Ugh.....Numb Feet and Legs
 

I noticed my feet growing more and more numb a few days ago. Now, both feet and a good part of my legs are numb.

Feet feel almost cold. Legs are not quite as bad. It feels so strange walking on numb feet. This has happened before....about 8 years ago. This was before I was dx. It went away after about a month.

I can still walk around but have to be very careful. It feels like I'm walking much worse than I actually am.

I caught a reflection of myself in the storm door on the front of the house as I was coming back in from getting the newspaper. Why does it feel so strange when I walk....almost like I'm stomping or marching.....but doesn't really look that way? It just looks like I'm walking very slowly. My balance is way off, too, so I make sure I'm near a wall or counter or have my cane with me so others won't think I'm drunk! :o

This darn MS........it's so exhausting..............:(

You're on my prayer list, kiddo. The would really freak me out.

Thank you, B2Y. :hug:

Nothing much freaks me out anymore. :rolleyes: It's happened before....years ago. I know it will go away eventually.

My oldest son told me one day that if I were any calmer he'd have to check me for a pulse! :D :p

no advice, just hugs and prayers. :hug:

Reaching out to a fellow "foot sister." :hug:

:heartthrob: (((((Kelly))))) :heartthrob:

That shouldn't be happening with LDN..:mad: Maybe you're holding your stress in and you don't realize it.

My DH did that. He was the epitomy of calmness and yet, shaking inside, sometimes.:eek:

Feel better, soon..:hug:

What's the weather like where you're at? We've got a massive cold front moving in right now (73deg earlier today, it's now like 40something degrees with 45mph north winds blowing thru, and the temperature is still dropping)

I felt pretty good yesterday, but last night I started tingling. This afternoon I started getting more numb and more tingly and a little burning feeling. I really do think weather can affect some MS symptoms.

It was beautiful today. Warm and sunny. There's a big storm predicted for tomorrow night and then the high on Tuesday is supposed to be 60! :eek: This same pattern happened last week, too.

I agree that weather plays a huge part of MS....at least for me.

Oh, and Sally......I didn't reduce my dose to 3 mg like I had planned on. I'm sticking with the 4.5 mg. Now just didn't seem like a good time to try messing with the dosage. With my sensory sx acting up how would I know if it was affecting me?

(((Kitty)))

Numb feet suck! Can't tell where you are landing your foot, how high you're picking it up, tripping on every other step, ugh!

However, I am glad to hear you are still mobile with the numb feet! :D

I dealt with the numb feet growing up my legs all last month, the Acthar gel helped to get the feeling back so they're not numb anymore, but my hands still are, it's frustrating. They feel really stiff and heavy and tingly. Grrrr!

I get the whole feeling like I am marching thing going on too, especially with the right leg.

Again, I'm sorry to hear you're having troubles! Hope you get some sensation back soon!!! :hug:

Thanks, everyone. Yes, I'm thankful I'm still mobile during this episode.

Sally, I'm wondering if the LDN is still working for me. Could it be that it's just stopped working? :confused: Does it do that?

I'm finding that first thing in the morning - or if I've been sitting for a long while - is the most challenging time for me. After I'm up and around a bit it seems to get easier to maneuver. Sometimes it seems like the numbness is subsiding some but it's always there. The last time I had this it lasted about a month. Maybe a bit longer. It was eight years ago so I'm not entirely certain.

I just took a shower and now I'm totally wiped out. Good afternoon for a nice, long nap. :)

I don't think LDN stops working, but it is possible to have a flare and I've heard that the LDN will shorten the flare and leave no permenent MS damage?? I hope this is tru for you.:hug::hug:

Thanks, Sally. I'm still taking it. Too chicken to stop! :o

I'm still mobile and able to do just about anything I was able to do before....it just takes me longer. And that's okay since I'm not in a hurry anyway. :rolleyes:

Is it starting to ease up, Kelly? I do hope you start feeling better.:hug:

Tricia, sometimes it seems like it is and other times it seems just as bad as it was when it started. :confused: I'm hoping it goes away soon. It's more aggravating than anything. Plus, it's so tiring to have to be so aware of every step I take. Know what I mean? It's like you have to be hyper-aware all the time.....and that just wears me out.

I agree, Kelly. It does wear you out to constantly be looking out for obstacles and coordinating your body to do what it is supposed to do. It completely adds to the fatigue and is one of the reasons many of us fatigue so easily. It takes more brain work and effort to accomplish what others do normally. We have to think more about it.

I always mention to those that don't fully understand that I am severely impaired with my right hand (my dominant hand). I still do normal things, but my brain has rewired/repaired things and it takes a lot more brain work for me to accomplish things. Someone looking at me or seeing me do things would never know that I am something like 97% impaired in that hand. Whoops, unless they are watching me do something that requires fine motor skills like picking things up or writing or putting on mascara (which that wand hurts when it hits your eyeball and can make a mess out of your eyelid. haha).

You're in my prayers, Kitty. I hope this 'flare' or whatever is going on, moves on very soon~ :hug:

I'm so sorry your having a tough time, Kelly :hug:. I think it's great that you don't stress out about things. :). I'll be thinking about ya :hug::hug:

Well, I thought I would post an update as it's been a full three weeks since this annoying sx started.

I'm happy to report that it's almost cleared up! In three weeks my legs and feet have gone from completely numb to almost back to normal. I can feel them and they don't hurt anymore after I've been walking for a while. I haven't taken anything but my LDN. No steroids, no baclofen. I think one night I took Aleve before bed but that had more to do with a headache than with my legs.

I'm walking much better and it no longer feels like I have balloons for feet. My gait is improving daily. I think you're right, Sally. LDN does significantly shorten the flare.

Just thought I'd share some encouraging news! :)

Sorry that you are having a rough time Kitty. Lately, I have been feeling like I am walking in someone else's legs too - it's not much fun and it is exhausting.

I hope that the numbness and fatigue gets better for you really soon.

Lyn

Yeah!!! I am so glad to hear that you are doing better. That's awesome, Kelly!:hug:

WooHoo for You, Kell..:yahoo::trampoline::Dancing-Chilli: