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-   -   Does anyone treat MS naturally and have success? (https://www.neurotalk.org/multiple-sclerosis/156317-treat-ms-naturally-success.html)

ItsWonderfulLife 08-31-2011 09:51 AM

Does anyone treat MS naturally and have success?
 
Hey all,
Have any of you used any Vitamin/Herbal supplemetation instead of pharmeceutical medicine to keep MS in remision and/or to treat symptoms? And if so what combination of them? Thanks and hope everyone has a good day :)

SallyC 08-31-2011 10:37 AM

Not alone, no. Some supplements help your arsenal, such as The B vitamins, D3 and calcium. No combo of Vatamins/herbs has been found as a cure though.:)

Kitty 08-31-2011 10:49 AM

The main thing I use for MS is LDN. To that I add D3, B12, Krill, Astaxanthin, Grapeseed and a good multi-vitamin. It's also a good idea to clean up your diet as much as possible and try to stay away from overly processed foods. Lots of fresh fruit and veggies and no sugar. I try to eat organic as much as my budget will allow but it's not always possible. Things I ingest everyday (or often) I do buy organic (coffee, milk, eggs, meat, fish). If I can find a good price on fruit and veggies I will get them organic, too, but they tend to be pricy.

Jules A 08-31-2011 10:52 AM

Quote:

Originally Posted by ItsWonderfulLife (Post 800979)
Hey all,
Have any of you used any Vitamin/Herbal supplemetation instead of pharmeceutical medicine to keep MS in remision and/or to treat symptoms? And if so what combination of them? Thanks and hope everyone has a good day :)

Not in my opinion. I do believe that living a healthy lifestyle which includes supplements, fresh food, keeping our weight under control and exercising as one is able is very important however I do not believe it induces remission or decreases progression of this chronic, progressive disease.

I am a huge believer in pharmaceuticals however I also don't think they are to be credited with a major change in disease course. Personally I kind of think MS is going to do whatever MS wants to do in its own time frame which makes figuring out what may or may not help difficult. :(

ItsWonderfulLife 08-31-2011 11:44 AM

Thanks everyone for the response. I heard a lot of good things about LDN, Kitty has it helped improve (if you experience) fatigue/weakness? Has it prevented you from a relapse?

ItsWonderfulLife 08-31-2011 11:45 AM

Sorry forgot to ask how to go about getting it/asking for it from your doctor? Is it difficult to get and do pharmacys usually carry it?

Kitty 08-31-2011 12:40 PM

LDN has helped with my fatigue issues. I've still had a couple of relapses since I've been on it but they generally resolve themselves within a few weeks now. I don't take steroids but usually just let them run their course.

Some Neuros are not familiar with LDN and won't take the time to research it. My Neuro would not prescribe it so I had to get my script from another doctor. I use a compounding pharmacy that mails my prescription to me. I usually get a 3-month supply with each refill.

Here's a website that can give you more information on LDN: www.lowdosenaltrexone.org

SallyC 08-31-2011 01:32 PM

Quote:

Originally Posted by Kitty (Post 801056)
LDN has helped with my fatigue issues. I've still had a couple of relapses since I've been on it but they generally resolve themselves within a few weeks now. I don't take steroids but usually just let them run their course.

Some Neuros are not familiar with LDN and won't take the time to research it. My Neuro would not prescribe it so I had to get my script from another doctor. I use a compounding pharmacy that mails my prescription to me. I usually get a 3-month supply with each refill.

Here's a website that can give you more information on LDN: www.lowdosenaltrexone.org

Me Too, ItsWonderfulLife..:D

paleon183 12-02-2012 10:00 AM

can MS Be Beaten Naturally
 
Quote:

Originally Posted by ItsWonderfulLife (Post 800979)
Hey all,
Have any of you used any Vitamin/Herbal supplemetation instead of pharmeceutical medicine to keep MS in remision and/or to treat symptoms? And if so what combination of them? Thanks and hope everyone has a good day :)

I was diagnose with MS in 2001 and was in a wheelchair for several months. To the surprise of family, friends and medics I was able to regain my health and vitality without the intervention of Pharmaceutical medicine.

By researching diet, exercise and healing with the mind I was able to improve my quality of life over time.

My diet became more natural, no more processed foods, lots of organic fruits, vegetables and food suppliments. My daily intake of water was increased and if I ate meat it too had to be organic.

For exercise, the practice of QiGong became a part of my daily routine and I flooded my mind with positive thoughts, books and images. Believing that I would heal myself by using positive visualisations.

After several months I was out of my wheelchair and my condition improved drammatically.
More than ten years have passed and my quality of life continues to improve.
I have writen a short story about my experience with the hope of helping others who are cosidering the natural approach to beating MS.

Mariel 12-03-2012 03:35 AM

I've been on the Swank diet for maybe 28 years, and that's a natural treatment. But I also treat symptoms with minerals and vitamins. For spasm and jerks: magnesium, calcium, B1, E Complex. For eye dimness or fogginess, non-flush niacin. For nervous exhaustion,
low dose all-food based Vitamin and Mineral complex called Megafoods Without Iron (I can't have iron because of other problems). For digestion, Enzymes.
I do get as much exercise as my painful feet allow. My feet were not painful, just slightly numb, for the first 16 or 17 years since my MS dx. But then I got another disease and/or my neuropathy from MS and Porphyria got worse, and I now have such painful feet that I have trouble being on them much; nevertheless, I walk as often as I can about l/2 mile, after the sun goes down, and I do some PT exercises on my bed which keeps my muscles stretched and strong as possible. I don't get much imbalance as long as I stick to Swank diet but if I get off it, lots of imbalance, need for cane.

