Anyone got 2 SCS?
 

Hi there,
I had my first SCS implanted last December on my left side for lower back and left leg. Anyway since having the perm SCS it has changed my life, turned things right around for me, I'm feeling so much better but unfortunately my back pain is still a huge problem. My consultant is considering adding more leads to my right side and another box. Has anyone here had a second unit put in and how was it, did it do what you and your Dr had hoped?
I'd love to hear your experience.
Sophie

Hi Sophie!

i also had my scs put in in december and mine works great for my back but not for my legs. My doctor has also decided to put in another scs for my legs later this year ! i have crps which is spreading

Hello Sophie!
 

Welcome! :hug:

It's good to have you and I hope you'll find good support here! A very caring bunch indeed :)

I'm glad to hear you are doing so well with your unit. And yes indeed, there are several here who could be very helpful in sharing about having 2 SCS's.
Stick around and you'll no doubt get input.

Caring!
Rae
:hug:

Hi Sophie
 

Hi Sophie :)

Im so glad that you are getting such good relief from the SCS you have had implanted. I too had an implant in August 2010. Like you I have severe pain in my back and down my legs. However, the SCS really only helps my legs. I was told by my Consultant and the SCS more than likely would only help with my legs. I know some posters here do get relief in their back but I dont. Ive had a few different programmes so maybe some more tweaking of the programmes might address that in the future.

There are a couple of posters with 2 SCS. But please get as much information as you can before you get a second one. Does the one already in help with your back at all? because Im wondering if it doesnt will the second one? dont want to put a damper on it but its just a thought

Take care

Jackie :)

2 scs
 

Hi guys,

I've been looking for a forum like this for ages and I'm delighted to find one with like minded people who can relate to the pain, depression and sheer frustrations that go with chronic back pain.
The technician will tweak my back settings in two weeks as she's on holidays, I'm also hoping to go through another pain management clinic before any final decision is made.
At the moment the Medtronic system is working great for my left leg but my back is still pretty horrible. The Dr is considering putting the Navroe system for my right side and I guess that there are no guarantees that it will help for my back. I haven't made my mind up on anything yet so please if you see anyone on here with two SCS's will you pass me their link so I can get some more advice from them.

Thanks again for your replies and no doubt yee will be hearing from me alot!

Chat soon

Sophie


QUOTE=Jackiey;768202]Hi Sophie :)

Im so glad that you are getting such good relief from the SCS you have had implanted. I too had an implant in August 2010. Like you I have severe pain in my back and down my legs. However, the SCS really only helps my legs. I was told by my Consultant and the SCS more than likely would only help with my legs. I know some posters here do get relief in their back but I dont. Ive had a few different programmes so maybe some more tweaking of the programmes might address that in the future.

There are a couple of posters with 2 SCS. But please get as much information as you can before you get a second one. Does the one already in help with your back at all? because Im wondering if it doesnt will the second one? dont want to put a damper on it but its just a thought

Take care

Jackie :)[/QUOTE]

Who is your Dr
 

Hi guys
I've just realised yee are in Ireland too. Dr Declan OKeeffe is my Dr who is yours, probably Declan too? I find him great compared to some eejits I've seen!
Sophie, Kildare

Sophie Ive sent you a private message ok

Jackie :)

Ooops cant actually sent you a PM.....

Id rather not put my Dr's name here on the boards Sophie......Im in Dublin . I think Ive heard of your guy.I know there is a girl on here Irljen....and she has the Nevro system...

Jackie

sophie i have sent you a pm ( well i think i have) if you respond to that i can chat with you i have the nevro for back pain and it works fantastic and i have no problem speaking with u about it. but would rather do it through private message.

Hi everyone

just a reminder that we have a default number of posts here before newbies can PM or post links. This is to protect you all from some pretty vile PM and post spam. So we * all * new members have to pass through this short "probation" for the overall good of all. Spammers wont stick around once they realize they can't link or PM their spam, but real members soon have enough posts to have all member privileges :)

thanks chemar!!

