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-   -   Tremor......with or without Gabapentin (https://www.neurotalk.org/peripheral-neuropathy/139517-tremor-gabapentin.html)

invisable 11-28-2010 08:56 PM

Tremor......with or without Gabapentin
 
Have any of you experienced a tremor, either internal or external?

rose_thorn98 11-30-2010 07:20 PM

I have muscle twitches/spasms all over my body. What do you mean by tremors?

invisable 12-01-2010 11:45 AM

Tremor......
 
Quote:

Originally Posted by rose_thorn98 (Post 721178)
I have muscle twitches/spasms all over my body. What do you mean by tremors?

It is a quivering or shaking feeling. I feel it internally at times, especially just as I am awakening. I feel it in stomach or chest area.

I also get muscle twitches, about 10 or so a day, mostly in calve of leg sometimes in hand. About a year ago, I was twitching every second. Another mystery.

mrsD 12-01-2010 12:34 PM

I've had the buzzing tremor thing in my abdomen on occasion.
I always had that when my intestines get riled up. I have a GI birth defect, with my organs twisted up and when they get a bug or gassy, I can get this buzzing thing, and I know I'll be going to the bathroom soon! I always connected it to the GI problem, not the PN, since I had it when I was a kid.

antonina 12-01-2010 03:52 PM

I am in the midst of such an episode
 
Right now I am having full body internal tremors and they are driving me bonkers. I do not take any meds except for levothyroxine (for low thyroid) so I can't blame it for producing tremors or I'd have them every single day.

I was just thinking that maybe there's a drug I can take to reduce them. They are second in discomfort only to my inability to walk without using a walker.

It's interesting that you also experience these frightening symptoms...sometimes I feel quite alone with this. Thank you for posting.

rose_thorn98 12-01-2010 07:23 PM

Invisable,

When I was on Gabapentin (for about 4 weeks) I did have those internal tremors when I first woke up, only for about 30 seconds. Then when I switched to Lyrica I don't have them as much, only like once every 2 weeks. Also, the twitches are alot better since I switched to Lyrica.

bruegger84 12-02-2010 01:41 AM

Quote:

Originally Posted by rose_thorn98 (Post 721565)
Invisable,

When I was on Gabapentin (for about 4 weeks) I did have those internal tremors when I first woke up, only for about 30 seconds. Then when I switched to Lyrica I don't have them as much, only like once every 2 weeks. Also, the twitches are alot better since I switched to Lyrica.

i still get the twitches and the tremor on lyrica over gabapentin. off and on lyrica i still get them. they are just less on teh lyrica.

invisable 12-02-2010 12:28 PM

don't ever feel alone.....
 
Quote:

Originally Posted by antonina (Post 721509)
Right now I am having full body internal tremors and they are driving me bonkers. I do not take any meds except for levothyroxine (for low thyroid) so I can't blame it for producing tremors or I'd have them every single day.

I was just thinking that maybe there's a drug I can take to reduce them. They are second in discomfort only to my inability to walk without using a walker.

It's interesting that you also experience these frightening symptoms...sometimes I feel quite alone with this. Thank you for posting.

I know that alone feeling, with neuropathy the sensations are so bizarre, one can feel like a freak, but I have found, just post it, and see what responses you get, chances are someone will have felt what you are feeling and you will be alone no more!

invisable 12-02-2010 12:33 PM

Thanks for reply......
 
Quote:

Originally Posted by rose_thorn98 (Post 721565)
Invisable,

When I was on Gabapentin (for about 4 weeks) I did have those internal tremors when I first woke up, only for about 30 seconds. Then when I switched to Lyrica I don't have them as much, only like once every 2 weeks. Also, the twitches are alot better since I switched to Lyrica.

It is reassurring to hear you had the same on Gabapentin, sounds like that's my answer, I am thinking about asking for Lyrica, heard it is more potent, therefore dosage is less, therefore less weight gain. Don't get me wrong I am happy the Gab. is working, but if I have to be on this for life and have to keep upping dosage, I am afraid to think what may happen. I have had to struggle with my weight my whole life, so this is quite disheartening for me. I just hope the Lyrica works as well for me and I don't create a monster!!

razzle51 12-03-2010 05:41 AM

yes kinda of like mini seizures . i also have restless arms . but with the help of Keppra dont have any more .

rose_thorn98 12-03-2010 11:30 AM

Lyrica can cause weight gain too. It also has not worked as well for me overtime. I've only been on it for 6 weeks and Ive already had to increase dosage twice. It worries me that once I get to the max dosage, what will I do then? I hope that it works better for you.

invisable 12-04-2010 01:08 AM

I share the same worry.....
 
