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-   -   Nail Changes (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/152946-nail-changes.html)

cndangel 07-02-2011 08:28 AM

Nail Changes
 
I have another question.... regarding Nail changes. I was wondering how long it took everyone to notice nail changes?

I know shortly after my injury (a about 3-4 months) I noticed the my right hand (the hand with CRPS) finger nails were growing at a quicker rate then my left. This lasted a few months.

Then I noticed that the nails growth rate began to slow down. Now the finger nails grow a much slower rate then the left.

About a month and a half ago (about 8 months of having CRPS) I began noticing that my right hand finger nails are developing deeper grooves in them and are becoming brittle and almost feel thicker then the left.

I am guessing the finger nail changes are a slow progressive one. Can anyone suggest anything I can use to keep the nails healthy? or to help with the thickening/grooving? Also what are some of your experiences with the nail changes? (how long did it take/what other things you have noticed etc.)

Take care,
Karen

ballerina 07-02-2011 08:50 AM

Quote:

Originally Posted by cndangel (Post 783188)
I have another question regarding Nail changes. I was wondering how long it took everyone to notice nail changes.

I know shortly after my injury (a few months) I noticed the my right hand (the hand with CRPS) finger nails were growing at a quicker rate then my left. This lasted a few months.

Then I noticed that the nails growth rate began to slow down. Now the finger nails grow a much slower rate then the left.

About a month and a half ago (about 8 months of having CRPS) I began noticing that my right hand finger nails are developing deep grooves in them and are becoming brittle and almost feel thicker then the left.

I am guessing the finger nail changes are a slow progressive one. Can anyone suggest anything I can use to keep the nails healthy? or to help with the thickening/grooving? Also what are some of your experiences with the nail changes? (how long did it take/what other things you have noticed etc.)

Take care,
Karen

I had almost the same changes you have had except some of my nails fell off. I also had mirror changes with hair, first growing rapidly and then thinning.

My neurologist suggested a supplement called bioten. My nails and hair are much better. I don't know if it is the biotin or the tCDS treatment I had. My neurologist thinks the bioten is responsible for the improvement.

Hope this helps!!!!

Teri

kathy d 07-02-2011 01:06 PM

Hi Karen,
Nail changes and hair changes are common with rsd. One of the "lovely" things about it. After six years I am finding soooo many changes within my body. I had premature wrinkling of my skin esp on my hands/arms/legs after ketamine this past year. And now I see it on my face too! The ketamine seems to have drained my body of all liquid and vitamins. Strange. I would not do that treatment again. It was brutal. I see a thickness in the nails in my right foot (initial trauma). I have had alot of hair fall out of my hair in clumps esp in the beginning. Now, the front of my head is thinning badly. I went to a dermatologist a few years ago and did a biopsy and he said it was from stress on the hair follicles. I have hardly any hair on my legs (Shaving hurts too bad anyway). I just noticed today that the entire back of my legs (and most of the front) have no hair at all and it is really thin on my shins.The dermatologist had me use Rogain for my hair and then said to put it on my legs to grow hair back. Duh. What woman would want to do that? That is probably the only good thing about having rsd haha.

My vision has become blurry too. I used to have 20/20 vision until rsd. I just got a pair of reading glasses last year and I think my eyes have changed for the worst again. Amazing. Well, good luck and take it one day at a time. I think most of the changes are gradual and happen over years. Hang in there.
kathy d

birchlake 07-02-2011 07:50 PM

Changes in nails is one of the CLASSIC symptoms of CRPS. It can be different for everyone. Some grow faster, some slower, some thicker, some fall off.

Mine got thicker on the CRPS foot, but no dramatic differences.

I don't personally know of any treatments for nail changes due to CRPS.

daniella 07-03-2011 12:44 AM

For me the nail changes on my toes happened late. I would say 2 years into dx and this last year it really has become bad. Right now they are so gross and hard to cut. Its been about 4.5 years with the condition.
As for what helps heal. I am not sure but I think if the RSD pain and condition gets to a better place with treatments then the nail issue will also improve. Like for ex when people do ketamine and the sores start going away. It may not be ketamine but another treatment it was just an ex I was using.
I don't take biotin but do take supplements. I think vitamin c and also omega 3 also help in healing. I also thought I read that lack of calcium can impact nails etc. I have osetoporsis so I take calcium with d anyhow.

gabbycakes 07-03-2011 06:18 AM

Quote:

Originally Posted by cndangel (Post 783188)
I have another question.... regarding Nail changes. I was wondering how long it took everyone to notice nail changes?

I know shortly after my injury (a about 3-4 months) I noticed the my right hand (the hand with CRPS) finger nails were growing at a quicker rate then my left. This lasted a few months.

Then I noticed that the nails growth rate began to slow down. Now the finger nails grow a much slower rate then the left.

About a month and a half ago (about 8 months of having CRPS) I began noticing that my right hand finger nails are developing deeper grooves in them and are becoming brittle and almost feel thicker then the left.

I am guessing the finger nail changes are a slow progressive one. Can anyone suggest anything I can use to keep the nails healthy? or to help with the thickening/grooving? Also what are some of your experiences with the nail changes? (how long did it take/what other things you have noticed etc.)

Take care,
Karen

Hi Karen,

That was the first symtom I got when the RSD started to appear and it started very quickly after my fall and first surgery . They would grow like a weed and where hard as a rock. Had a problem clipping them with a nail clipper, I could drive them through a wall, I'm sure and they would not break. Since a had the ketamine treatments that has stopped. But what is strange when I have a flare if I over do it or it's very humid and that scenerio continues for a couple of days the nails will start growing abnormally again.
Very strange.