I forgot about that part!!
Sophie i think if u page down on the messages you will see all about me discussing my brand new now buzzing unit!! i got my nevro in december and it works fantastic on my back but i am sure u have so many questions so i cant think how u can pass ur details to me yet but please know I am here to answer any questions you have as this nevro system it is very new they only started to do them in december and we were probably both in the same hospital at the same time indecember !!
looking forward to chatting soon and hope i can answer all ur questions

Thank You Chemar and all
 

It is good to see us striving to help new folks, especially when they may seem to be at the verge of receiving equipment or treatment similar to your own, while it is also most helpful to have the wisdom of our moderators to point out the beneficial rules which preserve the safety of this environment [Thanks Chemar].

All will work to the good, and before we know it Sophie will be among the senior member group!!

Applause,
Mark56:hug::hug:ZZ

I have two sets of paddle leads, but they split the wires to connect to the same battery so I did not have to have a second battery placed. So technically I have 1.5 systems. :)

Hi Smae,

Thanks for this I believe the paddles are better than leads, how are things working for you? I'd love to know if you don't mind me asking. Im almost certain i'd have to have a separate device in and the Dr plans to use two different types of SCS.

All the best,

Sinéad :)

Actually, I haven't had a great experience with my SCS journey so far. My trials (both of them) were amazing and gave me 99-100% pain relief. Best 4 days of my life.

The permanent, on the other hand, has not worked. I can feel the stimulation, but I also feel the awful pain. It doesn't cancel out any part of the pain message in my brain.

My neurosurgeon has given up, along with my pain management doctor.

BUT... I am in the middle of appointments at Mayo Clinic. My neurologist there is NOT willing to accept "guess the SCS just doesn't work for you" and she is working on setting up an appointment for me to meet with someone who focuses on neurostimulation at Mayo. Hopefully they can help me try to figure out why this isn't working for me.

So as of right now, my SCS are both turned off. They aren't working. But finally there is a little glimmer of hope that one day they make work as intended and I may get some pain relief.

I'd like to hear more about your experience so far, if you care to share. I've been away for a while, so you may have already posted it elsewhere.

Sarah

Hi Sophie

Never answered your question about the cushion well believe it or not it was created and made by our Mark! its called an "Inspri" cushion go to www.insprico.com and there is a demo video . This cushion got me through the 23 hour journey to california this year and i also used it in college anytime i went in and was great for getting through the exams and not that this happens much but I cannot sit on restaurant chairs for long so this helps me stay and enjoy a few more glasses of vino!. It looks like your carrying your laptop not a butt cushion, my kids still think its my laptop case!!. it also has a hook so i just put my crutch handle through it when i am trying to get around. I also found that because its not too thick it does not make you sit up too high that you would not fit under the restaurant table. There are 3 cushions available I emailed mark what i needed it for and he advised the best one. If you want you can try mine before you decide as I think us Irish ladies need to do a meet up. We could all meet for coffee somewhere in the middle so as not too have you in agony by the time you get there!!

Hoping you all have a lovely sunday !! going to make hubby a breakfast or try to stand long enough to do it!! its time to try and do something for him!!

xxj

Am surprised .. at my initialy assessment at the pain clinic I was firmly told that the stim would NOT in any way help my back pain.

Scs
 

Hi Sarah,
I don't mind talking about my story and you'd proably find a more informed post somewhere else, im very wrecked toady, the pain is and i'm like a demon.

In 1995 i had an L4-5 discectomy and after getting through that which was very tough going, I eventually got my life back and led a happy normal life and anything I wanted to to do i did. Then about 5 years ago the same pain started again and I met with varios doctors and had nerve blocks, rhiztomies and nothing worked, basically two doctors told me that my pain was in my head which in all fairness was a load of rubbish.
I then heard about the SCS and only then did I feel I'd get the help I needed. I had the trial which unike you it didnt work at all but the Dr wanted to go ahead anyway, since then i've had good results with my left leg pain but my back pain is still very bad. amy Dr is considering putting in a second SCS for the back pain,

I'm very sorry to hear your problems haven't had any solution and please God they will, I believve the Dr in the Mayo clinic are very good.

I hope you're coping with your pain and it isnt getting you down too much.

Kindesr regards,

Sinéad xxx