Really need help! dx now idiopathic neuropathy
 

Hi Friends,

Just got out of the hospital after a 4 day stay, I was at first DX with CIDP, but now after new testing and a 4 day hospital stay Doc thinks I have idiopathic neuropathy, He started me onGabipintin (sp?) I just don't know what to think at this point. I guess my question to you all is, can this condition get better? What is my hope for the future? What questions should I be asking my Doctor, this all seems so bleak to me, is it possible to live a long life with this? My symptoms are numbness in toes numbness and burning in legs, numbness in arms and twitches all over the place. What are some of your symptoms who have been diagnosed with this ? Thanks for any help. Jan

Jan,

There's a "STICKY" right at the top of this group called Neuropathy does improve, so yes, it can get better. To what degree depends on the cause and other factors.

Yes, it is possible to live a normal lifespan with PN, but again, that depends on other factors as well.

There are also other STICKY threads and a sub-forum on PN Tips, Resources, Supplements & Other Treatments that should answer many of your other questions, including things to ask your doctor & tests to request.

My personal theory on all of this is, If it can't hurt to try it, then it can't hurt to try it. With that in mind, barring any allergies or other reactions (which are possible but unlikely if not rare), I'd get on a regimen of:

Sublingual B-12 - 5,000 mcg. 1/day (on an empty stomach)

R-Lipoic Acid - 100 mg. 1/day
Acetyl L-Carnitine - 500 mg. 2/day (once with the R-Lipoic Acid)
Pantothenic Acid - 500 mg. 2/day (once with the R-Lipoic Acid)

The sooner you start taking these, the better. Some other folks here may have some further suggestions.

After you've read the threads and other links here, and had some more testing, you'll have a better idea of what other things to add to the regimen.

Doc

I've responded to you via PM today, more completely.

But please Liftyourhands, post more details on your lifestyle.
We all have to be detectives to find what it is that triggered you into PN symptoms.

Diet can be a big factor, and some people with gluten intolerance develop malabsorption of nutrients from the intestines. When this happens you can develop deficiencies in addition to neuro symptoms. Getting tested for B12 and Vit D is a good start.
But minerals often are affected as well. Magnesium, zinc for example.

If you use OTC medications alot, like Zantac or Prilosec, you can become low in 6 nutrients: B12, folate, magnesium, iron, calcium and zinc.

PN is mostly a lifestyle problem, meaning something in your life is not working well for you. Sugar control, poor diet, gluten intolerance, other food allergies, exposure to toxins, RX drugs, vaccines, dry cleaning clothes exposure, pesticides, and many more. So looking back at your LIFE when this started, and carefully looking at your home, office, food, hobbies, can sometimes provide hints, so you can correct that.

As MrsD said, many things can be factors and it can take a while to find the trigger or cause. The more information you can provide, the better.

Did these symptoms start gradually, or suddenly? How long ago? Also, did it start at toes, and work it's way up, or start in all listed areas at once.

And--
 

--can you post results of testing that was done, especially any serological tests for anitbodies?

There are a number of autoimmune neuropathies that do not necessarily involve the anti-nuclear antibodies characteristic of vascular/collagen/connective tissue autoimmune conditions (though those can cause neuropathy too), but involve antibodies to specific components of peripheral nerve, and everyone should be tested for these if cause is not obvious (and it often isn't):

http://www.neuropathy.org/site/DocSe....pdf?docID=944

http://www.questdiagnostics.com/hcp/...eralNeurop.htm

Symptoms and results
 

Thank you for all your posts, I am now going to give you all the facts about myself and what test results I have, I so appreciate you taking the time to help me, I feel like I'm dying with all this pain and numbness so here is my story with this disease, in Nov. Dec. Of 2010 I was very ILL with a cough that lasted for a couple of weeks and I also had several colds that I could not shake, as soon as I got over one cold I would get another one, also around Oct. Of 2010 I received a whopping cough vaccine recommended by my Doctor because my very young grand kids live with me and I wanted to protect them so I got the vaccine. January of 2011 I noticed numbness between my second and third toes on my left foot, I did not at that time seek medical help, about 2 months later I experienced numbness tingling and burning going up into my left leg, still I did not think anything was seriously wrong, then the numbness and tingling moved over to my right foot in the big and little toes, that took about 2 months, then very quickly I would say about 6 weeks numbness and tingling moved up into right leg, both legs now have numbness and tingling from toes to mid thigh, I only have burning pain in left leg, I am a worship leader in my church and when I stand for to long my feet go numb and burning pain starts in left leg, and numbness goes up my legs, then about 6 weeks later numbness starts in both arms at same time, the numbness starts in my wrists and goes to upper arms, A few weeks later is when pain started, both legs feel tight and my calves feel painful and tight sometimes, my thumb and little fingers on both hands cramp up my upper arms feel so much pain like someone hit me really hard, I feel weak and heavy and fatigue, I went to the ER Wednesday night because I was so weak, I feel like I have the flu all of the time, I just feel very sick, they ran many tests at the hospital especially blood tests,they said they were all normal I don't have the results for those tests but I will get them for you guys and post them, they also did a glucose tolerance test, normal results, MRI, normal, they put me in the hospital for 4 days and did all kinds of tests, the first Neuro Doc I saw 1 week before going into the hospital did a spinal tap, he reported slightly elevated protein levels the glucose level in spinal fluid normal results, I fo have these results which I will post to you, glidin IGG, IGA ABS less than 3 shoes negative, Monoclonal Gammopathies serum result not deceted, SCL-70 less than 11 result negative, Sjogrens less than 11 negative, thyroid hormone 3.30 result normal, hepatitis B non reactive, hepatitis C non reactive, HIV Non reactive, ESR 7 result negative, He told me my vit B was normal but I will get that result and post it along with any other blood tests, maybe you all can see something I don't, I also want to mention I had a Nissen Fundo stomach surgery 7 years ago and suffer from dumping syndrome a lot of Diarreah over the past 7 years. My first Neuro told me from my symptoms and slightly elevated spinal protein he Dx with CIDP, and that it could be treated with IVIG I was relieved to get that DX because it could be treated, then when the partner saw me in the hospital he said he believed I had idiopathic neuropathy, I then became more worried and distressed and very depressed, it seemed like there was not much hope with this DX he prescribed me Gabapentin 300mg 3 times a day, it helps some but not much, I also have Xanax but I forgot to ask him if this could be taken with Gabapentin. I am losing strength and feel weaker everyday although still functioning, oh also I have twitching everywhere which started 2 weeks ago, just another lovely symptom. I am absolutely miserable, I was released from hospital yesterday and see my first Neuro Doc Wednesday, I will read the stickies to see what questions to ask. Now I need your help I have tried to provide you all with everything I can think of how this all started, thank you in advance for all the knowledge you all have, I appreciate you more than you can know. God Bless you. Jan

Other symptoms
 

I also forgot to mention as a result of Nissn Fundo (stomach surgery) I have a condition known as Reactive hypoglycemia, I saw an endocrinologist in the hospital and he does not believe PN I s caused by the reactive hypoglycemia. Any thoughts on all of this mess appreciated. Thanks everyone. Blessings, Jan

Thanks for that history.

This is what I see:

1) according to the NEW scale for thyroid disease, which goes from 0-3.0...you are hypo. The old scale went from 0-5.0 and is still used, but many doctors are switching to the new one.
SO... you are in limbo with that. The older doctors will not treat, but a newer one will. My PN started with borderline hypothyroid and I resolved almost 100% with treatment. This will be a battle for you to get done.

2) Vaccine injury is real thing, but most doctors don't believe it. Vaccines stimulate immune response because of the added adjuvants in them which provoke cytokines, which are inflammatory molecules that circulate in our bodies. Sometimes this goes nuts and these then attack our tissues instead. Did you feel ill right after that shot? Fever, or aches etc? Chronic colds and upper respiratory infections, suggest you are low in Vit D. This should get tested. Fixing it will improve your resistance to infection.
I am not finding specific references to Pertussis vaccine, but other vaccines have caused what is referred to as "post vaccine neuropathy"
and it can also occur with the common flu vaccine.


3) Were you given antibiotics for your colds and cough? Levaquin, Avelox or Cipro? These drugs cause PN in some people..and treatments for it are lacking. I have a post in the subforum about this. So did you receive either of these drugs?
Do you take a statin for cholesterol?

At this point, you can try to use a magnesium supplement either oral or topical and see if the twitches improve. Low blood sugars during the day, can cause many symptoms. It would be a good idea to get that glucose tolerance test results to see if you have reactive hypoglycemia. Sometimes doctors ignore this, and only look for HIGH signals. The lows are important too.
Low blood sugar spells cause numbness, tingling, muscle twitches and anxiety...all the things you have.

These days after being online for over a decade, what I see are people who are told "normal" but who in fact are not. Their doctors don't interpret the test results completely. It happens with B12 results, Vit D and glucose results.