I now have other problems which require drugs and that is an ongoing problem for me, very difficult to get drug side effects under control or find other ways to do quell symptoms. I miss the days when I was mostly natural. I even had to have radiation last year (one shot of p-32) to lower my bloodo platelets; this is for Polycythemia Vera, for which there isn't much treatment except unnatural things. After all those years of being mostly natural, I'm now dependent on drugs, not for my original diagnosis, but for that which came much later.

new2net98 12-03-2012 09:19 AM

I'll add soy protein and whole food vitamins to the list of "try it" and see where it helps you. I added soy drinks when I couldn't swallow regular protein options (meat, nuts, etc.). Everyone's body needs aren't the same; so be careful with anything suggested here.

Also, flares & meds are different too; keep a diary of your symptoms. That way you can see a pattern (if there is one) of what works and what may not work. Someone here suggested that for me & it really helped.

Good luck! :D

Sparky10 12-03-2012 10:50 AM

I replaced Provigil with oil of oregano for fatigue. Still get weak quickly when doing something strenuous but I'm not sleepy during the day anymore. And I take cranberry concentrate gelcaps to prevent UTIs. Those 2 natural supplements I can actually see working.

Fish oil and vitamin D, I take, well, just because they are supposed to be good for us. Are they the reason I'm still very active? Or maybe that's a result of those 3 years of Avonex I took almost 10 years ago. Who knows.

I still take diazepam and Baclofen for spasticity and muscle spasms. Generic Lexapro (escitalopram) to ward off pseudobulbar effect (crying [or laughing] for no reason) and Ampyra to help walking. Honestly, I might be able to stop the Ampyra now that I see a chiropractor regularly. That dramatically helps my walking.

Mariel 12-05-2012 11:27 PM

Sparky if you don't need the Ampyra why not see how you walk without it? (get dr. permission if you feel uncertain about walking). No use taking any drug which is not needed.

Mariel 12-05-2012 11:29 PM

NewtoNet, quite a few people can't take soy, me being one of them. Those protein drinks really got me when I tried them perhaps 40 years ago. Then I learned that I was sensitive to all soy including those drinks, tofu, soy oil. I can eat a small amount of soy flour if it's in a multi-grain mix, so it is not an allergy, it's a sensitivity.

Sparky10 12-06-2012 11:12 AM

Just took my morning pills, Mariel, and left the Ampyra in the case. I'll know soon enough if I still need it.

This is why I love having other people with MS to talk to! Sometimes I answer a question with something I either never thought of before, or it prompts me to take action I'd been thinking about! :)

Mariel 12-06-2012 11:56 PM

Hoping that works, Sparky!

D0ct0rT 12-07-2012 12:54 AM

I started a whole new diet based on a book called Minding my Mitochondria by Terry Wahls. I was ready to try something different since none of the meds I've tried worked much at all. I was very skeptical but willing to try it. It has made a drastic change in my life. It is not perfect and I get tired of eating the same things over and over but it is definitely better IMO when I'm eating that way and can tell the difference when I deviate from her recommendations.

I also know a guy with MS that sees a neurologist in New York that is married to a nutritionist that do a lot of food changes that has had great success. I'm thinking of going to see him but it would cost me a lot of money. He starts by doing an evaluation for three days in a row and people that live close to him for 5 days, changes eating and reports a high success rate.

Mariel 12-07-2012 11:30 PM

I know this diet of Terry, and some people have improved on it, or a similar diet, over the years. But it was not for me. I tried a similar diet years ago--maybe 14? I could not do it, it caused severe pain in the muscles (probably because it was too high in protein and low in carbs for a person like me who has Porphyria). I had to stop after 4 days. I think this is an individual thing. I'm best when on the low-fat diet of Roy Swank, who wrote the MS Diet Book. Been on his diet for at least 25 years and received help from it, although of course not a cure.

I do eat a mostly organic diet, perhaps 80% organic. We have a coop in town the past two years and I'm so grateful to have it here!

paleon183 12-15-2012 10:21 AM

Yes! I have used Alernative methods to Comabat MS
 
Quote:

Originally Posted by ItsWonderfulLife (Post 800979)
Hey all,
Have any of you used any Vitamin/Herbal supplemetation instead of pharmeceutical medicine to keep MS in remision and/or to treat symptoms? And if so what combination of them? Thanks and hope everyone has a good day :)

I was diagnosed in 2001, and during my time (several months) in a wheelchair I decided it was time to over hall my lifestyle. What this meant, was that as well as participating in energy type exercises from the East, like Qiong and Tai Chi, I dramatically increased my intake of fresh organic fruit and green vegetables.

My diet was supplemented with natural organic products such as green drinks, spirulena, chia seeds, hemp seeds, fish pure oils and more. Another important factor during my healing process was to explore new ways in which I could keep my thoughts constructive and positive. I found that by using visualisations techniques, neuro- linguistic-programming (NLP), and being kind to my self was very effective indeed.

Over ten years have past, and here I am, alive, well and feeling strong and healthy. I will be fifty in 2013, and I enjoy, cycling, jogging, QiGong and generally keeping healthy. I hope this has helped you with your question. Bye for now.


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