Woe is I
 

How long has it been since I had a whiny spell? Long enough, I hope?

What a screwy disease. I swear everybody I know either knows somebody who's had MS for thirty years and still works 60 hours a week and has a life, or knows somebody who has MS and is completely incapacitated. I'm neither, of course.

I was just talking with my sister-in-law whom I LOVE TO DEATH, and trying to explain that we just don't make plans, especially for late in the day (read: after 3:00, back home time).

And you know, she wasn't angry, she wasn't insensitive, she wasn't pushy...she was just...I don't know, kind of puzzled and maybe a little hurt that she couldn't make it better for us, or really understand where I'm coming from.

Why should she? I wouldn't have, fifteen years ago. And my Dad HAD MS!! It's just frustrating sometimes. And it's not about the other people, it's about me. Just want to to hide under the bed and wear my "I SUCK" tee shirt.

Psalm 139:14

I will praise thee; for I am fearfully and wonderfully made: marvellous are thy works; and that my soul knoweth right well.


I know these verses sometimes seem to mock us...but all we really have to fall back on is the word of God.

I can't even imagine what you're going through, but I'm tearing up now as I type this and I will pray for you.

Thank you, curlydawg! You are so right...I need to get my eyes off my woes and back on Him!!

There ya go!!!!!. You so 'dont suck':D

:hug: B2Y :hug:

I love this thread, Blessings, because I didn't have to whine and we're both cured.:D

I feel your whine. I really do. A friend of mine is having a bday party for her youngest today and I kind of hurt her feelings when I declined. In all fairness, it is an hour and a half drive each way and I have spent the last two days fighting this sinus thing. Plus I have this MS thing that makes m incapable of accepting invites to things before they happen because if I have to bail, it makes me feel guilty. Fortunately, same friend's MIL has MS and she gets it.

It sucks though because I am feeling better today and about to head out to go do something with DD because she has been trapped in the house with me for 2 days, so I figured we would go do SOMETHING, just don't know what yet. :hug:

~For Blessings!!!

http://home.earthlink.net/~sal.pal/s...s/grouphug.jpg

I feel your whine, really I do. :hug: You don't need to explain here, that's what's so great about this place. We can air these feelings without fear of backlash, discrimination or misunderstanding or whatever.

I am one of those still pushing on and asking myself why? Always have fleeting thoughts of not working retail and enjoying my life. But then I think what will those "other people" think?

Well, you are there, and you are able to not go to work but you are worrying about this and sometimes, what those others think. It is ok that you have made your choice, and that you accept and admit those limitations that your body has given you at this stage. The others will feel frustrated (that will never end) but you only need to answer to yourself and your heart and your God. :hug: We all love and understand you and that's the great thing about this place. It is almost like it is our temple, our temple for acceptance for this thing called MS that we all share and isn't always good, but it brings us together and you know you can come here for unconditional love, understanding, and acceptance. :hug:

You are so right, thank GOD for this place and the people who come here!

My husband, bless him, is as sympathetic to and understanding of my situation as anybody could be, but every once in a while he'll say something and I'll mentally scream "You don't get it!" Well duh, of course he doesn't get it.

People here come from all different perspectives, with all different attitudes, with similar but different experiences...but with a few nuances, we all get it.

:D It may just be a man thang. BTW, am I one of the only BAD men out here on the forum?

I find myself reading a post sometimes and I feel like, "just get over it", then I have to slap myself in the face and say, "they can't just get over it you ding-dong" But I do feel like I've made progress:grouphug:

You are so right about that, curlydawg! When my husband was diagnosed with cancer a few years back, he said "There's no point talking about it, it is what it is. Ya just suck it up." Of course, I wanted the therapy of talking it right to death.

B2Y, I think all men have the "no point in talking about it" gene. My DH did. I often wonder how he would have responded to me being dx with MS. He passed away 4 years before I got my official dx. He was one who didn't like to talk about things. He just wanted to "fix" it. Wonder how he would have reacted to something he couldn't fix? :confused:

I'll tell you Kelly. My DH was upset because of my MS and I believe that the stress hastened his death. I miss his love and caring soooo much..:hug:

I probably would have thought the same thing if I had been dx prior to his death. :( He used to get so stressed out if any of us were sick....me or the boys. I often wonder how he would have reacted to a long term condition like MS. Usually by the end of a bout with bronchitis or a bad cold he was ready for things to get back to normal......normal meaning me doing most of the work around the house. :rolleyes:

Big hugs you:hug: Sorry you are having a hard day. Kick back and watch the Sox....maybe they will win;)

dear B2Y,

just a thought that came to my mind.
do you know of that spoon article?
i've used that before to help others understand my energy/fatigue issues and my MS in general.

i've gotten positive feedback from those i've given it to.

Yes, I do have the spoon thing, I should dig it up again. I adapted it somewhat, and it really does adress that fatigue that is so common to MS, as well as some other symptoms.

It's sometimes sort of like...I don't know, like some kind chronic generalized apathy. Or something.

That is the perfect way to put it, B2Y. ....chronic generalized apathy!