This is my magnesium thread:
http://neurotalk.psychcentral.com/thread1138.html
It is estimated that about 70% of Americans do not eat foods providing this mineral and hence are low. Target 1/2 the RDA from that post as a starting point. Choose a good product and NOT the oxide form which is in many supplements.
You can choose to use the lotion, and that may help faster with your muscle twitches. CVS Epsom lotion at CVS pharmacies.

So when you get your test results, post them here.
Did they do a Vit D test on you? Very low D also causes problems...so if that was not done, please get it tested ASAP.
Come back here with the results, and do not use the RX the doctor may give you--it doesn't work well. You will need D3 which is only over the counter and is the active form for humans. The RX is D2 and from plants, and NOT active.

Medicine today is very complex, and unfortunately with all the details doctors are quite lost at times.

You may be able to find a neurologist who is informed, but they are few and far between. Johns Hopkins has a center and so does the hospital Glenn goes to in NYC. There may be other good ones, but they are hard to find!

This sounds--
 

--like a sub-acute autoimmune molecular mimicry reaction from the description provided (not all that different from the one that presumably caused my acute-onset body-wide burning neuropathy in 2003--just a little bit slower in onset).

Many times a prodrome infection or vaccination can cause an autoimmune cascade that attacks nerve (and other tissues). Molecular mimicry is a leading hypothesis into the etiology of autoimmunity--the body mounts an immune response to a pathogen that has a molecular shape similar to that of some bodily tissue, and the now activated immune system attacks whatever has that molecular shape, including the body tissue, and has great difficulty in shutting off.

As I mentioned earlier in the thread, much more extensive testing--likely available primarily at a major neuropathy center (Johns Hopkins, Cornell Weill, Jack Miller, Massachusetts General, Jacksonville Shands) may be called for here.

Just curious - would this make a difference in treatment/prognosis?

Doc

I really don't think people who have neuro issues (suggestive of inflammation problems) should get unnecessary vaccines!

I've posted so much about it, I am exhausted!

If you search here or on NT in general there are many discussions
on various forums that include links that are very revealing.

Dr. Blaylock MD on YouTube is one very vocal doctor warning about this, and he explains it well in a series of YouTubes with interview with Dr. Mercola.

Just search Dr. Blaylock... there, and you will understand more.

And yes, reactive hypoglycemia is serious, as it is starving nerves when your sugars are low. Getting rid of sugar in all forms and following a balanced diet like the Zone Diet, can help prevent those lows. Just Google Zone Diet.

Reactive hypoglycemia is really insulin resistance, which is a form of prediabetes, and a known cause of PN...
http://www.citeulike.org/user/wrs1/article/6499468

Mrs D, does that mean no flu shots. My doctors keep insisting that I get one. I do work as a nurse. What do you think? hopeful

Perhaps. Inflammatory neuropathy may respond to vigorous antioxidants, fish (or Krill oil), Vit C etc. Sometimes NSAIDs in short bursts help too. It would be worth a try to see if the AlkaSeltzer intervention works for example.

It may be she has a mixture of triggers, each alone would not be much of an issue, but all together they add up to more symptoms.

Thanks so much
 

Thank you so much MrsD, when you say my3.3 thyroid test is elevated according to the new scale, do you think thyroid treatment would help, because I am a fighter and if you think treatment might help me I will give it my best try to get it, it would not hurt me to try treatment right? To answer your questions no I did not get antibiotics for my colds and cough just suffered through it, no I don't think this all started after vaccine, I was however given Cipro in the hospital for a bladder infection just a few days ago. I am seeing my First neurologist tomorrow, I am going to ask him why he and his partner who I saw at the hospital had 2 different opinions on my DX, who am I suppose to believe or are they both wrong. I am also seeing my Family Doc on Wednesday I will get my B12 results and post them back here. I also am going to ask him if he will refer me to a Neuro Doc at UCLA medical center here in Los Angeles, do you or Glenn know anything about this Hospital? I could go to the hospitals you suggested but I live in LA and it would be difficult. This is a very good University hospital from what I hear. I plan on getting all of my results from all of my tests and taking them with me. Another question, I am on Gabapentin for pain 300mg 3 times a day, some people on here experience hair loss is that a common side affect of this drug or does it just happen to some? Also do I need to talk to my Doc about all these supplements before going on them or is it safe to go ahead and start them, will it affect the other drugs I take which are Gabapentin, baby Aspirin, Xanax? I just want to get better so your prayers,friendship and knowledge mean so much to me. I know it takes so much of your time to respond, know I am really listening and learning from all of you, and may God richly bless you, Jan

I cannot really TELL people to not get vaccines. That is not my place really. It is a personal decision after all.

But our medical society does NOT know or reveal the risks of them so that people can CHOOSE safely.

People should weigh benefit vs risk, before deciding for themselves.

Vaccines contain adjuvants, which stimulate inflammation and immune response. Some people over-react and this inflammation becomes damaging and does not turn off. It is called a cytokine storm (new term now). People who have become ill right after vaccines... are reacting that way and it should be a warning sign for them.

People with adequate Vit D levels,may tend to get far fewer contagious illness. A study was released in Japan recently showing dramatic decrease in flu incidence with Vit D.
http://www.timesonline.co.uk/tol/new...cle7061778.ece

Example of Dr. Blaylock:
http://www.youtube.com/watch?v=--nWrqIspnQ
This is a 4 pt interview... please watch them all...as he explains adjuvants and cytokine storm.

http://www.youtube.com/watch?v=zCBlx...eature=related
an overview about the questionable effectiveness of annual flu shots.

And I just found this...if you really want to be disgusted!
http://www.youtube.com/watch?v=vgBBw...eature=related
Soundtrack of interview with the doctor who managed Merck's vaccine program!

Got Vit B12 results
 

Ok everyone got Vit B12 results 380 neruro said this was normal, I saw neuro again today he did another EMG it was normal, I asked him again if he could put some sort of label on me, he just could not he does not know what to call what I have, I am trying to get referral to university hospital here. I also wanted to let you know that he will be doing a vit D test sometime this week, he said he did not know why he did not already do one, I also asked him about my thyroid test and the new rating scale and as you said mrsd he just dismissed the possibility of me being hypo, I still am going to fight that one. He also added more meds to the Gabapentin, he gave me nortriptlyne, so now taking both. Any comments welcome. Jan

Definitely think--
 

--that B12 is to low, no matter what the range says.

Probably couldn't hurt to supplement with a daily oral dose in the 1000-5000mcg range, preferably methylcobalamin (so your body has to jump through fewer metabolic hoops to utilize the B12).

Ditto what Glenn posted.

You are showing poor B12 status, and could use an aggressive change in that. B12 is not a worrisome supplement with risks.
So start that ASAP oral 5mg daily on empty stomach--methylcobalamin type-- for 3 months. And see what happens with your PN symptoms. That reactive hypoglycemia? That is a prediabetic state, and studies show prediabetes starts the PN process. You can only benefit from the B12.
Puritan's Pride and iherb.com and places like Vitacost and Swanson's--all carry it now inexpensively. Pennies a day.
This week the news has been flooded with B12 preventing cognitive problems in aging people. It was even on CNN and has been posted here on the various boards more than once.
The NIH recommends all people 50 and over (symptoms or not) to be taking a B12 supplement.

The meds you list are typical for PN. But they do not restore you or help you heal, they just cover symptoms for the most part. Some studies suggest that the nortriptyline may encourage nerve growth in the periphery, but that is still experimental and rather new.

Start modifying your diet. Get rid of sugars and starchy carbs, which stimulate the reactive hypoglycemia. Slow carbs instead will keep your blood sugars from getting low... legumes, beans, nuts, fruit with fiber like peaches/oranges/berries, veggies, etc. Avoid fruit juices. Fiber in fruit delays absorption and moderates blood sugars.
Increase protein to about 40% of calories a day and use good fats like omega-3s and olive oil to keep food in your stomach longer so the blood sugar spikes at mealtimes will be lower.

I'd get an A1C run to see where you are in that department. A higher A1C can show you have spiking after meals, with high sugars followed by low. It is a good test to reveal how your diet is working for you.

It will be a battle on the thyroid issue. In my case I had a right sided goiter with my borderline tests. The doctor ran a radioactive uptake and found my left lobe was partly dead and hence my problem was "undiagnosable" but he gave me the hormone anyway because I had signs of hypothyroidism. I settled in at 75mcg a day after the first year and have remained at this level for a while now. Signs of hypo= intolerance to cold, the PN (I had carpal tunnel in my hands severely too), edema of the hands, face. And orange tinted palms and feet...this sign is very typical of hypo people...because the betacarotene in vegetables we eat is converted in the liver to Vit A...using thyroid. I had the orange tinting of the skin very obviously... along with brittle nails, etc, and he used that finding along with the radio uptake to decide to put me on hormone which actually SAVED me!

But unless you see a holistic doctor who does bioidentical hormone treatments, you will have a battle with many endos to get treated with your test results.

Medications and supplements
 

Mrsd and others,

Here is a list of my meds and supplements that I am planning on using for my PN, please keep in mind I am not a pill taker at all and this is so hard for me, I suffer From OCD and one of my triggers are medications and illness, now I have to face both very frightening! Here goes, Juice Plus, Omega3 fish Oil twice a day, 1 multivitamin once a day, Protandium, 5 mg. b-12 once a day, R-Lioc Acid 100mg once a day, Acetyl Carnate 500mg twice a day, Pantothenic Acid500mg twice a day, 80mg. Baby aspirin, Nortryptlyne 10mg. 3 times a day,Gabapentin 300mg 3 times a day. Xanax as needed. This seems like so many things to be taking will I be alright with all of this, I also suffer heart palps, will any of supplements make this condition worse, I am going to my family Doc today I will also show him this list, but I trust you all on here also so any comments so appreciated, I don't know if it would be good to add all of this at once or just do one at a time over a particular time. Thanks so much. Jan

If you have unusual heart beats.... you should get a screening EKG before using the Nortriptyline. This drug prolongs the QT segment of each heart beat and can affect the heart.
In the low 10 mg dose,it is not so much of an issue as when the dose is much higher. But it is good to get that done anyway.

I have no experience with Protandim. However, it is an herbal product and as such, you should be careful with it IMO.

I would not use this now, but wait until you do the other supplements first. YOu may find you don't need Protandim at all.

I am leary of herbal products, especially mixing them with RX drugs.

My Primary Doc is so Great
 

I saw my Primary Doc today, he is re testing my Vit. B12 He said you are probably right my Vit. B12 should be higher especially with my symptoms, I am hoping this could be my problem, wouldn't it be great if it's that easy!

He also is retesting my thyroid at my request, so today was a good appt. Also I have had an EKG in the hospital last week it was normal. Today he also did a Vitamin D test as well. When the results come in I will post them. I do believe the Lord is going to reveal my problem to my Doctors, and I also want to thank you for all of your suggestions they have been so helpful and I am grateful that I have a Doctor who is open to these suggestions. Jan

Getting really depressed
 

Just got test results back from blood test taken yesterday, again Doctor says my B12 levels are normal, he left that message on my answering machine did not tell me what levels were, but I will get them and post them here, also numbness is moving into my face now, so I am numb from toes to head now, this is all happening so fast and my Neuro Doc does not want to see me for another month, I guess he feels he has done all he can, I just feel lost and overwhelmed, I am going to try supplements as suggested on here, where can I buy these supplements, did I hear someone say Puritans pride? Again can someone tell me what I should start taking, I'm sorry to ask this question again, I'm just so depressed right now and don't know if you have already told me this. Sometimes it's just so hard with this disease to move on, but I will I have no other choice. Thanks, Jan

In your previous post, you listed Protandim... I'd stop that for now. Also are you taking that Nortriptyline 3 times a day? It will be quite sedating if so in the beginning.
You really need that Vit D tested. Without a test to guide you dose wise, you can start now at 2000IU of D3. This is inexpensive and readily available in stores or you can order when you get the B12 for now. There are beginning studies showing low D3 can impact diabetic neuropathy.
Your reactive hypoglycemia qualifies for a diabetic PN label.

Make sure you take the B12 on an empty stomach.
Supplements take a bit of time to get working. They are not fast like drugs. In a week or so you should see some improvements.
Puritan's Pride, iherb.com and swanson's all have quality brands at reasonable prices.

Vit D
 

MrsD,

Thanks for all your help, yes Doc did do Vit D test he does not have it back yet I will post results when I get them, I also will not take protandim yet. The nortryp I am only taking once per day I'm sorry I did post 3 times a day, correction only once per day at bedtime.I have another question for you, I have fake nails, they are acrylic, I have had them for years with no apparent problem, could this be an issue now, I don't believe so but could use others opinion.Jan

I am sorry I can't say about the "nails".

Exposure to solvents however, over time defats the skin around the nails. That means it removes protective oils in the skin.

Your problems started in the feet. So to get that effect I think you's have to inhale the solvents regularly. Do you smell them at the nail salon? That part may be the problem.

New resuls what do you think
 

Hi MrsD

Here are new blood test results, thyroid stimulating hormone, 2.52 normal,homocystine,12.1, normal,FreeT4M0.86NG /DL,Normal,FolicAcid20.0 VitaminB12 516PG/ML, all are within normal range this round of blood tests. Thanks for any comments, I just want to feel better and I don't yet. Thanks, Jan

Well, good that the thyroid is better.

Make sure you have zinc and selenium in your diet to help convert the T4 to T3 in tissues. And keep an eye on it.

The homocysteine really should be lower. I know the ranges are up to 12, but really you should be at around 8.
I'd raise the B12, using methyl B12 orally daily on an empty stomach. Your B12 is really borderline...and with people who have neuro symptoms having a higher level is good insurance for symptoms. 1mg should be enough for you and do this every day.
Make sure you get enough folic acid either in supplements or food.

You are not home free however, with that reactive hypoglycemia. Do you have a plan for that?

Thank you MrsD
 

Yes I do have a plan for the reactive hypo, I actually am going on a pretty strict diet that my brother who is a personal trainer is putting me on, I am hoping in time I will feel better my symptoms are so bad that sometimes I wonder if I'm going to make it through, but I lean on the Lord so I will make it.My Brother also started me on Real Water, ever hear of it? Thanks so much for all of your help, I will report in every few days to let you know how I'm doing, right now I have a terrible cold and cough, I feel like my neuropathy is worse is that possible? oh also one more thing, my brother wants me to start the protandim right away but I have put this off due to your advice, maybe I can add this later, he really believes in it, I guess it really helps the free radical issue. Thanks again, Jan

When you get your D fixed, you will find you don't gets colds and coughs so often.

Also using a quality fish oil, or the new Krill oil, will provide the essential fatty acids that line the lungs and bronchi and make them more resistant to infections.

There was a time in my professional life (exposed to all manner of communicable disease), that I would have chronic asthma and bronchitis all year long. When we started taking essential fatty acids here along with my son who had ADHD, we all benefited in ways not expected. My chronic GERD (from a hiatal hernia) went away too. So if you do not eat salmon frequently or use the Smart foods out there now (ex: Smart Balance and Omega-3 eggs) you need to take the EFAs in supplement form. I haven't had a real bronchitis, in a decade, except for one time my cat sneezed on me, and gave me some nasty bug. And neither my husband or I have had a serious case of flu in many years (we never get the flu shots either).

You can quench free radicals easily from foods if you choose. I'd stay away from herbs since you use RX medications, because herbs contain proto-drugs and may have unexpected interactions. Not all herbs have been studied carefully in this regard.

If you were NOT taking the drugs, then there would be less risk with herbs. Foods high in antioxidants are foods of "color". Berries like strawberries, blueberries, etc. You can substitute sweet potatoes/yams for white potatoes and get more fiber and the various carotenoids which help with free radicals. Squash and red/yellow/orange peppers also are very useful. Curry spice with its turmeric supplies curcumin which is a powerful antioxidant. Grapeseed extract also works very well for allergies and free radicals...and is very good at free radical scavenging. It can help people with RSD (another type of neuropathy ) as well. Grapeseed is available as a supplement for typically little cash outlay.

Do keep us in the loop and post about your progress.

When trainers enter the picture, I'd just give a simple last recommendation. Make sure you stay hydrated and drink alot of water, as you increase your protein level and take some supplements.
If you have any kidney results from testing that bear watching, discuss things with your doctor.

vit D results
 

VitD 25 Hydroxy 30NG/ML VitD25-oH D 2<4 Reference range() Flag:N

Vit3 25-OHD3: 30NG/ML Ref range() Flag N Methymalonic Acid Serum<0.10 RefRange<0.40 Flag Normal. Don't know what this all means but Doc says is normal. Thanks MrsD. Jan

30ng of D3 is the lower end of the "normal range" currently used in medical testing in US. If you follow the new D information, 30 is too low to accomplish further benefits which only show up at higher serum levels.

Here is my D thread with a medical video explaining:
http://neurotalk.psychcentral.com/thread85103.html

It is up to you if you want to explore further D options.

MMA is another B12 test. It shows if you have enough B12 to metabolize MMA properly. It is a good test, but some people just need more than others. Without a serum test as well, you won't know where you are exactly.
Here is the link to Dr. Snow's medical article on B12.
http://neurotalk.psychcentral.com/post698522-70.html

He believes there is a small subset of people with fairly normal blood readings who still suffer from neurological symptoms. For those people he suggests using B12 anyway, since it is non-toxic and inexpensive.