need your help fellow scs people!!
 

dont know if this is even possible but have been struggling these last few days and dont know if its just post surgery stuff or if i have a problem

my burning in my legs came back with a bang but its more a hot itchy legs then the burning pain of before. now today i took an anti histimanine tablet and everything settled down and went back to blissful pain relief can you be allergic to your device ? or is this just a coincidence?? little confused and dont want to call rep and sound like a hypo chondriac either so though i would pass it by my very smart scs buddies?

Not experienced here
 

Sorry Jenna-
I have not experienced this phenomenon at all.

Hope you resolve this soon!
Mark56:hug:

thanks Mark for responding ! i am probably just going NUTS!!

?
 

Jenna, I am not sure about this either...I have never had that happen. I only have the tingling with burning pain and then my legs go numb. Maybe you should tell your doctor or your rep because it is better safe than sorry! If anything they might be able to tell you something that would help you feel better or alleviate your anxiousness ;) Also, my rep always tells me to call/text him ANY time I have a problem because I always get embarrassed and dont want to bother them but he always said that it is not a bother and is part of their job :) take care!

Jenna talk to your rep
 

Especially with this sort of unusual phenomenon, maybe they have something about which they can chime in, goodness, it is their technology. Nothing you have to ask them is silly, nuts, or off base. Now since Tara has said she has not experienced it, I would especially take it to your rep, as Tara has been around the block a lot longer than any of us and she has experienced some bad pain scenarios.

Pulling and praying for you,
Mark56:hug:

Are you taking any new medications, or maybe a pain medication. Sounds more like an allerigic reaction. If it was your unit you should start seeing pain at the site of your generator or your leads, not in your legs. Also did you develope any hives or raised patches that itched worse then the other areas. One time I did not believe I was allergic to a penicillin, but noted increased "bites" within an hour of taking my pill, took several doses and the breakout of hives for me to decide yes indeedy I was allergic to the medication (you would think a nurse would pick up on that sooner:eek:)
Let us know how u are doin
:grouphug::hug:z

Yes, please DO call your Dr!
 

Not to sound 'dramatic', but PLEASE don't EVER hesitate to call your Dr or the Reps! Especially since you are the first in the country to receive this new unit! That's what they are for! They certainly care about your welfare.... PLUS Since you are the first recipient, they are gonna want to know anything and everything from your standpoint as a patient!

I'm sorry you are experiencing this strange discomfort,...but am glad you knew to take the antihistamine to calm things down.

I hope you are keeping a journal on your experience with this. They undoubtedly will want to know every detail you have to share....ESPECIALLY anything that seems out of the 'norm'!

I hope you are feeling better!
Rae
:grouphug:

As an afterthought as I had posted this, I wondered if it could perhaps have anything to do with any medications you might be weaning off of? I'm not sure what type of medication schedule you've been on, but if you've been on pain meds for quite awhile, is there a possibility it might have something to do with withdrawaling from any of these meds, or if there might be some sort of a hyperaesthesia factor going on (Also known as 'Rebound Pain')

I have not had the type of buring pain you are talking about, nor was it relieved with an antihistamine. However, since surgery my Leg is really bothering me, I assume its because the nerves get inflamed and it takes them awhile to calm down (thats what the doctor said with my fusion surgery). what is troubling to me is HOW badly it hurts and the stim is not covering the pain..
Hope you get some answers and feel better.

Have you managed to get this sorted?

Hi Tinkster
 

I fail to understand why the stim is not covering your nerve pain unless the programming is not adequate to your needs, This should be covered with your doc, because after the stim surgery I was not warned that the nerves would be extra sensitive; rather, that I would hurt from the surgical pain like "normal" until it subsided [ they meant "like normal" for me because I have had so many surgeries ]. So, were I you, I think I would be in touch with my stim rep and ask about why are the nerves on fire and not being covered by your activated unit. Yep, pronto.

Feel better soon,
Praying,
Mark56:hug:

Yes Sireebobaroonie!
 

Mark's suggestion sounds spot on to me!
I'm sorry about this pain Tinkster! How frustrating for you!

I certainly hope you get some answers soon! :hug:
Same to you Jenna! :hug:

These Dr's are pretty 'headstrong' when it comes to putting these VERY pricey devices in us.....and they certainly DO get a very sizable kickback from the company, on top of that which they charge for their own operating room billing and expenses.......so the very LEAST they can do is to be available (especially while this is so new to you).

This is all very interesting stuff, and we want this experience to prove to be successful! There may be a few 'bumps in the road' along the way, but good communication keeps us all in 'the loop'.

Thank you SO MUCH for sharing these details!
I'm very interested to see what your Dr has to say about these unexpected pain situations. Keep us updated K!
I think we'd be surprised if we knew how far-reaching and helpful it is to so many people who read our testimonies!
Speaking for myself, I can say that this forum has enlightened me in countless ways, PLUS, knowing what my other friends here have experienced, it helps me tremendously in collecting my thoughts and info to discuss with my Dr at my upcoming visits.
I speak very highly of this wonderful forum! :Bow:

Bump Up because Missing Irljenn!!
 

Missing you Irljenn, where do you be? Have the winds blown you off course? Are you stranded somewhere? Need we send help in your direction? Rae can probably come up with a "five weeks in a balloon" vehicle from her left pocket upon return to her homeland.

Just hoping you are out there hanging in and taking care,
Mark56:)

So glad to read this albeit three years later!
 

Hi Feather! Good to hear that you are having success with you SCS. I have two SCS's and had them implanted at the same time (glad I did that)! Although my dr and the reps thought I was crazy for doing them at the same time :eek: My cervical stim actually has been more beneficial than the thoracic one. I am needing a second revision on the thoracic one, but the cervical one is still intact. I have had some issues, but I think (hope) they will resolve with the next revision.
All the best!
Nanc

My thoughts
 

Allergies to these units occur. Not common but possible. If you have major inflammation at battery site and ongoing itching, then yes it could be an allergy. You now have a foreign body. Your body will react to it. For the vast majority, it's a non issue in the long run. If it's ongoing, bug your MD.

If you have fever major swelling or something is really off, infection needs to be ruled out.

My 2 cents.

great info so far
 

Hi FeatherMe2,
none of my experiences give me advice to address your concerns.

Double check all the advice given so far..there is real caring and connections here...I did not find the site till I was six months post op on the scs..it has been my life line.

I am tickled pink to see so many chime in lately.

hannabanana

Hi FeatherMe2!
 

Welcome Aboard! :hug:

Glad u found this little corner of the universe.
Also glad your unit is doing a good job, but sorry to hear that you too have the RSD monster.
There are several others here along with Nanc who have 2 stims so stick around and we'll see where they are :)

It's great to have you!

Rae
:grouphug: