Prayers for ViSeeU
 

She has been struggling to quit smoking, and went on Chantix, and she didnt quit, but came close. She also gained a bit of weight which upset her greatly. Then she went to the neuro and found out that her liver enzymes are elevated and climbing. She has been on Betaseron for 10 years! 10! and not one single large relapse. She has been a poster child for the drug, and very happy with the results.

Now after taking Chantix they are thinking it bumped her liver into being unhappy, and we are both thinking that the Beta is keeping it unhappy. Now when she takes a shot she gets deep chills, and deep body aches, along with a large dose of not feeling good.

She is going this morning for a liver scan, and a scan to check for a family condition at the same time, but its scary, frustrating, and irritating. Will she have to give up the meds that took her EDS from 3.5 to 0? Will she relapse if she stops it? Will she be able to continue to live the unencumbered life she leads now? So many questions.

So, up at the crack of insanity with NO coffee! :eek: she went to her scan. Can you say a little prayer for her as you pass thru your day? :cool:

Prayers going up right now. :smileypray:

Prayers for V are on their way..and hugs :hug:

Has she tried the e-cig? I sure love mine, still after almost 3 yrs on it!!! I don't miss the tobacco smoke one bit and I can still have a bit of nicotine..:D

Prayers for Viseeu... :hug: I pray the scans show a good outcome and no liver damage.

I get those deep chills and body aches about 2 hours after injection of Betaseron. If I premedicate with ibuprofen, I just experience some fatigue. I really worry about developing liver issues while on it.

She had the scan, and they let her go afterwards, so it must not have been horrific or they would have kept her, no? She said they pushed pretty hard with that thing, and made her squeel a time or two. (big ol baby) :p So, she should be home soon, but her message sounded shakey and like she really didnt feel good.

She has tried and continues to use the E cig as well as a puff here and there of the normal cig which makes her extremely dizzy. She is frustrated with herself for that.

She feels that she has gained too much weight, sat back and done nuttin for too long, and needs to remotivate herself back to where she was.

Keep the prayers coming we still aint got answers.

Awww, Dej! appreciate the post for prayers and appreciate your support more than you know. Thanks Kitty, Sally, Twotwo :hug:

Scan done, results in... Fatty liver disease, which was my first guess since I gained nearly 25 pounds from November to March and it aint gone nowhere *sigh* so, now it is "official" that I need to do what I've been attempting to do--motivate myself to eat better, walk more, stretch more, exercise more.

I'm always amazed at how we can know in our head what needs doing but the body goes inert... I weighed 220 back in Nov. 2006, made a decision to change that, started exercising, yoga, walking, eating better--no fast food for over a year and by fall of 2007 when I met Dejibo I was around 180, limber (could stand flat footed with feet together and put my palms on the floor), and still maintaining a healthy lifestyle (besides the smoking)

2009...doing less and less, watching the weight creep on me...185, 190, 195... then last October decided to try the Chantix = less smoking, skin problems, depression, weight gain... elevated liver enzymes...225 and fatigued, unmotivated, angry with myself, etc. So that's how I arrive at my current dx of fatty liver disease.

something funny to relieve the serious: they had 4 different people pushing the ultrasound thingie on my abdomen, side, back.. said pictures were hard to get because I had gas bubbles they couldn't see thru... so, after an hour they are finally done, 2 ladies left in the room, I roll side ways to get off the table and you guessed it!!! just had to fart :eek: crop dusted the room big time and boy did they hurry me along to the hallway; boy did it stink too! http://i17.photobucket.com/albums/b53/vvvikki/1rofl.gif but honestly I couldn't help it! :o

so, thanks for the positive thoughts and prayers. I know what I need to do, just need to do eet!!

oh! they found 4 stones in my gall bladder too :S asymptomatic so they can just live there :D
http://i17.photobucket.com/albums/b5...BigBearHug.gif

AWw Vik! I love you more than my luggage! I am sorry you tootled on the poor hospital folks. :eek:

I promise when you come up in November, we will get you headed in the right direction. Good food here, good motivation here, and a non smoking house outta whip you right into shape. I know you have the courage, the strength and the drive that you need, but you need to dust it off and use it. I need you to be healthy enough for our annual girl-a-thon. We need to go to Maine this year and cause trouble in Bar Harbor.

Glad you are home safe, with easy answers. Fatty liver is certainly easier to take care of than many other dx I can think of. :hug:

Well I prayed for your pressure to be released and if farting in their faces did it, then I say good going!!!:D:D:D

I suggested she try something and of course she did it. I could get her in trouble if she keeps that up.

She decided to take a Betaseron vacation. After 14 days of not being on the meds, she had her LFTs redrawn. They dropped by at least HALF! Thats awesome!

We are thinking that maybe the chantix or the weight gain, or something must have pushed the Betaseron into reacting badly on her. She has written an email to her MD who didnt know she took the break. Like most MDs he said "keep shooting!" and if we cant find any other reason for it, we will try a vacation with you. Well, we didnt wait for him or her liver to get past the 200 mark.

Since being off the Beta, she reports less bloating, less fatigue, less pain in her ribs. She has increased her fruits, and veggies and has done some exercise, so its not simply a Beta break, she is being pro active in other ways, but the LFTs were rising with each draw.

Will keep you tuned on the results from her MS MD about how long SHE not HE wants a break from this to allow her liver to heal. Please dont stop the prayers. its working!

i didn't know all this was going on V. glad you're doing better tho and enjoyed reading dej's briefs on the situation.

seems like you were not feeling well due to the B. i hope that improves.
meds are a dilemma indeed.

i know you can do all these things to improves your situation. because you've done them all before.

Haven't heard from my neuro yet though I did email him yesterday and I got the results in the mail of the last LFT... they fax copies to him so I guess whenever he reviews his faxes, he will see it.

for the record, starting from 23 March blood tests:
SGOT 74, SGPT 92
23 June
SGOT 125, SGPT 158
12 July (last beta shot 28 June)
SGOT 61, SGPT 69

only thing I've done beside stopping the beta (after being on it for 10 1/2 years) is I'm taking milk thistle 250mg bid...

I realize the weight I've put on is a problem too, that I have a "fatty liver" from the weight, but these results tell me the beta is a problem too; I will wait and see what my neuro says and I will go back on it when my liver has had a chance to heal.

interestingly, I have felt really good off the beta...more energy, better attitude, better mental clarity...

thanks for your support and prayers~ I appreciate it. http://i17.photobucket.com/albums/b5.../giveheart.gif
Vikki

It was like night and day for me when I stopped the Beta. Don't know what's in that stuff but it was definitely not helping me. My Neuro tries the guilt trip to get me to start it again. I think he got a little perturbed at me last time I went in (last week). He made the comment "well, it's your body you can do what you want with it". And to that I said "Yes it is. I totally agree with you and that is what I intend to do". And that ended my checkup! :rolleyes: