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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Has anyone else had this kind of "rash" or what ever it is?? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/13810-else-rash.html)

RSD_Angel 02-19-2007 01:48 PM

Has anyone else had this kind of "rash" or what ever it is??
 
HI there,

I have been going nuts with this and its only getting worse... I have this "rash" but it doesnt look or feel like a rash, and it looks like bad dry skin but its not dry at all. very soft.. but this hurts like H3^* and wondering if any of you other RSDers have this.. dont knw if its like a nerve rash or?? this Rash is every where that ihave RSD.. and thats it.. it goes up my leg in the same pattern and in to the other thigh. it avoids where i dont have RSD.... any ideas?

I am gonna post pics soo be forwarned..lol I have tried to put evrything on it , from lubriderm fragrence free and alcholol free and just plain aloe, but everthign makes it worse and it burns like somthing fierce!! HELP!!!!!!!!!!!!!!m Thanks guys !! :wink:


http://i32.photobucket.com/albums/d8/Ambrusky78/004.jpg

http://i32.photobucket.com/albums/d8/Ambrusky78/013.jpg

InHisHands 02-19-2007 01:51 PM

I have had a small amount of this type of rash... went away in a day or two, though.
Now I get red spots on my purple feet (seems like another type of rash to me).

OUCH!! I hope your feet start feeling better soon.:hug:

CZZ74 02-20-2007 03:30 AM

Ouch is right, lots of edema,
 
Ouch is right I hope your feet start feeling better soon, for the edema they do manitol infusion to release the fluid from the nerve cells. this is serious edema. it would really hepl you. I get that rash on my right arm and back. the only thing that helps is an epsom salt bath and then my gel. the gel has lidocaine and 5 other drugs in it. it really is the only thing that take the pain away. Mine have been diagnosised as pain rashes. good luck to you. Hopeyou willl look up the manitol infusion- your swelling is fluid inthe nerve cell not the normal tissue swelling. you need to get rid of the edema. take care, cz

tayla4me 02-20-2007 06:09 AM

Hi there, This rash looks like a vasculitis. It is hard to diagnose something like this over the internet but I have had vasculitis a few times and it looked the same.Vasculitis is an inflammation of the blood vessels.
It can be caused by problems in the immune system, sometimes by medications, allergies and infection. I seemed to get mine when my oedema was at it's worst.
In this form I needed no treatment but if you get a fever etc, then you need to seek medical help.
Take care:)

HubbyWithRSD 02-20-2007 08:16 AM

This looks similiar to the type of rash hubby has - Although his is not NEAR as bad as yours. He has the dry flakey skin and redness in tiny patchy areas and now with this tens unit it is irritating his skin more and it is getting more dominant in those areas.

As of yet they are not giving or using anything on him but we've been using on our own Corn Huskers Lotion and a natural Aloe Vera lotion from L`Bri http://www.lbrionline.com and it is seeming to help right now.

dreambeliever128 02-20-2007 10:55 AM

Hi,
 
I hope this doesn't pop up twice. I wrote this once and I sent it away into cyberspace somewhere.

I use Selsun Blue Shampoo for dry scalp and hair and it works good for dry skin. I had it on my face for years and then someone told me about the Selsun Blue and it cleared it right up.

Just lather it on with a little water and do it regularly for a few weeks and you will see a difference. I told my sister-in-law about this years ago and she swears by it. I keep some on hand so if I start getting it again on my face but so far I haven't had to use it.

Ada

buckwheat 02-20-2007 11:14 AM

Hi Angel,

Your leg looks in rough shape. You need to seek care right away and at least have them rule out cellulitis. Love ,Roz

buckwheat 02-20-2007 11:46 AM

Dear Angel,

Please read this but most of all look at the picture in the article.
http://en.wikipedia.org/wiki/Image:C...s_Left_Leg.JPG

http://en.wikipedia.org/wiki/Cellulitis

I care about you very much. Get your butt in the ER . Love, Roz

rsdpainradar 02-20-2007 06:44 PM

Blisters
 
I have gotten blisters on the areas where I have RSD. My Dr looked at them and said it was from the RSD. They looked like the size of a mosquito bite and the appearance of chicken pox on top, they itched really bad and lasted a long time. My Dr didn't seem concerned and told me just to make sure they didn't get infected. My first blisters appeared on my shoulder area and there were about 20-25 blisters in that area. I also took pictures of them in case they were ever needed.

buckwheat 02-20-2007 08:08 PM

RSDPAINRADAR, I don't know if you noticed Angel's pictures. But were not just talking blisters. Hugs, Roz

Jomar 02-20-2007 08:42 PM

I think you should get it checked by a medical professional as Roz suggests - just to be on the safe side.

