this really works for you I really do....Jim

best of luck on this! i have no idea what it's all about but now i will look!

Thank you for your well wishes.

No Cyn, I am not better yet. this bug is kicking my buttski. I just want to lay down and let the flu bug stop bugging me. I think the UTI is getting a bit better, but still uncomfortable. (sigh)

I am still fighting, trying not to relapse. Why did I have to get sick and need steroids when I can't have them before the procedure?

What kind of luck is hanging over my head? I am resting so much now. Before it hit I couldn't sleep, now that's all my body wants to do. I guess you have to be careful what you wish for, ya think? :)

Thanks Jim, I pray your family member see great improvements. Some get it right away, some it takes times, up to six months.

This is not a trial. It is the Liberation Procedure, with data collection to show the naysayers that this really helps so many people. It is in the early stages (two years). Many of us can't wait ten years for the NMSS and some clinical trials to agree.

We know it works. Besides, who needs to have blocked jugulars? That's not normal even in a non-MS body. If it's broken, it needs to be fixed. :grouphug:

Thanks Kajun, Wiz, Pud's friend, Nurse Nancy, Linda, Sally, Judy, Laura, Lynn, Dej, Kitty, Twink, Eddie, and all of you who read my thread and said thanks. You don't know how important your thoughts and well wishes mean to me.
Thank you all.

You're awesome Lady!!! :) I eagerly await your updates :)! Hugs xoxo

2 cents - the fact your LEFT was smaller/restricted more then right really means something because pharmacist (not doctor go figure) told me Left is bigger then Right cause it's the side your heart's on.

UTI - Macrobid i've been using as needed. It's a antiSeptic, not biotic. Helps. 100 or 200mg.

Thanks Laura, oxoxox backatcha.

Hi Eddie, I had an ear infection, sinus, fever, chills and joint aches. My virus went bacterial and I got an UTI too (bacterial). So my anti-b's are really broad spectrum anti-bacterial medication to knock out all bacterial infections It is Tetracycline 500 mg, 4 times a day.

Powerful for me. It knocks the crapola out of me too. Side effect is weakness, well I want to sleep as soon as I take it. Makes me very thirsty too.

Finally my ear popped, not clogged anymore so I guess it is working. I can't tell about the UTI until I go back for a check-up. It feels better but I may need another week of meds, I don't know.

I haven't have a UTI in over 20 years. Microbid or Gantanol used to work for the cystitis and pain. I am allergic to both now. Thanks for your ideas (2 cents). :)

I hope you're feeling a little better today..:hug::hug:

I had my CCSVI procedure on May 31, 2010 and it has absolutely changed my life. I have had dramatic symptom improvement. Hoping you get the same results! Good luck.