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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   CRPS & blurry eyes/double vision (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/144714-crps-blurry-eyes-double-vision.html)

peppermintpatty 02-10-2011 04:35 PM

CRPS & blurry eyes/double vision
 
Can someone please direct me to a reliable site describing blurry eyes and/or double vision and how it relates to CRPS? I have been trying to search for it but it's hard when you can't see.:p

Thanks!

catra121 02-12-2011 10:16 PM

Wish I could help. This is something that I am currently dealing with but assumed it was related to the meds they put me on for a recent intense amount of pain in my back/neck...since EVERYTHING I take mentions dizziness and my dizziness has always been blurry, double vision usually followed by me ending up on the floor looking at the ceilling until it goes away. If it IS related to the CRPS and not the meds maybe that's something that I should be talking to my doc about...

cindi1965 02-13-2011 11:51 PM

My doctor said that this is not uncommon for CRPS/RSD cases. I have an eye appt in a couple of weeks and I know my vision has changed even in the last 6 months. I have found that I get double vision right before a bad flare.

ann237 07-04-2011 10:35 PM

It seems to be a very common issue with many of us that have RSD. It has gotten so bad at times I have had to pull over and call someone to come get me and my truck. My Dr said that she believs it can be med related as well as just RSD related, because she had some Pts that went to all natural treatments and still had issues.

kittycapucine1974 07-29-2011 06:30 PM

Hi, everybody:

I also have a problem with blurry eyes. This is recent. Is this problem related to my RSD or to my being nearsighted? Maybe I just need to change glasses, but they are so expensive where I live!

I also have double vision, but this problem started when I was 9 months old. I should have worn glasses to correct my double vision, squinting eyes problem, but my parents did not want to pay for the glasses. I started wearing glasses when I was 23 years old (I paid for my glasses), so in 23 years, my problem had ample enough time to aggravate.

I wonder if RSD's spreading to the eyes could be responsible for blurry eyes and double vision.

By the way, Cindi, I noticed your avatar is a dog. You like animals, don't you? I love animals. They are always there to help us when we feel sad. We can pet them, hug them, hold them, cry while holding them in our arms, and in the end, they help us by being just who they are, a ball of furr and love! :hug:

Dubious 07-29-2011 07:53 PM

Quote:

Originally Posted by kittycapucine1974 (Post 790944)
Hi, everybody:

I also have a problem with blurry eyes. This is recent. Is this problem related to my RSD or to my being nearsighted? Maybe I just need to change glasses, but they are so expensive where I live!

I also have double vision, but this problem started when I was 9 months old. I should have worn glasses to correct my double vision, squinting eyes problem, but my parents did not want to pay for the glasses. I started wearing glasses when I was 23 years old (I paid for my glasses), so in 23 years, my problem had ample enough time to aggravate.

I wonder if RSD's spreading to the eyes could be responsible for blurry eyes and double vision.

By the way, Cindi, I noticed your avatar is a dog. You like animals, don't you? I love animals. They are always there to help us when we feel sad. We can pet them, hug them, hold them, cry while holding them in our arms, and in the end, they help us by being just who they are, a ball of furr and love! :hug:


I switched over to like a lubricating gel administered at bedtime and that seems to have diminished my blurry eyes by 80%. Perhaps the acquired dry eyes from RSD were causing the blurriness....

Either way my vision has become henous since my onset of RSD.

daniella 07-30-2011 10:13 PM

Quote:

Originally Posted by kittycapucine1974 (Post 790944)
Hi, everybody:

I also have a problem with blurry eyes. This is recent. Is this problem related to my RSD or to my being nearsighted? Maybe I just need to change glasses, but they are so expensive where I live!

I also have double vision, but this problem started when I was 9 months old. I should have worn glasses to correct my double vision, squinting eyes problem, but my parents did not want to pay for the glasses. I started wearing glasses when I was 23 years old (I paid for my glasses), so in 23 years, my problem had ample enough time to aggravate.

I wonder if RSD's spreading to the eyes could be responsible for blurry eyes and double vision.

By the way, Cindi, I noticed your avatar is a dog. You like animals, don't you? I love animals. They are always there to help us when we feel sad. We can pet them, hug them, hold them, cry while holding them in our arms, and in the end, they help us by being just who they are, a ball of furr and love! :hug:

For myself though I don't have blur I have a lot of pain and hard time with my vision. I do feel I have RSD in my eyes. I have flares etc. Also like I said I had been to so many eye specialists,neurologist,pain doctors etc and there is not a reason to have such eye pain other then my dry and bleph which does not create crying pain like I have. I will say even top rsd doctors know very little about rsd in the eyes. So I guess for myself I hope that the treatment that helps the limbs will help the eyes.
On a side note some meds can cause eye problems and dry eye too. I do feel it is important to rule out other conditions and to have eyes examined

kittycapucine1974 08-02-2011 04:19 PM

Hi, dubious:

I am not sure about what kind of lubricating gel you are talking about. can you mention its name, if it is allowed by this board's rules. I have seen nothing about such rules.

Quote: "Perhaps the acquired dry eyes from RSD were causing the blurriness..." You are right; I think dry eyes can be linked to blurry eyes and, certainly, to RSD.