Quote:

Originally Posted by rose_thorn98 (Post 722128)
Lyrica can cause weight gain too. It also has not worked as well for me overtime. I've only been on it for 6 weeks and Ive already had to increase dosage twice. It worries me that once I get to the max dosage, what will I do then? I hope that it works better for you.

What happens when I reach the max dosage of Gab. or Lyrica for that matter, either we grit our teeth and I mean grit, or we bring in the big guns.

There has to be some big guns (that are legal) doesn't there??!!

lizziebeth 12-04-2010 09:15 AM

As i posted here previously, I discontinued Gabapentin after only a few weeks because of the significant mood changes I developed while taking it. I have had a good response to low dose Elavil (10 mg AM/20 mg PM). Burning sensations have ceased and shooting pains have been greatly reduced. It also seems have greatly diminished the discomfort associated with any compression of my arms/legs making sitting and sleeping much easier. I'm pleased that I've been able to find continued relief on the same dose for the past 3 months. Take care, Liz

rose_thorn98 12-04-2010 12:39 PM

I used to take Elavil for my bladder disease, but when I tried to use it for the neuropathy I couldn't get on it fast enough to get to a dose that worked, because I'm so sensitive to side effects. But I may have to try again. My Dr. suggested combining it with the Lyrica.

invisable 12-04-2010 11:13 PM

Good Idea......
 
Quote:

Originally Posted by rose_thorn98 (Post 722482)
I used to take Elavil for my bladder disease, but when I tried to use it for the neuropathy I couldn't get on it fast enough to get to a dose that worked, because I'm so sensitive to side effects. But I may have to try again. My Dr. suggested combining it with the Lyrica.

I forgot about Elavil, I did read a while ago that it can be used in combination with Lyrica and I believe Gab. too, better idea than keep upping Lyrica and Gab. If I need to go up again, I am going to mention this.

Also, Cymbalta is supposed to help some nerve pain, not sure if it is as good as Elavil though. I know it is good for depression though, it helped me a lot in that area.

rose_thorn98 12-05-2010 01:18 AM

Cymbalta and Lyrica are supposed to be very good together for nerve pain. In my Erythromelalgia group most people are on that combo. Alot of them have neuropathy too. They say its a lifesaver.

clarkstar 12-05-2010 01:29 AM

i get a buzzing in various locations occasionally but no shaking

malawigirl08 12-05-2010 05:43 AM

Quote:

Originally Posted by invisable (Post 721811)
It is reassurring to hear you had the same on Gabapentin, sounds like that's my answer, I am thinking about asking for Lyrica, heard it is more potent, therefore dosage is less, therefore less weight gain. Don't get me wrong I am happy the Gab. is working, but if I have to be on this for life and have to keep upping dosage, I am afraid to think what may happen. I have had to struggle with my weight my whole life, so this is quite disheartening for me. I just hope the Lyrica works as well for me and I don't create a monster!!

I am on Gabapentin also and thought about a shift to Lyrica but as I tend to get used to the dosage over time I am keeping Lyrica for the future- does this make sense?:confused:

invisable 12-05-2010 11:59 PM

Yes it does.....
 
Quote:

Originally Posted by malawigirl08 (Post 722663)
I am on Gabapentin also and thought about a shift to Lyrica but as I tend to get used to the dosage over time I am keeping Lyrica for the future- does this make sense?:confused:

make perfect sence to me, that is pretty much what I am doing. I am on 1200mg. of Gab a day right now.

malawigirl08 12-17-2010 07:23 PM

Quote:

Originally Posted by invisable (Post 722920)
make perfect sence to me, that is pretty much what I am doing. I am on 1200mg. of Gab a day right now.

Invisable I take 2400mg per day, this has gradually been increased over two years - but NO MORE I am determined.

bruegger84 12-18-2010 02:11 AM

Quote:

Originally Posted by malawigirl08 (Post 726710)
Invisable I take 2400mg per day, this has gradually been increased over two years - but NO MORE I am determined.


gabapentin encarbamil has also been added to the anticonvulsant list

dcb123 01-02-2011 08:10 PM

Quote:

Originally Posted by invisable (Post 721811)
It is reassurring to hear you had the same on Gabapentin, sounds like that's my answer, I am thinking about asking for Lyrica, heard it is more potent, therefore dosage is less, therefore less weight gain. Don't get me wrong I am happy the Gab. is working, but if I have to be on this for life and have to keep upping dosage, I am afraid to think what may happen. I have had to struggle with my weight my whole life, so this is quite disheartening for me. I just hope the Lyrica works as well for me and I don't create a monster!!

My family Doctor had me on Gabapentin 100mg 3 times daily. My symptoms continued tremors, trembling, weakness, balance etc.
Searching medical sites I found that the standard dosage of Gabapentin was 1200 to 1800mg. daily.
My Doctor agreed and started me 1200mg. about 2 weeks ago.
I also take Clonazapam 0.5mg as required, As there is some thought medically that it works with Gabapentin. I will take anything that has merit.
I do feel some changes for the better. My Wife says she is getting her Husband back.
My mood has improved, but trembling occurs if doing keyboarding, or anything using fine motor skills.
Outdoors I use a cane to help me from falling. If I fall and there is nothing close at hand to pull myself up, then I am in trouble.
Hope this helps someone. Ane the best of luck n 2011.
David.

zorro1 01-02-2011 09:51 PM

Quote:

Originally Posted by invisable (Post 721811)
It is reassurring to hear you had the same on Gabapentin, sounds like that's my answer, I am thinking about asking for Lyrica, heard it is more potent, therefore dosage is less, therefore less weight gain. Don't get me wrong I am happy the Gab. is working, but if I have to be on this for life and have to keep upping dosage, I am afraid to think what may happen. I have had to struggle with my weight my whole life, so this is quite disheartening for me. I just hope the Lyrica works as well for me and I don't create a monster!!


I have had to struggle with my weight my whole life, so this is quite disheartening for me. I just hope the Lyrica works as well for me and I don't create a monster!![/QUOTE]

lyrica retains water also. topomax can help you lose weight according to some posters

rose_thorn98 01-02-2011 10:13 PM

Quote:

Originally Posted by dcb123 (Post 731031)
My family Doctor had me on Gabapentin 100mg 3 times daily. My symptoms continued tremors, trembling, weakness, balance etc.
Searching medical sites I found that the standard dosage of Gabapentin was 1200 to 1800mg. daily.
My Doctor agreed and started me 1200mg. about 2 weeks ago.
I also take Clonazapam 0.5mg as required, As there is some thought medically that it works with Gabapentin. I will take anything that has merit.
I do feel some changes for the better. My Wife says she is getting her Husband back.
My mood has improved, but trembling occurs if doing keyboarding, or anything using fine motor skills.
Outdoors I use a cane to help me from falling. If I fall and there is nothing close at hand to pull myself up, then I am in trouble.
Hope this helps someone. Ane the best of luck n 2011.
David.

I notice that when I take Clonazapam I notice my Lyrica seems to work better then next day. I told my Dr. about that and he said keep taking it if it helps. Since gabapentin and lyrica are so close in their chemistry, would make sense.

invisable 01-02-2011 11:30 PM

Did someone say lose weight!!??
 
Quote:

Originally Posted by zorrro13 (Post 731059)
I have had to struggle with my weight my whole life, so this is quite disheartening for me. I just hope the Lyrica works as well for me and I don't create a monster!!

lyrica retains water also. topomax can help you lose weight according to some posters[/QUOTE]

Sign me up! Next drug I will be asking Doc about is topomax!

invisable 01-02-2011 11:33 PM

I take Diazapam.......
 
Quote:

Originally Posted by rose_thorn98 (Post 731070)
I notice that when I take Clonazapam I notice my Lyrica seems to work better then next day. I told my Dr. about that and he said keep taking it if it helps. Since gabapentin and lyrica are so close in their chemistry, would make sense.

at bedtime, which I believe is related to Clonazapam. I only take it at bedtime, Doc said to take as needed, maybe I should try it throughout the day also......

bruegger84 05-17-2011 04:58 PM

lyrica is more likely to be abused so watch out for the addiction there.


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