cold to the bone. anyone else?
 

Good grief with all of the spring snow storms my body is confused, but yesterday I felt like both my legs were ice cold. I took a warm bath, and that helped a tiny bit. Both still were cold to the touch, and splotchy and ached. it was like both my knees, ankles and feet were having toothaches. Right to the bone. Made walking difficult. I put on thicker pants, and rubbed my legs with some arthritits rub to help circulation. it didnt help. I went to bed. put on pants for PJs and layered on the blankets. It didnt help. Both legs were cold and achy. I dragged out the heated blanket, cranked it to high, and it literally took 3 hours before my legs warmed up. It was painful! I felt like my knees would break if I walked on them. Of course they didnt, but it was weird!

Call to the MS MD this morn reveals that this has happened to other MS patients. Its a bizzare phenomenon that the brain gets confused and the circulation to the legs can be compromised due to crossed or missed signals. My legs were not blue, so I know they were getting blood flow, but they were splotchy so I know it wasnt normal. They reccomended IVSM. Now, im not a jump to steroids kinda girl. esp since i fixed it with heat and rest, but WOW how wild is that?

Anyone else ever have that happen? its much better this morn.

That happens to me to sometimes, I thought it was old age, just another thing I can blame on MS. Hope you're good today. :hug:.

My hands get cold like this sometimes. It's painful! But why do they recommend IVSM for everything? :mad: If I did IVSM every time it's been recommended to me I'd be walking around with an IV pole instead of a cane. :rolleyes:

I get this when my blood sugar gets real low...

Also before my thyroid was normalized, I'd get this also, back when I had normal sugars.

Bone cold, I call it.

since i started on tysabri i am really cold most of the time. and being obese i used to run hot all the time, so it takes some getting used to. it has been quite a chilly arizona winter

glad to know I am not alone. I dont grab IVSM for everything under the sun. I save it for visual stuff, or like the time I couldnt find my own words. I would want to say "hand me my jacket" and it would come out "grab the bike" really upsetting. I did allow IVSM for that. Other than that, I fight tooth and nail to avoid adding that stuff. it has long term consquences, and I dont want to pay later for cold legs today.

I feel like my legs are cold today, but not bone cold. it felt like my legs were frozen solid and it was painful. I am happy to have found my heated blanket after thinking of it as a way to help. I am normally a warm girl, and dont like heat, but this time I simply needed heat. It took a long time to work, but in the end, it did the trick and was helpful at pain control in the event. Today I feel like I ran a marathon. my legs are weak and tired, but not frozen.

Dear God this is such a strange disease. No wonder most MD think you are full of crackers before you are dxd. Frozen legs, blurry vision, tired, and distracted. oh yeah, thats worth a 2nd look. They simply roll their eyes at ya. I kinda dont blame um.

All the time!! I get in our snuggly bed with a down duvat on top of the regular comforter,(Duvat - for a sofa, smaller than a regular comforter but I'm not big, so it's perfect for one. DH gets too hot for one.) A fleece blanket thrown over my feet area. But I'm still cold. DH can't believe it, but then I slide one of my ice-cold feet over to his and he yelps at the freeze. He usually gives me another duvat then, shaking his head in dis-belief. Socks help some. Some.

I'm just B B B Bad to the Bone!:D

I get that way too! I wrap blankets around my legs to warm them up. Once the muscles are warm, I feel a lot better and can get up and do more.

Didn't the nurses say leave this one alone?

I get this way when it is cold and damp. I tell my kids that I have a '
toothache in the bottom of my feet and in my legs...mostly in my shin bones.

Nothing really helps:(

HOpefully spring will be here soon and we all will be feeling a bit better.:hug:

Hot... Cold...Hot... Cold... right hand is freezing; rest of body is hot....

I thought of this thread yesterday as I was making hamburgers and the meat was cold. Normally, I can't feel heat with my hands and arms. I have burnt myself several times without realizing it or if I did, it was a good hour after I burnt myself that I actually felt it. But, the cold meat yesterday felt like it froze my bones from my hands up my arms to my elbows. I have experienced this several times recently. It's a weird feeling and hurts. I have to run my hands under warm water in order to get them feeling better. (I wonder if this past flare changed something with my hot/cold sensory system in my hands/arms. :confused:)

Just thought I would share that as I remembered it yesterday.