Good luck with your eyes and thanks for your information.

kittycapucine1974 08-02-2011 04:29 PM

Hi, daniella:

Quote: "I do feel I have RSD in my eyes. I have flares etc." What kind of RSD symptoms do you have in your eyes, apart from the pain? Does it "burn" in your eyes? Does it sometimes feel like you have a grain of sand in your eyes?

Quote: "I will say even top rsd doctors know very little about rsd in the eyes." This is not good news because, often, RSD doctors are the ones that know most about RSD and, thus, they are supposed to be more likely to help us.

Quote: "On a side note some meds can cause eye problems and dry eye too." You are right again. Unfortunately, there is no way then we can tell if your eye problems are caused by RSD, by medications, or by something else.

I just had a "horrible" thought: I hope RSD cannot cause cataracts or blind eyes. Having RSD is already not fun, so if we also have to be blind, it would be pure hell...

Vics 04-04-2014 08:09 PM

Quote:

Originally Posted by peppermintpatty (Post 743293)
Can someone please direct me to a reliable site describing blurry eyes and/or double vision and how it relates to CRPS? I have been trying to search for it but it's hard when you can't see.:p

Thanks!

Did you ever figure out what was happening with the blurred vision? If so, what are you doing about it?

krow46 04-04-2014 09:18 PM

Hi Vics and I doubt you will get an answer. those posts were in 2011. Welcome to the forums I see you are new here. It is a great place for education and support. I wish you the best and hope your discomfort is manageable.

Djhasty 04-04-2014 10:30 PM

Hello. My eye has been painful for quite some time. In 2008/9 I saw a neurophalmologist. All my eye test were normal. She left it at that. Knowing I did well on tests dosent help me with brain freeze like pain in my left eye, temple, brow, above the ear and double vision (up and down). The pain has continued upto today. I have some eye pain every day. When my CRPS is flaring my vision is worse. I speak to my Neiro very time I see her. She firstthought it was a migraine and that my medications at the time should have helped. Just a couple months ago I went back to a neurophalmologist. Same result. He had never heard of CRPS or RSD. I provided him a packet and recommended he read it. I still have the eye problem. I'm thinking are more like cluster headaches

When my vision doubles on bad days I just rest my eyes as much as possible. I try not to read, use the computer, or do tedious intricate tasks like seed beading. I eventually get clear sight backl in a day or so.

Llynnyia 04-04-2014 11:05 PM

Quote:

Originally Posted by cindi1965 (Post 744228)
My doctor said that this is not uncommon for CRPS/RSD cases. I have an eye appt in a couple of weeks and I know my vision has changed even in the last 6 months. I have found that I get double vision right before a bad flare.

Aha! :hug: its not just me being silly then before a bad flare I get these blurred vision dizzy spells they only last a second but wow.

Djhasty 04-06-2014 08:51 AM

I forgot to mention that I sometimes wear an eyepatch over my left eye. It helps me. I have mono vision; I can only see out of one eye at a time. My left eye is my primary eye. When my vision is doubled (up and down), if I cover the left eye, it forces me to look out of the right eye. Sometimes my vision is better out of it. My headaches involve the top left front side of my head around the temple and eye. Usually the right side of my head feels pretty okay. Not sure if this would help you. I understand that some people with MS use an eye patch when the muscles in their eyes get confused. You can find them at your local pharmesy or through Amazon reasonably priced. I was a bit self conscious at first. An eye patch does draw attention to oneself. Then I thought again, at least I am able to function a bit better with the patch. Arrrrrg!

catra121 04-06-2014 09:41 AM

I had this issue too...still do from time to time. It's my understanding that most of the problems with dizziness and blurry vision are caused by spikes and drops in blood pressure (something the sympathetic nervous system is supposed to control but since ours is all wonky with the CRPS/RSD...we get spikes and drops out of no where).

The best treatment I found to help was clonidine patches. It didn't make the episodes go away completely but they were a LOT less frequent...I was having them multiple times a day before and went down to a couple of times a week (more if I was in a bad flare). I went off the patches last year after a miscarriage and the episodes have increased but not to the levels I had before. My flares have also been way down since I started treatment with tDCS...so I imagine that has contributed to the reduction in these episodes as well.

Djhasty 04-06-2014 10:33 AM

My Neuro just prescribed Clonidine for me. Clonidine is used for high blood pressure, but its use in patients with CRPS is supposed to help with allodynia and the deep bone pain too. My Doc recommended I check my blood pressure daily since I am also on lisinopril. Right now my Clonidine dose is very small; we will increase it slowly. The plan is to eventually replace the lisinopril altogether. I'm game for the benefits of pain reduction.

RSD ME 04-06-2014 11:02 AM

I get blurry vision sometimes from the neuronten/gabapenten that I take. It's one of it's side effect. I hope that whatever is causing yours, that it goes away soon. Take care.

alt1268 04-08-2014 06:36 PM

Quote:

Originally Posted by peppermintpatty (Post 743293)
Can someone please direct me to a reliable site describing blurry eyes and/or double vision and how it relates to CRPS? I have been trying to search for it but it's hard when you can't see.:p

Thanks!

Did u check dr. Hooshmand puzzles?


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