Good Luck,

Gabbycakes

ginnie 06-09-2012 04:15 PM

Hello NT Nail changes
 
Hello everyone. I have been a member for a little while. Over the last year, I have developed nail problems. I am now taking vitamine B12 shots, and a number of suppliments. I do have PN, some burining in my left foot. Nails are cracked, brittle, length wise ridges, thin, bendable is how I would describe this. I was not always like this. Is there anything else the doctor should do to diagnos me? I have osteo arthritis, DDD, and DJD, does this account for these new changes? thanks all, ginnie

yellow 06-11-2012 09:59 PM

I've had the same changes with nails you've all mentioned. I've also had the hair changes. I have RSD on both of my legs so while I see the changes there, there has been no "normal" one to compare them too. But I have it in just one wrist and you can see a huge difference in the hair on my RSD arm. It is much thicker and darker and the nails grow more slowly and are brittle. Not to mention all of the redness, swelling, shiny/scaly looking skin, etc. RSD is sure attractive, isn't it?

ballerina 06-12-2012 06:13 AM

I had nail changes in the hand of my effected limb. Thick, hard brittle with ridges in them. Very ugly. Nail polish would not even stick.

Within two months of tDCS treatments the nail problems became much better and now are totally gone. I didn't realize how much I hated that with all of the other symptoms that were so overwhelming.

alt1268 06-12-2012 07:10 AM

My toe nails started changing last summer. They went from clear to dark yellow almost overnight. Just horrible looking. This winter when I started taking vitamins they started to clear up and I started walking again. Still have burning pain, but not the pain I had.

Breezy55 06-12-2012 02:03 PM

Nail Changes/Problem's with Teeth?
 
I also noticed that my nail's grow so fast,that it is hard to keep up with them. My left hand is weaker than my right hand. I cannot cut my finger nail's on my right hand. I have to have someone do it for me. My hair is also thinning and many piece's come out when I brush or wash my hair. I have heard that using a shampoo with Keratin in it does help. I am in the last stage of RSD now. I was wondering if anyone has been having problem's with their teeth? Since RSD is nerve involved I have had chipping and craking of my teeth. Since I am on SSDI my insurance will not pay for a dentist. I have lately really been racking up alot of bill's. Fortunately my dentist is letting me pay off my bill's in monthly installment's. Does anyone have a suggestion beside's brushing your teeth and flosing(SP?) I am using a Sensodyne tooth paste with fluoride. If you know anything that would help me out I would so appreciate it!! Thank's Breezy55 :grouphug:

Breezy55 06-12-2012 02:08 PM

Nail Changes/Problem's with Teeth?
 
[QUOTE=Breezy55;888288]I also noticed that my nail's grow so fast,that it is hard to keep up with them. My left hand is weaker than my right hand. I cannot cut my finger nail's on my right hand. I have to have someone do it for me. My hair is also thinning and many piece's come out when I brush or wash my hair. I have heard that using a shampoo with Keratin in it does help. I am in the last stage of RSD now. I was wondering if anyone has been having problem's with their teeth? Since RSD is nerve involved I have had chipping and craking of my teeth. Since I am on SSDI my insurance will not pay for a dentist. I have lately really been racking up alot of bill's. Fortunately my dentist is letting me pay off my bill's in monthly installment's. Does anyone have a suggestion beside's brushing your teeth and flosing(SP?) I am using a Sensodyne tooth paste with fluoride. If you know anything that would help me out I would so appreciate it!! Thank's Breezy55 :grouphug: One last quick question,how many of you have a pain pump or/and reccomend it? Even though I am on many pain med's my pain # is usually a 7-8 in the warm month's and a 9-10 in the winter.

ginnie 06-12-2012 06:06 PM

Hi Breezy
 
I have SSDI also. No room for dental expenses. I waited way to long to find help. I am doing the same thing you are, paying the dentist off. Please do ask you dentist for a discount. sometimes they are willing to reduce their prices for those that have trouble like that financially. I am sure you know already how expensive the dentist can be. I wish you all the best. ginnie

painman2009 06-12-2012 11:10 PM

In each appendage as it spreads. at first nail growth was fast and thin nails with groves showing up against the natural grain of the nail. now .I still have the groove thing but the nails ar really thick , barley grow and when i do need to clip the crumble immediately . also splitting of the nails happen often so i am forever filing the rough edges out to stop snags... and I suffered massive hair loss in lower appendages, and my hands. these parts used to be very hairy now i see little to no hair.. and swelling is very bad. my wedding ring no longer comes off my finger is starting to look like the trunk of a tree that grew around a rope or wire...

ballerina 06-13-2012 05:23 AM

Quote:

Originally Posted by alt1268 (Post 888206)
My toe nails started changing last summer. They went from clear to dark yellow almost overnight. Just horrible looking. This winter when I started taking vitamins they started to clear up and I started walking again. Still have burning pain, but not the pain I had.

Wow Alt, that is great that you are doing so much better!!!!!!!!!!! I remember those desperate days when you wondered if you would be walking again and were considering a spinal cord stimulator as a last ditch effort. I am so happy that you are improving!!!!!!!!! You might just be following along in Catra's footsteps!!!! Hope so! So happy for you.

So happy those ugly nails are gone!

alt1268 06-13-2012 08:23 AM

I'm still on the calendar for a scs trial. However it has been postponed 4 times because of wc delay in approving. My believe is that God has a bigger plan for me and that is why it keeps getting postponed. Anywho. I have been taking lots of vits. C, calcuim, fish oil, (most important "Alpha Lipoic Acid" suppose to be good for nerve regeneration) Don't get me wrong I am still on my pain patches, and still have burning in both feet . But the color change, temp. change and nail changes are now minimial. Thank you Jesus!


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