Leaving tomorrow for CCSVI Procedure
 

Hi all,
I just wanted to let everyone know that I leaving in the a.m. tomorrow. The "Liberation Procedure" is Wed. I will not home for a few days. They make you stay a few days to rest and test again.

So if you don't see me hanging around here, you know where I am. I'll post when I can. If I can post earlier I will, from the hotel.
Love ya all :grouphug:

How exciting!! I can't wait to hear from you when you return. You know we'll all be full of questions for you! ;) I hope and pray that this works a miracle for you. :)

Love you, too! I hope this is your "magic bullet". It's helped so many people. I'm sending positive thoughts & prayers that you're one of them!
I look forward to hearing how it goes.:hug:

High hopes, best wishes and good luck. :hug:

Wow, you are brave, woman! I do hope everything goes as planned and that you recover quickly. We'll be waiting for an update! :hug:

Lady,
thinking of you!

Hugs and prayers! :hug:

Go Lady!!! I know you'll do just fine. :)

I'm hoping you experience positive results from the procedure! :hug:

Thinking of you!:hug::hug::hug:

Good luck, Lady.

I hope CCSVI helps.

:hug:

best of luck!

much good luck with the procedure.
i hope you get great results.

WoooHooo!! You are in my daily prayers and it continues. I hope is is all you wish it to be.

:hug::hug::hug:

Can't wait to hear the praises and tell my neuro - see!

check in with us when you can Lady! :hug:

Prayers to you Lady. Hope everything went well. Thinking of you. :hug:

This is great news I cant wait to see your updates on this!:hug:

Hope all went well and that you have great results :)

You're still in my thoughts and prayer Lady! :hug:

Anything to report yet? I've been thinking of you and hoping that all went well for you. :hug:

Lady, I sure hope your silence is because you can't access a computer, cuz, I'm starting to worry. Please holler at us as soon as you can.:hug::hug::hug:

@Sally. Weather may be a big part of it. Lady was scheduled to have the procedure and then stay up in Albany for follow up care.

Driving home in this cold weather in the east may be the factor. She is at a real quality facility with an excellent doctor so don't worry!:)

I am excited for you, Lady!

Should we be worried yet? :confused:

I'm trying to think of all the positive reasons, she wouldn't be checking in.

We love you, Lady.:hug::hug:

Perhaps Lady's on a vacation celebrating the results? :hug:

That's why we should all have someone with our password so a friend or fam member can let all of us know what's going on...hope she's okay.:hug:

Hello,
Thank you for caring, sorry to worry you all.:) I had an unusual case. Always me..darn.:cool:

I am almost okay, now. I'm feeling better each day. I had to have two CCSVI Angioplasties in a week. I have very small veins. Left Jugular was blocked, completely, many balloonings did not work, so the Dr. had to put a stent in, but my body's blood, clotted the stent in two days, also had tissue flap. No flow again.

Azygous chest vein was so very tiny in size, so ballooned in three places. Rt Jugular ballooned, but was not blocked much. When laying down draining was zero, only small collaterals were working the body.

So, two days later Ultra Sound showed no flow in clotted stent, so that was why I had to have Angioplasty again. Clots were to be removed, but did not work, so 2 more stents were put in to hold the vein open, I now have flow, TG.

I am on 1 daily Lovenox injection and 1 Coumadin oral tablet daily (anti-coagulants and blood thinners). Blood checked weekly by PCP now.

A very hard two procedures for my IR MD, and me, but it had to be done before I went home. I am tired, weak and sore (groin and neck), but worth it. Good flow is as necessary as air.

He said, just worry about healing, don't look for improvements. I had noticed some improvements in hotel, but not counting yet. Two procedures in 3 days is hard on the body. One would have been nice, but was not to be. Still exhausted.

I have 30 years of junk to clean up so it will take time. Had allergies to dye, bandage glue ate my sensitive skin, and some meds allergic to, and some problems did arise. I had to stay overnight in the hospital.

Dr Siskin in Albany is great and he has a wonderful team he works with, very caring and knowledgeable people. If I had to do it again I would, I just pray I don't have to.

Now home, sleep in good, resting a lot so I will not try dancing yet. Ha ha. It is really only a few days since second procedure, so veins need to heal. I will get back on the net when recovered more.

Typing is not allowed yet. Any questions will be answered later if you don't mind.
Please send healing prayers and good thoughts my way.
Thank you all.:)

Love ya all..:grouphug:
Copy and pasted this over three days.

http://dl8.glitter-graphics.net/pub/...wz7yo9j6wy.jpg
Praying for your speedy recovery! :hug:

Great to hear from you. Take it easy and look forward to hearing more from you in good time.

:hug:

Thank you sooooooo much Lady :hug: Here's to healing now. Save your energy and rest up! :) We'll look forward to your next update when you've had some time to relax.

http://home.earthlink.net/~sal.pal/s...es/snoopy1.gifSoooooo happy to hear from you...

Sending healing hugs and prayers.:hug::hug::hug:

Bless you for checking in. We were worried. Rest up and let others wait on you. I'm hoping you have plenty of help available to you. I'm sorry things didn't go as easily as you'd hoped but it sounds like your doctor had it all under control and now you just have to give your body time to heal.

Rest up and know that you're in my prayers. :hug:

You are in my thoughts and prayers:hug:
Hope you get excellent results!
Linda

Rest, rest and rest!

Sorry to hear your angio experience was a bit tougher than normal. The fact that your veins were so screwed up really says something though!

Thank you for letting us know you're doing okay...prayers and hugs for you as you recover:hug::hug::smileypray:

Now rest up and let others wait on you...

Glad you're home and sorry to hear all you went through! Let the healing begin! :)

EddieF

Glad to hear from you!!! :hug:

Rest up Lady. :hug: I'm glad you got through it and I'll prayer for a quick recovery and improved MS symptoms.

Lost my reply to the cyber gremlins. :rolleyes:

I just wanted to send an update to my great friends on here, and thank each and everyone of you for your well wishes. :grouphug:

I'm still in healing mode. My BP went a bit high, it varies so PCP put me on medication. I hope that means my blood is flowing good now, cleaning my brain of 30 years of junk. My clotting factor is right where they want it 2.7. Normal is 1.0, so no more clots for me please. :)

My Motto: One day at a time and- "Hope"

Good thing I have lots of patience. ;)

Merry Christmas. Thinking about all of you. :)

No CD's or procedure reports yet. In the mail to me.

Thank you Lady for the update. So glad you are healing and resting. I hope your Christmas gift fulfills your every wish..:hug: