24 Hour EEG results showed seizure activity!
 

I just had a 24 hour EEG in august came back with sz activity in my left temporal lobe so I am just sad. They have to up my meds just a little. But the neuro doesn't even want to see me. I am just annoyed that I am not even aware when these are happening. But I just figured I would stop by and say hello to everyone it has been a while. Take care, Tracy

Tracy!
How have you been? It's been a long time since I've been here either (Stefie). We used to 'visit' a fair amount on the old site about a year ago (or so, my memory isn't great). Good to see some familiar names. I've changed mine- just a little too close to my real name ya know?!

Stef

Hi Tracey
Its good to see you...
Glad you found us...:D

hugs

OMG Stefie!!!!!!!!!!
How are you doing... It has been a long time and I am so glad to see you here. I really hope all has been well for you :) Hmmm maybe I should think about a name change ;)

Jen thank you so much for directing me over here. You have ALWAYS been soooo helpful. I appreciate it. Great to see you ~Tracy

Tracy-

It's been a long time, indeed. Busy too! The last time we typed you were still looking for a correct diagnosis and I know how frustrating it is to finally get one. But at least now you have it. Hopefully now you can start on working towards the therapy/cure to make things better for you.

As for me, I still have my headaches,they are just different now. I go for another MRI tomorrow. Looks like the seizures are starting to return. But at least at this point they are only sp's. I started Topamax about 2 1/2 weeks ago and hopefully that will put a stop to them and keep them from getting any worse.

keep in touch!

stef

Hi Tracy -- Sorry to hear about your EEG and I wonder why your neuro doesn't want to talk to you about it. g-r-r-r-r-r-r.

Stef -- I'll sure be thinking about you tomorrow and I hope you'll tell us what the results are.

Tracy & Jingle-
Hello again!
I got my MRI results today. No change. For once, no change is good change. :) I can't believe what a difference the Topamax has made so far. The headaches are so much better. I still see spots some times, but not nearly as bad as I did. I'm still titrating on so hopefully the small amount left will make all the difference (with no further side effects).

Wishing us all good health.

stef

Wow - Stef - wonderful news. Absolutely wonderful. I'm SO glad you had the MRI and even 'gladder' :p the results are so good.

I've been on Topamax since it was 'legal' and it never made in change in headache for me but - again - it's great that it has for you.

My next MRI is Oct. 19. Oct. 19 includes visit to surgeon simply to discuss films and visit with neurologist to discuss decreasing meds.

Hey stef glad to hear that. I see spots too we should talk about that email me when you get a chance. Keep me updated

I am having a hard time really accepting this all. It all makes sense. But it has just jumped lobes frontal to temporal so that just bothered me a little. If anyone has any info to pass along that would be great :) Tracy

Interesting that it's changed lobes. Mine has always been temporal lobe so I can relate to that particular experience. Call it emotional. Roller coaster even. The spots seem to be getting better. Hopefully they will go away altogether.

How has this diagnosis affected your work? I notice your an LPN.. I know it's affected me with work in many ways I hadn't ever anticipated.

stef

I have had some hard mornings after a grand mal seizure. I tell who ever I am working with for the day. If I have any areas of weakness like if my calfs are all still cramped, I will try not to do patient transfers/lifting. But so far so good for the most part. Thanks for checking back in. The neuro thinks nothing of my black spots..... but I do document and it switches eyes. I thought the switch from frontal lobe to temporal was strange, I would like ot have an office visit with the neuro . Hope you are doing well stef!

And one more good thing is that I am always working in a healthcare facility so I figure I work in the best environment possible with E :)

I had my recent EEG show something very similar (I posted in another thread). I decided, in good humor - to self diagnose and make up my own name.

Lobe Hopper Syndrome!

It's catchy, huh?! :o

Mine was in frontal, central temporal and now there, but also parietal. I am still rather confused on the whole 'lobe hopping' part, but I'll wait for my doctors call (and wait...and wait).

As mentioned, I'm kind of confused - but have a similar complication, so anytime you'd like to chat I'm free.

Hope you're feeling well!

-El

Thanks alot El. If you find out anything let me know if you could. :)
I am going to do some research in my off time and see what is going on. I am thinking neurons can misfire anywhere, whenever they want. I love the name. Darn lobe hoppers. Take care Tracy

Do you have any messengers you use? I have lots of links, if you want to 'work' together! Maybe we could team up and beat down the lobe hoppers!! :D