House
 

I don't know what episodes we have down here vs. what is being shown in America,but last weekon House there was someone who had neuropathy again,with absent reflexes.

He was an older doctor himself,and basically every organ system was shutting down one by one.

The outcome was that he had amyloid (AA). But it was so difficult to find,and House was only given a clue when he poked or stabbed the man by accident and there were no reflexes.

I love that show!!

I hope that...
 

Kmeb, who has amyloid, comes on and can explain it best. She probably has resources at her fingertips as well.

No reflexes? Not only could it be amyloid, but, GBS or CIDP and a slew of other issues. Check out www.rarediseases.org and see what referrals are there.

I know my own reflexes, especially in the legs are truly pitiful! And that's with efforts at PT constantly! Sigh?! - j

Amyloid
 

Aussie - that episode was on here last fall -and yes - anyloid affects many systems... theres a good site www.amyloidosis.org - that trys to be upbeat and has descriptions of types, resrouces for tretments, survivor and in memorium stories, etc... I'm currently going thru testing for amyloid- its so rare its very difficilut to find a doctor thats knows more then vaguely what is it - never mind does treatment for it (depending on type, there are 3 main types; primary, secondary, and inherited) and the end resutls can look just the same (usually causes organ failure - multiple or singular - and can hide from docs for years) you can have deposits anywhere in your body (its a protein that attacks and organ and shuts it down... its also often seen with Multiple Mylenoma... if the type can be determined of the amyloid - and the patient isnt too sick by that point then different therapies are attemptedl like analogous stem cell transplant with high dose chemo, then organ transplant as needed, for secondary really just treating the primary cause, inherited - if caught early enough initially a liver transplant (the liver in the case of most inherited versions is producing the defective enzyme)- then other transplants as needed... they have really only been trying to treat this disease for the past 15-20 years - used to just always be considered fatal.... so we'll see in the future here if these therapies are helping...

One factor that is seen in almost all cases is severe peripheral neruopathy and gastropareiss (of which I have both -along with cardio-myoathy which is also one of the organs it loves to attack and I hve that too - soon wll have my insides whittled away in little chunks to try to see if it is lurking.... no one test can either find it or determine the type (or conclusively rule out) - unless one gets very very lucky.... again, it often takes years to diagnose..... (I've a positive biopsy in the past but when asked for second opinion it was iffy on reading the specimen - so they continue to hunt)

The rate right now of incidence is believed to be 8 in a milion people - (but probably cases are never diagnosed - the person dies from renal or heart failure and no autopsy done - thus never found).... but if something that rare can make it to the screen (and House is rated thte number watched show by men (and lots of us girls love it too) - I thnk we should be able to get PN itself that affects so many more featured at some point too!!!!!!!!:confused:

love that show also....wish we all could find the correct answers to our medical situations.... i'd put up with his cockeyness anyday to get some answers that could probalabaly help... love that guy!!! linda :p

House
 

I'm right behind you to see Dr. House. Is his character based on a real doctor somewhere?

Nancy-H

Kmeb

Just to correct the web address you gave. It should be www.amyloidosis.org.

Take care
Tony

Tony
 

Thanks - I'll fix! (I cant spell neuropathy most of the time either!) I dont think we should have to deal with medical situations we can't spell!!!!!!!:)

Kmeb - I know what you mean!!

Tony

I don't think the character of Greg House is particularly based on anyone but I'll tell you something. I don't care how good a diagnostician he is, if he ever did to me what he did to that cop I would sue his pants off.

He is the most arrogant, know-it-all, disrespectful character on television. And the way he answers people. And the way he walks into the clinic and talks to people (like a king talking down to his subjects).

This guy needs a better bedside manner, that's all I know.

But what really makes me laugh is how he sounds in real life. The guy is from Great Britain and sounds NOTHING LIKE HIS CHARACTER. He has the best american accent on an englishman I have ever heard.

He really is a good actor, isn't he??

Melody

i would be so happy to take his arrogance and vicoden use to get correct medical treatments...the cop was no mr nice guy himself...wish he was real..and his character understands pain..

Want to know why House is so nasty, arrogant and down right mean??

What happens to people on vicodin (as well as other opiates)?,

They don't POOP!!!!

He's constipated, the poor thing. NO WONDER !!!!!!!

mel

kmeb,

one of our members, whom i have known for years, has familial amyloidosis. her username is KathyM. i'm sure she would welcome any pm's with questions. she posts mainly on Santuary of Spiritual Support. here is her last thread:
http://neurotalk.psychcentral.com/sh...ad.php?t=13894


ok...back to our regualrly scheduled program...House. :D

wellllll....
 

I actually find him kind of sexy.;)

I couldn't put my finger on it though. And I like his cane & hobble too. But now you say he is British, and it's all starting to make sense. I knew there was something about him...:D

You mean you have never heard him on talk shows!!!!???

He has this clipped British accent that is so classy!!!

But you would never know it on HOUSE!!!!

He nails the american accent.

Kind of reminds me of Barry Morse (I know you never heard of him right??). Well, over 40 years ago there was a show on American tv called The Fugitive. It had a detective named Philip Gerard chasing David Jansen's Richard Kimble.

But Richard Kimble didn't kill his wife, the one armed man did it.

All during this series (from 1963) Inspector Gerard had this American Accent.
I thought he was from the United States.

WELL!!! one night, on a late time talk show, Barry Morse comes on, and just sits there and the talk show host goes to him. "Everybody thinks you talk like your character, Inspector Gerard, and the guy laughs and the talk show host goes 'Now let's let the audience hear your real voice!!!.

Well, you could have knocked me off my feet. This guy had a high pitched british accent that sounded NOTHING like he did on tv.

The whole audience went hysterical and it was the BEST!!!!

So every time I listen to Hugh Laurie who plays Greg House, it takes me back in time.

So if any of you wish to hear his REAL voice!!! here's a clip which I got on utube.

http://www.youtube.com/watch?v=9Ig_B0AVFSg

Thanks, Mel, and by the way,
 

Do you have a show in America called "Little Britain"? It's a comedy segment,and it's way over the top with raunch humour. But totally addictive.:D

Little Britain is shown on BBC. And I get BBC on Directv.

I have to look to see if it's on. I'll tell you something funny. There is a cable channel called LOGO.

I had no idea it's a gay cable channel.

You should have seen my face when I was surfing the channels and I come across a show called Noah's Arc. Now don't laugh but because I didn't know it was a channel that shows gay films, here I am, putting the tv on LOGO and I see Noah's Arc, and what does Melody think, but 'OH, A SHOW ABOUT NOAH and the Arc"

Right??? NOOOOOOOO.

It's about 4 gay guys and their relationships. I nearly fell off my bed. I had never seen any kind of "let's say "interaction" between men before and there I was watching this show and these two guys start kissing and I nearly fell off the bed and I'm going "holy (you know what) and Alan comes in and sees what I'm watching. Let's just say the look on his face was priceless!!!!

At least he can't call me "miss goodie two shoes" any more.

I'm now a woman of the world. I've seen Noah's Arc.

Actually, it's a very good show. I taped a whole bunch of episodes.

If Alan only knew!!!!!

hah.

mel

Now that's funny...
 

I like the show "queer eye for the straight guy". Me and my husband watch it together. It's not as funny as it used to be,but that blonde guy is hysterical.

I've not seen the show you are refering to, but I reckon my husband would probably get angry at me for watching something like that, so I would have to sneak, if I wanted to see it. Sad but true, I live with a T-Rex.:D

Curious
 

Thanks for info on Kathy - I'd actually spoken with her about a year ago - and wondered how she was doing - will touch base on the thread you posted:)