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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   I feel like a weather forecaster... (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/159371-feel-weather-forecaster.html)

Russell 10-18-2011 05:30 PM

I feel like a weather forecaster...
 
Boy it's starting to rain here. I knew it was coming. My RSD hand is ice cold and burning at the same time. It's vary cold to the touch but painful when I do the slightest touching. I hate this!
I can just imagine how much more pain I would be in if it wasn't for the Lyrica I take. I know that some of you if not all go through the same thing. I just needed to vent. It helps...

P.S.: Thanks for listening...

kathy d 10-18-2011 10:08 PM

Hi Jimbo,
I hear ya...I have gotten so good with my weather forecasts that my friends and family will sometimes call me and say "What do you feel like?" and "Is bad weather coming?" Years ago I could forecast it a week before but the last two years I have it down to two days before any kind of weather change. I can give you a 1/2 hour to an hour window of when the rain/snow will actually fall!! lol. It is crazy I agree. Funny you say ya'll got the rain already in NC. I was sitting watching tv earlier tonight about 9 pm and thought it was strange my right foot (initial site of injury) was burning hot and it is usually ice cold and burning until 2 am. I thought it strange but since you said the rain it made me think the rain is almost here in PA. I am sure we are all better than the guys we see on tv that "think" they know when the bad weather is coming. We all know for sure when it will be here. The worst storms are the ones hitting now...the weather has turned from hot/humid to cold/damp (yucky)...then you add a Canadian cold front coming down here and it gets right into my bones. Winter seems to be the worst of all seasons for me too. Hang in there...Spring is only six months away!!!!!!!!!!!!!!!!!!!!!
kathy d

cindi1965 10-18-2011 11:10 PM

I just said this to my husband this morning! It has been such a weird summer and fall with the strange weather activity where I live. This one story is the craziest pain/weather episode that I've experienced in my three years with RSD..

It was a beautiful end of summer day. They were calling for storms later in the evening, but I didn't have my usual pain/swelling/achy/burning...I took my dogs outside and they were playing with each other when out of nowhere a black cloud started forming over the river near my house. I took them inside and prepared myself with a few pain pills and a xanax. When the storm hit, it hit hard! It was like someone just started punching me with a basball bat and burning my leg with a hot poker while pushing it into my leg bone. I couldn't walk or stand up; I felt like I was going to vomit. My son said that my face was white and I looked like I was going to pass out. This is when the video camera would have come in handy.

With all that said, I certainly have kept a close eye on any weather activity in our area (even though my body usually tells me first, but not that time!!)...when I first was diagnosed my neuro told me NOT to get on the internet and look anything up about RSD, (for fear of me developing symptoms by the power of suggestion.) That was in 2008 and when I couldn't stand it any longer, I found this forum and it really saved my life and helped so greatly with my mental health. If I had't found it, I would still be lying on my couch, in the dark, begging my husband to admit me to the mental ward! :grouphug:

LIT LOVE 10-18-2011 11:36 PM

And here I was expecting to hear you had gone to the tanning salon today, had your teeth bleached, and found a lovely new plaid sports coat...

alt1268 10-20-2011 02:39 PM

lol lit love. :Funny-Post: I needed that with the cold, windy, weather that has set in. last night my foot was swollen, ankle black and blue. Lower back pain, cold leg, etc. etc.
Quote:

Originally Posted by LIT LOVE (Post 816221)
And here I was expecting to hear you had gone to the tanning salon today, had your teeth bleached, and found a lovely new plaid sports coat...


LIT LOVE 10-20-2011 02:54 PM

Quote:

Originally Posted by alt1268 (Post 816726)
lol lit love. :Funny-Post: I needed that with the cold, windy, weather that has set in. last night my foot was swollen, ankle black and blue. Lower back pain, cold leg, etc. etc.

I've been trying to inject levity whenever possible lately, and Jimbo is always such a good sport, that he makes it so easy to tease him!

Russell 10-20-2011 04:51 PM

Quote:

Originally Posted by LIT LOVE (Post 816734)
I've been trying to inject levity whenever possible lately, and Jimbo is always such a good sport, that he makes it so easy to tease him!

Why's everybody always picking on me?...
:Dancing-Chilli:

LIT LOVE 10-20-2011 05:44 PM

Quote:

Originally Posted by jimbo (Post 816763)
Why's everybody always picking on me?...
:Dancing-Chilli:

Picking on you implies you're a victim. And how ANYONE can claim that while wielding something as DANGEROUS as a Dancing Chilli Pepper, in an RSD forum, is beyond me! Capsacin is scary stuff, sir! :p

Russell 10-20-2011 05:55 PM

Quote:

Originally Posted by LIT LOVE (Post 816792)
Picking on you implies you're a victim. And how ANYONE can claim that while wielding something as DANGEROUS as a Dancing Chilli Pepper, in an RSD forum, is beyond me! Capsacin is scary stuff, sir! :p


:Oops::sorry:

gabbycakes 10-21-2011 04:52 AM

Can totally relate
 
I can relate totally. Weather/Temp. change is always the biggest trigger for me. I sympathies with everyone I just hope this is not a sign of what this winter will be. Huh.....

What does help for me is if it's hot I use an ice pack if it's cold I use a heating pad. Since my injury I have always had trouble with my arm being super cold then super hot.

I hope everyone has a pain free day.

gabbycakes

LIT LOVE 10-21-2011 12:59 PM

RSD+ICE=nerve damage.

Or should I say further nerve damage?

Please read Dr. Hooshmand's puzzle #102. Sorry, I'd link but I'm on my phone!

Be careful of Ice period, not just in RSD effected limbs. The intolerance can increase over time and spread into your "good limbs."

Russell 10-21-2011 06:56 PM

I agree with Gabbycakes. I sure hope all our weather triggers this early doesn't mean we're in for it again...

alt1268 10-22-2011 08:49 AM

I need warm weather this is rampaging my body. Everything just aches and now the bottom of both feet hurt. :Sinking:
Quote:

Originally Posted by jimbo (Post 817148)
I agree with Gabbycakes. I sure hope all our weather triggers this early doesn't mean we're in for it again...


catra121 10-22-2011 10:19 AM

My boyfriend told me that it said in the paper that we are in for a colder, wetter winter.

:(

I am NOT happy about this. I can already tell that my pain level is higher despite using everything I have to help it (TENS unit, Lidoderm Patches, heating pads, etc). I keep the heat on the first floor in the 70s PLUS I have my electric space heater...and even that is only helping so much. Sigh...it is not going to be a good next few months. When does Spring come again?

Russell 10-22-2011 11:33 AM

Not sure where the cold front came from or going but it's here. I woke up freezing. My RSD hand and foot have burning pain and I can't seem to fully wake up.
I took my morning med and I'm making some coffee hoping it might help. Not sure what I'm in for today. I never had this much trouble waking up before...

alt1268 10-22-2011 11:43 AM

I woke with both arms hurting, left hand pain, right foot killing me. Took hot bath, still not helping. Time to move south West (if money would allow) I just don't think I have another winter in me.:sad-dollar:

Russell 10-22-2011 11:48 AM

Quote:

Originally Posted by alt1268 (Post 817354)
I woke with both arms hurting, left hand pain, right foot killing me. Took hot bath, still not helping. Time to move south West (if money would allow) I just don't think I have another winter in me.:sad-dollar:

I'm starting to think Yuma, AZ myself...:sunchair:

alt1268 10-22-2011 11:57 AM

can I come jimbo? :partytime2:

Abbie 10-22-2011 04:22 PM

I've said since shortly after diagnosis that I felt like a weather person!!

I can feel the weather changes about 48 hours ahead of time.

In the last 2 weeks we've had temps in the 80's down to the 30's with rain!! Today we're back into the upper 60's and Sunny!!

What is a person to do??

My body has been SCREAMING!!!!!!!!!!!!

LIT LOVE 10-22-2011 06:40 PM

Quote:

Originally Posted by Abbie (Post 817413)
What is a person to do??

You move somewhere warm. Seriously. I'm in Cali and can't imagine living anywhere cold. I have a few more things to try medically, and then if I don't have anymore improvement, I'm moving somewhere I can swim 365 days a year. My list 1)Hawaii 2)Scottsdale 3)Plam Springs. But, my son is away at college and I'm single, and no longer tied down geographically...

Anyone that hasn't swam in warm ocean water really should try it, it's like a very large bath with Epson salts! Pools work too, but IMHO the ocean is far better.

Perhaps, we could somehow convince the general population that RSD is contagious, and then we could start an RSD colony somewhere in the South Pacific?

fmichael could probably write a grant proposal and get us the several millions we'd need from the Gates Foundation, or the like...

Sorry, I've been hitting my breakthrough meds a little heavy this week. ;)

alt1268 10-22-2011 06:51 PM

Lit Love,
Sounds like a game plan to me. Is there a vacant island? I wonder if we could get a grant? LOL
:D
Quote:

Originally Posted by LIT LOVE (Post 817453)
You move somewhere warm. Seriously. I'm in Cali and can't imagine living anywhere cold. I have a few more things to try medically, and then if I don't have anymore improvement, I'm moving somewhere I can swim 365 days a year. My list 1)Hawaii 2)Scottsdale 3)Plam Springs. But, my son is away at college and I'm single, and no longer tied down geographically...

Anyone that hasn't swam in warm ocean water really should try it, it's like a very large bath with Epson salts! Pools work too, but IMHO the ocean is far better.

Perhaps, we could somehow convince the general population that RSD is contagious, and then we could start an RSD colony somewhere in the South Pacific?

fmichael could probably write a grant proposal and get us the several millions we'd need from the Gates Foundation, or the like...

Sorry, I've been hitting my breakthrough meds a little heavy this week. ;)



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