HubbyWithRSD 02-20-2007 10:17 PM

Quote:

Originally Posted by rsdpainradar (Post 72658)
I have gotten blisters on the areas where I have RSD. My Dr looked at them and said it was from the RSD. They looked like the size of a mosquito bite and the appearance of chicken pox on top, they itched really bad and lasted a long time. My Dr didn't seem concerned and told me just to make sure they didn't get infected. My first blisters appeared on my shoulder area and there were about 20-25 blisters in that area. I also took pictures of them in case they were ever needed.

Hubby has had those same type on his leg as well. The largest became the size of a silver dollar. Now he has had a few appear on his arm but all very small so far and just a few - Hoping they stay away......they are not fun for him.

buckwheat 02-20-2007 10:22 PM

Look Hubby,
I hope I'm wrong. She is at high risk for loosing her leg.:mad: But again Angel's leg is not just a few blisters. Since we haven't heard from Angel, I hope she is seeking care right away. Hugs, Roz

rsdpainradar 02-20-2007 10:27 PM

Blisters
 
I agree with your husband, they aren't any fun at all. Mine, just as your husbands started out bigger and with many more the first time and after the initial outbreak they have been fewer and smaller blisters. They itch terribly as well as hurt.

I understand these are not the same as the ones in the picture. I only was trying to show that there are different types of rashes and blisters that anyone with RSD can experience. Many think and have commented they didn't think the blisters were coming from their RSD. My Dr confirmed mine during the outbreak and I feel this information is good to pass on to others that may experience it.
As for the foot in the picture, yes I agree she needs to be seen immediately by her Dr or a Hospital due to the severity of the condition the foot is in.

HubbyWithRSD 02-20-2007 10:31 PM

Yeah - Hope she's at the Dr - dont want it to be anything serious. Better to see the doc and be safe then sorry

allentgamer 02-21-2007 05:30 AM

Rash?
 
Kinda looks like the tiny blood vessels cant take the swelling and are bursting under the skin. I agree with everyone that you need to go to the doctor pronto!

It looks very uncomfortable. I get the drying skin just like what you have there, but I havent got the swelling quite that bad. I think it is because I have the type II. Is yours type I?

Gotcha in my prayers ;)

buckwheat 02-21-2007 09:28 AM

Here's a article involving cellulitis and RSD.

Skin changes that have been reported include chronic edema, blisters, erosions, ulceration, cellulitis, and acute whitlow-like inflammatory nail changes on the affected limbs.


http://cat.inist.fr/?aModele=afficheN&cpsidt=3052577

RSD_Angel 02-21-2007 11:13 AM

Hey Everyone!!

Thanks soo much for the responses ! I lOVE YOU GUYS soo much you dont understand!!

I called my PM doc and bc he is an hour and 1/2 away from me he also suggested going to see my pcp or a dermatologist. I went and saw my Primary doc and he thinks its due to the RSD definetly and thinks its a Pain Rash. Its not warm to the touch and i dont have any blisters so he thinks its just because of the weather here in NY changing soo fast and going back to artic cold and then also over doing it and pushing through the pain and then paying for it when i get off it at nite.. (ya all konw what i mean!! ) But Its still ugly looking and more purple now... the part on my foot is better looking , so maybe it will all be just a cycle i have to go through when i dont behave ...lol?? SOo i will keep you all posted and my doc did say if it did get worse and the burning pain gets worse to go to the ER also.. but what can they do?? i mean really? if all the lotions out there make it worse and its nothing really that a n anti biotic will touch??? grrr.. i hate this disease.. guess my foot modeling days are over hahahahah... gotta laugh or else i will cry..

Thanx again everyone!! :hug: :hug: to everyone of you !!

Im hungry... and have to see if there is anything in the cupbaords to make.. or else my belly is gonna be talking till supper..lol :Starvin:

~~ Angel ~~:pepsi:

tayla4me 02-22-2007 04:06 AM

Hi RSD-Angel,

I posted the other day that your rash is exactly the same as one I have had a couple of times. I was sent to a dermatologist and he diagnosed vasculitis. I am wondering what your doctor means when he calls it a "pain rash":confused:
The good news is that if it is what I have had, it does go away eventually but may leave some very slighly darker skin where it was.;) That leg/foot modelling career may not be over, just on hold.


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