nerve support????
 

Has anyone tried the supplement Nerve Support? I was on their site and wondered if it is a total sham or can really help? Just curious!

These are the ingredients from Amazon.com

http://www.amazon.com/Support-Formul.../dp/B000LZIXJO

Nothing new.

Their price $44.20.
Directions to take with food.... NOT IMO... the methyl B12 is not absorbed well with food. It needs an empty stomach.

The D3 extremely low, B2, B6, and folic acid can come from any multivitamin.

You can buy the same thing --Benfotiamine and methylcobalamin separately for less money. You can adjust your own dosing too more easily when they are separate.

We discuss both supplements here:
http://neurotalk.psychcentral.com/thread121683.html

If you choose this way and brand, take it on an empty stomach.

Thanks Mrs. D, I guess I am not sure what vitamins to take. My B12 was fine on my blood test. Not sure about my vitamin D. It is all overwhelming to me.

May I ask....what is "fine"? Doctors will tell you fine/normal when you test at 200... because lab ranges in US are old, and not up to date. You should be at 400 at least or maybe more.

Please check that out. Vit D is very important today because of all the new research coming out.

Call your doctor back and get your numbers. That is the only way you can know if it is "fine" or not.

:Ponder:Pardon me for jumping in....mrsD, I am trying to find out about what is happening with vit d research, hard to find the reliable info, lots of "urban legends". In 2007 my vit D level was so low it was not measurable and I was treated for several weeks, but never it was never followed up (doc assumed it would normalize, I did not realize how important it was). Jan 2011 level 19 ng/ml range 30-100. Started on and continue 1000 ius daily. Told it was normal in May, waiting for my records to be given to me (prob end of month). I eat a good balanced diet, go out into the sun, do not take any meds that would interfer with absorbtion. Until I found this forum, I had a "so what" attitude.

Here is some homework for ya!

http://neurotalk.psychcentral.com/sh...hlight=vitamin

Mrs. D I checked on my B12 and it is 474. I didn't see a listing for my vitamin D. I just saw calcium at 9.8 mg. I am going to be treated for possible infection in my vertebrae. I am getting a biopsy tomorrow and they said even if it is negative they will probably treat me with an IV from home for 6 weeks. I am scared of going on antibiotics after hearing the stories on this board. What do you think? I guess they will decide which drug after the biopsy results. I asked him if my neurological symptoms were connected to the infection and he said no. I am frustrated. I see a neurologist on the 20th of this month. Danielle

The most likely antibiotic for a bone infection is clindamycin (Cleocin). This is not implicated in PN.

But you have every right to ask what you will be given.

Perhaps they will culture the biopsy and find the antibiotic to fit what shows up?

There are so many IV choices... and the bottom line with this serious thing...is that the risk in this case is high, and you will have to take what they give you. But you have every right to ask and discuss any fluoroquinolone like Cipro or Levaquin or Zyvox or Flagyl, and see if there are alternatives. There may be not. All three of these drugs are implicated in PN generation.

If your vertebra is consumed by infection...you will be in a far worse place than having PN. So the doctors will have to weigh benefit vs risk, in this case.

Normal is not 30 anymore. Normal is now 50. But it is your decision if you want to increase from 1000IU daily. 1000IU D3 for every 10 units you need to increase. You can figure that from your test results, which you don't have exactly. D3 taken daily is better than the old RX D2. Much better and more effective.

One does not benefit from the new cancer prevention effects of D, until you reach 70 in your testing.

You are the Goddess of Smartness. I had been thinking about increasing the dose, as I seem to have a problem maintaining a level wnl. I have always been a believer in the importance of fueling our systems. I was fortunate to have a NP who started me on B12 because my MCV wa elevated even tho' my B12 level was 583. She even told me to get sublingual.

:)

All of the B12s are still sublingual...but really they dissolve in your saliva and you swallow it anyway. Very little goes thru the mouth membranes. B12 is such a huge molecule and all.

But you DO have to take it orally or subling if you choose, on an empty stomach. Food will absorb it's tiny microgram amount and prevent the passive absorption in the small intestine.

If you have intact intrinsic factor (and most people who are low do not), then that is easier for absorption.

The research on microgram amounts of drugs was done on levothyroxine and was shown that food ruined it's absorption. Then digoxin was added to the list. So that now if you get these on RX, there will be a warning sticker. For some odd reason no one has understood or picked up on it yet, for microgram amounts of B12... not even the supplement manufacturers!
But I know about this, and know it is crucial to get good absorption orally. Just don't choose a "timed release" product as that is USELESS.

Mrs. D,

I saw my GP yesterday and he wants to put me on a B12 spray once a week. Like I earlier mentioned, my B12 level was 474. What do you think? Thanks a lot! Danielle

On the B12 informational thread.... at PN forum in the stickies, near the end is the important paper by Dr. C. Snow who recommends using B12 treatment, for borderline normal patients with neurological symptoms. He feels there is nothing to lose and everything to gain, as some people may need higher B12 levels than others:

Please read this:
http://neurotalk.psychcentral.com/post698522-70.html

I think you will raise your level faster by using oral every day.

If you want quick results do 5mg daily on an empty stomach.
You should see good results within 3 months.
Once up... you may choose to lower to 1 or 2mg daily or not, depending on whether increasing your B12 shows some improvements for you.

After cystocele surgery 3 yrs. ago, i was given a 14 day dose of Levaquin 500mg. Little did I know what this could do. I had also been given phenazopridine 200 mg. After 3 or 4 days home from the hospital, my feet and legs began swelling. I called doctor's office and was told to stop the phenazopridine. I continued with the Levaquin. This was the start of stasis dermatatis, edema and terrible burning of feet & ankles plus leg pain. I had had spinal fusion, lamenectomy 5 years ago. Doctor said my nerve was a very angry red nerve. I thought my PN was possibly due to my spine surgery because I was and am on pain meds because of the terrible spine pain, along with eventual burning feet/ankles and leg pain. When I think back, the burning feet,ankle and leg pain did not start until after my bladder surgery. I wish I had known about Levaquin. I now believe that is the reason for my PN.

I think your Pn is probably bc of the antibiotic. There are a lot of people out there that have had bad reactions to these antibiotics. Some have seen some improvement in their symptoms. It is all very scary!

After reading about Levequin, and the timing with the burning feet/ankles, legs, as well as swelling; eventually leading to the Statis Dermatatis as well, i do believe Levequin is the culprit. A few weeks after Cystocele(bladder) surgery, I mentioned the swelling of my legs and feet - the doctor/surgeon told me is was most likely because I was getting older and that often happens when getting older. I must have really done and awful amount of aging in a few weeks to get all this and his explanation was weak; but would not related it to anything but my age and getting older. By the way, I no longer see this doctor.