Walmart in Brattleboro Vermont is closing to go to a new super store. This one is from the 1950s I bet. its OOOOLLLLDDDD. Anyway they had a super clearance sale going, and I got a nice electric blanket. My old blanket is about 25 y/o and I bet the cord would scare most of you to plug in. So, I got a nice new blankie. its normally $149 and I got it for $29 super clearance. I guess they dont want to drag heated blankets to the new store. Wahoo!

That is AWESOME! You totally scored on that blanket. I hope it helps keep you warm.:hug:

Definately yes on the cold meat freezing your hands and having to run them under warm water.:eek: Or getting ice cubes with your hands to put in your drink..yipes!

Bring on the ice
 

This has happened to me for the last few years (MS since 1988) off and on. Mostly at the back of the knees, but feet too sometimes.

Moved to the Southern Utah desert to escape the life of clouds and rain in my lifelong home of Oregon. Blue skies beat dismal gray, but the cold thing didn't stay in Oregon.

I have never noticed any color changes, but I've also never thought to look.

It just adds to the fun, as my heat thermostat has been screwed up for the last few years too (i.e. when it's 100 out, I still feel like 80 or something).

Sorry I don't have any advice for you to make it better. For me it's just day by day (sometimes hour to hour, I guess). Hope you find a method to combat it!

I am almost always cold, unless I get into a tub of hot water (best thing for me... I know many with MS can't tolerate a hot bath).

Cold to the bone indeed, that's exactly how I am all winter long, and a good portion of the spring/fall. Even in air conditioned buildings sometimes.

I do find that keeping active, I'm less cold than if I just veg. So I walk a lot, and that seems to have helped my personal temperature levels.

it has gotten better the last few days, but has not gone away. I find that my legs are quick to go bone cold. I put an electric blankie on the bed, and take a nice hot bath at night. Spring is here, but its still snowy! My circulatory system is so confused.

Our temps dipped down into the 30s today and instead of freezing my buttski off, I woke up in a sweat this morning?:confused::mad: That's how messed up my internal MS thermostat is.:rolleyes:

with the new blanket the kitties are all happy to lay in bed with me. purrrrr. :D

SallyC you make me laugh, I am so cold right now, I am wrapped up in long sleeves, sweater, socks and warm houseshoes and drinking hot chocolate, it's 65 and sunny outside.

My daughter
 

My daughter Megan was diagnosed with MS LAST August. Her symptoms had started a few months prior but the number of symptoms and their severity was increasing.

She had severe fatigue, some cognitive issues, cold blotchy ( numb at times) legs/ feet, heat intolerance, headaches, vision impairment, electrical shocks down both arms, expressive aphasia that came and left, balance issues, stamina issues, and more.

She was diagnosed with CCSVI in Sept 2010 and on the table her body got intensely warm and her numbness left. Over the next hours and days most of her symptoms left, the expressive aphasia took 3 months but has gone too. She no longer has any symptoms, except her pinkies occasionally are numb upon arising and then it abates.

They venoplastied her Azygos vein that drains the spine and it had 2 twists called candy wrapper twists, causing her blood to reroute to get back to her heart /lung for fresh oxygen. Causing a delay and hypoperfusion. She also had a partial blockage of her Left internal jugular vein. Both were ballooned, neither was stented. She is now 6 months post venoplasty and still symptom free.

Just rescently she had an MRI and her lesions are all smaller. All of her symptoms are gone.

Now I am not sure everyone would benefit but I don't know why the neurologists are not wanting to get the clinical trials done on CCSVI angioplasty. This s the best thing that's come along ever. I am an RN that had some cardiovascular knowledge and I knew her risks were low.

So many have their numbness and cold limbs improve.

Please investigate this as an option and get tested.

My last MRI showed NO changes. not one. I refuse to do one every six months as they are traumatic for me. Its also STILL snowing here! its cold in NH. COLD COLD COLD! my body is craving sun! When the weather turned and we got some decent days I was much warmer. I am going to be a better judge when it stops snowing, the ice clears and I can put my coat away. Till then the husband is cold. The cats are cold. The neighbors are cold. brrrrr....get me outta here!

Would love to hear more about the DD (dear daughter)