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-   -   walking/standing with pn (https://www.neurotalk.org/peripheral-neuropathy/153347-walking-standing-pn.html)

stan t 07-10-2011 10:27 AM

walking/standing with pn
 
My pain level is higher when walking and especially standing.
Is this norm for pn and do most pners who work have standing jobs or sitting jobs? Can I further damage my feet by standing for long periods?
Any help greatly appreciated.

mrsD 07-10-2011 11:26 AM

I think everyone is different.

I hurt more when I go to bed.

echoes long ago 07-10-2011 12:29 PM

Stan i am in the same boat. If i stand for more than ten minutes or walk any distance i am in agony. it feels like i am standing or walking on broken bones. It has continued to get worse from year to year. The broken bones feelings werent my original pains in my feet, they developed years ago but i had had pn for about 5 years ( i dont remember exactly when) at that point.

drswami 07-10-2011 08:08 PM

standing and walking hurt most for me.

stan t 07-10-2011 08:55 PM

occupation
 
Quote:

Originally Posted by echoes long ago (Post 785309)
Stan i am in the same boat. If i stand for more than ten minutes or walk any distance i am in agony. it feels like i am standing or walking on broken bones. It has continued to get worse from year to year. The broken bones feelings werent my original pains in my feet, they developed years ago but i had had pn for about 5 years ( i dont remember exactly when) at that point.

Do you work on your feet? Have you had to change jobs?
I'm afraid I will have to leave the family business and get a
desk job.

echoes long ago 07-11-2011 12:30 AM

i am retired medically Stan, but it wasnt because of PN at that time though im sure i would have been put out because of PN as it progressed if i hadnt been already put out for pulmonary disease. i had PN then also but didnt know what was going on at that time and didnt find out until 7 months after i was retired. I definitely could not work on my feet or walking at this time at all because of PN and it really just fatigues me in general. My hands and arms are also affected but not to the degree my feet and legs are, i drop things consistently and anything i have to do with my arms unsupported or over my head or repetitively just tires out my arms quickly.

drswami 07-11-2011 04:36 AM

i am a tennis coach. my hands are affected so i cant hit either. i have a young guy does all the running and hitting for me. sometimes sitting is as bad as standing. all i can do is lay down until it stops hurting, usually after 4 or 5 hours.

stan t 07-11-2011 04:38 PM

Quote:

Originally Posted by echoes long ago (Post 785454)
i am retired medically Stan, but it wasnt because of PN at that time though im sure i would have been put out because of PN as it progressed if i hadnt been already put out for pulmonary disease. i had PN then also but didnt know what was going on at that time and didnt find out until 7 months after i was retired. I definitely could not work on my feet or walking at this time at all because of PN and it really just fatigues me in general. My hands and arms are also affected but not to the degree my feet and legs are, i drop things consistently and anything i have to do with my arms unsupported or over my head or repetitively just tires out my arms quickly.

Can standing further damage pn?

echoes long ago 07-11-2011 10:45 PM

if they swell constantly from walking or standing then damage can be done from the swelling. i think it would depend on the person and what is causing the pain which would determine if more damage was being done. damage from pn can and does progress even if you do nothing. if the pain is from the brain getting no or garbled signals from the brainnerves then i dont think you would be doing more damage. Personally i would and did and still do what i can while i still can.

daniella 07-12-2011 01:50 AM

Stan have you talked to your doctor about what type of activity and how much you should do? Everyone I feel is different. For myself it is finding the right balance between not doing too much yet not doing to little. Either extreme causes me problems. I am not sure it is damage but more the pain gets so high and does not settle.

stan t 07-12-2011 04:59 PM

Quote:

Originally Posted by daniella (Post 785729)
Stan have you talked to your doctor about what type of activity and how much you should do? Everyone I feel is different. For myself it is finding the right balance between not doing too much yet not doing to little. Either extreme causes me problems. I am not sure it is damage but more the pain gets so high and does not settle.

My dr tells me to use my best judgment on types of activities.
I have "advanced loss" of disk space height at L5/S1, gluteus medial/minimus hip tendinitis and pn in my feet. No back pain though. Can't find a cause for pn. Looks like it might be the back. What do you guys think?

stan t 07-12-2011 06:35 PM

swelling
 
Quote:

Originally Posted by echoes long ago (Post 785710)
if they swell constantly from walking or standing then damage can be done from the swelling. i think it would depend on the person and what is causing the pain which would determine if more damage was being done. damage from pn can and does progress even if you do nothing. if the pain is from the brain getting no or garbled signals from the brainnerves then i dont think you would be doing more damage. Personally i would and did and still do what i can while i still can.

I've never noticed any swelling in my feet. Are you talking about visibly noticable swelling or swelling on a smaller level in the nerves?

echoes long ago 07-12-2011 09:17 PM

mine is visibly noticable

kasey21 07-16-2011 03:11 PM

I'm a newbie that can certainly agree with the increased pain with walking and standing!

daniella 07-17-2011 12:19 AM

Quote:

Originally Posted by stan t (Post 785927)
My dr tells me to use my best judgment on types of activities.
I have "advanced loss" of disk space height at L5/S1, gluteus medial/minimus hip tendinitis and pn in my feet. No back pain though. Can't find a cause for pn. Looks like it might be the back. What do you guys think?

Well for me it is finding the right balance between not doing too much and not doing too little. I remember my doctor saying that if I don't use my limbs that I will atrophy and that will cause even more problems. Have you tried pool therapy?

zorro1 07-17-2011 07:06 AM

Quote:

Originally Posted by daniella (Post 787261)
Well for me it is finding the right balance between not doing too much and not doing too little. I remember my doctor saying that if I don't use my limbs that I will atrophy and that will cause even more problems. Have you tried pool therapy?

Agree, as the old saying goes use it or lose it

mrsD 07-17-2011 07:49 AM

I think attention to shoes is critical ....

Also tying shoelaces too tight... AVOID AVOID.

If you have Tinel's sign on your top instep, watch anything that hits those nerves.

http://en.wikipedia.org/wiki/Tarsal_tunnel_syndrome

Anyone with foot pain, really needs to see a podiatrist to rule out other sources or problems. I have multiple foot problems and find understanding them, helps in finding comfortable solutions.

nide44 07-17-2011 09:55 AM

I find that shoes with Velcro straps provide good ability
to loosen or tighten many different times of the day, even
when driving longer distances. Very easy to adjust.

Ed A 07-18-2011 11:01 AM

Some days, I feel like I could hike for miles... other days, 1-2 aisles in the grocery store and I'm done... and the biggest problem is not figuring out what I do to make it worse 1 day to the next...

JB63 07-18-2011 01:22 PM

Quote:

Originally Posted by Ed A (Post 787595)
Some days, I feel like I could hike for miles... other days, 1-2 aisles in the grocery store and I'm done... and the biggest problem is not figuring out what I do to make it worse 1 day to the next...

Geeze Ed, I was thinking of starting a thread called "how do you feel in the morning?". I am finding some days I am doing great, sleeping well, not tired, balancing well and then the next day....I can barely get out of bed, no less put on braces and walk to the next room with the cane.

I will say that this last month I have had an increase in better days, possibly because of the physical therapy. Still, I have some rotten mornings.


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